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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About celiacgirls

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    Austin, TX
  1. Enterolab recommended I start with just the gluten antibody stool test. I ended up doing the whole package of testing piece by piece because I wanted to have baseline results. I'm not sure I will re-test those levels so it might not have been worth it but it was interesting to know.
  2. My 11 year old daughter has been gluten/casein free for almost a year. Before this, she was an extremely difficult child. She was even diagnosed with Oppostional Defiant Disorder. 11 months into the diet, I would say the only time she acts that way is when she has some gluten or casein. Sometimes I am pretty sure she has had it because she ate something that said "may contain traces of wheat or milk" and sometimes I am only fairly certain since I am going on how she acts. She has admitted to cheating by trying "a goldfish" or the frosting off from a cupcake but usually when her behaviour is bad and I ask her what she has eaten, she says "nothing". But life in our house has definitely improved since she has been on the diet. Apparently, when she started the diet, I told her she could do a gluten challenge after one year. My husband is not totally convinced she needs to be on this diet but he has said he thinks it helps. So he wants her to do the challenge. So last night, without telling my husband, I let my daughter eat chicken nuggets and a fortune cookie. She was difficult this morning but not as bad as I thought she would be. I see the connection but it is not enough for my husband to agree there is a definite link. My thought was she would be in such a bad mood that he would notice and probably point out that the diet wasn't working. Unfortunately, since her reaction wasn't that bad, it probably will undermine my whole argument with both of them that she needs to be on this diet. So my question is do you think I should continue to let her eat gluten until her behaviour is so bad that it is clear to everyone (my husband and her) that she needs to be on this diet? I'm concerned then it will be very difficult for her to go back to the diet, not to mention how difficult she will be during the challenge. My symptoms (mood) take 2 1/2 weeks to go away so it will be a long time if hers take that long. I'm also concerned about her sister because she can be very mean and violent when she's had gluten and her sister gets the worst of it. After I agreed to let her challenge it last night, she told me the day before she had cheated and had a fortune cookie. Just that morning, she had been very mean to her sister and hit her and I "knew" she had cheated but she didn't admit it. So this, to me, proves the point but it isn't enough for her dad. Of course, there is the possibility, I am wrong and she doesn't need to be on the diet. She's only been diagnosed by Enterolab and my observation of her diet response. Sorry this is so long. Thanks to anyone who has it all.
  3. I will update when we get back. I'm a little nervous about it because one of my daughters is also soy-free and a vegetarian (and gluten-free/CF). I will be really impressed if they can feed her. They assure me that they can, but I won't really believe it until I see it.
  4. I haven't been yet but we are doing the land/sea package this summer. My 2 daughters and I are all gluten/casein free. When I booked it, they told me that the cruise line was just as allergy friendly as the resort.
  5. I called the Cape Cod potato chips customer service to find out their gluten status. She said the only ones that are really gluten free are the russet brown chips. Some of the other ones, like the original, do not have any gluten-containing ingredients but are manufactured in the same room as some that do have gluten. According to her, the gluten is in powder form and is "flying around". Just thought I would share for those who don't like gluten flying around their food!
  6. Yes, it is possible. My last known glutening caused 2 1/2 weeks of depression, fatigue, and irritablity. On the positive side, I am not at all tempted to eat anything risky any more.
  7. My 2 daughters' behaviour is much better on the gluten free diet. They have never been diagnosed by anyone except Enterolab but I insist that they are very strict. Luckily, my parents and in-laws and their school respect my decision. My kids are older than yours so they can see the difference, too, and that helps. One of them did have stomach issues and that is why we tested with Enterolab after the regular blood tests were negative. My other daughter's only symptoms from gluten intolerance were mood and behaviour.
  8. Gluten Rages

    Casein causes a rage reaction in my daughter even worse than gluten does.
  9. I was in your situation. My oldest daughter was asymptomatic except for behaviour problems. She was growing but started off at 99+ on the chart and height was down to around 75. Not enough for the doctor to be concerned but I noticed and really thought it was due to her very poor eating habits not a problem with gluten. She was positive for gluten and casein and tTg from Enterolab. We tried the diet with her and her behaviour problems have disappeared unless she gets gluten or casein. There have been enough mistakes along the way that I am convinced she really does have a problem with them. I think if you try the diet, you might be surprised at what happens. If you don't see any difference after a year, you could re-introduce gluten and casein and see what happens. Based on our results, I do believe Enterolab but since they are not accepted by most doctors, and since we are not officially diagnosed with celiac, I think I would do a diet challenge if I wasn't noticing any improvements. My other daughter did have stomach issues from gluten and even though I suspected gluten was the problem, her blood tests were always negative. When I did the Enterolab test on her, it was positive. So a negative blood test does not rule out a problem with gluten.
  10. Glutened? Does It Happen This Fast After Eating?

    It is possible. I can tell before I leave the restaurant usually.
  11. Menopause

    The dot has worked for me as well as the premarin did. I don't have any symptoms of menopause. The doctor did give me a higher dose of the patch than the pill because she said it wouldn't be enough at that level. I never asked about the glue but I'm thinking it is ok since I haven't reacted. I do react to wheat in my shampoo by itching so I think I would know. ETA: I just called them and she had it listed as latex-free but not on the gluten free list. She did read me the ingredients and it all seemed fine to me.
  12. I've Learned To Hate Eating Out.

    That is pretty much what I do. It just is not worth it to take a chance most of the time. On those times when I have to eat out, I choose the restaurant carefully, pick something most likely to be gluten-free, and then explain to the waiter. I recently ate at an upper-end steak place and a Mexican restaurant where I just had rice and beans. I didn't get glutened either time so I'm feeling better about eating out but it still isn't something I want to do more than once a month.
  13. Bipolar And Celiac Disease

    I don't know of any studies. I do know my daughter was probably, according to her therapist, on the path to getting dx'ed with bipolar. She was diagnosed ODD/depression. Another doctor suggested she had Intermittent Explosive Disorder. She is not off from her antidepressant yet but we are tapering very slowly. The only time she acts that way now is when she has had gluten or casein. I'm convinced there are people diagnosed with bipolar who really have gluten and/or casein intolerance. My daughter looks bipolar to me when she has had casein. One minute she is happy and within 10 minutes she has turned into an aggressive, mean, unreasonable person. If I didn't know she reacted to casein, I would think it came out of nowhere. Gluten doesn't cause a reaction as quickly but does make her more irritable. This isn't for bipolar but I was able to go off my a/d starting 2 days after going gluten-free.
  14. My child is not yet a teenager and I do worry she will start cheating as a teenager. However, she was a very defiant 10 year old when we started the gluten-free diet. I feel like I've already experienced some of the teenage years. She also is not officially dx'ed and is doing the diet for behaviour/mood reasons. I encourage her not to cheat by providing all kinds of gluten-free junk food and treats so she is not as tempted. I used to try to restrict that but I have backed way off and let her eat potato chips and candy regularly now. I send cookies and other treats with her. We plan ahead for the situations where others will have things she can't have and make sure she has something she really likes so she feels less like she is making do. I also told her if I suspect she has been cheating that her activities will be restricted and/or I will have to go with her to make sure she stays gluten-free/cf. She really doesn't want me to go with her so I think that has motivated her. I know this is an extreme measure that you might not be willing to make but in my daughter's case, her behaviour was so extreme that I'm unwilling to just let it go when I know what she needs to do. I agree it is a hard diet if you don't see the benefits yourself. Maybe if you can get him to do it for a couple of weeks, even he will see the benefit. My daughter now gets a stomach ache and very tired if she has gluten so even she is forced to admit it is a problem for her. You could also get him the Enterolab test. He doesn't have to know that a lot of doctors don't accept it.
  15. Menopause

    I am on the Vivelle dot. It is a patch of just estrogen. I switched to it from Premarin after going gluten-free.