Discuss experiences with doctors, how to find a doctor, etc. http://www.celiac.com/gluten-free/index.php Thu, 09 Feb 2012 12:33:01 +0000 60 http://www.celiac.com/gluten-free/topic/89771-need-a-knowledgeable-doctor/ Thu, 09 Feb 2012 12:33:01 +0000 http://www.celiac.com/gluten-free/topic/89771-need-a-knowledgeable-doctor/ http://www.celiac.com/gluten-free/topic/89762-gi-in-sweden/ Wed, 08 Feb 2012 23:49:15 +0000 http://www.celiac.com/gluten-free/topic/89762-gi-in-sweden/ http://www.celiac.com/gluten-free/topic/89753-help-we-need-a-dr-in-okc/ We are navigating this kinda blind. My hubby has been having issues for years and finally got tired of being sick and having the constant diarrhea. so he went to our family dr. and she sent him to a GI dr in Norman. He did a Endoscopy to check for ulcers and erosion and ended up taking a biopsy and it showed Celiac. So we changed our diet. and after looking things up it looked like the kids (we have 3) all probably have it. the Dr ordered blood work. to me this seemed backwards. but OK...so that all came back Neg. they did the TTG test. Hubby has the genes for it, and was developing it. He feels so much better on the gluten free diet and is sticking with it. The kids are enjoying most of it. the dr didn't diagnosis him with it siting life insurance issues later? really? that doesn't make since to me. I'd really like another dr to get a second opinion. and for someone to talk to about our kids. TIA!]]> Wed, 08 Feb 2012 20:38:10 +0000 http://www.celiac.com/gluten-free/topic/89753-help-we-need-a-dr-in-okc/ http://www.celiac.com/gluten-free/topic/89641-actually-competent-celiac-docs-in-the-seattle-area/ so, seeing how my GI doc is completely incompetent, AND i have to get my kids tested now, does anybody know of any good docs in the Seattle area??? Mon, 06 Feb 2012 04:16:40 +0000 http://www.celiac.com/gluten-free/topic/89641-actually-competent-celiac-docs-in-the-seattle-area/ http://www.celiac.com/gluten-free/topic/89599-we-need-to-start-a-thread-on-stupid-stuff-doctors-say/ "We need to start a thread on stupid stuff doctors say! It would be hysterically funny." Skylark posted this in another thread. So I thought I would get it started.

I sleep with oxygen at night in Nevada because I start breathing really slowly and shallowly at night and my oxygen concentration in the bloodstream drastically drops and sends me into atrial fibrillation. So I get referred to the sleep unit in New Zealand when I get back, with all my U.S. records and supporting documents saying that BiPAP does not work, but that supplemental O₂ does. They do their own SPO₂ study, I go for consultation with the "sleep specialist", and this is what I get:

"If one puts the issue of the intermittent atrial fibrillation to one side, then currently we would not regard the provision of nocturnal oxygen as geing indicated in this case.:" And what does he recommend? The failed BiPAP. (And this, I believe, is due to a comment he made offhandedly, "We don't do that (nocturnal oxygen) here." )

So here we have a doctor putting aside the problem he was consulted for and trying to find a solution to another problem not at issue, which appears to be expelling CO₂, which is the reason BiPAP doesn't work because I can't breathe out against it. and it makes me ill with crazy blood gases. Gahhhhhh. Bangs head against wall, after a night of atrial fib. and a ruined day recovering from it Kill this guy

Liike all these cases, it is not funny, more sad than funny, but real. Sorry this one took so much explaining. Hope you hung in there ]]> Sat, 04 Feb 2012 08:23:14 +0000 http://www.celiac.com/gluten-free/topic/89599-we-need-to-start-a-thread-on-stupid-stuff-doctors-say/ http://www.celiac.com/gluten-free/topic/89598-doctor-in-san-mateo-santa-clara-sf-counties/
I live near San Mateo and would be willing to travel a little to a good doctor somewhere on the SF Peninsula.

I have read about the clinic at Stanford, but I tested negative for Celiac. However, I have very low IGA. So I need a doctor who understands this stuff and can test me properly. I have Hashimoto's and I seem to be gluten sensitive or perhaps gluten intolerant. I also suspect my teenage daughter may have some hidden gluten problems.

Thank you!]]> Sat, 04 Feb 2012 07:29:00 +0000 http://www.celiac.com/gluten-free/topic/89598-doctor-in-san-mateo-santa-clara-sf-counties/ http://www.celiac.com/gluten-free/topic/89597-opinions-please-what-do-you-think-of-this-doctor/
I have been looking at her website and I am intrigued. She has a lot of information on her website, including this article on Celiac/gluten intolerance.

Can you guys please review what she is saying and tell me: do you think she'd be a good person to go and see? I am looking for someone to help me manage my apparent gluten intolerance, my Hashimoto's Thyroiditis (I'll still see an MD for thyroid meds, though), and other things. Should I be concerned that she is not licensed in the US or in California?

http://www.montereybaynaturopathy.com/npg/gluten-intolerance-treatments-is-gluten-sensitivity-making-you-sick-holistic-naturopathic-monterey-california.html]]> Sat, 04 Feb 2012 06:15:27 +0000 http://www.celiac.com/gluten-free/topic/89597-opinions-please-what-do-you-think-of-this-doctor/ http://www.celiac.com/gluten-free/topic/89554-need-health-insurance/ Thu, 02 Feb 2012 22:24:50 +0000 http://www.celiac.com/gluten-free/topic/89554-need-health-insurance/ http://www.celiac.com/gluten-free/topic/89489-good-doc-in-orange-county-california/ Tue, 31 Jan 2012 23:58:16 +0000 http://www.celiac.com/gluten-free/topic/89489-good-doc-in-orange-county-california/ http://www.celiac.com/gluten-free/topic/89455-brother-in-boise-looking-for-md-to-do-initial-testing/
Thanks -

Cara]]> Mon, 30 Jan 2012 21:46:02 +0000 http://www.celiac.com/gluten-free/topic/89455-brother-in-boise-looking-for-md-to-do-initial-testing/ http://www.celiac.com/gluten-free/topic/89329-need-celiac-doc-for-pregnancy-check-ups/
I may need a naturopath, I'm on a very strict diet and certain vitamins I can't swollow or come right back up.]]> Thu, 26 Jan 2012 21:14:53 +0000 http://www.celiac.com/gluten-free/topic/89329-need-celiac-doc-for-pregnancy-check-ups/ http://www.celiac.com/gluten-free/topic/89221-first-time-visit/
I'm new here, but I've been cruising the forums just taking in what I can. My name is Megan, and I have a daughter that is almost 17 years old, who has been miserable a lot of those 17 years, with pains that just can't be explained. She has also suffered from allergies her entire life, and has never had a clear day. We recently took her in for another round of allergy testing, to see if anything had changed from when she'd been tested when she was 5. We found she is "allergic to life" as she likes to put it.. all grasses, trees, cats, dogs, feathers, some molds, weeds, and a few others I'm probably not remembering off the top of my head right now. However, we mentioned the stomach issues, and wondered about food allergies.. and mentioned the things that seemed to trigger her most. When tested, THOSE all came up negative. After talking with friends & co-workers, they've mentioned the idea that maybe she has a problem with glutens. I was told she would need to see a pediatric gastro- since she is not yet 18. I searched for a couple of weeks, and everytime I thought I'd succeeded in finding one, I'd not like the reviews I'd read on them. I wanted to know I that I'd found a doctor who at least knows about gluten issues and what to look for and how to explain it, etc. Anyway, I finally settled on the only one I could find. We see them next week.

So, the question being, has anyone had experience dealing with Children's National Medical Center out of D.C.? I'm not actually going to the main facility, but one of the sattelite offices in Maryland. It's a good 50 miles from home, but it was closer than going to D.C. for me. I'm not really sure what to expect for the first visit, but I know I have to drive over an hour to get there, and over an hour back, and I'd sure hate to sit there forever waiting, and then only see someone for 15 or 20 minutes. Are there specific things I should be saying or asking? I almost feel like I'm drowning, trying to read the info out there.. all the terms seem so foreign to me.

I look forward to any knowledge that can be passed my way, in a way I can understand it.]]> Mon, 23 Jan 2012 20:26:24 +0000 http://www.celiac.com/gluten-free/topic/89221-first-time-visit/ http://www.celiac.com/gluten-free/topic/89154-getting-tests-done/
I guess I just want to know what tests to ask for.]]> Sat, 21 Jan 2012 03:39:37 +0000 http://www.celiac.com/gluten-free/topic/89154-getting-tests-done/ http://www.celiac.com/gluten-free/topic/89136-properly-arming-myself/ will test me for this, period.]]> Fri, 20 Jan 2012 14:08:26 +0000 http://www.celiac.com/gluten-free/topic/89136-properly-arming-myself/ http://www.celiac.com/gluten-free/topic/89074-looking-for-a-doctor-with-knowledge-about-gluten-ataxia-in-massachuetts/ ]]> Wed, 18 Jan 2012 16:57:10 +0000 http://www.celiac.com/gluten-free/topic/89074-looking-for-a-doctor-with-knowledge-about-gluten-ataxia-in-massachuetts/