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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About I'dratherbecycling

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    New Community Member
  • Birthday 12/21/1975

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  • Interests cycling, running, hiking, cross country skiing... (pretty much anything in the great outdoors), painting, reading, writing
  1. Happy birthday and may God bless you today!

  2. G-f Soy Free Lipstick

    Awesome - thanks for the suggestion. I'll now be looking for Everyday Minerals and waiting with you for the re-issuance of the lip gloss.
  3. Anybody found a gluten-free lipstick that's also SOY free? Everything I can find contains tocopherols derived from soy.
  4. Aaaaaaaaarrrrrrggggghhhh!

    I can totally see that. I guess I feel cheated, too, just in sort of the opposite way. I am a cyclist and runner and I have also always been extremely careful about what I eat, so I've always been slender - since long before I got sick. And celiac (pre-diagnosis) actually made me gain wait, and going gluten-free has helped me get back where I was before. So when people tell me they want what I've got so they can be skinny, it irks me because I feel robbed of any credit for all the hard work I do to stay fit - as if the 25 miles a day on the bike and foregoing the Foods By George (amazing) brownies don't count for me!
  5. Aaaaaaaaarrrrrrggggghhhh!

    I just walked into the lunch room and nuked my gluten-free df tuna noodle casserole (disappointingly bland). Somebody asked me what was in it, so I told her it was gluten-free pasta. She responded by saying her aunt just got diagnosed with celiac, and a general discussion was started about it. People asked questions, I explained. At the end of the conversation one of the women in the room turned to me, and in all seriousness stated "Why can't I get that? Then I could be skinny like you!" The things people say before they think! I had just explained how dangerous it can be not to get ALL the gluten out of my diet and how difficult and frustrating it is to try to do. I'm sure other folks have heard similarly ridiculous comments - please feel free to share. It's such a relief to tell people who "get it" about such things. Somehow writing it here makes it easier for me to see the humor in such comments!
  6. I think it depends so much on the individual person, too. I'm ridiculously, irritatingly sensitive to gluten, and have had to give up eating any "gluten free" products that weren't produced in a dedicated facility because I wound up getting sick from foods so often that are supposedly gluten-free. I know other (lucky!) people who don't have nearly the kind of reaction I do to trace amounts of the stuff. But you're right - you can make yourself completely crazy trying to avoid every trace amount. The up side of being so darn sensitive is that I eat a whole lot of veggies - what else is there to fill up on?
  7. Ages Of Diagnosis

    Going off gluten I felt great at first, then all the symptoms came back about 3 months later. Felt crummy in every way, including brain fog, no energy, digestive problems, and I looked gray. Then I discovered there were 2 reasons I was feeling rotten again 1) I wasn't really getting all the gluten out of my diet (just because it says gluten free on the label doesn't mean it is) and 2) I have other food intolerances (took me a while to be willing to admit that because I didn't want to have to give up more foods). Give it a little time, but if you still aren't feeling remarkable improvement, it could just be other things you are eating. If I stay try clear of gluten, dairy, and tapioca, I feel like a million bucks. Any one of them makes its way into my diet and I feel awful all over again.
  8. Tylenol Pm

    For what it's worth, I take Tylenol PM on a relatively regular basis and have never had a problem, and I'm super sensitive. I've never tried the vanilla, though.
  9. Dinosaur Bar-b-que?

    You rock - thanks for the info! That's going to make my Saturday dinner far more enjoyable!!!
  10. Anybody know if any of the Dinosaur Bar-B-Que sauces or marinades are gluten free? A friend is planning a dinner party and wants to use the Dinosaur Creole Honey Mustard Sauce as a marinade. The list of ingredients looks relatively okay: Brown Sugar, Honey, Natural Smoke Flavor, Prepared Mustard, Roasted Garlic, Spices, Tomato Sauce, Vinegar, Xanthan Gum. What's "natural smoke flavor", though? What kind of vinegar? I need to confirm if I can have it, but can't find a phone number to call to find out!
  11. Success!

    Congrats!!! I hope she sticks with it and feels results. I wish I could make progress in that area - NONE of my family members will get tested or even go gluten free for a trial. Dad has chronic intestinal problems, Mom has some symptoms, too, amy sister won't get my 16 month old niece tested even though she is under weight and they can't seem to get her to gain. I think they all think it's in my head, or else they just don't want to know because they don't want to have to deal with it. Probably a mix. My sister doesn't want to know. My mother, who told me I should try to get pregnant because pregnancy cures all sorts of weird ailments by altering your hormones, seems to think it's all in my head. *sigh*
  12. Thanks to all who have added to this - I needed to hear some positive things, especially today. After 2 1/2 months of being gluten free and seeming to have stalled out in my progress, I've been completely overwhelmed by trying to figure out if I have to give up other foods in addition to gluten. It does give me reason to hope it's going to continue to improve. Another reminder to be more patient didn't hurt, either!
  13. I'm new at this - just diagnosed celiac about 2 1/2 months ago. I definitely feel better without the gluten, when I can actually manage to go a few days without accidentally glutening myself (I keep finding the hard way the gluten in the hidden places like shampoo, and cross-constamined "gluten-free" products) And when I've ingested gluten I usually DEFINITELY know it within about 20 minutes. Takes about 3 days to feel better. My problem is, I'm still not feeling that great in general - better - but still having stomach pains, gas, fatigue, and that fuzzy head feeling off and on. I'm guessing I'm intolerant to something else? How the heck does one tackle the huge list of all the things that could be causing problems? How long does it take to heal and really feel better after cutting out gluten, especially when I've been glutened several times by accident? Do reactions to foods always happen quickly after ingesting them, or could there be a delay in how long it takes to feel the effects? I've started keeping a food diary, but it's not making things much clearer for me - I'm completely overwhelmed by the task of untangling this. And to be honest, I'm completely miserable about the idea of having to give up more of the foods I love, and afraid there's going to be nothing left to eat when I'm done!
  14. I suppose it's possible - heck ANY intolerance is possible - although I eat a lot of foods that contain soy and don't have a problem. Could be another ingredient, too, though. I hate having to spend so much time staring at labels to figure out what several bothersome foods might have in common!
  15. I Can't Sleep!

    Ever tried trazodone? Before I got diagnosed I had horrible sleeping problems - couldn't fall asleep, felt like there was electric current running through me I was so restless and jumpy, and if I dozed off, I'd jerk awake again. Really puts a damper on life. My Dr. at the time prescribed trazodone, and it made all the difference in the world. Fell asleep and slept through the night. Technically it's an anti-depressant, not a sleeping pill, but taken in low doses before bedtime it works wonders. I started taking 50 mg about 1/2 hour before bed, but now that I'm gluten free, 25 mg does the trick when I need it. It's not addictive, and doesn't leave me feeling hung over like so many sleep drugs. Plus, it is fine for long-term use. My father-in-law also takes it to address his own sleep problems and swears it changed his entire life.