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If so, has anything helped. Has anyone tried casein free and had success?
I was diagnosed with celiac June 2006 and gut symptoms cleared up within two weeks. I was, however, experiencing non-situational depression that did not resolve gluten-free. Was told by a support group friend who was diagnosed at Mayo that she was told there that it usually takes at least 18 months gluten-free for celiac related depression to resolve (maybe leaky gut?, dunno).
I decided to try to speed up the depression process in January 2007 by eliminating casein as well in case leaky gut was slowing the depression progress (casein free didn't help my depression, btw. It took about 2 yrs totally clear). But I have seborrheic dermatitis that occurs yearly from late winter on into the July. Occurs on eyelids and is severe under arms. In 2007 while casein free, the seb derm didn't flare up at all.
Has anyone else experienced this? I'm flaring up now and about to go back casein free which I hate, hate, hate. Gluten-free is "a piece of cake " for me, but casein free is horrible due to my love for cheese and it's an additive for so many foods - even ones that don't list milk as an allergen at the end of ingredients.
If anyone else has tried and had success with seb derm and casein free?
I was diagnosed with celiac June 2006 and gut symptoms cleared up within two weeks. I was, however, experiencing non-situational depression that did not resolve gluten-free. Was told by a support group friend who was diagnosed at Mayo that she was told there that it usually takes at least 18 months gluten-free for celiac related depression to resolve.
I decided to try to speed up the process in January 2007 by eliminating casein as well in case leaky gut was slowing the process. I have seb derm that occurs yearly from late winter on into the July. Occurs on eyelids and severe under arms. In 2007 while casein free, the seb derm didn't flare up at all. Has anyone else experienced this? I'm flaring up and about to go back casein free which I hate, hate, hate it. gluten-free is "a piece of cake " for me, but casein free is horrible due to cheese.
If anyone else has had success with seb derm and casein free, did you try gradually adding back a few foods such as butter, processed foods with small amounts of casein?
I'm not as worried about the adverse effects of l-glutamine as I am the consequences of gut permeability. I have a master's degree in nutrition, have read up on the pharmacology, and am titrating dosage slowly.
Thanks for your concern; I'm sorry you had a bad experience, but am trusting the professional literature that shows such occurances are rare.
I've been reading about l-glutamine's benefits for decreasing gut permeability. I've been gluten free for almost a year, casein free for 6 months and still don't have complete resolution of symptoms.
While I realize healing can take 2+ years, I'm ready now to start supplements and herbs (primarly ginger) to hopefully speed healing. I read about l-glutamine on another web site, then read some PubMed abstracts about its role in gut integrity, so am ready to give it a go.
I always like to hear success stories from people who've been doing things a while, so if you've been regularly taking l-glutamine for 3 - 6 months or longer, I'd love to hear your story.
And I don't mind negatives or no response stories if you've tried it for 3 -6 months.
Good to see you're doing well! Casein free was much harder for me than gluten, although I'm adapting (5 months now). And yes, it's aggravating that casein isn't better labeled. You're safe with vegan, though.
Coconut milk has been a lifesaver for me in recipes because I like creamy. It makes wonderful bread pudding. Just substitute gluten free bread and use coconut milk for the regular milk. I'm excited about experimenting with some cool coconut milk treats this summer. My mom used to substitute melted ice cream for the cold water when making jello and it was yummy. I'm going to try that with coconut milk and lime jello ...maybe mix in some coconut flakes, canned crushed pineapple, walnuts.
If anyone knows for certain about this, please correct me. I think cooking charcoal (which is sometimes bound together into the brickette shapes by gluten grain products) is the only charcoal to worry about. I don't think the charcoal used in filters (activated charcoal, I think?) is a problem. I hope not, because I use one of the fridge pitcher filters!
Please link!!! Sounds like a wonderful recipe thread.
That's pretty much my thinking as well. I haven't read much about it - have just been so relieved to know what it was. I've never had dermatitis herpetiformis, but 'autoimmune anything' these days makes me wonder if Celiac is involved.
Interestingly, I felt "glutened" all day Friday (headache, big D all day), and had eaten out (safely, I thought, on Thursday). Saturday at 3 AM I woke up with the blisters. I'm guessing there is a connection.
Bullous pemphigoid is autoimmune in nature and causes skin redness with 1cm or larger blisters.
It usually occurs at 60 years old or older, but I (40yo) woke up yesterday morning with a small patch of it on my torso. I was of course, freaked out, searched my bed for spiders, went to the doctor (general family practice) thinking it was shingles. He said the blisters were too large, and that he reallly didn't know what it was (no recent contact to anything unusual, didn't look like a bite). A friend who is a gerontological nurse practitioner looked at it last night and diagnosed it as bullous pemphigoid. She's seen a few cases since she works with the elderly.
She gave me this link: (picture is in the signs and symptoms section)
Sorry no answers , but kind of glad there's no mention of surgery yet. Hope you get reassuring answers soon!
Personal question from a stranger ...did the technician doing your ultrasound mention seeing gas pockets? Mine did and and had to push around a good bit because the gas limited her visibility. I ask that because even though I had no stones, and had my non-functioning gallbladder removed (see below), I still get sharp gallbladder type symptoms if I'm gassy.
For anyone following this thread, if you don't have gallstones, aren't gluten-free or haven't been gluten-free long and your PIPIDA or HIDA scan shows a non-functioning gallbladder, going strictly gluten-free will restore function according to the findings in this study.
I had my gallbaldder out in 2000 because my HIDA scan showed it wasn't functioning ...wasn't diagnosed with Celiac until last year. If I'd known, I could have avoided the pain of surgery, risk to my body and saved lots of $$$.
Update to say thanks to those who encouraged me early on. I'm still casein free and feeling better. Not sure if some of that can be attributed to outdoors and sunshine, but I'm not going to challenge with casein anytime soon. And thankfully, I'm feeling better though I'm taking in a good bit of soy, so that doesn't seem to be yet another needed restriction.
Some subs I love: coconut milk bread pudding with a cinnamon topping, Toffuti sour cream, Follow Your Heart soy cheese (I don't use much, because it's ...well, not cheese... but using it sparingly and broiling to melt and brown it as their website suggests makes me feel happy.
I just learned today that Amy's Kitchen Spinach pizza is now available gluten free, casein free!
I have anxiety/depression and SSRIs (Paxil, Zoloft, Prozac) didn't help. Welbutrin made me nearly crawl out of my skin.
Finally have gotten great results from Seroquel which is actually classified as an anti-psychotic but has more and more research backing it as a good anti-depressant, especially when the depression is accompanied by anxiety and insomnia as mine is.
WARNING IF YOU TRY SEROQUEL: DO NOT let your doctor start you out on the doses suggested in the package insert!!!! You will be knocked out for several days. Ask to start out at a small dose, 50mg say, and titrate up by 25-50 every few days. The first doc that started me went by the book and I literally had to think about picking each foot up to take a step for several days. Thank God, another doctor several months later convinced me to try starting it more slowly. It has been a lifesaver.