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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Mamato2boys

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  1. I'm so used to closely scrutinizing what comes out of the kid that I've nominated myself "official poop patrol" lol. I always thought the yellow poops were a bad sign ?
  2. Poor Aiden has his first ear infection at the tender age of 4.5 months ! He was prescribed amoxicillin. I mentioned his dairy/gluten issues, and the pedi said he's never heard of amoxicillin causing a problem with either issue. Does anybody know anything as far as whether it will be ok for him given his issues ? I don't see that he has much choice - and the GS/medication realm is a new one for me.
  3. Hi there - I have a four month old son that I too am breastfeeding. I had read on here (and I believe on another website) that glutens do pass through breastmilk. I know that with my son glutens turn his poop orange, mucusy, watery, and he usually explodes out of his diaper. Like the pp said, dairy can be a major irritant for bf babies (I know it was for my older son and is for the baby), so you may want to try cutting that out first. It takes as long as 3 weeks to work out of your system, then another 3 weeks to work out of baby's, so you have to give it as long as 6 weeks before deciding whether or not dairy is an issue. For my son the response was much quicker - just 3 days. Whichever you decide to avoid (dairy and/or glutens), make sure you do one at a time so you'll know which it is !
  4. My oldest son, who's 3, carries 2 gluten sensitive genes and no celiac genes. By Enterolab's definition, that makes him more sensitive to gluten than someone who only carries one gene. He had "mild" malabsorption (he was just under 3 years old when I had him tested). So obviously gluten was affecting his intestines. Yet genetically he's not celiac. His symptoms were yellow, VERY foul-smelling, large-volume BMs. My symptoms were more subtle - hypoglycemia, bloating, weight gain, and for the past year - constipation. DH had bloating, chronic diarrhea, and severe acid reflux. By comparison, because my son is obviously much younger than us, his symptoms were actually much worse because of the early onset. I agree with you that rating it as a "continuum" kind of discounts how sick someone who is "only" sensitive can be. And yes, people can develop lactose intolerance.
  5. I found this from Dr. Fine's website: What is the difference between celiac sprue and gluten sensitivity? Gluten sensitivity implies that a person's immune system is intolerant of gluten in the diet and is forming antibodies or displaying some other evidence of an inflammatory reaction. When these reactions cause small intestinal damage visible on a biopsy, the syndrome has been called celiac sprue, celiac disease, or gluten sensitive enteropathy. (Nontropical sprue and idiopathic steatorrhea are other terms that have been used for this disorder in the past.) The clinical definition of celiac sprue also usually requires that there is clinical and/or pathologic improvement following a gluten-free diet. In the past, celiac sprue could only be diagnosed after somebody developed certain symptoms like diarrhea, weight loss, or growth failure in children. A biopsy would be performed and if abnormal and typical of celiac sprue, and if a gluten free diet brought resolution of diarrhea, weight gain, or growth, only then would a diagnosis of celiac sprue be made. However, recent advances in diagnostic screening tests and application of these tests to people at heightened risk or to general populations have allowed detection of celiac sprue, sometimes even before damage to villi has occurred. This latter scenario is often called gluten sensitivity. Can I have gluten sensitivity if small intestinal biopsies are normal or only minimally abnormal? Although by definition a normal small bowel biopsy rules out celiac sprue, it does not rule out gluten sensitivity. Although asymptomatic people with gluten sensitivity may have normal or near-normal biopsies, so too may people with symptomatic gluten sensitivity. This has been reported in the medical literature (called "Gluten Sensitivity with minimal Enteropathy" or "Gluten-Sensitive Diarrhea without Celiac Disease". Furthermore, even though such people's intestine's appear normal under the microscope, up to one half already have nutrient malabsorption, a major contributor to osteoporosis and malnutrition, attesting to the fact that microscopic analysis of intestinal biopsies is an insensitive way of assessing function and immunologic food sensitivity. However, because there is still a virtually universal reliance on small bowel biopsies to diagnose gluten intolerance, most asymptomatic or symptomatic gluten sensitive people (based on screening tests) will not be diagnosed corectly or be instructed to follow a gluten-free diet even though symptoms may resolve completely.
  6. Yup, that's how I was looking at it - that they're all related, but celiac being the "worst" because it implies intestinal damage, etc. I definitely agree that "only" being sensitive does NOT mean you can go gluten light. I know that all four of us most definitely react to glutens even though we're "only" GS. I was just curious because Enterolab kind of made it sound like (at least to me), that's how it worked - that it was a spectrum of sorts. But then I was confused about not having the celiac gene, because if it's a spectrum what does it matter if you carry the gene or not ? If you're GS and continue eating glutens on any level, then you're doing damage somewhere. Maybe that's the key - that celiac disease is specific to intestinal damage (right ?), and that being GS means damage elsewhere without villous atrophy. ???
  7. Well, according to EnteroLab my son has genes for sensitivity, but no genes for celiac disease. I guess that's where I'm confused ? I took that to mean that while he shows a gene for gluten sensitivity and does have some malabsorption, he *probably* doesn't have celiac disease and we could avoid him getting it if we change his diet (which we have). I guess maybe it's not clear to anybody how it works - including doctors. That seems to be the case, anyway.
  8. Untreated strep can lead to rheumatic fever, which can do damage to the heart. She needs to see the doctor. This is one infection she doesn't want to mess around with.
  9. That's a tall order, but not impossible. I myself am avoiding dairy, soy, glutens, and eggs. The simplest thing to do at first is to eat just basic, whole foods. Meats, veggies, fruits. Getting into the habit of reading labels (and decoding them) can be a little overwhelming at first.
  10. I'm still trying to wrap my little brain around this concept, lol. I understand that celiac disease is an autoimmune disorder. Does "only" having gluten sensitivity (as per Enterolab testing) fall under the autoimmune disorder list ? I'm under the impression that someone who is GS that continues to eat gluten could do enough damage that they could then get celiac disease (defined as villous atrophy, etc.), is that correct ? So in other words, being gluten sensitive is kind of a spectrum of celiac disease. Ultimately it doesn't really matter I suppose. One way or the other DH, the boys and I will have to avoid gluten for the rest of our lives, and I'm ok with that. We all feel so much better without it that I can't imagine going back, but I'm just curious how this works.
  11. Strange Sensation In Mouth

    I've had canker sores before...I thought those always hurt ?? This wasn't painful at all.
  12. Strange Sensation In Mouth

    No, that's the weird thing - it felt plenty moist. The sensation has since gone away - I still have no clue what that was all about. Before it went away though, the underside of my tongue got sore - it kind of felt like the frenulum (the little string that attaches your tongue) felt swollen. I also got kind of a pimple between my right cheek and gum. I've gotten those before (have no clue what those are, either), but I just break it and it goes away. It's just to keep life interesting, I guess !
  13. I have NO idea what this is, as I've never experienced it before - but it's VERY annoying !! Last night's dinner was prepared by the other family member that is gluten sensitive. He's not *real* knowledgeable (ex: he thought spelt was a safe grain), but he does pretty darn well. I think I inadvertently got glutened though, despite both of us being careful. I had gas (so therefore, my 3 month old that I'm breastfeeding had painful gas too, and was pretty inconsolable). I also noticed pretty shortly after dinner the sensation in my mouth. The only way I can explain it is on my cheeks and around the front of my mouth near my lip (again, this is all inside my mouth), feels like there's a "coating" on it. It's not painful, but it does have a slightly grainy feeling. When I look in the mirror I don't see anything. I keep trying to rinse my mouth with water and running my tongue along where I feel it in an effort to get rid of the coating feeling, to no avail. Anybody ever hear of this ? What the heck IS this ??
  14. The list of improvements that DH and I have been noticing seems to be growing longer and longer ! I'm just curious to find out what kind of things you've noticed since going gluten-free. Here's mine: ~ no more bloating - even my hands & feet are slimmer ! ~ no more gas (well, very rarely anyway) ~ brain fog has lifted ~ energy has increased, despite getting up several times a night to breastfeed ~ weight loss without trying (and I need to lose weight) ~ hypoglycemia has just about disappeared ~ I don't feel an insatiable drive to eat, even if I've just eaten ~ acne is clearing up ~ I don't feel SICK after eating here's the one we just most recently noticed, and it's surprised us both: SEX is better !! I'm sure it's all part of having a little more energy and being less bloated, but I've noticed that I even think about sex more often...I thought having kids more or less destroyed my sex drive - but it hasn't ! here's DH's ~ foot pain has disappeared ~ less gas/bloating ~ weight loss ~ more energy ~ reflux has disappeared - this was the most significant one for him - he was on Zantac 180 every day, would sometimes take a third Zantac AND some Tums, and would STILL have severe reflux ~ chronic diarrhea has improved (this would probably go away totally if he would give up dairy, but he's stubborn, lol) ~ his face was always real red, and the color has returned to normal ~ he doesn't feel sick after eating
  15. Soy Milk

    My son can't drink soy milk either - it gives him horrible, smelly diarrhea, and distended belly. From what I understand there is about a 30% cross-reaction rate between cow's milk and soy - my son is allergic to both.