Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Dejaunee

  • Rank
    New Community Member

Contact Methods

  • ICQ 0
  1. Scott, about two plus years back I spoke with you by phone. I tested positive for celiac disease back in 97. I was hit with it in 94. But you know well how, back then, diagnosis of the disease was rare. In my case it came only after much research and effort on my part and then only after requesting I be tested for it. Given my symptoms were in line with celiac disease. Reason for this correspondence is: for the past several years I have been able to enjoy but one of the many Soy milks on the market. Given that the protein is the offending culprit often in celiac disease patients, somehow this one brand had it just right. And as I said, for years I relished the drink and the nutritive value in it. Ruefully, last year they decided to add organic cane sugar to it. Dang! For me, sugar is out. The enzymes needed to digest it lost from the damage done to the villi before proper diagnosis of celiac disease and the implementing of the subsequent "offender-free" diet. As I am sure you know, in sever cases eliminating only gluten is not enough. Lactose, sucrose, fructose, etc., all can be problematic to the Celiac patient. Though I know my case is a sever one, I know I am not alone there. Hence my contacting you today. I believe there must be others out there who also were limited to this one agreeable product that is now being made with sugar, and as such, no longer agreeable. I have contacted the company and pressed the need that they return the original recipe for folks with sever celiac, not able to have sugars or concentrated forms of the soy or rice protein. Seems if they received sufficient calls they would perhaps be inclined to provide this formerly cherished, not to mention nutritious, beverage for those of us with sever Celiac. The product info is: WESTSOY PLUS; SOYMILK-vanilla or regular made by: HAIN CELESTIAL GROUP, INC. #1-800-SOY-MILK Your help is greatly appreciated. Debi M. Brand