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Celiac Disease & Gluten-Free Diet Forums

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Celiac Disease & Gluten-Free Diet Blogs

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  • Research on South African Celiac Tours
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  • Keating's Not-so-Glutenfree life
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  • Searchin for a Primary Care Dr. In Redlands That is Knowledgeable about Celiac disease
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  • HONG KONG GLUTEN, WHEAT FREE PRODUCTS
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  • Healthy Food Healthy You
  • SydneyT1D - Diabetic and Celiac YouTuber!
  • GFGF's Blog
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  • SMAS: www.celiac.com
  • gardener1's Blog
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  • JordanBattenSymons' Blog
  • JillianC
  • Sugar's Blog
  • Blanche22's Blog
  • Jason's Blog
  • Gluten-Free Sisters :)
  • Eab12's Celiac Blog
  • ohiodad's Blog
  • Newly Self Diagnosed?
  • misscorpiothing's Blog
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  • Petroguy
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  • Soap Opera Central
  • nurcan's Blog
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  • Mr J's Blog
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  • krisb's Blog
  • deetee's Blog
  • CAC's Blog
  • EmilyLinn7's Blog
  • Teri Kiefer's Blog
  • happyasabeewithceliac's Blog
  • quietmorning01's Blog
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  • Cheryl
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  • donna mae's Blog
  • Colleen's blog
  • DawnJ's Blog
  • Gluten Challenge
  • twins2's Blog
  • just trying to feel better's Blog
  • Celiac Teen
  • MNBelle blog
  • Gabe351's Blog
  • moosemalibu's Blog
  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
  • deacon11's Blog
  • Nyxie's Blog
  • Swpocket's Blog
  • threeringfilly's Blog
  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
  • prettycat's Blog
  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
  • Jkrupp's Blog
  • Oreo1964's Blog
  • keyboard
  • Louisa's Blog
  • Guts & Brains
  • Gluten Free Betty
  • Jesse'sGirl's Blog
  • NewMom's Blog
  • Connie C.'s Blog
  • garden girl's Blog
  • april anne's Blog
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  • benalexander60's Blog
  • missmyrtle's Blog
  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
  • aheartsj's Blog
  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
  • SmidginMama's Blog
  • lws' Blog
  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
  • jess4736's Blog
  • deedo's Blog
  • persistent~Tami's Blog
  • Posterboy's Blog
  • jferguson
  • tiffjake's Blog
  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
  • JessicaB's Blog
  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
  • myraljo's Blog
  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
  • Keishalei's Blog
  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
  • dedeadge's Blog
  • CeliacChoplin
  • Ravenworks' Blog
  • ahubbard83's Blog
  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
  • Ivanna44's Blog
  • Daily Life and Compromising
  • Vonnie Mostat
  • Aly'smom's Blog
  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
  • beetle's Blog
  • Sandra Lee's Blog
  • carlyng4's Blog
  • totalallergyman's Blog
  • Kim
  • Vhips
  • twinsmom's Blog
  • Newbyliz's Blog
  • collgwg's Blog
  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
  • HeartMagic's Blog
  • electromobileplace's Blog
  • Adventures of a Gluten Free Mom
  • Fiona S
  • bluff wallace's Blog
  • sweetbroadway's Blog
  • happybingf's Blog
  • Carla
  • jaru24's Blog
  • AngelaMH's Blog
  • collgwg's Blog
  • blueangel68's Blog
  • SimplyGF Blog
  • Jim L Christie
  • Debbie65's Blog
  • Alcohol, jaundice, and celiac
  • kmh6leh's Blog
  • Gluten Free Mastery
  • james
  • danandbetty1's Blog
  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
  • redface's Blog
  • Gluten Free High Protein
  • Ari
  • Great Harvest Chattanooga's Blog
  • CeliBelli's Blog
  • Aboluk's Blog
  • redface's Blog
  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
  • lilactorgirl's Blog
  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
  • lilactorgirl's Blog
  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
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  1. Hi everyone my name is DeDee aka REDVIXEN210GF, 46F with 3 grown babies and 5 grandbabies from Texas sharing my roller coaster of diagnosis with celiac .For over three decades, I have navigated the complexities of living with atypical celiac disease. Diagnosed at the age of 10, my journey has been marked not only by the common digestive symptoms but also by a constellation of other medical challenges: severe iron deficiency anemia, malabsorption, hypoglycemia, mitral valve prolapse, arthritis, migraines, and gastroesophageal reflux disease. These manifestations have made treatment and management formidable task. Throughout the years, I have engaged in an array of treatments-Venofer iron infusions, blood transfusions, antispasmodics, antihistamines, pain management strategies, a gluten-free diet, folic acid supplementation, and steroids. Yet, these interventions have offered only fleeting symptomatic relief. My body, in its complexity, has sometimes reacted adversely to the very treatments meant to alleviate my condition. It's as though I am grappling. with refractory celiac disease (RCD), a rare and severe form of the disease that resists conventional treatment. approaches. The trajectory of my health has been one of intensifying symptoms, progressing from severe to highly severe, rendering my quality of life as something less than tolerable. Since 2006, I have endured this regimen, but on the side. effects have been harrowing severe allergic reactions, rashes, welts, tachycardia, hypotension, debilitating bone. pain, profound weakness, and anaphylactic episodes necessitating hospitalization. These reactions are not just. distressing: they are incapacitating, adding layers of suffering to an already burdensome condition. My symptoms emerged in childhood, yet a diagnosis eluded me until my mid-20s. Reflecting on a lifetime of misdiagnoses, I recall the countless days lost to illness, the myriad visits to emergency rooms and doctors' offices. for symptoms too often dismissed as mere bugs, allergies, or stress-induced migraines. It was only after advocating for myself post-Medical assistant school and presenting my self-diagnosis to my hematologist/oncologist, that I was finally referred to a gastroenterologist. The subsequent biopsy confirmed what I had long suspected. Despite the myriad treatments I've tried, including those I tolerate only with the aid of steroids, my condition. persists. I am physically deconditioned, short of breath, and plagued by a suite of symptoms: diarrhea, vomiting, severe pain in my gastrointestinal system and joints, anemia, migraines, and brain fog. The first symptom, diarrhea, has been a constant since childhood, a harbinger of the complex medical journey that lay ahead. This is my story, a testament to resilience in the face of a relentless and multifaceted disease. It is a narrative. shared in the hope of fostering understanding and compassion for those who live with atypical celiac disease and its myriad, often hidden, challenges.
  2. Celiac.com 08/08/2023 - If you have celiac disease, you've likely encountered various attitudes from people as you try to navigate the world of gluten-free eating and dining. A nationwide survey conducted by The Harris Poll on behalf of Beyond Celiac help to put some detail into the attitudes Americans have toward gluten-free dieters. Those Who eat Gluten-Free are Seeking Attention The poll results indicates that Americans lack understanding and hold misconceptions about celiac disease. The survey, conducted among 2,081 U.S. adults in April 2023, found that 28% of Americans believe that those who eat gluten-free are merely seeking attention. However, for the 3.2 million Americans living with celiac disease, adhering to a strict gluten-free diet is vital to manage this serious autoimmune condition. The survey also highlighted other key misunderstandings about the disease. Only 27% of respondents realized that getting diagnosed with celiac disease is challenging, because many individuals without typical stomach or digestion-related symptoms do not get tested, and are misdiagnosed with other conditions. Only 40% of Americans Aware that Untreated Celiac Disease can Lead Cancer Moreover, only 40% of Americans were aware that if left undiagnosed or untreated, celiac disease can lead to lymphoma, other cancers, additional autoimmune problems, and various life-threatening medical conditions. Another misconception found in the survey was that 43% of Americans thought that attending social events and parties would be difficult for individuals limited to gluten-free food. Beyond Celiac CEO Alice Bast emphasized the importance of increasing awareness about celiac disease. She stated that while celiac disease awareness has improved over the years, there is still work to be done to create a world where people with celiac disease can lead healthy lives without fear of social stigma or gluten exposure. Celiac disease causes damage to the small intestine and results in debilitating symptoms. If left untreated, it can lead to severe long-term health issues such as infertility and certain types of cancer. While research into possible treatments continues, there are currently no medications or cure for celiac disease. Following a strict gluten-free diet that excludes wheat, barley, and rye is the only way for those with celiac disease to manage their condition and live a healthy life. However, it's important to note that even with a gluten-free diet, there may still be health risks associated with the disease. Clearly, more work needs to be done on educating both the celiac patients, and the general public about the facts and risks of living with celiac disease. Read the full report on the survey, including methodology information, at beyondceliac.org

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  4. Celiac.com 06/00/2023 - I have been accused of many things in my lifetime—namely talking too much, being overly protective, being the ultimate caretaker—but the accusation I am glad to own is "you never miss an opportunity to talk about celiac disease". How fortunate I am to be so passionate about something and to be able to do something with that passion. Everyone who has traveled the road to diagnosis on their own or with a family member can understand its frustrations. Everyday I talk with people about celiac disease and the delays that most people face when getting diagnosed, about the intricacies of the gluten-free lifestyle, and about how wonderful life is again thanks to their discovery. I feel so privileged to be in a position to educate and enlighten people with celiac disease and dermatitis herpetiformis. One of the primary goals of the Celiac Disease Foundation (CDF) is heightening the awareness of celiac disease in the medical community, with an emphasis in Southern California where the projected population of people with celiac disease is so great. CDF has an outstanding medical advisory board that shares our goal and generously gives their time and expertise to our programs. A past goal of the CDF was to present a clear and positive directive about the gluten-free diet. We accomplished this by partnering with our colleagues, Gluten Intolerance Group™ and publishing the "Quick Start Diet Guide," which is now in its third revision. Each of our organizations is so pleased with the positive response from the entire celiac community regarding this partnership that we are currently developing additional information together. The variety of gluten-free vendors has grown tremendously over the past five years – products are available in health food and specialty stores as well as supermarkets throughout the United States. There are even two walk-in stores in this country devoted exclusively to gluten-free foods. The ability to get products delivered directly to our homes really makes things easier. We now have an Italian restaurant In Glendale, California that prepares and serves gluten-free pizza and pasta. What a treat to sit in a restaurant and be served your very own loaf of gluten-free bread. So, little by little, with each of us talking about celiac disease to our physicians, friends, families, grocers and restaurateurs, we are making our lives easier and helping the lives of people yet to discover that they have celiac disease. Journal of Gluten Sensitivity™ newsletter is yet another opportunity to do what I love and do best. We should each take any opportunity we can to enlighten just one more person about celiac disease!
  5. Celiac.com 11/09/2012 - From their position in the public eye, celebrities can often draw attention to worthy causes, and to advocate for awareness of those causes more effectively than people outside the media spotlight. After being diagnosed with celiac disease in 2008, actress Jennifer Esposito is on a gluten-free diet, and though she's still recovering from the damage to her small intestines, the 'Blue Blood' actress is emerging as a strong advocate for celiac awareness. Like so many others with celiac disease, Esposito suffered for many years with symptoms ranging from stomach upset, exhaustion, joint pain, sinus infections, dry skin and hair, panic attacks, depression, and back pain. In fact, nearly twenty years went by before she had a solid diagnosis. In a recent interview, Esposito told S. Z. Berg that she is still dealing with the "repercussions of improperly being diagnosed over the years." She points to a lack of awareness about the disease for consumers and that fact that only recently "is the medical field paying closer attention." In a line that may be familiar to many people with celiac disease, she points out the long struggle to fully recover, even after adopting a gluten-free diet, noting that even though "many of the stomach issues and other ailment start to subside," celiac disease is an autoimmune condition that requires daily attention. People with the disease, she says, must constantly be aware of what they eat and maintain a healthy lifestyle, along with healthy vitamin and mineral levels. She says that her recovery has been "a long journey... and one that I still am on. The severe panic attacks have subsided as well as the depression, but with one bad meal they are ready and waiting to come to the forefront." Her own struggles have left her "determined to educate and make people aware of the truth about this disease." Ultimately, Esposito had her celiac disease confirmed through blood test and biopsy, but in some ways, that was only the beginning of her challenges. She says she believes that the medical industry needs to focus on "treating the individual person, the whole person, body and mind and not about money and mass studies of a disease." She also bemoans what she calls the "one pill fits all mentality" of the medical profession, along with the fact that nutrition is something that gets addressed only after an individual has gotten diagnosed. She describes this as "negligence," and says that it has compounded the damage, and with it, her difficulties. "My life is dramatically different and my health is a struggle everyday," she says. To help others with their celiac disease struggles, Esposito has created a blog called Jennifer's Way. There, she hopes to help people learn more about celiac disease and share the struggles and triumphs of her journey toward wellness. Her blog includes tips, ideas, and advice on how to get started in this new life. I also share some of my favorite easy and good for you recipes that I've created. She's also founded Jennifer's Way Foundation for Celiac Education to help make sure that going forward there is proper education about this disease in addition to helping to generate awareness to help people live a healthy gluten-free life. Jennifer has a nonprofit organization, Jennifer's Way, to help educate the public about celiac disease. Her Twitter handle is @JennifersWayJE. Developing Story: Breaking news indicates that Jennifer Esposito has been dismissed from her role in Blue Bloods, for reasons she says have to do with her celiac disease. This story is developing, so stay tuned... Source: http://www.huffingtonpost.com/sz-berg/jennifer-esposito-celiac_b_1770642.html
  6. Celiac.com 05/14/2020 - May is Celiac Disease Awareness month. I'll be honest, I'm not sure how we got a whole month, but I'm happy we do. I use this month as a way to bombard my personal social media with facts, figures, memes, infographics, and anything else to let people know more about celiac disease. But really, before we get into the whole Celiac Disease Awareness month pomp and circumstance, I wanted to make an apology. Lately, I've been really hard on scientists studying celiac disease, and I've had some revelations that maybe I've been too hard on them. Celiac disease has been around for millenia. Scientists have found evidence of the disease in ancient bones from Rome. The trigger for celiac was pieced together during bread shortages in World War II in the Netherlands. I want to believe that scientists know a lot about this disease. But I'm not confident that is a fair assumption. Until the early 2000's, celiac disease was thought of as a disease discovered in childhood that could be outgrown. Celiac was thought to be rare in the US, they didn't have the tools to look for celiac, and therefore doctors didn't even screen for celiac. When you talk to people diagnosed before 2005 or so, they will tell you that it was highly unusual to find someone with celiac disease. In the few people I've talked to diagnosed before 2005 or so, they will tell you it was years before they were diagnosed. Typically, they had a family member that was a doctor and did research to find this unusual disease. They will tell you they were diagnosed via endoscopy only because that is all that was available at the time. The Tissue Transglutaminase or TTG test was developed in 1997. In Gut magazine in 2000, scientists talk about the new TTG test and in the introduction they say, "Coeliac disease is one of the commonest underdiagnosed diseases in general practice." Wow! And that was only 20 years ago they were talking about celiac being common and underdiagnosed. Now you have a disease that can be easily screened for and an easy cure—simply eliminate gluten from the diet and all will be well. Gluten is what causes the damage to the small intestine—so removing it should solve the problem. GMO's, Paleo diets, and gluten-free diets are all the dieting rage in the early 20-teens. Gluten-free foods are the fastest growing segment of the food industry. Gluten-free labels start to appear on everything—gluten-free or not until the FDA limits the use of the gluten-free label and requires food manufacturers to list the top 8 allergens in clear bold print on the label for all to see. Wheat is considered one of the top 8 allergens, but the remaining gluten allergens, like barley and rye, are not required to be listed. Non-celiac gluten sensitivity starts to enter the lexicon. This is where someone has a reaction to gluten but tests negative for celiac disease. It is a controversial diagnosis of exclusion as there is no test to confirm NCGS. Food allergy tests also come into vogue during this time. All gluten containing grains are a part of these test and many people show "reactivity" to gluten containing grains. Further fueling the demand for gluten-free foods. In the second half of the 20-teens, drug companies start to realize that this celiac disease might be a gold mine. It is an underserved community with absolutely ZERO pharmacological interventions available for those with celiac disease. The gluten-free diet should cure the disease. Drug companies realize that the gluten-free diet is hard and that people want to be free to not deal with such a restrictive diet. Fast forward through the gluten-free fad of the early 20-teens and we come to today, which is really where I wanted to get to anyway. I don't think we have a clear idea of what celiac disease is, what its long term effects are, how strict does a gluten-free diet need to be to induce healing, and why do some heal on the diet while others move to refractory celiac disease. I think we know the trigger of celiac disease as the dietary consumption of gluten. But we don't know why only about 1% of the people with the genetic markers develop celiac. Scientists have conflicting information about the development of celiac in children regarding the timing of introduction of gluten, breast feeding vs. bottle feeding, and other things. In Sweden there was a huge spike in celiac diagnosis for children born in the 1980's through early 1990's, but they don't know why. I consistently see studies discussing that no matter how hard we try, it is virtually impossible to eliminate gluten 100% from our diets. My answer is duh, but obviously scientists didn't know. I think they thought it was easy to eliminate gluten from the diet. I think they are slowly realizing how much attempting a gluten-free diet affects people health-wise, socially, and economically. I see studies that show that people with celiac disease have a shortened lifespan and others that say that once a gluten-free diet is initiated all risk factors for a shortened lifespan return to normal levels. Let's not even discuss those that move onto refractory celiac disease. I've decided they don't know for sure about the long term consequences of celiac...gluten-free diet or not. My bottom line in all of this very long diatribe, is that they've only really been studying celiac disease for about 20 years. In northern Europe, they have more historical data on celiac than anywhere else, but it is still pretty scant and incomplete. But I've decided we have to give these scientists a break. They are working hard to crack the mysteries of celiac disease. Although I'm disappointed at where we are in the research today, I'm hopeful that we will make significant discoveries in the next 20 years of ongoing research to provide answers to those suffering from gluten-related diseases. But, today, and all this month, is Celiac Disease Awareness Month, so let's put all of these worries behind us and let the world know about celiac disease!

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  8. Celiac.com 06/21/2019 - Celiac disease is a serious autoimmune disease in which gluten in food causes the body’s immune system to attack the gut. There is no cure. Celiac disease is a lifelong condition, and the only treatment is a strict gluten free diet. When people with celiac disease accidentally eat gluten, they can have bloating, diarrhea, vomiting, stomach pains and lethargy. Symptoms can last several days, and sometimes require medical attention. Ireland has nearly 50,000 celiac disease sufferers among almost 5 million citizens. In an effort to improve menu offerings for Ireland’s celiac sufferers, the Coeliac Society of Ireland is calling on Ireland’s restaurateurs to take their Gluten Free Eating Out Pledge. Launched as part of Coeliac Awareness Week, the pledge is designed to encourage restaurants and cafes to reassure people with celiac disease that they can order gluten-free food with confidence. Under the terms of the Gluten Free Eating Out Pledge, restaurants agree to: Meet the Gluten Free Standards established by the Kitchen Safety Checklist Have staff members complete online catering training Clearly mark all gluten-free menu items with the gluten-free symbol, or offer a separate gluten-free menu What do you think about the idea? Should more restaurants commit to serving safe, reliable gluten-free meals? Share your thoughts below.
  9. Celiac.com 10/07/2011 - In October 2010, Kicking 4 Celiac Foundation Executive Director Craig Pinto made 717 regulation field goals in a 12 hour period to set a Guinness World Record. That success marked the beginning of the foundation's annual “Kicking4Celiac” event, which raises money and awareness for celiac disease. The second annual “Kicking4Celiac” event is set for October 9th, when Pinto will return to the football field at Bethpage High School and attempt a second world record, this one for the “Most Field Goals made in 24 Hours.” Pinto must make a at least 1,000 field goals in 24 hours to break the existing world record. This year’s event will help to grow the foundation's scholarship program, which, beginning in early 2012, will award scholarships to college-bound students with celiac disease. Speaking of last year's event, Pinto said that "the progression mirrored what I went through with celiac disease. The initial mental stress, the physical stress, but the hard work to make it through, and come out on top. It is something I want to continue to do, to break people’s thoughts and stigmas that when you’re diagnosed with celiac disease that your physical abilities will change." Pinto added that the “support from people reaching out was absolutely amazing, and it just showed how strong the celiac community stands behind and supports each other. We’re in this together.”
  10. Celiac.com 04/29/2010 - May is designated as National Celiac Awareness Month. As such, I thought it would be a great opportunity to explore the history of celiac disease. Most people think of celiac disease as a modern day ailment, which predominantly affects those of European descent and in Westernized societies. However in my research, I found that the best place to start when referencing the history of celiac disease, is actually the beginning of humans. In the beginning of humans, known as the Neolithic Period, humans were hunters and gatherers and primarily survived on fruits, nuts, and meat when available. During the Neolithic Period, humans evolved and began cultivating plants which quickly led to the agricultural revolution. With the agricultural revolution came a myriad of food antigens, such as dairy, eggs and processed grains. It was during this time that celiac disease was born. Some 8,000 years after making its debut, celiac was identified and named by a Greek physician known as Aretaeus of Cappadocia. In the first century A.D., Aretaeus documented information about, “The Coeliac Affection.” He named celiac disease, “koiliakos” derived from the Greek word for “abdomen”. In his descriptions of celiac Aretaeus stated, “If the stomach be irretentive of food and if it pass through undigested and crude, and nothing ascends into the body, we call such persons coeliacs”. While a name had been given to the disease, people with celiac still had no idea how to heal from the condition, and were still vastly unaware of the cause for their ailments. It wasn't until the early 19th Century that Dr. Mathew Baillie published his observations on celiac disease which he sited as, 'chronic diarrheal disorder causing malnutrition and characterized by a gas-distended abdomen'. In his observations, Dr. Baillie documented that some of his patients appeared to benefit from eating only rice. However important Dr. Baillie's findings were, they still went largely unnoticed by the medical community until 75 years later when an English doctor known as Dr. Samuel Gee, came into the scene. In 1888 Dr. Gee was working for the Great Ormond Street Hospital for Children in the United Kingdom when he demonstrated a set of clinical trials performed on children and adults with celiac disease. Dr. Gee was quoted as saying, “To regulate the food is the main part of treatment. The allowance of farinaceous foods must be small, but if the patient can be cured at all, it must be by means of diet.” As an example he sited a very sick child that was fed the best Dutch mussels every day during mussel season. The child thrived during mussel season, but as soon as the season was over, the child regressed and died before the next mussel season. In the 1920's, Sidney Hass presented the “Banana diet”. Sydney successfully treated 8 out of 10 children suffering with celiac disease using the banana diet. He claimed to have cured the 8 children that were on the banana diet, but the other 2 children not on the banana diet, died. The banana diet included the elimination of all bread, crackers, potatoes and cereals and for several decades, the banana diet was the only cure for celiac disease. Another important marker in the history of celiac disease were the findings by Dutch pediatrician, Dr. Willem Karel Dicke. In 1953 Dr. Dicke wrote his doctoral thesis for the University of Utrecht based on his observations that the ingestion of wheat proteins specifically, and not carbohydrates in general, were the cause of celiac disease. He was able to exemplify his findings based on bread shortages in the Netherlands during World War II. During the bread shortages, he found that the health of children with celiac improved tremendously. However, when the allied planes began dropping bread to the Netherlands, the same children quickly deteriorated. In the 1960's, it became evident that the best method for testing for celiac disease was to perform a biopsy. However, doctors were urged not to diagnose people as having celiac disease until it was proven that gluten was the cause for the damage. To determine if a patient had celiac disease, a biopsy would be performed to evaluate the damage done to the intestines. The patient would then be put on a gluten-free diet. Another biopsy would then be preformed to determine improvement in the intestines. After improvement the patient would be put back on a gluten diet, and another (3rd) biopsy would be preformed to determine reoccurring damages to the intestine, and thus the presence of celiac disease. This method was used for over 20 years as the best method for testing for celiac disease. Then in the 1980's studies by Dr. Stefano Guandalini, showed that the presence of celiac could be found in 95% of celiac cases by performing a single biopsy. In 1990 these findings helped create the new guidelines for celiac testing which were approved by ESPGHAN (European Society for Pediatric Gastroenterology). Also during this time, professionals starting recognizing celiac as an autoimmune disease and also began recognizing the correlation between gluten sensitivity and other autoimmune diseases. Here we are now in the year 2010; thirty years after the medical profession has successfully established the causes, tests and treatments for celiac disease, and thousands of years since celiac first made it's debut. Yet, as far as early diagnosis is concerned, we are still living in the dark ages. In this day and age, knowing what we know about celiac disease, childhood screening for celiac should already be mandatory. It's almost as if, when doctors were told in the 1960's to hold off on celiac diagnosis until they knew undoubtably that gluten was the cause for damage to intestines, they were never told, 'okay, now it's safe to diagnose for celiac'. Unfortunately, many (if not most) doctors still don't know how to appropriately diagnose patients for celiac disease, and therefor they continue to 'hold off' making celiac diagnoses, or misdiagnose regularly. Enforcing mandatory celiac screening in school age children has potential to eliminate the unnecessary suffering of millions of children and adults worldwide. My dearest hope is that we all get to see mandatory celiac testing in this lifetime. If you would like more information on “Celiac Awareness Month,” please check out the links below. The following links are trusted sites that also provide suggestions on how you can get involved and contribute to celiac awareness in your community. Celiac Disease Foundation Celiac Sprue Association Celiac Disease Timeline: Agricultural Revolution - celiac disease is born 1st Century A.D.- Aretaeus named celiac, “ koiliakos” 1st Century A. D.- Aretaeus documented“The Coeliac Affection.” 19th Century- Dr. Mathew Baillie published his observations on celiac 1888- Dr. Gee established the correlation between celiac and diet 1920's - Sydney Hass successfully treated celiac patients with “the banana diet” 1953 - Dr. Willem Karel Dicke confirmed wheat protein to be the cause for celiac disease 1960's - Biopsy established as the most accurate test for celiac 1980's - Dr. Stefano Guandalini established a single biopsy test for celiac 1990 - ESPGHAN established new guidelines for celiac biopsy testing Sources: Impact America's Silent Epidemic
  11. Celiac.com 11/13/2014 - An anonymous donor has made a $2 million dollar contribution to the National Foundation for Celiac Awareness (NFCA). The donation is the largest in the organization's history, and will support the NFCA’s mission is to raise celiac disease awareness, promote research and testing testing, and improve the quality of life for celiacs eating a gluten-free diet. Since 2003, the NFCA has worked to promote celiac disease research and awareness. The grant will help to ensure support for the NFCA as it looks to increase research and awareness into the future. Stay tuned for updates on how the NFCA supplements or expands its ongoing efforts on behalf of people with celiac disease and gluten intolerance.
  12. Celiac.com 02/21/2014 - Doctors in India made a bit of a splash recently by using music to help raise awareness about celiac disease, which is rarely-discussed, and under-diagnosed in that country. The group, representing numerous areas of medical specialization, met to raise awareness about the disease, especially among their medical peers. Nearly 10 million (1 per cent of India's population) suffer from celiac disease, and very few cases are properly diagnosed. Organized by The Celiac Society of Delhi at India Habitat Centre, the event featured doctors speaking about celiac disease and the importance of making a correct diagnosis. To make sure their message got across, they included a musical performance. The diagnosis and management of celiac disease in India is, at present, poor, says Celiac Society founder and president Ishi Khosla, adding that "…cases are often mistaken for irritable bowel syndrome, Crohn's disease, tuberculosis or a form of auto-immune disorder." People with undiagnosed celiac disease have a much higher risk of getting life-threatening maladies later on in life. In addition to featuring music and talks, the conference also played host to guest of honor C.K. Mishra, additional secretary to the Union Ministry of Health and Family Welfare. Source: Express News Service: New Delhi, Sun Dec 15 2013
  13. Celiac.com 05/17/2013 - After earning the title of Miss Hoboken International in January, and Miss New Jersey International 2013 on March 9, celiac disease sufferer Jenna Drew will compete with young women from across the globe in the Miss International Pageant in Chicago this July. Asked about her opportunity to shine, Drew, 25, who works for Litzky Public Relations in Hoboken, said, “I am so thrilled…You don't get to do something like this every day. It's so exciting.” Drew was diagnosed with celiac disease in 2007, after a blood revealed her mother, who was battling cancer, to be suffering from the disease. Since 2009, she has been working with the National Foundation for Celiac Awareness and speaking publicly about celiac disease. To rise to the top the pageant contest, competitors have to do be fit, glamorous, dance well, have a winning personality, and have strong commitment to community service. Drew seeks to raise awareness about celiac disease, especially about the benefits of giving up gluten. Since cutting gluten from her diet in 2009, most of her symptoms have have vanished. She also has more energy, and suffers fewer migraines, she said. Drew earned her bachelor's degree in advertising from Penn State University, and her MBA in marketing from the Florida Institute of Technology. Drew's latest victory earned her a $500 scholarship to help pay student loans, along with $250 toward an evening gown or cocktail dress for the next pageant. Perhaps most important of all, her victory covers the cost of coaching that will help her to sharpen the interview and public speaking skills that are so crucial to success in pageants, and beyond. And it will provide the opportunity to spread the word on celiac disease at engagements across the state. “Through this platform in New Jersey, I will be able to make connections and make a difference,” Drew told listeners. Drew will next compete in Chicago at the Miss International Pageant on July 22-28. Drew says she looks forward to meeting the other contestants, both from America, and from the around the world. Source: http://www.nj.com/hudson/index.ssf/2013/03/miss_international_hoboken_con.html
  14. Celiac.com 04/13/2012 - There is a disease that affects one in every hundred Americans and causes physical and mental agony yet once it’s diagnosed, it can be easily treated with a change in diet and without the administration of drugs. You maybe haven’t even heard of it. You would think that the sufferers of this disease would be rather lucky to have such an easy treatment option available to them, right? As a matter of fact, it turns out that this disease—celiac, or coeliac, disease—may be easy to treat, but it’s very difficult for doctors to diagnose, and for the very reason that doctors haven’t heard of it either. It’s estimated that three out of every hundred of the people with celiac disease has been diagnosed. Only three out of every hundred! So why is it that most celiacs suffer without diagnosis? Low awareness in this country means low awareness in the medical community about this disease. If you’re like most Americans, you probably haven’t even heard about it before you read this article. With celiac disease, a component of wheat, barley, and rye, called gluten, causes an immune reaction that attacks the intestine and can affect the entire body. Another reason for difficulty in diagnosing celiac disease is the fact that doctors usually miss the diagnosis because they don't realize how variable the disease can be. There are numerous gluten intolerance symptoms. People with celiac disease aren’t able to properly absorb essential nutrients because the villi, the absorptive fingers in the small intestine, have been damaged or destroyed. Other symptoms and problems caused by this autoimmune disease include diarrhea, fatigue, abdominal pain, bloating, gas, distention, weight loss, constipation, irritable bowel syndrome, vomiting, short stature, iron deficiency with or without anemia, failure to thrive in infancy, poor performance in school, delayed puberty, infertility, recurrent miscarriage, elevated liver enzymes, Down syndrome, Sjogren's syndrome, canker sores, arthritis, depression, osteoporosis, vitamin deficiencies, tooth discoloration and dental enamel defects, skin disorders, autism, nerve and balance problems, irritability in children, seizures, and migraines. Additionally, there seems to be a slightly increased risk of lymphomas and gastrointestinal cancers. Many symptoms of celiac disease look like many other diseases, sicknesses, etc so it is very deceiving. Doctors don't think of celiac disease, as it isn’t stressed in medical school or doctors are taught that the symptoms of the disease are always dramatic, which isn’t true. Doctors are, however, becoming more aware of the disease. However, it takes an average of four or more years before the correct diagnosis of celiac disease is made in the very small percentage who are correctly diagnosed at all. Celiac disease is easy to test for. Simple blood tests detect the disease over ninety percent of the time. The diagnosis is then confirmed by an upper endoscopy; a small, flexible tube is slipped into the mouth of the sedated patient, down his esophagus and stomach and into the first part of the small intestine, called the duodenum, where biopsies are taken and then examined for changes seen in celiac disease. Even simpler than testing for diagnosis is the treatment of the disease—a gluten-free diet. It is challenging and requires a lifestyle change, but with more and more gluten-free substitutes and gluten-free recipes available, adopting a gluten-free diet and gluten free cooking is easier than ever. There's research into developing a pill that would help people with celiac disease, as well. A few years ago I had many painful symptoms and bouncing from doctor to doctor with no diagnosis. I finally happen to fall into the hands of a doctor who very much knew about celiac disease and tested me for it. It took a lot of time and determination, and most people aren’t able to devote themselves to this degree. It’s really not right that millions of people are suffering from this disease with no diagnosis. A disease that can treated so easily yet the diagnosis for which is so elusive, when simply educating doctors in its symptoms would bring these people such relief. While efforts are surely being made to get the U.S. government to fund research and to raise awareness for this disease, there are some things you can do yourself besides just writing your representatives, which I highly suggest you do. If you were to send out this article to a hundred people or speak to the same number of people about this subject, chances are, you would come across a sufferer of celiac disease and you would change that person’s life. Better yet, post it on a blog or forward it to friends and have them forward it themselves. In this way, you may be able to contact many more than a hundred people. The increased awareness will lead to increase relief.
  15. Celiac.com 01/13/2012 - In an event that was part local apple festival, part celiac disease awareness promotion, and one-hundred percent record-breaking bake-off, a team of community members in Buenos Aires has baked the world's longest apple tart. One third of the 984-foot tart was made gluten-free to promote celiac disease awareness. Enthusiastic volunteers removed sections of the tart from numerous bakery trucks parked along Rivadavia Avenue, the world's longest avenue. They then assembled them end to end, making sure to keep the gluten-free portions carefully separated from the rest of the tart. This is the third year in a row that the tart-baking group, which is based in from Cinco Saltos, Argentina, has organized the tart bake-off. Another goal of the event, say event organizers, is to draw attention to their local apples, which they call the most delicious apples in the world. Says organizer Maricarmen Garcia, "It is the longest tart in the world but this time on the longest avenue in the world. We are happy to bring the tart here to the people of Buenos Aires for them to try. It is exquisite. It is homemade and we are promoting that we have the best apples in the world." About twenty-four thousand people helped to consume the tart.
  16. Celiac.com 12/23/2011 - A research team recently sought to figure out the basic level of awareness of celiac disease and gluten sensitivity among the general public and trained and untrained chefs, and to compare dining habits of people with celiac disease and gluten-sensitivity to those of the general public. In face-to-face interviews, and via internet survey, researchers asked people about their knowledge of celiac disease and gluten sensitivity. They also asked people with celiac disease and gluten sensitivity about their dining habits, in addition to asking chefs about their levels of training and education. In all, the researchers surveyed 861 persons from the general public. They found that 47% had heard of celiac disease, 67% had heard of gluten sensitivity, and 88% had heard about peanut allergy. They surveyed 790 people with either celiac disease (82%, n=646), or gluten sensitivity (18% n=144). The vast majority of respondents to the study were female, making up 83% of those with celiac disease, and 90% of those with gluten sensitivity. Those with celiac disease and gluten sensitivity were older than the general public respondents, 57% of the patients were over 45 years of age compared with just 32% of the general public respondents (p< 0.0001). The 200 chefs who were surveyed showed a much higher awareness of celiac disease, with 77% of chefs having heard about celiac disease compared to less than half of the general population. Interestingly, many more people in both groups had heard of gluten sensitivity, with 89% for chefs, and 67% for the general population, respectively. Still, the chefs, like the general public, had a tendency to underestimate celiac disease was underestimated by both chefs (56%) and the general public (69%) while peanut allergy was overestimated by 55% of the general public and 60% of chefs. People with celiac disease may not be surprised to learn that a large majority, 63% of the 790 following a gluten-free diet reported avoiding restaurants more, and eating take-out food much less often than the general public. One important finding was that the level of training had a great deal of impact on a chef's knowledge of celiac disease. Overall, trained chefs were much more likely to be familiar with celiac disease compared with untrained chefs (83% vs. 52%) Also, there was a direct connection between the average price of a meal and the likelihood that the chef was familiar with gluten-free concerns. The more expensive the restaurant, the more likely the chef was familiar with celiac disease and gluten-free concerns. Restaurants with an average check below $25 had a 64% rate of awareness, while the rate for restaurants with a check over $65 had a 94% awareness of gluten-free concerns (p<0.0001). In general, the survey team was impressed by what they saw as a fairly high degree of awareness of gluten-related concerns. Interestingly, both trained and untrained chefs were more likely to have heard of gluten sensitivity than of celiac disease. Most people with celiac disease avoid restaurants, and eat out the home far less often than the general public. Still, many do eat out, and they do so by making sure they get their needs met. The simple take away is that chefs are generally pretty aware of gluten-intolerance and celiac disease, and that chefs with better training and higher-end restaurants are more likely to deliver a gluten-free dining experience. As always, communication goes a long way toward ensuring a pleasant and successful restaurant experience for anyone with celiac disease. Knowing your needs, sharing your concerns, and asking your server and/or chef about their gluten-free options and preparation methods can go a long way toward a smooth gluten-free dining experience. Source: http://www.journals.elsevierhealth.com/periodicals/yeclnm/article/PIIS1751499111000527/fulltext
  17. Celiac.com 10/24/2011 - Shannon Ford, of Miami, Florida has been crowned Mrs. United States 2011. Mrs. Ford received the crown from 2010 winner Rachel Juillerat. The award is particularly noteworthy for people with celiac disease and gluten intolerance. Two years ago, Ford was diagnosed with celiac disease, and she now maintains a gluten-free diet. Contestants for Mrs. United States are judged on personality, charitable commitment, evening gown and swimsuit, a judges’ interview and dramatic final live question. In her new role as Mrs. United States, Ford will make appearances across the country, charity events and speaking engagements. By promoting her platform, “1 in 133 – Raising Awareness for Celiac Disease," Ford also hopes to increase celiac disease awareness and to advocate for better labeling of our nation’s food supply. Of her new title, Ford says: “Being Mrs. United States is a huge responsibility. I’m excited to get back to Florida and get to work.” She is scheduled to begin make appearances across the nation, with her first stop being a benefit luncheon for the Easter Seals. Mrs. Ford earned her B.A. in Psychology from Florida International University. She currently works as a human resources manager for major wealth management company. She also serves as a Miami Dolphins ambassador, chosen from former Dolphin cheerleaders to represent the organization and advocate community service. Ford married her husband Ray after dating him for 15 years. They are both avid runners, and Shannon Ford has competed in numerous half and full marathons. Source: Open Original Shared Link
  18. Celiac.com 05/21/2011 - May is National Celiac Disease Awareness month, as designated by the National Foundation for Celiac Awareness (NFCA), a 501©(3) non-profit organization dedicated to raising awareness and funding for celiac disease. That means a month of official and unofficial events to promote awareness of celiac disease. A few of the official events scheduled for National Celiac Disease Awareness month include: 1) Gluten-Free Food Labeling Summit The first annual Gluten-Free Food Labeling Summit will gather legislators, celiac disease researchers, gluten-free community leaders and food corporations as they call upon the Food and Drug Administration (FDA) to enforce a standard for safe and effective labeling of gluten-free food. When: Wednesday, May 4, 2011 Time: VIP Reception for sponsors, 5-8:30 p.m. Where: Embassy Suites Convention Center 900 10th Street Northwest Washington, DC 20001 2) #GFchat on Twitter (featuring Ask the Dietitian experts): May 10, 17, 24, 31 - Chats will take place on Tuesday evenings at 8 p.m. ET/5 p.m. PT. Those interested in participating should follow and use the hashtag #GFchat to keep the conversation in one central steam. 3) LIVE with Jill's List: Should You Be Gluten-Free? May 11 - Join LIVE with Jill's List to listen to and CHAT LIVE with celiac and gluten-free experts: * Mark Hyman, MD - NY Times Best Selling Author and family physician * Alice Bast - Founder and President of the National Foundation for Celiac Awareness * Jill Brack - Founder of GLOW Gluten Free Cookies 4) Celiac 60+: Meeting the Needs of the Mature Celiac This free online webinar will feature Veronica Alicea, M.B.A., R.D., a well-known dietetic consultant in the celiac and gluten-free fields, leading an hour-long discussion on the rising number of celiac diagnoses in the mature adult population. Wednesday, May 18th at 1 pm ET/10 am PT. 5) Catwalk for Celiac All proceeds will be donated to the National Foundation for Celiac Awareness. When: Thursday, May 19, 2011 Time: 6-10:30 p.m. Where: Fiesta Banquet Hall 255 Route 17 S Wood-Ridge, NJ 07075 Cost: $35 for students, $42 for adults 6) Celiac Awareness Night at the Mets Join the National Foundation for Celiac Awareness and R.O.C.K. Long Island for Celiac Awareness Night at the Mets. The New York Mets will be taking on the Philadelphia Phillies, and catch all the action from special sections in the Left Field Landing - tickets $35 or $20 each. Gluten-free concessions will be available. When: Friday, May 27, 2011 Time: 7:10 p.m. Where: Citi Field Flushing, NY Corporate promotions for Celiac Disease Awareness Month include: 7) Rudi's Unbelievably Good Gluten-Free Recipe Contest Submit your original gluten-free recipe using Rudi's Gluten-Free Bakery products (including their new buns and pizza crust) for the chance to win a trip to Colorado and star in an Alternative Appetites video with Dan Kohler! Some Important Contest Dates: April 18 – May 20: Recipe submissions accepted on the recipe contest tab on the Rudi’s Gluten-Free Bakery Facebook page April 18 – June 6: Online voting open to the public June 13: Top 3 finalists announced June 24: Top 3 finalists compete in Final Recipe Cook-Off at Restaurant 4580 in Boulder, Colorado. Check your local gluten-free or celiac disease support group for details on events in your area. Or get together with friends and family and create your own fun for Celiac Awareness Month!
  19. Celiac.com 09/13/2010 - Happy National Celiac Disease Awareness Day! Here at Celiac.com we sometimes forget this special day because to us every day is Celiac Awareness Day! For those who don't know, each September 13th is the official "National Celiac Disease Awareness Day" due to United States Senate Resolution (S.Res. 563), which was adopted in 2006. September 13th was chosen for this important day because it is Dr. Samuel Gee’s birthday—who was the first medical doctor to discover a link between celiac disease and a person's diet, way back in the late 1800's. He once said "if the patient can be cured at all, it must be by means of diet." Celiac.com hereby proclaims that forthwith on this day EVERYONE should eat gluten-free—and everyone should also be sure to hug a celiac! Oh, and don't forget to give thanks to Dr. Gee before eating that gluten-free food—after all, if it weren't for him we would probably all be pretty miserable right now! More information about Dr. Samuel Gee can be found at: https://www.celiac.com/articles/77/1/The-Celiac-Affection-in-Children-1---Edinburgh-Med-Journ-Vol-XXXV-NOIV-Oct-1889-pp-321-330/Page1.html http://www.whonamedit.com/doctor.cfm/1312.html http://www.aim25.ac.uk/cgi-bin/search2?coll_id=7101&inst_id=8 Source: http://www.csaceliacs.org/documents/CeliacAwarenessDaySamuelGee.pdf
  20. Celiac.com 05/17/2010 - Scott Adams and Ron Hoggan went on live radio last Saturday on the Love By Intuition Show with host Deborah Beauvais (Dreamvisions 7 Radio Network) in support of Celiac Disease Awareness Month. The show is broadcast live from Boston, MA on 1510 AM Revolution Boston, a progressive 50,000-watt station reaching 5 states locally, and on Energy Talk Radio in San Francisco, and it reaches over 1,000,000 listeners. The show will be re-broadcast several times and will hopefully reach many more listeners. The podcast is attached and can be downloaded or listened to from our server. Dreamvisions 7 Radio Network is holistic healing radio network with an eclectic group of radio hosts all with the common goal to help humankind by offering different modalities or programs combined with tools to bring awareness, joy and love to their listeners. Their vision is to continue to syndicate the Network of shows by having additional affiliates both terrestrial and Internet.
  21. Celiac.com 06/17/2009 - He stands aloof and watches absent-mindedly as the other children queue up for the food. He remembers his mother’s stern warning and the hunger pangs worsen. He knows the even a morsel of the delicious mouth-watering cake will surely make him ill. Meet Mike, he was born with celiac disease. Mike’s parents are well-off and highly educated. According to his mother, Mrs. Kintu, shortly after his birth Mike started showing signs and his parents immediately took him to a European hospital for a check-up. The doctors did an endoscopic exam and Mike was diagnosed with celiac disease. Mike had to stick to a gluten free diet for the rest of his life. Mike’s life was spared. Had Mike been born in a poor family, Mike would have eventually lost his life to celiac disease, just like the increasingly shocking numbers of African infants between the very minor age of 6 months and 4 years that die every year—particularly in the East-African region. The acute lack of awareness and subtle ignorance about the disease leads the devastated parents to think that sorcery or envious neighbors robbed them of their little ones. Mike is alive today and maintains a particularly sparse diet and survives on such food as vegetables, rice, beans, potatoes, small quantities of red meat, and fresh fruits. Granted, this may seem like a rather healthy and outright fulfilling diet for an adult, however, as fate would have it, Mike is also lactose-intolerant. Essentially, this means that, in lay-man’s language, Mike is allergic to milk in its natural form and all its by-products. Celiac disease is a permanent inflammatory disease of the small intestine triggered by the ingestion of gluten-containing cereals in genetically predisposed individuals. It is a lifelong autoimmune intestinal disorder. Damage to the mucosal surface of the small intestine is caused by an immunologically toxic reaction to the ingestion of gluten and interferes with the absorption of nutrients. Celiac disease is unique in that a specific food component, gluten, has been identified as the trigger. Gluten is the common name for the offending proteins in specific cereal grains that are harmful to persons with celiac disease. These proteins are found in all forms of wheat (including durum, semolina, spelt, kamut, einkorn, and faro), and related grains such as rye and barley must also be eliminated. Celiac disease was first described in the second century AD by Aretaeus of Cappadocia, a contemporary of the Roman physician Galen, who used the Greek word “koeliakos”, which means “suffering of the bowels”. However, only in 1888 AD did Samuel Gee of St. Bartholomew’s Hospital give the classical clinical description of celiac disease. The cause of celiac disease, also known as celiac sprue, or gluten sensitive enteropathy (GSE), is unknown. Celiac disease occurs in 5-15% of the offspring and siblings of a person with celiac disease. In 70% of identical twin pairs, both twins have the disease. It is strongly suggested that family members be tested, even if asymptomatic. Family members who have an autoimmune disease are at a 25% increased risk of having celiac disease. Celiac disease displays itself with the following symptoms: Recurring bloating, gas, or abdominal pain Chronic diarrhea or constipation or both Bone or joint pain Behavior changes/depression/irritability Vitamin K Deficiency Fatigue, weakness or lack of energy Delayed growth or onset of puberty Failure to thrive (in infants) Missed menstrual periods Infertility in male & female Spontaneous miscarriages Canker sores inside the mouth Tooth discoloration or loss of enamel And many others (to see a complete list go to the Celiac Disease Symptoms page).In any case, there is little or no research on this disease in East Africa. The principal ideals behind this article are the commencement of an awareness program, with particular emphasis on celiac disease and any other diseases that are not generally known about in the region. It is important that these are brought to the light and addressed duly by the concerned parties. There is also an urgent need to formally address the problem especially to those that can not possibly afford treatment and are generally ignorant. I am in the process of establishing an awareness campaign concurrently with a patients’ association for celiac disease in East Africa. The association is still in its infant stages and I am appealing for support and any form of assistance. The name of my association is: Creating Celiac Disease Awareness in Africa. Author's Note: The names of the characters in this article have been changed for privacy reasons.
  22. If you would like to learn more about celiac disease genetic testing, or read about my personal experience with Kimball Genetics, be sure to read the following two related articles: Your DNA Results Indicate: Super Celiac! By Scott Adams Understanding the Genetics of Gluten Sensitivity by Dr. Scot Lewey Celiac.com 11/29/2006 - Kimball Genetics, Inc. announces its participation this week at the XII International Celiac Disease Symposium in New York City and its support of the Celiac Disease Center at Columbia University. Kimball Genetics has a strong commitment to celiac disease education and genetic testing for this common, chronic, autoimmune disorder. Celiac disease affects approximately 1% of the U.S. population but is highly underdiagnosed, with less than 10% of cases currently detected. In genetically susceptible individuals with the specific markers HLA-DQ2 and HLA-DQ8, ingestion of gluten-containing grains causes inflammation of the small intestine and leads to malabsorption. Symptoms may be gastrointestinal and/or a wide range of other multi-systemic manifestations such as iron-deficiency anemia, chronic fatigue, osteoporosis, dermatitis herpetiformis, and attention-deficit/hyperactivity disorder. Early diagnosis and lifelong treatment with a gluten-free diet is critical to relieve inflammation and symptoms and to reduce the risk for development of secondary autoimmune disorders such as type 1 diabetes. Silent celiac disease, involving inflammation without symptoms, is also important to detect and treat. Kimball Genetics offers the Celiac Disease DNA Test, a genetic test with increasingly recognized importance in the diagnostic work-up of celiac disease. The test is valuable because it excludes the diagnosis of celiac disease in patients with a negative result, detects family members at risk for the disorder, and is accurate even when the patient is on a gluten-free diet. Both antibody testing and small bowel biopsy require going off a gluten-free diet to gain reliable results if the patient initiated the diet before diagnosis. Kimball Genetics is the only laboratory presently offering celiac disease DNA testing on cheek cell specimens with results available in one day. Dr. Peter Green of the Celiac Disease Center at Columbia University says "Cheek cell testing at Kimball Genetics is convenient and tremendously popular with my patients since it eliminates the need for blood draw. The one-day turnaround time and expert genetic counseling provided with Kimballs service are much appreciated." The Celiac Disease Foundation also recommends Kimball Genetics Celiac Disease DNA test due to these unique features of its service. In concurrence with the National Institute of Healths "Celiac Disease Campaign for Health Care Providers and Public," Kimball Genetics, Inc. conducts ongoing educational efforts including presentations to gastroenterologists, family practitioners, nautropaths, chiropractors, and nutritionists, and assists national celiac support groups. Dr. Annette Taylor and genetic counselors from Kimball have written an in depth review about celiac disease, co-authored by Dr. Peter Green, soon to be published in GeneReviews online. In addition, Kimball Genetics is collaborating with Drs. Xavier Castellanos and Dominick Auciello from New York University Child Study Center and Dr. Peter Green from Columbia University on an exciting new research study to determine the incidence of celiac disease in children with attention-deficit/hyperactivity disorder (ADHD) or learning disabilities. About Kimball Genetics, Inc. Founded in 1994 by Annette K. Taylor, M.S., Ph.D., Kimball Genetics is a national DNA diagnostic laboratory specializing in testing for common genetic disorders that are preventable or can be treated. Known for its unparalleled turnaround time and distinctive focus on genetic counseling and education, the company has a major focus on celiac disease and is at the forefront of education and testing for this disorder. Other major areas of testing currently include inherited hypercoagulability, hemochromatosis, cystic fibrosis, and fragile X syndrome. Soon Kimball will be expanding into pharmocogenomic testing which allows for the personal customization of drug therapy.
  23. Celiac.com 03/29/2005 - The Childrens Digestive Health and Nutrition Foundation (CDHNF) with the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) announced today the findings from a survey of 200 pediatricians, family practitioners, and endocrinologists revealing the lack of understanding about celiac disease (celiac disease) in children. The survey was conducted by CDHNF in partnership with Epocrates, Inc., using the Epocrates Honors&REG; Market Research Panel. The survey results supported the clear and urgent need to promote awareness of the individuals at risk, the associated conditions, the proper method of screening for celiac disease, and the necessary step of confirming the diagnosis with a small intestinal mucosal biopsy. Regarding the diagnosis of celiac disease, only 16% of respondents chose the most appropriate first line serological screening test for celiac disease, which is the IgA-anti-human tissue transglutaminase antibody. If the patient has positive serology for celiac disease, the majority of the survey respondents did not recognize the need to confirm the diagnosis with an intestinal biopsy before starting a gluten free diet. Up to 50% of individuals screened with an anti-gliadin antibody test may not have celiac disease at all, particularly if the person has atypical symptoms. The survey suggests that some people unnecessarily are recommended a gluten free diet, while others at risk are not being properly screened, identified and placed on a gluten free diet, said survey co-author and CDHNF Celiac Campaign Scientific Advisor Martha Dirks, MD, Sainte-Justine Hospital, University of Montreal, Canada. It is also of concern that the permanent nature of celiac disease is not emphasized by our physician respondents. Less than 65% of respondents recognized that a life-long adherence to a gluten free diet had to be maintained, added Dr. Dirks. In terms of recognizing symptoms, two thirds of the respondents felt that they were aware of at least three GI related symptoms of celiac disease and could correctly identify short stature and iron deficient anemia resistant to oral iron as manifestations of celiac disease. However, the survey also revealed there is a lack of awareness about associated conditions with celiac disease. For example, an average of 5% of people with Type I diabetes have celiac disease. However, less than 50% of respondents were aware of the association and almost 30% of respondents were against screening individuals with Type I diabetes. In addition, greater than 75% of respondents were unable to identify the condition NOT associated with celiac disease among a list of associated conditions. The level of knowledge of celiac disease is not what we like it to be. The survey illustrates that clear educational initiatives are needed to promote appropriate testing of persons at risk for celiac disease such as the recently released NASPGHAN Celiac Guidelines, NIH Consensus Conference, and our CDHNF grand rounds program, said survey co-author and CDHNF Celiac Campaign Scientific Advisor Stefano Guandalini, MD, University of Chicago. Dr. Guandalini added that an area definitely in need to be better known is that of screening for family members of patients with celiac disease. With an incidence higher than 5%, first-degree relatives must be screened for celiac disease, something that is only sporadically recommended. The survey indicates the need to provide medical professionals with as much information as possible about celiac disease. As a result, Epocrates has teamed up with CDHNF to distribute the CDHNFCD guidelines, gluten free diet guide and other educational resources to over 140,000 medical professionals via their DocAlert&REG; messaging technology which will allow medical professionals to save the guidelines summary to their hand-held device and request additional information via e-mail. Epocrates continues to focus on patient care and safety, and our members look to us to provide the latest, most current information on drugs and diseases such as that provided through this campaign. We are pleased to support this effort to promote child health and wellness, said Kirk Loevner, Epocrates President and CEO. The NASPGHAN and CDHNF survey was conducted through the Epocrates Honors market research panel, which enables healthcare professionals to share their clinical expertise. Typically, this research consists of online surveys that take between 10 to 45 minutes to complete. Criteria to participate vary by study. In exchange for their participation, users receive an honorarium. Fifty-seven of the nations largest healthcare market research companies conduct hundreds of studies annually by accessing the industry-leading Epocrates Honors panel of more than 121,000 U.S. physicians and 254,000 allied healthcare professionals including physician assistants, nurse practitioners, RNs, dentists, pharmacists and others. About NASPGHAN and CDHNF The North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition, founded in 1972, is the only society in North America and the largest in the world, dedicated to serving the Pediatric Gastroenterology and nutrition communities. NASPGHAN was established to advance the understanding of the normal development and physiology of diseases of the gastrointestinal tract and liver in infants, children, and adolescents, and to foster the dissemination of this knowledge through scientific meetings, professional education, public education, and interaction with other organizations concerned with Pediatric Gastroenterology and nutrition. Visit our website at www.naspghan.org. The Childrens Digestive Health and Nutrition Foundation was established in 1998 by NASPGHAN. CDHNF is the leading physician source of information on pediatric gastrointestinal, liver and nutritional issues. CDHNF is dedicated to improving the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education. In addition to the pediatric GERD education campaign, CDHNF also leads a campaign on Celiac Disease. Additional information on CDHNF and its campaigns can be found at www.cdhnf.org. About Epocrates, Inc. San Mateo, CA-based Epocrates is transforming the practice of medicine by providing innovative clinical tools at the point of care and deploying leading-edge technologies that enable communication. The company has built a clinical network connecting more than 1 in 4 U.S. physicians, students at every U.S. medical school and hundreds of thousands of other allied healthcare professionals with other healthcare stakeholders. Epocrates products have shown a positive impact on patient safety, health care efficiency and patient satisfaction.
  24. Celiac.com 11/28/2006 - The National Foundation for Celiac Awareness (NFCA) is thrilled to announce that CNN Newsroom Anchor Heidi Collins has signed on as the foundation’s official spokesperson. As a fellow celiac and a member of the news media, Heidi will bring a wealth of knowledge to NFCA. Every weekday, Heidi anchors CNN Newsroom from 9am-Noon EST. Previously she has provided in-depth reports for Anderson Cooper 360°, Paula Zahn Now, and The Situation Room, as well as served as a news anchor for CNN’s American Morning. Heidi has received three Edward R. Murrow awards as well as an Associated Press Award in the best documentary category. Heidi’s journey with celiac disease began shortly after she finished graduate school and began her first television job as an anchor at a station in Wichita Falls, Texas. About one year after she started this job, she learned she was pregnant, news that thrilled both Heidi and her husband Matt. The couple kept the secret for quite some time, but finally six months into the pregnancy, Heidi announced on air that she would be having a baby. Sadly, just a few weeks after announcing her pregnancy, Heidi lost the baby. She received very little explanation from her doctors about why the tragic loss had occurred other than from fetal demise. During Heidi’s next television job in Colorado Springs, she developed a near fatal blood clot in her leg. After four months in the hospital and arterial bypass surgery, a vascular surgeon told Heidi she would never be able to have children. The doctor explained that her blood vessels would not be able to handle the strain of a pregnancy. Heidi and Matt were devastated. Heidi’s next television job brought the couple to Denver, where after a lengthy search, they found a high-risk obstetrician who felt that having a child would not be impossible after all. Nine months later, two injections a day of blood-thinner and constant observation by a team of physicians, Heidi gave birth to her son Riley. She says it was the happiest day of her life. However, Heidi continued to deal with stomach pains, severe headaches and anemia. The constant health issues grew nearly intolerable as she moved to CNN’s New York office. She continued visiting doctors until finally after 15 years of one health problem after another, her general practitioner diagnosed her with celiac disease. With one simple blood test, Heidi had found a diagnosis that would allow her to work toward a cure for her chronic medical conditions and an answer as to why her pregnancy had failed. “Through being the spokesperson for the National Foundation for Celiac Awareness, I hope to significantly reduce the time it takes for people with celiac disease to be accurately diagnosed and empower people to reclaim their health and restore their lives,” Collins said. “It is through the power of my personal story and my ongoing struggle with celiac disease that I hope to encourage people to get tested and make a positive change in their lives.” The National Foundation for Celiac Awareness (NFCA) is a non-profit organization dedicated to raising celiac awareness and funds for research. NFCA is made up of professionals, medical specialists, and volunteers—all dedicated to working with leading researchers around the world to better understand celiac disease. Visit www.celiaccentral.org or call 202-904-7865 for further information.
  25. Celiac.com 08/31/2006 - On July 27, 2006, Representative Nita Lowey (D - NY) introduced H.Con.Res. 457, which, if passed, would recognize the month of May as national “Celiac Awareness Month.” The bill also requests an increase in federal funding for celiac disease research. Rep. Lowey was the driving force in Congress in support of the Food Allergen Labeling and Consumer Protection Act that passed in 1994, which requires food manufacturers to list the top eight allergens on their products’ ingredient labels. Celiac.com supports Rep. Lowey in her efforts to raise celiac disease awareness, and asks you to get involved. Please contact your representatives in congress and ask them to support H.Con.Res. 457—to do so simply visit: http://capwiz.com/celiac/issues/bills/?bill=8945821
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