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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About farofa

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    1. farofa added a post in a topic Can A Vitamin D Deficiency Cause Fertility Problems?   

      hi. thought i'd jump in here:

      my vitamin d levels were also very low and are what clued doctors into the gluten problem.

      i had a severe allergic reaction to d2 (drisdoll). please stop taking it and take d3 instead. doctors should not be prescribing the synthetic d2 as people are often allergic to it.

      i continue taking 4000iu d3 daily with calcium and my levels seem to have stabilized though its clear to me that if i inadvertently get glutened, i still have trouble absorbing the d. i'd like to find an injectable d3 to circumnavigate the digestive process because i would like to test the theory of fertility and d.

      vitamin d is, i've been told, by dr. thys jacobs responsible for infertility in animals and people. they use vitamin d when breeding horses! d may be responsible for two pre-clinical miscarriages i had last year. i'm hoping to stabilize now so as to be able to get pregnant.

      vitamin d deficiency has also been responsible for terrible menstrual cramps, etc., and generally affects the flow and quality of my menstrual cycle so it would be logical that it affects fertility as well. much of thys-jacobs (based in nyc) research can be found online and is a worthwhile read.
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    2. farofa added a post in a topic Silk Soymilk: Gluten Free?   

      Thanks, all.

      Natural Flavorings is a confusing one. I guess sometimes its ok, sometimes not. Merely a red flag.

      I looked it up too on their website:

      Are Silk products okay for people with wheat and gluten allergies?

      Much like those folks with dairy allergies, there are people who have a hypersensitivity to wheat or wheat products – like gluten. There is no wheat, wheat gluten, rye, oats, barley or malt in Silk Soymilk, Silk Live! Smoothies, Silk soy yogurt or Silk Creamer including the natural flavors.
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    3. farofa added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Silk Soymilk: Gluten Free?

      Does anyone know if Silk soymilk is gluten-free? The ingrediants list contains "Natural Flavorings".

      A friend brought a dessert over today that she thought I could eat but there was "barley and wheat extract" in the description of the soymilk it contained. This led me to look at the ingredients on my own soymilk container.

      Thanks for your replies.
      • 7 replies
    4. farofa added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Iga And Igg Deficiencies And Enterolab Testing

      I've queried EnteroLab regarding what I'm told is a mild deficiency and their reply was: "Unfortunately, your IgA deficiency will have an affect on our antibody tests. Depending on the severity of your deficiency, you could come up with a negative result but might still be positive."

      Does anyone else have low IgA and IgG - do you know what a severe deficiency would be?? How have you gone about testing?

      As much as I've learned, researched, asked, I still have some difficulty wrapping my brain around what this deficiency indicates.

      Thanks so much for any replies.
      • 1 reply
    5. farofa added a post in a topic Celiac, Irregular Menstrual Cycle, Birth Control Polls   

      Has your daughter been tested for PCOS (Polycystic Ovarian Syndrome)? Its very common and not too difficult to treat. Irregular periods at such an early age are a sign of something significant and its worth doing a medical workup to rule this out.

      As someone who has suffered tremendously for the past 25 years from terrible periods, which only got worse with age, I suggest that you find out now. My life would have been very different had we discovered the problems earlier.

      You may also want to look at the Cycle Diet, a diet for women with PMS developed by a registered dietitian. I've been a client of hers for almost a year and she's been a terrific advocate, a great diagnostitian and generally a pleasure to have in my life. Her name is Debra and the site is:

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    6. farofa added a post in a topic Dr. Green @ Celiac Disease Center, Columbia University   


      This link is for the bios of the staff at the Columbia Celiac Center.

      I actually had an appointment with Susie Lee some months ago but my endo and my gp convinced me to see a GI — who was good but not too interested in celiac sprue. I'm glad to hear she's a good doctor.
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    7. farofa added a post in a topic New To This Board   

      Thank you for your comments. I feel empowered by this community!
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    8. farofa added a post in a topic Miscarriage   

      Thanks for your reply.
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    9. farofa added a post in a topic Do They Put Your "out" For The Biopsy?   


      I think its a good idea to tell the doctor what you'd want. I'd suggest being put out for it. They did not give me enough demerol and had to readminister it during the procedure. I was awake and aware through all of it, including the discovery channel tour of my esophogus and small intestine. I gagged quite a bit and was very sore the next few days. In fact, I became quite sick and feverish afterwards. But I'm hypersensitive to these things, most people told me it wasn't a problem for them at all.

      Take good care,
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    10. farofa added a topic in Celiac Disease - Related Disorders & Research   


      Miscarriage is a very common event for those of us with gluten intolerance. But it is difficult to find information especially in such early stages (often women don't know they are pregnant in those first two weeks). Could you share your experience of loss (and any pertanent literature you may have found) here and your successes conceiving once gluten-free?

      Thank you so much.
      • 2 replies
    11. farofa added a topic in Celiac Disease - Doctors   

      Dr. Green @ Celiac Disease Center, Columbia University

      Has anyone on this forum had the good fortune (or bad ) to see Peter Green or any of his associates at Columbia? How did you feel about the experience? Has it been helpful to you? Any feedback would be greatly appreciated.

      • 21 replies
    12. farofa added a post in a topic New To This Board   

      Thank you, Rinne.

      Oh, Robbin. It sounds like you've been through the ringer. Your experience, and Ursula's, have allowed me to feel a little more confident. Would you mind telling me a little more about how you were eventually able to conceive. If this is too private, I understand.

      I've sent Enterolab an email. I hope they will respond in due time.

      I will post a thread re: Dr. Green.

      Thanks again, Alex


      Thank you for the encouragement. At this stage I think it helpful to do a bit of testing. My malabsorption problems haven't been resolved and I am hypersensitive to so much medication, I really ruled out that pathway. I suspect the food sensitivities are the answer, now I just need to determine what I've retained in my diet that is causing me such distress. I often feel best if I just don't eat at all.

      Forgive the question again but how do you test for intolerance?
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    13. farofa added a post in a topic New To This Board   

      Dear Ursula,

      Thank you so much for your reply. I've been digesting the information you gave me for the past day and think it has been most helpful. I'm so sorry about your experience. You have unusual strength to have survived so many miscarriages and to have brought a family into the world still. And now to be offering advice and knowledge from your experience. You are very special. Thank you.

      I have also emailed Enterolab and will proceed with testing if they think that is advisable considering my IgA and IgG deficiencies.

      I feel as though I am getting closer to solving this mystery. How were you able to determine that you had an intolerance to nightshades? Was it by experience or did you test for it? I think part of the reason the gluten-free diet hasn't been sufficient (aside from my newbie ignorance and getting glutened periodically and regularly) is that I may have an intolerance to rice or soy among other things. I'd like to know if Enterolab can test for those things as well.

      Is there any benefit to doing the gene testing?

      Thanks again for your words and support.
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    14. farofa added a post in a topic New To This Board   


      Thank you so much for such clear answers. Of course, they bring up more questions...

      Would it explain esophogitis or swollen intestines? Is this symptomatic of Celiac?

      I ate a piece of toast and some cake the day before the test. That was it.

      Good idea. I'll try to reach them.

      I just read Dr. Kalish's page [] and understand the difference between allergy and intolerance a little better.

      And, Carla, I hope not to overload you but I've read some of your posts with regard to fertility issues. Do you have any knowledge of subclinical miscarriage? Is it possible to be pregnant for a week and then miscarry prior implantation or to HCG levels increasing?
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    15. farofa added a post in a topic New To This Board   

      I can't really explain. I have read a lot about it and it keeps going out of my head. It has to do with Immunodeficiency disease. IgA and IgG immonoglobins have something to do with protecting the body from infection.
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