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Celiac Disease & Gluten-Free Diet Blogs

  • kareng's Blog
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  • Research on South African Celiac Tours
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  • Keating's Not-so-Glutenfree life
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  • Searchin for a Primary Care Dr. In Redlands That is Knowledgeable about Celiac disease
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  • Living in Japan with Ceoliac Disease
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  • HONG KONG GLUTEN, WHEAT FREE PRODUCTS
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  • JillianC
  • Sugar's Blog
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  • Gluten-Free Sisters :)
  • Eab12's Celiac Blog
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  • Petroguy
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  • CAC's Blog
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  • Teri Kiefer's Blog
  • happyasabeewithceliac's Blog
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  • Cheryl
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  • Colleen's blog
  • DawnJ's Blog
  • Gluten Challenge
  • twins2's Blog
  • just trying to feel better's Blog
  • Celiac Teen
  • MNBelle blog
  • Gabe351's Blog
  • moosemalibu's Blog
  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
  • deacon11's Blog
  • Nyxie's Blog
  • Swpocket's Blog
  • threeringfilly's Blog
  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
  • prettycat's Blog
  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
  • Jkrupp's Blog
  • Oreo1964's Blog
  • keyboard
  • Louisa's Blog
  • Guts & Brains
  • Gluten Free Betty
  • Jesse'sGirl's Blog
  • NewMom's Blog
  • Connie C.'s Blog
  • garden girl's Blog
  • april anne's Blog
  • 4xmom's Blog
  • benalexander60's Blog
  • missmyrtle's Blog
  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
  • aheartsj's Blog
  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
  • SmidginMama's Blog
  • lws' Blog
  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
  • jess4736's Blog
  • deedo's Blog
  • persistent~Tami's Blog
  • Posterboy's Blog
  • jferguson
  • tiffjake's Blog
  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
  • JessicaB's Blog
  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
  • myraljo's Blog
  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
  • Keishalei's Blog
  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
  • dedeadge's Blog
  • CeliacChoplin
  • Ravenworks' Blog
  • ahubbard83's Blog
  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
  • Ivanna44's Blog
  • Daily Life and Compromising
  • Vonnie Mostat
  • Aly'smom's Blog
  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
  • beetle's Blog
  • Sandra Lee's Blog
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  • totalallergyman's Blog
  • Kim
  • Vhips
  • twinsmom's Blog
  • Newbyliz's Blog
  • collgwg's Blog
  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
  • HeartMagic's Blog
  • electromobileplace's Blog
  • Adventures of a Gluten Free Mom
  • Fiona S
  • bluff wallace's Blog
  • sweetbroadway's Blog
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  • Carla
  • jaru24's Blog
  • AngelaMH's Blog
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  • SimplyGF Blog
  • Jim L Christie
  • Debbie65's Blog
  • Alcohol, jaundice, and celiac
  • kmh6leh's Blog
  • Gluten Free Mastery
  • james
  • danandbetty1's Blog
  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
  • redface's Blog
  • Gluten Free High Protein
  • Ari
  • Great Harvest Chattanooga's Blog
  • CeliBelli's Blog
  • Aboluk's Blog
  • redface's Blog
  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
  • lilactorgirl's Blog
  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
  • lilactorgirl's Blog
  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • User Is it safe to use GB WhatsApp pro in 2024?
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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Found 25 results

  1. Hi! I recently had a bunch of blood tests done and the only one that was elevated was the TTG-A. My level was 12.6, with negative listed as 0-4 and positive as >15. I asked my doctor about it and she said if I was Celiac my level would have been much higher, and that there wasn’t much research supporting just a gluten sensitivity. That being said, I had been suffering from the following symptoms for YEARS: GERD, indigestion, chronic migraines, extreme fatigue and brain fog, joint pain, and bloating. I’d never considered that gluten was the issue, but I decided to try going gluten-free just to see what happened and I could literally cry by how much better I feel. I feel like I’m alive again. Going forward, is it possible that I am celiac or should I just assume it’s some kind of gluten sensitivity? Do I even need to push for an official diagnosis or should I just continue a strict gluten-free diet and call it good?
  2. Hi everyone, I’ve recently joined this group because I’ve been experiencing symptoms for the past 6 weeks or so upon returning to the US from a trip to the UK that I feel could possibly point to celiac. I know symptoms associated with this disease are numerous and that presentation in adults can vary widely, but I just wanted to reach out to see whether anyone else has experienced anything vaguely similar. -2nd day before returning home, started feeling extremely bloated after eating. Nothing else, just overall very uncomfortable for several hours until it somewhat passed. Admittedly, I did eat a lot these last two days of the trip. -Once home, bloating continually got worse after every meal, and was soon accompanied by nausea, cramps, acid reflux, headaches, and worse constipation than my usual. -Symptoms continued for several weeks, along with decreased appetite. -Eventually, gastro symptoms abated slowly until my appetite mostly returned, though these symptoms still come and go, just to a lesser degree. -As gastro symptoms improved, the rest of my body seemed to go downhill. Worsened headaches, dizzy spells, and intense brain fog took over and affected my quality of life. -Have felt itchy all over my body on and off, but no signs of rash (could be a seasonal allergy thing, though?) -Started having occasional numbness in hands, knees, lower legs, and even lips. -Trouble sleeping (more so than usual), inattention, and forgetfulness from the brain fog caused difficulties when returning to work for the new school year (I’m a teacher) -Have had diarrhea twice, but the rest of the time is constipation -Just an overall feeling of “weirdness” that’s very hard for me to explain. What’s bothering me is that many of these symptoms kind of come and go, and it has me wondering if it’s all just in my head. I genuinely don’t feel as though it’s all due to anxiety, but I suppose anything’s possible. Anyway, I’ve met with a new doctor who’s ordered a celiac panel as well as an ultrasound, but won’t get the results until two weeks from now. I’m going to listen to whatever my doctor believes it is, of course, but until I know for sure, I’m just sort of twiddling my thumbs and wondering what else it could be if I do test negative. Does this sound at all like any of you who have been diagnosed celiac, NCGS, etc? Any other thoughts or suggestions you might have for me? Thanks so much for taking the time to read and comment.

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  4. Hello! I was diagnosed with Celiac about 8 months ago and have been very strict gluten-free and DF since and still having bloating/distention that gets worse throughout the day until I look 6 months pregnant and very smelly gas and diarrhea/constipation. I have tried the following: - SIBO test - negative - Constipation med that made for even worse diarrhea - low Fodmap diet - no change/made things worse - pancreatic insufficiency test that said I had it - was on 2 different enzymes - neither did anything - now the pancreatic doctor doesn’t think I have it - 2nd endoscopy - small intestine looks healed up now - colonoscopy - looked good - CT scan - nothing notable except lots of stool built up in colon —- side note: I also have osteoporosis at 27 years old - on bone building medications. I was also very low in many vitamins like b12 and low in calcium and iron - take supplements/b12 shots for this. Any thoughts on what else I could try or what else might be going on? Thank you in advance!!
  5. Hi, I have suffered symptoms of Celiac Disease for two years. I live in china, this disease is not common here. I used to live a very stressful life, During that time I became addicted to bread and cake(Now I know it's a sign of high cortisol). Then I began to feel bloated after meal. This bloating could last for a very long time and keep me awake at night. And I also had a sharp drop in weight. I could feel some thing very sticky in my colon, especially after eating bread. I went to see doctors many times. They just gave me some mosapride and ask me to eat more vegetables. I had colonoscopy and gastroscopy, everything was normal. But my gut and health kept getting worse. I had malnutrition and sometimes my heart rate couldn't come down. Still these doctors couldn't give any explanation. I got no help from doctors and became despair. I started to search information on google and youtube. Then I found Dr Eric berg's channel. In one video, he explained the symptoms of vitamin B1 deficiency. Then I took some vitamin B1, and my heart rate became normal immediately. I continued to learn from his and other doctors' videos. I began to know many words like fasting, gluten, gut microbiome. I found I actually had chronic diarrhea. I used to think diarrhea means watery stool. But people with celiac disease sometimes simply have stools that are a bit looser than usual. Now I do fasting. I have two meals a day, a big breakfast and lunch at 2 o'clock. And I have had gluten-free diet for one month now. I see a lot of improvements. I poop every morning and have normal stool. I don't feel so much bloated after meal and the bloating won't last very long. I also feel much more energetic. I think this means my absorption improved. But I still have a very big problem. My bowel movement, especially colon movement is very weak now. If I fall asleep, my colon movement will become too weak, stool will stuck in my colon especially transverse colon, then I began to feel uncomfortable and have nightmare. then I wake up and can't fall asleep. This happens every night, usually from 2 am to 5 am. So I never fully rested. I begin to see hope now. I really want solve this bloating problem. If I can sleep and wake up at 7 am, I think I can have a much better recovery. I plan to try to poop before bed. Please give me some advice, thanks a lot!
  6. Hello all! Update on my gluten free journey. I am 4 months in and I am beginning to get my energy back, granted some days are better than others, of course. I have been on a consistent intake of multi's, probiotics, l-glutamine, D and Magnesium. I am curious when you all started to see improvements in your bloating? Mine has improved, but, it is definitely still inflamed and one of my more apparent symptoms. Obviously, DECADES of gluten exposure will not go away over night. But, I am curious of your experiences with this particular symptom on your journeys. Thank you!! Meg.
  7. Celiac.com 03/30/2022 - I am the mother of two teenage children—both recently diagnosed with celiac disease. I manage an International Student Exchange program based in New Jersey. My hobbies include writing fiction and painting and I hold a black belt in Karate. Do I have celiac disease? I believe so. As a matter of fact I made myself very sick trying to prove it. What can I say? I was desperate! I spent the past twenty-five years doing everything the doctors told me and I was getting sicker instead of better. All I concentrated on was eating healthy and doing anything that promised to settle my stomach. Nothing worked. Whenever I complained to a doctor they would run a few tests and tell me that I probably had irritable bowel syndrome (IBS). Their advice was to lose weight and watch what I eat—easy for them to say! Since it wasn’t the in bed, out of work, desperately ill kind of sick at that point, I did my best to manage daily life. For the most part my family understood I had a “sensitive stomach” and learned to live with it—but I knew it was slowly getting worse and I was getting scared. Finally, I came to the point where I would just break down and pray to God, “I don’t care what it is, just give me an answer. Any answer!” When I first explained to doctors that I seemed to always be in the bathroom with severe nausea, stomach cramps, gas, and bloating they would say: “Must be something you ate.” To which, I’d answer, “Everyday?” and they would just shrug their shoulders. It wasn’t like I was dying, losing vast amounts of weight, or exhibiting symptoms that would raise the red flag—but I was in pain and embarrassed. I don’t think the doctors realized what it took for me to come forward with my complaints. As before, I left the doctor’s office without any answers and went on with my life, managing it as best as I could. One minute I could feel fine and the next I would be overcome with cramps. Some days I could barely manage to leave the house. It got so bad I would just not eat as I tried to “shut down” the digestive process. Doctors kept saying IBS. Frankly, I didn’t think that was much of a diagnosis. I mean, I already knew my bowels were irritated! What causes it? What can I do about it? I was told over and over again, “everyone gets it.” Watch what you eat, avoid junk food, alcohol, etc. Yeah right, I’d been trying that for years and it didn’t work. One day I’d eat something and be fine, the next day I’d eat the same thing and get sick. What did that tell me? I’d keep food diaries, take vitamins— even those made me nauseous— but I wasn’t feeling any better. Finally, I resigned myself to carrying a pack of Imodium in my purse wherever I went. It was so bad that everything I ate caused pain. If I had to do any traveling I would just not eat the day before or the day of the trip. Everywhere I went I just resigned myself to not eating. Once I got home and felt safe I would be so hungry that I would stuff everything I could find into my mouth. Of course, that would make me as sick as a dog. My biggest question was why could I eat something one day and be fine, then eat it a week later and be extremely sick? The medical community answered with “It’s IBS.” I know the real answer now. It’s because different brand names use different ingredients. One burger restaurant may add wheat, the other might not. Though the years I developed other problems. Lethargy made me go back to the doctor for blood tests, and I was diagnosed with hypothyroid. The medication for this gave me more energy but did nothing for my IBS. Scourge of my life. When I complained about having rough, blister-like breakouts on the back of my legs and arms I was told it was either eczema or “winter dry skin.” The recommendation was to use moisturizer and someone even told me to take vitamin E. None of this healed my skin but it did ease the breakouts a bit. Since the IBS was an even bigger problem, I pushed these other stressful problems to the back of my mind and tried to find foods that I could eat. At that point everything made me sick. I again mentioned the problems with my stomach during one of my normal thyroid checkups, and the fact that even a plain old slice of bread made me nauseous. “How could that be?” I cried. “Bread was what you give to sick people!” The doctor stopped and looked at me for a moment, then told me about his mother who had celiac disease. He told me I probably didn’t have it because of my weight—5 foot 6 inches and 160 pounds—because “people with celiac disease are very thin,” a belief that I later found out was incorrect. When I pressed him for more information he wrote down the name and told me to look it up on the Internet, but he still doubted that I had it. At this point in my life I was desperate for an answer and I prayed to God everyday that he would send me a clue as to what was tormenting me. Could this be it? I logged onto my computer the first chance I got and started reading everything I could find on this disease. I started looking into how many things in our everyday life contain gluten—breads, cereals, pastas, pizzas, and cakes were the obvious sources, but I was soon to learn that gluten is also mixed into many other processed foods. I immediately started a quest to get gluten out of my diet—which was a lot harder than I ever imagined. As much as ninety percent of the soups, canned foods, and prepared foods on the market today contain gluten. It is also used in certain medicines, sauces, spices, cough drops, stamps, and even envelope glue! For a while it seemed like everything I looked at had gluten in it. Another issue was cross-contamination. I needed to thoroughly clean those things which could be contaminated with gluten, including: toasters, cutting boards, pans, and plastic spatulas! It was incredibly depressing—yet the more research I did the easier it got. People with celiac disease can live normal, healthy lives, and I found a lot of support on the Internet. There, people from all over the world join together to share hints, problems, and commiserate. It made the transition much easier. I also went to my local health food store with a printout from a company that makes gluten-free foods, and they ordered some of them and now stock a wide variety of gluten-free products. I’m finding gluten-free pastas, breads, and even some cookies that are so good most people wouldn’t know that they were not made from wheat flour. There are also several good mail order bakeries that have good breads, bagels, and other products made from rice, tapioca or potato flour. I order online in quantity and freeze them. It definitely gets easier as time goes on. Within a month on a gluten-free diet my “IBS” and stomach cramps were gone! The nausea took a bit longer to improve but each day it improved. When I returned to the doctor and shared that I believed that I had celiac disease he was doubtful. At my insistence he ordered the blood test. At that point I had been off of gluten for about six to eight weeks. The test was negative. By this time I had met other people with celiac disease through the Internet who informed me that the tests would not be accurate unless I had been eating gluten daily for at least six prior to the test. I verified this information online and found it to be correct. My dilemma now was whether or not to go back on gluten for an accurate diagnosis. It was a hard decision. I have two daughters and I felt I needed to know since this can also be hereditary. My father suffered for years with gastrointestinal problems before dying at age 65 of colon cancer. I’m sure now that he had celiac disease. With all of this hanging over my head I decided to go back on gluten to get a definitive answer. My first meal was a pizza! Yum! The next day I was fine. So I continued to eat gluten. Within two days the cramps and diarrhea were back. By two weeks I was sick everyday and having trouble getting myself to work, but I didn’t give up. My husband thought I was crazy. He kept telling me that I already knew what was making me sick—so why was I doing this to myself? But I had already made the decision to find out if I really had celiac disease—so on I ate. On really bad days I took Imodium and sometimes didn’t eat until I was at home. The nausea was constant. Some days the cramping and pain were so bad that I just couldn’t eat at all. I don’t know if this hurt my test results or not but there were times when I just couldn’t bring myself to swallow any food at all. Eating caused the pain to worsen. This continued for six weeks! On the day of my blood test I did not eat before I went to the lab at two in the afternoon. I was afraid that if I ate anything at all I’d get sick at the lab and that would be too embarrassing. Have you ever sat in a room full of people waiting for your turn—fighting nausea and just knowing that everyone in there was watching every time you got up to use the bathroom—five times in a row?! Let alone having to sit still long enough to get the blood drawn. The blood work all came back negative. At this point I dragged in my sixteen-year-old daughter for a blood test. The doctor thought that I was crazy. She didn’t fit the profile. I asked him to do it anyway to put my mind at ease—so he did. The blood work was positive. After that my nineteen-year-old daughter tested positive as well. Both of them opted out of the endoscopes, even though this is thought to be the gold standard for diagnosis. They went gluten-free and both are feeling much better on the diet. Two weeks later I went for my endoscopy. I asked the gastroenterologist how many biopsies he was planning to take and he told me: “Enough, don’t worry.” But I did worry. What if it’s not enough? Celiac damage can be patchy and I desperately wanted an accurate diagnosis. The doctor called two days later and said the biopsy was fine. So I am an undiagnosed celiac. I went gluten-free the day of my endoscopy and today I am feeling better than I have in my whole life! The “IBS” is gone, my skin is clearing and I never get nauseous. Today I feel healthy and I am living a much better life. Traveling still makes me nervous but it’s getting easier as I learn to trust my body once again. Would my tests have been positive if I had been tested before going gluten-free? I don’t know and at this point I don’t care. I know what makes me sick and I avoid it. It’s as simple as that. I only wish I had understood that before going on the gluten challenge as it would have saved me a lot of pain. My biggest problem now is when people say things like, “Oh, I couldn’t live without pasta!” Would they say to a diabetic: “I couldn’t live without sugar”? I hope not. To these people I just say: “You could if it made you sick.” I also thank God everyday for the answer I prayed for so often: celiac disease. It’s a different way of life that takes some getting used to, but it is quite do-able. Pizza never tasted as good as being healthy feels! ©A Personal Touch Publishing, LLC. This article originally appeared in the book A Personal Touch On...™ Celiac Disease.

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  9. Hello Everyone, So a year ago I woke up one night horribly bloated and in pain from cramping. It left me nauseous and unable to sleep and constipated. The nausea lasted for 2 months, I couldn't lay down to sleep because of nausea, I couldn't eat much either. Everything I ate made me bloated and constipated. Several visits to the ER and doctor, I finally got my referral for a GI specialist approved. By this time I had lost 30 lbs in 2 months and felt incredibly weak. After extensive testing, they determined I had gut hypersensitivity and celiac like symptoms but my celiacs gene wasn't active nor did my colon have damage from celiacs. Apparently I had normal IgA levels but high IgG levels. They said it's another way to diagnose celiacs. Over time, through trial and error I was finally able to start eating reasonably healthy food with supplements but I can't eat a lot anymore otherwise I get too bloated and I'm so uncomfortable all the time. Sometimes even normal food like eggplants or okra can get me burping for hours after eating. The only medicine I take now is miralax for the constipation. But I need to stop using it because it's not meant for longterm use. I was thinking of psyllium but since it has bulk forming properties that's just the opposite of what I want. Anyone had any experience with psyllium or similar situation to mine? I'm vegetarian and eating a lot of greens isn't gonna help if my meal size is small to begin with and greens don't provide a lot of calories. My normal meal is white rice,assorted veggies, and Ensure protein shake. I hate that I can never tell what my body is gonna do. It makes it so hard to hang out with friends. And I'm still deciding whether to move for university or keep staying home. With my symptoms I'd be annoying any roommates I might have. Any suggestions/advice will help!
  10. Hi. I’ve had endoscopy and colonoscopy to find put a cause of the occult blood in my stool and iron deficiency . After biopsy I was told it’s a mild atrophy of my duodenum and it’s celiac disease. Had my antibody test which turned out normal and genetic panel was positive with Hla q8 and celiac variants. My symptoms mainly is my hand tingling and headache. I have occasional diarrhoea ,sometimes cramps in my Tommy and dull pain in the right side of my abdomen under the ribs. I’m very concerned what if it’s no lt celiac and something more serious l. My doctor said that pathologist check for all other disease that can cause villi damage so it’s not them,but there is also something like HIV enteropathy option that can cause villi damage. Even though my life style is so far from HIV infection because I’m very hypochondriac person and since I remember myself I was always do my check ups every 6 months. I did have csection 4 years ago and dentist appointment last year. So freaked out what if it’s hiv because celiac antibodies were normal. My gastro said that generic panel and biopsy results consistent with celiac disease.have dietitian appointment os Wednesday . I really don’t kno what to think . Just anxious and depressed all the time . Does anyone else have similar diagnose…
  11. Celiac.com 07/02/2021 - Do you suffer from symptoms of abdominal pain, stomach aches, excess bloating, gas, diarrhea, fatigue, bone or joint pain, skin rashes, headaches, difficulty concentrating or irritability? Gluten, the major protein in wheat, barley and rye causes these symptoms in many people but most, including their physicians, are unaware that gluten is the cause and that a gluten-free diet may relieve these symptoms. Though there are diagnostic blood tests available for identifying gluten sensitivity, these test have limitations. Many physicians are unaware these blood tests are available, including genetic tests for the risk. Most physicians are also unaware of the broad manifestations of gluten sensitivity and fail to order tests that could diagnose the cause. Sadly, the condition often goes unrecognized and untreated when it is very common and reversible by simply following a gluten-free diet. No medications or surgery are required. Worldwide nearly 1 in 100 people have the most severe form of gluten sensitivity or intolerance known as Celiac disease though it is estimated that more than 90% are undiagnosed. Startlingly, many more than this, possibly 10-30% of people of northern European ancestry, have lesser forms of gluten sensitivity that causes symptoms that improve on a gluten free diet. The low carbohydrate diets have become popular because many have lost weight but they also frequently experienced dramatic improvements in general feeling of well being, increased energy, relief from fibromyalgia, joint aches, improved skin, fewer headaches, and improved digestive symptoms. However, many fail to gain full benefit because they don’t know they are gluten sensitive and have not completely eliminated gluten from their diet since gluten is present in so many foods that we eat. Gluten is insulinogenic, meaning it stimulates insulin release, and thereby promotes weight gain. Abnormal blood sugar regulation also often occurs. Some people will gain weight despite malabsorbing essential nutrients. It is now known that more than 10% of insulin dependent diabetics have celiac disease. What is not yet known is whether the celiac came first or the diabetes, but that they commonly occur together. Celiac disease is also commonly associated with other autoimmune conditions such as lupus, rheumatoid arthritis and thyroid problems. Celiac disease is a reversible cause of infertility, low birth weight infants, pre-term labor, and recurrent miscarriages. Untreated it is associated with a significantly increased risk of numerous cancers including all GI cancers and lymphoma. It is a common cause of unexplained anemia especially from iron deficiency and causes premature osteoporosis. Dietary elimination of gluten allows the intestine to heal so that absorption is normalized and symptoms are relieved. After five years of a gluten-free diet the cancer risk returns to normal as long as the individual remains gluten-free for life. Classic celiac disease is diagnosed by abnormal blood tests and an abnormal intestinal appearance on biopsy. Blood tests for celiac disease include antibody tests for gliadin (AGA), the toxic fraction of gluten; endomysial antibodies (EMA); and tissue transglutaminase antibody (tTG). High antibody levels to EMA and tTG are generally accepted as diagnostic for celiac disease though some individuals with celiac disease and most with lesser degrees of gluten sensitivity may have normal levels. AGA levels have, in the past, been considered very sensitive but not specific for celiac disease. Newer assays for AGA antibodies for gluten that has undergone a chemical change called deamidation that appears to be more specific for celiac disease (Gliadin II, Inova) may be as or more accurate than EMA and tTG antibody tests. However, lesser forms of gluten intolerance may be missed when any of these blood tests are normal or borderline and/or small intestine biopsy is normal or indeterminate. Stool antibody testing for antigliadin and tTG has been performed in research labs and published in a few studies. The commercial lab, Enterolab, now offers these tests though the former research gastroenterologist Dr. Ken Fine, who patented the test, has yet to publish the results of his findings in a peer reviewed journal. His unpublished data and the clinical experience of some of us who have used his test have indicated the tests are, to date, 100% sensitive for celiac disease. They are highly sensitive for gluten sensitivity of lesser degrees before blood tests or biopsies become abnormal but when symptoms exist. These symptoms reverse on a gluten-free diet instituted by those with abnormal stool antibody levels. Small intestine tissue obtained by biopsy during upper gastrointestinal endoscopy has been considered the “gold standard” for the diagnosis of celiac disease since the 1950s. However, recent studies have demonstrated that some people with gluten sensitivity, especially relatives of celiacs with few or no symptoms, may have changes from gluten injury in the intestine that can only be seen on a small intestine biopsy with special stains not routinely used, or on electron microscopy done in the research setting. Immunohistochemistry stains can detect increased numbers of specialized white blood cells called lymphocytes in the intestinal lining tips or villi as the earliest sign of gluten induced injury or irritation. Electron microscopy also reveals very early ultrastructural changes in some individuals when all other tests are normal. According to published research, when people are offered the option of gluten-free diet based on these abnormalities they have usually responded favorably, whereas those who continued to eat gluten often later developed classic celiac disease. What these studies suggest is that a “normal small intestine biopsy” may exclude celiac disease as defined by strict criteria but it does not exclude gluten sensitivity, a fact appreciated by many individuals who ultimately started a gluten-free diet based on their symptoms, family history, suggestive blood test or stool antibody test(s). Those few physicians who appreciate the concept of the spectrum of gluten intolerance or sensitivity are outnumbered by the medical majority that continues to insist on strict criteria for the diagnosis of celiac disease before recommending a gluten-free diet. Physicians either unfamiliar with the research on celiac or who are holding onto the strict criteria for celiac as the only indication for recommending a gluten free diet unfortunately often leave many gluten sensitive individuals confused or frustrated. Some seek answers on the Internet or from alternative practitioners. Many have their diagnosis missed, challenged, or dismissed. Others are misinformed or receive incomplete information. As a result many may fail to benefit from the health benefits of a gluten-free diet because they are advised that it is not required because they have normal blood tests and/or normal biopsies. Another source of confusion lies in the knowledge that certain genetic patterns are present in over 90% of individuals with celiac disease. Testing for such specific blood type patterns on white blood cells known as HLA DQ2 and DQ8 is increasingly employed to determine if a person carries the gene pattern predisposing to celiac disease. Some use the absence of these two patterns as a way of excluding the possibility of celiac disease and the need for testing or gluten-free diet. However, there are rare reports of classic Celiacs who are DQ2 and DQ8 negative. Moreover, recent studies indicate other DQ patterns may be associated with gluten sensitivity though very unlikely to predispose to classic celiac disease. Testing for all the DQ patterns has been advocated by Dr. Fine based on his experience with stool antibody testing that has revealed that the other DQ types are associated with elevated levels, symptoms, and positive response to gluten-free diet. According to his unpublished data, all the DQ types except DQ4 are associated with a risk of intolerance to gluten. Testing for the DQ types allows a person to determine if they carry one of the two high risk gene types for celiac disease or the other “minor” DQ type associated with gluten sensitivity but low risk for celiac disease. Enterolab also offers the stool testing for gliadin antibodies and tissue transglutaminase antibodies as well as several other stool tests for food intolerance or colitis. Though not widely accepted, these tests have gained favor with the lay public as an option for determining sensitivity to gluten or other food proteins, either despite negative blood tests and/or biopsies, or in place of the more invasive tests. Most recommend the accepted blood tests and small bowel biopsy for confirmation of celiac. The favorable reports in the lay community have been overwhelmingly positive though they can’t be subjected to peer review by the medical community prior to the publication of Dr. Fine’s data. Physicians open to the broader problem of gluten sensitivity are reporting these tests helpful in many patients suspected of gluten intolerance with negative blood tests and/or biopsies, though some are not certain how to interpret the tests. The national celiac organizations have difficulty commenting on their application without published research though a recent article in the British Medical Journal did show stool tests highly specific for celiac. Dr. Fine’s has publicly commented that his unpublished data demonstrates those with abnormal stool tests indicating gluten sensitivity overwhelmingly respond favorably to a gluten free diet with improvement of symptoms and general quality of life. There is no agreed-upon definition for gluten sensitivity or intolerance, especially for those who do not meet the strict criteria for celiac disease yet may have abnormal tests and/or symptoms that respond to gluten-free diet. Those individuals become confused when they realize that because they aren’t diagnosed with celiac disease, they don’t know where to turn for more information. Consensus in the medical community on definitions and more research in this area are greatly needed.
  12. Hi all, I was diagnosed with celiac disease 1.5 years ago and went gluten free on the day of the diagnosis. I feel that I've been coping really well with the diet and lifestyle. I never eat out, or any food cooked by someone but me. I never eat anything manufactured in gluten facilities. I'm pretty informed about the subject. My most recent followup ttg-antibody testing revealed a low count well within the "negative" range. So based on this, everything should be in order. However, I'm convinced that there are still issues going on in my intestine. And I'm not talking about IBS or Crohn's. While my diarrhea & borborigmi had stopped immediately when going gluten-free and my periods changed a lot, my abdominal distension took a different progression. For years I had chronically looked 6 months pregnant. During the 3 days of preparing for the endoscopy (I also had a colonoscopy at the same time), I consumed the prescribed laxative salt-solution, and my chosen 'meals' of pureed plum compote & wheat semolina (I was supposed to only eat things without seeds or bits that could get caught in the intestine). On this diet, my abdomen deflated to an unbelievable extent. I hadn't had such a flat stomach in years. After the procedure, I continued to eat gluten until the diagnosis a week later. By then, my circumference had started increasing again. I didn't keep a journal with measurements, but I know that within a few weeks at the latest, my belly looked *almost* as big as before going gluten free. And it hasn't changed since. Now I 'only' look 4 months pregnant. 😆😱 I have noticed that on the very rare occasion when I eat lactose-containing foods, I get diarrhea, sometimes violently so. I know this is a common issue for newly diagnosed celiacs, but shouldn't my villi have healed after 1.5 years of a conscientious gluten-free diet with no realistic source of contamination? Second, I suspect a fructose absorption issue, which I find endlessly more difficult to investigate at home than a lactose intolerance. I booked an appointment with my GP for next week, but I expect her to refuse to do lactose or fructose testing, maybe sending me away. So I'm asking you guys if I'm missing something. Why would my abdomen deflate for 3 days on a plum & wheat diet if I have an issue with fructose and gluten? I had asked my gastroenterologist whether he or the lab had checked for intestinal fungus, but he said no, he didn't see the point (!?). Do you see fungus as a possible cause?
  13. I am a 26 year old male. Just about one year ago I was diagnosed with celiac disease via endoscopy after two years of unexplained symptoms. I was also diagnosed with Eosinophilic Esophagitis (EOE) the same day. I immediately started a gluten free diet. I made a few mistakes in the beginning, after stopping gluten I got crazy pain that would take me out for a day or two at least when I accidently ate it, so I knew gluten was the culprit. Six months after this I tried a few elimination diets and realized dairy was the cause of my EOE, all my throat related symptoms (food stuck, tightness) stopped a week after going dairy free. Fast foreword to today and I have all the same symptoms (except the throat ones) from before going gluten free 13 months ago- mild to severe bloating, brain fog, fatigue, light pain/cramping/numbness in lower left abdomen. When the bloating is bad I get a "drunk feeling" that has been called brain fog. At first I thought it was me being tired but after eating too many carbs I'll notice this feeling and it can get the point where I have to go lay down to let it pass. The bloating is my worse problem and I need help, I am just managing it temporarily. There has been some improvement over the past year but only because of the following two things. I stop either one of these I am right back where I was a year ago. - Low carb diet: I eat most of my carbs at dinner so the bloating occurs when I sleep. I cannot eat fruit as I think fructose is the biggest carb culprit, but enough rice or anything else will also set me off to some degree. I mainly eat vegetable, meat, and rice for most of my meals. I am 110% gluten-free and dairy free, I avoid sugar, almost never eat packaged foods. Even when I do this diet perfectly I still get bloating, just much less severe. This is not sustainable for me as I have lost some weight. -Iberogast - I take a natural prokinetic with lunch and dinner for three months now. If I ever forget to take this, the bloating will get so bad that I have to stop what I am doing or limit my activity for the day. It gets worse than it was before I took this regularly. I hate being so reliant on it but can't stop it without pain and bloating. My gastroenterologist suspects there is another issue at play but wants me to wait to get to 1.5 years gluten-free to start looking at other issues. I had a (very) positive breath test and she tried rifaxamin for SIBO (small intestine bacterial overgrowth) twice with no luck. I am working with a nutritionist now who said candida overgrowth could be a cause. I had a year follow up endoscopy that showed the EOE in full remission and the celiac damage 95% healed.(doctors words not mine). So diagnostically I am healed but have all the symptoms still. The worst of the bloating is usually hours after I eat so some type of overgrowth does sound logical but I have no idea. I have always been suspicious of the lower left numbness/pain as that is where all this started three years ago as intense pain. I rarely get pain there now but it does feel like a cramp or like there is a rock just sitting there a lot. I also have light issues with my joints and multiple sports injuries that don't allow me to exercise very much. Anyone have a similar experience?
  14. About two months ago, I started to feel this pain in the middle of my upper abdomen after eating. This was followed by diarrhea and a loss of appetite. Then, I started to get this burning sensation in my upper abdomen which almost felt like a belt as I could feel it into my back. I was initially diagnosed with gastritis and took medications that actually helped but simply stopped working after 3 weeks. The symptoms reappeared but worse than ever. I couldn't eat anything at all and constantly had this burning sensation in my upper abdomen. My stomach felt super tight, and I used to get this weird pain in different spots as if it was being pulled inward from the inside. I went to a different doctor who diagnosed Colitis. I started taking new medications which again helped at first and then simply stopped working after around 3 weeks. Woke up in the night from pain in my upper abdomen under my left rib cage. The burning started again soon after in my upper abdomen up into my chest. My stomach feels hard and tight and I have more frequent bowel movements (no diarrhea). I still have this pain on the left side and the middle and sometimes on the right side as well. I had an ultrasound done which didn't show anything abnormal. Also had a complete blood count done which showed elevated levels of white blood cells. I also felt extreme pressure on my chest which makes it difficult to breathe. In addition, I have been experiencing tingling in my hands and in my right leg from the knee down but don't know if that is in any way related (I sit all day at work so that could also be a reason). Has someone else experienced anything like this? I am really sorry for this lengthy post, but I don't know what to do anymore.
  15. Hi, I’ve been really struggling to manage my symptoms of possible celiac disease and was just hoping for some guidance. (This is about to be very long so I’m sorry) Early December I had a bad fall and suffered some trauma to the head and was also under a lot of stress due to mock examinations. For a while I had been feeling fatigue but all of this was amplified after the fall and I was struggling to stay awake in lessons/ would just collapse after college. I was also having bad pain sometimes after eating and would get my worst fatigue after meals/ during the afternoon/ evening. I paid a visit to the GP and got some blood work done which came back low in iron and also high for celiac (very surprised but I do have a cousin with very bad celiac, been hospitalised etc). I got put on iron tablets and booked in for an endoscopy however this got cancelled due to the COVID-19 situation. My issue now is that my GP has advised to stay on the iron (I am starting my 5th month on 210mg 3x a day) and also keep eating gluten as we don’t know when my endoscopy will be as it could be a quick turn over (as in find out about it and then have it the week of) so we want to minimise chances of a false response. However I’m in such bad pain and so fatigue, my bloating is so severe I go up a dress size/ 2 and it’s like rock solid. My mum thinks I should cut out gluten for the foreseeable future to ease my pain. Just wondering if anyone can help with suggestions/ a bit of hope that things won’t stay like this. Many thanks
  16. So, I’m going through diagnosis and testing for coeliacs at the moment but I’m pretty certain I have it. one of my symptoms that occurred anoit 4 months ago has been a change in my breasts of all things! now I know that I have not gained weight, however my breasts grew about 2 cup sizes!! They became engorged, swollen, tender and heavy. I kept thinking it was my period due but then it carried on and no period ever came (my periods didn’t ever start until I went gluten-free). I went to the dr and they examined my breasts and definitely agreed they were very engorged and swollen but said it was most likely hormonal. basically ever since it’s been a problem and makes me feel so uncomfortable and depressed and despise myself as it makes me look ten times bigger than I actually am because I’m so top heavy now. I am a low end healthy weight but my breasts literally went from a 32 B/C cup to a 34 D/DD!! For my size this is so disproportionate as well? ive has several major ‘glutenenings’ over the last 6 weeks after I went gluten-free and they have become even more swollen and big. I also get regular periods now there about and every month my PMS symptoms are hell and my breasts go EVEN bigger so probably DD/E and it’s HORRIBLE. has anyone experienced this and if so DOES IT GO BACK TO NORMAL PLEASE??? ~Danni
  17. Please help, I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed. OTHER symptoms. Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear Low iron again at blood work. Low exercise tolerance. So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months Itchiness all over body but no bumps just redness Itchiness extreme on the scalp. Petechiae small red spots all over my body this is for years now. Tried gluten free even though in my country very hard to keep up with this. Only for few days then gave up and tried again and so on. Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago. I don't know what to do. Oh and mouth ulcers. And have gas i am afraid because i can hardly control because i am extremely bloated. I am desperate. Thanks.
  18. Hi, I have some questions that I hope to get some answers to. First of all, I am not diagnosed and have not been tested for celiac. Only bloodtest I have taken that's relevant is Ferritin and Iron. I'm not anemic, but both my levels are on the lower range of normal (Ferritin 20-25 and Iron 9 and Iron binding capacity a bit over the normal range). My first question is if this is normal in celiacs, or would the Ferritin and Iron be lower if I was celiac? I eat meat and vegetables and my periods are normal. Second Question is related to abdominal pain. I have these IBS related pains (cramping before going to the bathroom) sometimes and also some bloating and stuff. But sometimes I get this lower abdominal pain that is different, it's much much worse when I press my stomach in or touch it. It almost feel normal when I sit still in one position, but when i lean forward, touch it or press it in, it's really bad. Does anyone else with celiac relate to this kind of abdominal pain? The reason I'm asking these questions is because I'm wondering if I should get tested for celiac. I've had symptoms for a while now, and I want to suggest different blood tests to my doctor. I have a feeling I should get tested for something autoimmune. There are already three different Autoimmune diseases in my mother's family (grandmother with psoriasis, cousin with diabetes, mother with ulcerus colitis), and I've been having diffuse symptoms for a while now, like abdominal pain, diarrhea, muscle/bone pain, some joint pain, muscles falling asleep, some tingling, anxiety, neck pain, fever feeling without fever, chills, fatigue (especially after lunch), bad hangovers etc etc. The list is long. So I'm just trying to get some answers so I can be more clear with my doc. Thanks!
  19. Hi, I'm a 23 years old male and I've been suffering from severe reactions to gluten for about 5 years. My symptoms immediately after eating gluten (proportional to the amount ingested) are: Heart palpitations. Strong anxiety. High blood pressure. Belly bloating and strong indigestion. Strong water retention (depending on the amount ingested, anywhere from 4-6kg), seen on the scale in a day approx. Lots of energy, probably due to the high blood pressure or anxiety. Insomnia. Inability to rest. Whenever I eat gluten, I feel very energized and euphoric (and somehow very motivated to work and do stuff, and focused), but these comes with anxiety, heart palpitations, restlesness, bloating, etc. The problem is, I have done a gluten free diet for 3-4 months and my digestive issues, anxiety, etc were immediately and totally relieved, however, I got back to eating gluten because I was feeling very depressed, unable to enjoy any activity, very low mood, very strong brain fog, extreme fatigue, low sex drive, I had really low blood pressure and I was VERY hungry. I was never satisfied by any amount of food and I was gaining lots of weight, plus I felt very depressed all along. Whenever I eat some gluten (e.g. 1-2 slices of bread), I get instantly energized but the anxiety is strong and I retain many kilograms of water (alongside the big swelling of my lower abdomen), which makes me look quite fatter without actually eating more. What do you suggest I can do? It seems like a gluten free diet is not viable, and, after sticking to it for almost 4 months, I had to give it up as I was severely depressed, always hungry and tired, and could not keep going on with my daily life anymore. I feel like there's nothing I can do to feel completely good, since either eating gluten or going gluten free has its own set of side-effects. (Eating gluten keeps me mentally sane and going gluten free does not) Last, it seems that gluten-containing products, mostly bread and cookies, are the only thing that can reduce my hunger and make me feel full and energized. Note: I have done blood tests for celiac disease and got negative, but it was after I was 2 months into the gluten free diet so the doctor told me it might be a false negative. Any thoughts and help you can offer is greatly appreciated, I am very desperate about this. Thank you.
  20. This small study suggests that taking probiotics may contribute to brain fogginess and bloating. While it may be good to keep the large intestine (colon) populated with healthy bacteria, taking probiotics in patients with impaired gastrointestinal mobility (e.g. diabetes, celiac disease) may contribute to issues like SIBO where the bacteria may populate in the small intestine instead. https://medicalxpress.com/news/2018-08-probiotic-link-brain-fogginess-severe.html Talk to your doctor about taking a probiotic. Consider modifying your diet to include foods that can help populate the large intestine (e.g. fermented foods), instead of taking a supplement.
  21. Hi All, I’m new to this whole world of celiac and wondered if you could give me your opinions please?! I have been having on off stomach pains for about the last 5 months. They started to happen once every couple of weeks, then once a week and now literally every other day, sometimes every day. It’s quite a crippling pain that literally bends me over double and nothing gives me any relief. It usually happens within about an hour of eating, but not every time I eat. Along with this I have been constipated for a while and in the last 2-3 weeks on off had a feeling of a big lump in my throat when I try to swallow (I actually thought I was getting tonsillitis until it kept happening and then just goes away!). My stomach is bloated every night also. I am always quite tired, but just put this down to the fact that I find it quite hard to switch off at night and actually get to bed, so don’t get that much sleep, but always feel shattered in the mornings. Anyway, initially they it was thought I had a stomach ulcer (I only told them about the stomach pains as I didn’t think any of the other symptoms were even really symptoms I guess!). They gave me antacid medication, which did nothing. Saw a different doc and told her my other symptoms too and she said it sounds like I could be celiac. This was never even on my radar, so I was really surprised! Everyone I know who’s had it always has diarreah and has lost weight. I’ve not done either and I would have thought my stomach would hurt every time I ate gluten, not just some of the time? Has anyone had intermittent stomach pain and ended up being celiac? I’m waiting on my blood tests, which should be back at the end of the week. TIA x
  22. Hey everyone, I was recently diagnosed with Celiac Disease in October of 2017. Since then I have been extremely careful with what I eat and always ask the servers at restaurants if something has gluten in it. This weekend, I went out to eat and the waiter gave me a sauce with gluten in it, and he remembered after I ingested almost all of it, that it had flour in it. The next 24 hours were the most painful and excruciating hours of my life, and I would say almost as bad as my contractions when I had my daughter. I went to the ER due to intestinal/stomach cramping so bad that I was screaming in pain and couldn't move. They did all sorts of tests and ultrasounds, xrays, etc.... Because the doctor said that a gluten allergic reaction would not cause this much pain. And again just like my visits before, tests came back negative. Well it's been 4 days since then and the pain is slowly going away. I've read that people have these pains for days on end, just like me.. But has anyone found a solution? If you have, I would love to know what you've found.. Or even if you've experienced this and found something to calm the cramping, bloating, gas pains, and vommiting. I've tried gas-x, hot tea, hot baths, intestinal massages to relieve gas, peptobismal, dyciclomine, heating pad, zofran, and lots of water. Thank you in advance! And I wish you all good health!
  23. Hi I am wondering if anyone knows if potatoes can cause bloating? I ate a lot of potatoes today and my stomach feels like a baloon again. I think I consumed about 8 potatoes. I ate tortillas with potatoes for lunch and a soup with cauliflower and potatoes for dinner. I am about 5,5 months into GFD, still positive bloodwork.
  24. is gas-x peppermint chewable tablets gluten free? i have bad trapped gas and i need to burp and relief the bloating in my stomach!
  25. Hello today I'm just back from my gp. Following over 7 years of bloating and looking like I'm pregnant my gp done a series of blood tests one including coeliac. The results came in that I'm not celiac but my iron levels olthough I'm on iron tablets is low. My iron always drops then I'm put on tablets for 3 months then go's back to normal then falls again. I'm also hypothyroid so really at times I just feel Bloo£@ awful. my doctor now wants me to refer me to a gastroenterologist to look into other testing becaus aparrently he can do more for me. He also said that I should go onto a gluten free diet but when I questioned him if this was wise incase it may effect any tests giving a false result he said it will be fine as he's already done the blood tests. He said it's good to go on it because the gastro will ask me to go gluten free at my first visit and this will saves me being sent home to do this and will buy me some time... im a bit confused what I should do now. Do I start a gluten free diet now like my gp has suggested or should I just wait until I've seen a gastroenterologist?? thanks in advance.xx
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