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Celiac Disease & Gluten-Free Diet Blogs

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  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
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  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
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  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
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  • Uncertain
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  • Yolo's Herbs & Other Healing Strategies
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  • Sandra45's Blog
  • Theresa Marie's Blog
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  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
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  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
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  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
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  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
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  • skurtz's Blog
  • Olivia's Blog
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  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
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  • Gluten Free Bread Blog
  • babygoose78's Blog
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  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
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  • Amanda Smith
  • mmc's Blog
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  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
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  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
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  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
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  • Lis
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  • Amanda
  • felise's Blog
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  • greendog's Blog
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  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
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  • Relieved and confused
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  • scottish's Blog
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  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
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  • mfarrell's Blog
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  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
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  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
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  • the gluten-free guy
  • gluten-free-wifey's Blog
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  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
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  • Dope show
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  • Sherry's blurbs
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  • Shawn C
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  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
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  • Sue Mc's Blog
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  • It's just one cookie!
  • Kimmy
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  • You're Prescribing Me WHAT!?!
  • Kimmy
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  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
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  • William Parsons
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  • Daily Life and Compromising
  • Vonnie Mostat
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  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
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  • Living in the Gluten Free World
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  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
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  • Jim L Christie
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  • Alcohol, jaundice, and celiac
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  • james
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  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
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  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
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  • Pete Dixon
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  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
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  • krackers' Blog
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  • Mike Menkes' Blog
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  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
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  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
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  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
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  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
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  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
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  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
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  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
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  • Living in the Garden of Eden
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  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
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  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
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  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
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  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • User Is it safe to use GB WhatsApp pro in 2024?
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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Found 24 results

  1. Hi! I recently had a bunch of blood tests done and the only one that was elevated was the TTG-A. My level was 12.6, with negative listed as 0-4 and positive as >15. I asked my doctor about it and she said if I was Celiac my level would have been much higher, and that there wasn’t much research supporting just a gluten sensitivity. That being said, I had been suffering from the following symptoms for YEARS: GERD, indigestion, chronic migraines, extreme fatigue and brain fog, joint pain, and bloating. I’d never considered that gluten was the issue, but I decided to try going gluten-free just to see what happened and I could literally cry by how much better I feel. I feel like I’m alive again. Going forward, is it possible that I am celiac or should I just assume it’s some kind of gluten sensitivity? Do I even need to push for an official diagnosis or should I just continue a strict gluten-free diet and call it good?
  2. Hi everyone, I’ve recently joined this group because I’ve been experiencing symptoms for the past 6 weeks or so upon returning to the US from a trip to the UK that I feel could possibly point to celiac. I know symptoms associated with this disease are numerous and that presentation in adults can vary widely, but I just wanted to reach out to see whether anyone else has experienced anything vaguely similar. -2nd day before returning home, started feeling extremely bloated after eating. Nothing else, just overall very uncomfortable for several hours until it somewhat passed. Admittedly, I did eat a lot these last two days of the trip. -Once home, bloating continually got worse after every meal, and was soon accompanied by nausea, cramps, acid reflux, headaches, and worse constipation than my usual. -Symptoms continued for several weeks, along with decreased appetite. -Eventually, gastro symptoms abated slowly until my appetite mostly returned, though these symptoms still come and go, just to a lesser degree. -As gastro symptoms improved, the rest of my body seemed to go downhill. Worsened headaches, dizzy spells, and intense brain fog took over and affected my quality of life. -Have felt itchy all over my body on and off, but no signs of rash (could be a seasonal allergy thing, though?) -Started having occasional numbness in hands, knees, lower legs, and even lips. -Trouble sleeping (more so than usual), inattention, and forgetfulness from the brain fog caused difficulties when returning to work for the new school year (I’m a teacher) -Have had diarrhea twice, but the rest of the time is constipation -Just an overall feeling of “weirdness” that’s very hard for me to explain. What’s bothering me is that many of these symptoms kind of come and go, and it has me wondering if it’s all just in my head. I genuinely don’t feel as though it’s all due to anxiety, but I suppose anything’s possible. Anyway, I’ve met with a new doctor who’s ordered a celiac panel as well as an ultrasound, but won’t get the results until two weeks from now. I’m going to listen to whatever my doctor believes it is, of course, but until I know for sure, I’m just sort of twiddling my thumbs and wondering what else it could be if I do test negative. Does this sound at all like any of you who have been diagnosed celiac, NCGS, etc? Any other thoughts or suggestions you might have for me? Thanks so much for taking the time to read and comment.

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  4. Celiac.com 07/19/2021 - Many people with celiac disease and non-celiac gluten sensitivity claim to suffer from gluten-induced neuro-cognitive impairment (GINI), often referred to as “celiac fog,” "gluten fog,"or “brain fog,” but there have been no good studies, and so there is very little data about the rates and symptoms associated with GINI. A team of researchers recently set out to to understand the neuro-cognitive symptoms associated with gluten exposure in individuals with self-reported celiac disease and non-celiac gluten sensitivity (NCGS). For the study the team had 1,143 with people with celiac disease and 253 with NCGS participate in 9-question online survey. The survey used both forced choice and free-response to get a description of neuro-cognitive symptoms the participants experienced after gluten ingestion. The team coded free-response answers based on the Health-Related Quality of Life Instrument. Nearly nine out of 10 celiacs, and 95% of NCGS sufferers reported symptoms of GINI. In both groups, the most common words used by respondents to describe the symptoms were "difficulty concentrating," "forgetfulness," and "grogginess." Both groups shared similar timing of symptoms, including symptom onset and peak. The free responses for both groups showed that respondents most commonly referred to cognitive, physical, psychological, and overall impact on quality of life. This survey indicates that GINI is common and may be severe in both individuals with celiac disease and NCGS. The team speculates that gluten-related cognitive and physical impairment may be similar to that seen in other autoimmune conditions, such as lupus. The researchers encourage clinicians to include assessment for GINI symptoms in assessments for all celiac disease and NCGS patients. They also call for additional research which includes the development of a patient-reported outcome measure that notes the patients' perceived neurocognitive effects of gluten exposure. Read more in the Journal of Clinical Gastroenterology: May 28, 2021 This study was funded in full by Beyond Celiac. Notes: J.B.E.G.: has served as an unpaid consultant for Beyond Celiac and Takeda Pharmaceuticals and is an employee of Northeastern University. B.A.: is an employee of Northeastern University. K.N.V.: is an employee of Ultragenyx Pharmaceuticals Inc. and owns stocks and shares in Ultragenyx Pharmaceuticals Inc. J.O.F.: is an employee of Cambridge Health Alliance. K.S: is an employee of Johnson and Johnson and owns stocks and shares in Johnson and Johnson. K.A.: is an employee of Beyond Celiac. A.E.: has served as a speaker for the American Academy of Family Physicians and Pri-Med, served as Chair of the Board of Directors for Beyond Celiac and is an employee of EBSCO Inc. (publisher of Dynamed) and Reliant Medical Group. A.B.: has served as a speaker for Takeda Pharmaceutical Company, was an advisory board member for AHRQ, is an employee of Beyond Celiac and owns stocks and shares in Takeda Pharmaceutical Company, Amgen, Pfizer and Merck and Co. D.A.L.: has served as an advisory board member for Beyond Celiac, is an employee of Takeda Pharmaceuticals and owns stocks and shares in Takeda Pharmaceuticals. K.Y. declares that there is nothing to disclose. The research team included Jessica B. Edwards George, PhD; Babatunde Aideyan, MA; Kayla Yates, BS; Kristin N. Voorhees, MA; Jennifer O’Flynn, PhD; Kristen Sweet, PhD; Kate Avery, MPH; Alan Ehrlich MD; Alice Bast BS; and Daniel A. Leffler MD. They are variously affiliated with the Department of Applied Psychology, Bouvé College of Health Sciences, Northeastern University, Boston, MA; Beyond Celiac, Ambler, PA; the Department of Family Medicine and Community Health, University of Massachusetts Medical School, Worcester; Takeda, Cambridge; and the Celiac Center, Division of Gastroenterology, Beth Israel Deaconess Medical Center and Harvard Medical School, Boston, MA.
  5. Celiac.com 05/31/2021 - For people without celiac disease, does eating gluten have an impact on brain health, specifically on cognitive function? A recent study of nearly 14,000 non-celiac women at midlife revealed no statistical evidence of any association of long- or short-term gluten intake with cognitive function. More and more people are eating gluten-free for perceived health benefits that may not be real. It's true that cognitive impairment, sometimes called "brain fog," is a common symptom reported by many people before they are diagnosed with celiac disease. In those cases a gluten-free diet generally results in improvement of the symptoms. However, data are lacking in individuals without celiac disease. A recent study set out to "examine whether gluten intake is associated with cognitive function in women without celiac disease." Their study included US women who participated in the longitudinal, population-based Nurses’ Health Study II and had not previously or subsequently been diagnosed with celiac disease. Subjects answered a questionnaire that was used to cumulatively average gluten intake cycles prior to cognitive assessment. They then took a battery of tests on psychomotor speed and attention score, learning and working memory score, and global cognition score. They research team found no connection between long-term gluten intake and cognitive scores in middle-aged women without celiac disease. Their results, "do not support recommendations to restrict dietary gluten to maintain cognitive function in the absence of celiac disease or established gluten sensitivity." But how useful was the study? What did they actually measure? What did they actually show us? The study actually reveals very little, if anything. Celiac.com does not recommend a gluten-free diet for people who do not have celiac disease or gluten sensitivity, but we also do not oppose it. A properly structured gluten-free diet can be every bit as nutritious and health-promoting as a diet that contains gluten. However, we also do not agree with studies with conclusions that seem to be designed to scare people off of a gluten-free diet, or to soft-pedal a diet that contains wheat. The study does not say that there is no cognitive benefit to giving up gluten for people who do not have celiac disease or gluten intolerance, or that those without celiac disease might also benefit from a gluten-free diet. The benefits or harm of a gluten-free diet in people who are not gluten-free remains poorly studied. Even in people with celiac disease, the implications of a long-term gluten-free diet have not been well-studied, and plenty of studies make unproven nutritional assumptions about those implications based on scant data. We believe that each person must choose their diet for themselves, and that many folks without celiac disease may choose to eat gluten-free for reasons that make sense to them. Some may do so because they perceive themselves to think more clearly when they do not eat wheat. The problem, from our perspective is that the study basically says: We looked at a bunch of women who eat wheat and gluten in various quantities. Their brains seem fine. Nothing to see here. People concerned about a potential connection between brain function and wheat consumption deserve more than a study that says, in effect, "hey, plenty of women eat gluten, and whether they eat a lot or a little, their brain test results seem fine." Telling us that eating wheat does not seem to cause brain impairment in non-celiacs is helpful. It is. But it's only part of the picture. As far as we can see, none of these subjects had brain function tests when eating gluten compared with tests when they were gluten-free. Nor did the test compare women who ate wheat to similar women on a gluten-free diet (but really, what was needed here was the former, a comparison of the same group of people, perhaps tested when eating different gluten levels, then re-tested after a prolonged gluten-free diet). For all of the seemingly grand implications of the study, it really doesn't tell us much about brain function in people who eat gluten. It doesn't tell us if there are any benefits brain wise to giving up gluten. Look, it could be that giving up gluten has a negative impact on non-celiacs, but that remains unproven. We really need a more comprehensive and focused study to help tell us what, if any, impact gluten has on the cognitive function of non-celiacs, along with what benefits, if any, they might have when giving up gluten. Read more in JAMA Netw Open. 2021;4(5):e2113020 The research team included Yiqing Wang, PhD; Benjamin Lebwohl, MD, MS; Raaj Mehta, MD; et al Yin Cao, ScD, MPH; Peter H. R. Green, MD; Francine Grodstein, ScD; Manol Jovani, MD; Paul Lochhead, MBChB, PhD; Olivia I. Okereke, MD, MS; Laura Sampson, MS, RD; Walter C. Willett, MD, DrPH; Qi Sun, MD, ScD, MMS; Andrew T. Chan, MD, MPH. They are variously affiliated with the Clinical and Translational Epidemiology Unit, Massachusetts General Hospital, Harvard Medical School, Boston; the Division of Gastroenterology, Massachusetts General Hospital, Harvard Medical School, Boston; the Celiac Disease Center, Department of Medicine, Columbia University College of Physicians and Surgeons, New York, New York; the Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, New York; the Division of Public Health Sciences, Department of Surgery, Washington University in St Louis, St Louis, Missouri; the Division of Gastroenterology, Department of Medicine, Washington University in St Louis, St Louis, Missouri; the Rush Alzheimer’s Disease Center, Rush University Medical Center, Chicago, Illinois; the Department of Internal Medicine, Rush Medical College, Chicago, Illinois; the Division of Gastroenterology and Hepatology, Johns Hopkins Hospital, Baltimore, Maryland; the Channing Division of Network Medicine, Department of Medicine, Brigham and Women’s Hospital and Harvard Medical School, Boston, Massachusetts; the Department of Psychiatry, Massachusetts General Hospital and Harvard Medical School, Boston; the Department of Epidemiology, Harvard T.H. Chan School of Public Health, Boston, Massachusetts; and the Department of Nutrition, Harvard T. H. Chan School of Public Health, Boston, Massachusetts.

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  7. Celiac.com 03/18/2021 - This all started when I was a teenager, some thirty years ago. I was interested in several sports, and had participated to varying degrees in track and wrestling, so when basketball season rolled around my sophomore year I decided to get out there and compete. Not far into the practices, I began to have severe gastrointestinal symptoms. Let’s be clear here—I’m talking painful cramps and diarrhea. Everyone seemed to think that the real problem was that I was a “wuss,” and was afraid to play the game. Well, it was my first time and I wasn’t that athletic, and part of me tended to believe them, so I dropped out of basketball and never played again in school (but have played lots at the health club). The problem was—the digestive problems did not go away. They have haunted me my entire life. Of course I have gone to numerous doctors and have even been hospitalized more than once (I was hospitalized twice in the last ten days). The hospitalization is always for diarrhea and the subsequent dehydration. Doctors don’t seem to get it. They see diarrhea and think, “No big deal, just rest and clear liquids for a few days”. They can’t seem to understand that this is a chronic condition, nor how that can impact someone. They can’t appreciate how it can hold someone back, and prevent them from thriving. I could write much on the failings of the medical system. I’ve been around a while but to date have never personally seen a doctor actually research the situation. The results of their infinite line of tests—one after the other—presumably do lead to conclusions, but they do not seem to have efficacy. I mean that doctors don’t generally don’t give much credence to what the patient is saying, and instead use a generic line of logic that works for any situation where they have no information on what is going on. This canonical approach to testing guarantees everything be considered—but it also guarantees the medical bill will be as high as possible—and the answer will be found as slowly as possible. In any case, perhaps as early as 1985 I figured out on my own that I was lactose intolerant. Out of all the doctors and the tests I underwent—none discovered this—and finding this out helped me immensely. The painful cramps are basically a thing of the distant past and I am thankful for that. Diarrhea is also a part of the past with the exception of the occasional stomach flu or whatever it was that happened here recently (more on that in a bit). Something else also became apparent back in 1991. My college and career was in computer science. I was administering computer systems for some thirteen federal field offices. And that year, at the ripe old age of 31, I realized my mental capacity was diminishing. But there was something else too—my vitality was noticeably diminished from the prior year. No mistaking it, because I had been able to take a full load of college classes plus work full time, but could no longer handle it. My intelligence wasn’t diminished, but my sheer capacity for mental work was—I could not do as much mental work as before. Naturally, at 31 one expects to start feeling the effects of age. It seemed like a natural cresting, and although I was disappointed, it seemed like just one of those facts of life we have to accept. But this was different. The sheer pace of the progression was too much to be a natural decline. The next year I took part-time classes and worked full time. The year after that I took part-time classes and worked part time, and the next year I took part-time classes and had to take a leave of absence from work. Again, the doctors were consulted. They discounted or discredited my perceptions. Again, if it was anything, it was an emotional disturbance or character weakness on my part. Evidently I just did not want to study or work. Never mind that I had a 4.0 GPA in all my grad studies. Never mind that I was on the fast-track to a GS-12 Computer Scientist position (the highest non-managerial technical position available with the federal government). Never mind that I was one of only eight people in the nation for whom the government was picking up the tab for my studies. Every single year after that there was a perceptible decline. By 1996 my career was in jeopardy. I resigned from the federal government, feeling “burned out”, and did six months of travel through Latin America all the way down to Panama—just me, my dog, and my little truck. It was great, and I came back refreshed and re-energized. It took a while to find another computer job, but in the summer of 1998 I landed another good one. After six months at it I was again feeling drained, and I began to panic. No help could be found. I soon found an even better job and left the first one after only six months. At the new job I continued to get drained and after perhaps six months had to go to a part-time schedule of about 25-30 hours per week. Here’s what was going on. I would work hard on a project, using very specific types of mental skills. These skills included: mental modeling, state maintenance, memory, technical learning, mathematics, mental technical precision, creativity, and technical or engineering problem solving. Mental modeling and state maintenance are used to a high degree in software engineering. This is identical to playing a game of blind chess over a period of six months. Blind chess is where you cannot see the chess board. But it is much harder than blind chess if you are playing at the level where I was at. A computer program has much more going on in it than a chess game, much more which you have to keep track of—that is what I mean by “state maintenance”. Projects seemed to average about six months in length, and so you had to maintain the “game” over an extended period of time. You had to be able to pick it up each day from where you left it the day before. Great demands on memory are required. There was constant technical learning of new languages, new programming environments and objects, learning written specifications and on-the-fly modifications. Clearly algorithms were a large part of the effort which requires one to think in somewhat unnatural ways. Thinking mathematically and with mathematical precision (required for writing software code) is unnatural. We are an organic creature that thinks in an analog fashion, not a digital fashion. We think in terms of changes, and ranges, not in terms of absolutes. We can simulate this digital thinking with our brains, but it is unnatural and expensive. By expensive, I mean it can be done, but it takes a lot of resources. Resources, as far as the human brain is concerned, consists of amino acids, neurotransmitters, other exotic chemicals, and the like. I had the distinct perception that I was mining these resources at a rate exceeding the rate they were being produced. I don’t know how else to describe the sensation, but it was painful. That’s right, painful. The brain can’t feel pain directly with pain sensors because it does not have any. But it has ways of letting you know when you are doing something that is untenable, and that is what I perceived—a certain kind of harmful mental stress. At some point I began to experience something I call “Block Heading”. This is where my mental processes literally failed. Their limits were exceeded and the mental process failed in a biochemical way. When this would happen I would find myself staring at the keyboard and no thoughts would come. Let’s make this clear. When you know something well you don’t have to think about it to do it, like driving a car. That is a very complex and technical and dangerous maneuver, yet we do it without a thought. It is the same with computers. Someone can use Internet Explorer without a thought, really, once they know it—right? But with programming this is only true to a point. An expert can write complex commands in a given language and environment without a thought of how to put the command together. But, for me anyway, it had become impossible to create such commands without thinking about it. Developing anything new requires an internal dialogue in order to organize the sequence of steps that will occur, and to optimize how it shall be done most effectively. Trying to create a program without being able to have an internal dialogue is literally as impossible as flying by flapping my arms—at least for me is was. Take this test: Can you write a letter to someone without having any internal dialogue? Well, writing software is much harder because the writing has to occur precisely in a certain order and there can be zero mistakes in it. Whenever I was “block heading,” there would be no internal dialogue—only silence. My head was like a block of wood. Even worse, when I had pushed and exceeded limits to the point that block heading occurred, it meant a penalty of about a week for my brain to recover! All I could do was to take time off and rest—for at least a week! My career was untenable. It is virtually impossible to find a part-time software developer position. More consistency is demanded from the industry than my part-time hours with occasional week-long absences could command. By October of 2001 I was laid off. Nothing personal, all the contractors happened to get laid off. It’s just that I was probably overdue because I could barely contribute anymore. I was thankful to be laid off. I’ve not had a software development job since, although my love for creating software products still remains. There’s another observation here I can pass on, plus my hypothesis. The main mental processes that were impacted were the ones I used in software development. Any kind of work that uses these processes is out of the question except in limited fashion, such as managerial work which requires an understanding of work but does not require you to actually do much of it. The mental modeling, maintaining state, memory, technical learning, etc., are what I am talking about. Consider this possibility. Suppose you have a pump house that has ten pumps for pumping water at variable rates. All the pumps have the same capacity but some are used at high levels and some at low. Some pumps are running at maximum capacity and almost continuously. Now, you get some bad gasoline with some sort of impurity in it. Months or years go by before you realize it. Which pumps do you suppose are going to be damaged the most? Surely it would be the pumps that were running at high capacity and for long hours. Perhaps the same is true with the brain—which is a biochemical device. Those processes that were the money makers were the ones with high capacity and high hour utilization. I suspect that if processes related to writing or playing music or what-have-you were in play during this time of progression, that it would be those cognitive aspects most impacted by the disease process. You may even be experiencing the same process at work in your life—although it may be different cognitive processes that are impacted. This may account for some of the variability that makes it so baffling to doctors. Getting back to the doctors, of course I was desperate for help, and sought out these esteemed men and women of science. Some of them thought that I had mental or emotional problems. They would do their standard blood tests, which of course showed nothing, and since I looked healthy in all respects, could only conclude that I was a hypochondriac with emotional problems who simply did not want to work. The brain, however, is too complex and cognition too subtle to be evaluated by such crude tests! At this time I was making $60 per hour as a contractor. After being laid off of course my quality of life declined. I could only find jobs that paid $6 to $15 per hour, and could only work part-time at them even though they were not jobs that were mentally difficult. For example, I drove a bus for a senior center, and taught people how to use software applications at a computer store. Even though the serious demands of mental work were removed, my mental situation continued to decline. I began to regularly sprain my ankles—which was extremely painful. After a few months of this I was reduced to wearing ankle braces on both ankles 24/7. My walking was changing, never mind my running. I had been a runner, but no longer could run. Not just for fear of re-injuring my ankles, but because I could not move my legs right. They were becoming like blocks of wood too, stiff and lifeless. The muscles felt like they were continuously contracted and conflicting with each other. It was almost painful, and was certainly uncomfortable. When I walked, I had to throw my legs forward from the hips, something akin to a polio-style walk. My physical health was declining. I had been an extreme roller-blader, being pulled around town by my wolf-dog. But a crash occurred, and in retrospect I realize now it was because I had lost my balance, becoming stiff and uncoordinated. My neck was injured and the insurance company tortured me by not approving surgery for six months to see if it would magically get better on its own. It did not, and the six months of pain depressed me physically, requiring much rest. After the surgery, there was concern because my oxygen blood levels were too low because of shallow breathing. For a period I had to consciously concentrate on my breathing to make it deeper and keep oxygen levels up. I wisely sold my motorcycle, realizing that I no longer had the necessary balance to be safe on it. My mental processes were now starting to decline quickly, and my intelligence was also being affected. My memory was particularly impacted, in several specific areas. I went to a renowned neurologist at the University of Colorado Medical Research Center in Denver. I told him whatever it was had affected both my central and peripheral nervous systems. He scoffed at such a thought, and informed me that it was next to impossible. I said, “What about mercury poisoning, doesn’t that affect both?” He conceded that it did, but—for reasons I probably was not smart enough to understand—it was virtually unheard of to have a disease that affects both. He did seem to think I almost had a hereditary disease that causes “hammer toes” and can lead to ankle spraining. By “almost”, I mean that he conceded that I had the symptoms but not to the necessary degree. Another neurologist found something of great interest. He hooked me up to a device that provided me with repeated electric shocks and he measured how much of the electricity made it to the feet, plus seemed to enjoy watching me jump. Not very much of the electricity made it to the feet. There was acute poly-neuropathy. This means a disease of multiple nerves and at an extreme level. The nerve signals were not making it to the feet. That is why my legs weren’t working right and I was twisting my ankles. He did not check the arms but presumably they were the same because there was no autonomic nerve response reaching the nerve center when he tested me with the little rubber hammers. At this point I turned to the Internet and did a search of diseases that cause problems to central and peripheral nervous system which have poly-neuropathy as a symptom. It was a short list of four or five and I cannot really remember the list. Lyme disease was on the list, as was celiac disease, and a couple of other well-known diseases like Parkinson’s and multiple sclerosis. I went to my family doctor and told him these findings. He ordered more tests—three of which were for celiac disease. The results were: one was a high positive; one was borderline negative; one was completely normal. I instantly went on the gluten-free diet on hearing the news and could not be persuaded to go off it a few weeks later to do a gluten challenge and biopsy. So, they did not officially diagnose it as celiac disease, but I stuck to a strict gluten-free diet for two years. Over the following one and a half years I saw steady improvement. There was an immediate improvement in gastrointestinal health and mental processes. There was a gradual improvement in my legs. There was no improvement in mental capacity, but the progression seemed to have stopped and that itself was a huge improvement. By December of last year I was doing a lot of running—about five miles a week, and this year I am on my way to the best Bolder Boulder 10K race ever. My gluten-free diet was only getting stricter. No MSG, no artificial flavors or colors, and I have also excluded sugar. There have been suggestions that candida albicans (yeast) has a protein in its cell wall that is identical to gluten. The implication is that having yeast in your system is the same as having gluten. The yeast likes sugar—and to help starve it one should not consume sugar. Recently something happened, and I don’t know its exact cause. I quit running for a break and to enjoy the holidays—and have yet to make it back. My health started to decline again! My physical vigor gradually was being reduced. The polio walk was back. I was getting whacked regularly by what I called “stealth gluten attacks”. A stealth gluten attack is where I must have ingested gluten without knowing it, from cross-contamination, mislabeling, etc. These attacks were characterized by either or both of the following: gastrointestinal problems or neurological problems. The gastrointestinal problems were generally “soft-serve ice cream” consistency problems but in the last ten days it was acute diarrhea returning to my life. The neurological problems mainly impacted my legs and/or caused reduced mental acuity. Mental acuity has to do with cognition, and it was generally like taking a stupid pill. My memory would greatly diminish so that yesterday eluded me, and only mundane daily activities were possible. Forget high-level activities such as writing, or creating, or planning a project. By now I was virtually not eating out at all, and virtually not eating any processed foods. My diet was as strict as humanly possible. Plus, I was taking a good mega vitamin with mega doses of B-6 and B-12. So, the acute diarrhea came back and would not go away. My Bolder Boulder was a long and painful walk with zero running. I finished with my worst time ever. I have considered the possibility that there may be something else more serious going on like colon cancer, and have scheduled a colonoscopy. Here is a hypothesis as to what may be going on. My mother had colon cancer. Celiac disease is very hard on the colon—it puts a lot of added wear and tear on it. Further, something I suspect is that the damage to my nervous systems has made it more “fragile”. By fragile I mean not robust. I suspect that even without gluten, small upsets or stresses to the system could cause it to fail or behave as if gluten were present. Put another way, one’s gut can overcome the effects of the damage to some degree when things are going well, but the gut’s of many celiacs cannot maintain proper operation when any additional stressors are present. For many their guts will always be more fragile and require more TLC. If there is no cancer, then I am thrown back into the unknown. What could be going on? At any rate, I should tell you that just four days ago I went completely off of my gluten-free diet (which I do not recommend to anyone who has celiac disease). Here’s how my reasoning went. I went through hell the last ten days. Crapping my brains out and going to the emergency room twice, once by ambulance because I was too weak to drive there. Who knows how much money all that is going to cost me? I cannot express how every acute attack felt. I’m a smart guy, and used to make a good living from being smart and working hard. But every attack—maybe this will ring true for you too—every attack was like my life force was rushing out of me. I mean, it was far worse than merely having cramps and enduring the humiliation. For me, it would have felt the same if a pint of blood were rushing out of me—the dizziness, the loss of vitality or life force. It was like a stupid pill injection directly into a vein. Like the total ruin of my life, the stripping from me of my gift—with each attack. So, my reasoning was something to the effect of, “Damn it, my life is terrible, and I’m still suffering from the celiac-symptoms while on my “perfect” diet. If I’m going to suffer, why am I starving myself of all of those simple pleasures in life?” I went out and had pancakes, some Wendy’s burgers, a no-sugar-added blueberry pie—all the things I gave up two years ago. And guess what? I don’t really feel any worse for it! I do feel it a bit in my legs today, but from what I have been seeing of late, probably would be feeling it in my legs anyway if had not eaten any of that! So what is the moral here? Well, celiac disease is a complex and only partly-understood disease. I may have it and I may not. I may have celiac disease and something else! It may be the same situation for you too. It is particularly frustrating for me because I consider myself something of a healer—yet efforts for my own self are less than satisfactory. I had such high hopes for my diet—and my life, for that matter—and hopes that the gluten-free diet had fixed my problem, and would reverse much of the damage. It did for a while, but no longer seems to be working, and I don’t know why. If the colonoscopy comes back for cancer—then that would fit into my model, and I would go back on the diet. But I certainly don’t want to endure the harness of a gluten-free diet if I don’t have to. And, by the way, I have decided to get a biopsy and consider this time period a voluntary gluten challenge. I hope my story can somehow help you and yours. One thing I have learned through all of this is that we have to take responsibility for our own health—that much is clear. Do the research yourself, and have the discipline and guts to take the actions that your findings indicate need to be taken. Accept what the facts tell you. Remain flexible and willing to modify your position as the facts dictate. Remember, the doctors work for you and you pay them—you control them. You have to be in charge. Good luck and good health to you all. If I may be of assistance to you, informational or otherwise, feel free to contact me.
  8. Celiac.com 02/01/2021 - Non-Celiac Gluten Sensitivity (NCGS) is poorly understood, particularly in terms of its neurological effects. A team of researchers looking into the matter first conducted a prospective postal survey to investigate its neurological presentation and symptom course. Based on the results of the survey, they conducted a brain MRI study to follow-up, and to note potential diagnostic biomarkers for future research. The research team included Iain D. Croall, Nigel Hoggard, Imran Aziz, Marios Hadjivassiliou, and David S. Sanders. They are variously affiliated with the Department of Infection, Immunity & Cardiovascular Disease, University of Sheffield/INSIGENO, Sheffield, United Kingdom; the Academic Unit of Gastroenterology, Royal Hallamshire Hospital, Sheffield Teaching Hospital NHS Foundation Trust, Sheffield, United Kingdom; and the Academic Departments of Neurosciences and Neuroradiology, Sheffield Teaching Hospitals NHS Trust, Sheffield, United Kingdom. The team recruited 125 patients with NCGS from a clinical center. Each patient completed a prospective postal questionnaire summarizing the symptoms, their severity and their course. The team used Chi-squared analysis to compare onset time to data from 224 celiac disease patients from the same centre. Five gluten-free respondents who self-reported brain fog then received MR brain imaging and questionnaires, both before and after a gluten challenge. The team recorded this “baseline” data, and looked for abnormalities. They then compared symptom severity and cerebral blood flow (CBF) both before and after the gluten challenge. Neurological symptoms included headaches in more than half of patients, brain fog in just under half, balance issues in about one-third of patients, and tingling in about 20%. Symptoms typically began with 90 minutes, and resolved within 48 hours. The pattern of symptom onset was similar to that seen in celiac patients. Extra-intestinal symptoms worsened by nearly 40% during a typical reaction. The combined survey and brain imaging analysis showed that non-trivial neurological symptoms are common, and may be studied within 2 hours following gluten ingestion. The team suggests that further brain imaging studies may help reveal physiological damage, and the physiological response to gluten. The researchers stress the need for diagnostic biomarkers for NCGS, and notes that there is limited research showing AGA is raised in NCGS patients compared to the general population This first-of-a-kind neuro-imaging study revealed numerous clinical variables, which may be helpful for further studying the pathophysiology of NCGS. The positivity rate in patients for this study was about 18%, compared to just under 13% for healthy volunteers, which is an insignificant difference. This generally supports previous literature showing that AGA is not a good way to diagnose typical NCGS. A better understanding of how gliadin positivity interacts with neurological outcomes may be helpful, as research indicates that these antibodies may harm the brain. Read more at PLOS.org
  9. Celiac.com 01/25/2021 - What's the connection between celiac disease, and cognitive impairment? Does the connection change over time? Does following a gluten-free diet help reduce cognitive impairment? There really hasn't been much good study data on this so far. One of the main problems, according to researchers, previous reports of cognitive deficit in celiac disease often study widely variable groups of patients at multiple stages of the disease, and/or lack control data. To better understand the connection between cognitive impairment and celiac disease duration and gluten-free diet adherence, a team of researchers recently set out to examine groups of newly diagnosed and long-standing celiac disease patients. The research team included Iain D Croall, Claire Tooth, Annalena Venneri, Charlotte Poyser, David S Sanders, Nigel Hoggard and Marios Hadjivassiliou. They are variously affiliated with the Department of Neuroscience, the Department of Infection, Immunity & Cardiovascular Disease, and the Institute for Silico Medicine, at the University of Sheffield in Sheffield, UK; the Department of Psychological Services, Royal Hallamshire Hospital, STH, Sheffield, UK; the South West Yorkshire Partnership NHS Foundation Trust in Wakefield, UK; the Academic Unit of Gastroenterology, Royal Hallamshire Hospital, Sheffield Teaching Hospitals National Health Service Foundation Trust, Sheffield, UK; and the Department of Neurology, Royal Hallamshire Hospital, Sheffield Teaching Hospitals National Health Service Foundation Trust in Sheffield, UK. The team recruited 21 healthy control subjects, along with 19 newly diagnosed celiac patients (NCD) and 35 established celiac patients (ECD). Each participant took cognitive tests that established seven baseline domain scores. Patients also responded to SF-36 quality of life (QoL) questionnaires. The team then controlled for age, and compared data in between-group ANCOVAs with Tukey’s post-hoc test. The team then compared significant outcomes in the ECD group between fully gluten-free patients patients who not fully gluten-free diet, as defined by Biagi scores and blood tests. In visual, verbal, and memory tasks, the NCD and ECD groups underperformed relative to controls, by comparable measures. The ECD group only underperformed in visual-constructive tasks. In terms of QoL measures, the NCD patients reported lower vitality, while the ECD patients reported more bodily pain. Comparisons based on dietary adherence were non-significant. The team's findings confirm cognitive deficit in celiac patients, which seems to exist at the time of diagnosis, after which it seems to level off. While it seems that a gluten-free diet may be that cause of the leveling off, more research is needed to establish the degree to which this is true, and to what extent any further decline might result from ongoing gluten exposure. Read the team's paper entitled, Brain fog and non-coeliac gluten sensitivity: Proof of concept brain MRI pilot study, in Nutrients 2020, 12(7), 2028
  10. Soy is rated as GRAS in the FDA. Only soy with protein needs to be listed in ingredients. Everything else made from soy can be hidden in ingredients or new names. Help me find the hidden soy.
  11. Celiac.com 09/10/2020 - Brain fog is a state of mind that many celiacs experience, frequently in response to eating gluten, whether intentionally or otherwise. Sometimes we experience brain fog even when we are quite certain that we have not had any exposure to gluten. I am intimately familiar with this mental state, both when I have accidentally ingested gluten, and at times when I am sure I have not. At such times, my thinking becomes cloudy. I feel slightly detached from the world and my own emotions. I make mistakes that I would not normally make. I feel less alert, do not remember as well, become absent minded, require more sleep, sleep more soundly, and feel less rested when I awaken. I’m also a tad clumsier. I’m more easily confused. I find it more difficult to focus my attention and I sometimes feel mildly depressed. As I have mentioned in a previous article, brain fog is likely due to the convergence of a variety of contributing factors. My focus on that occasion was on exorphins—the morphine-like substances that come from partly digested gluten and dairy products and are sometimes called opioids. I also mentioned in that earlier article that the increased intestinal permeability found in active celiac disease, and now associated with the recently discovered zonulin, was a likely contributor. In susceptible individuals, gluten ingestion causes increased zonulin production. Zonulin widens the spaces between epithelial cells. Gluten’s contribution to brain fog is especially likely because zonulin not only causes a leaky gut—it also causes the same increase in permeability of epithelial junctions that form the blood brain barrier and which normally protects the brain from impurities in the bloodstream. Zonulin-induced permeability in the gut and the brain open a path for opioids to enter the circulation and then the brain. One feature of opioid activity is to alter blood flow patterns in the brain (1). Both the action of zonulin and opioid-induced impacts on brain perfusion combine to suggest that opioids derived from gluten and dairy products are likely to contribute to brain fog in celiac patients when they ingest gluten. Thus, gluten indirectly opens the gates to allow passage of gluten and dairy proteins through our protective barriers. However, food derived opioids are only one of many likely contributors to the brain fog that comes to us through a leaky gut. A leaky gut allows a mixture of foreign proteins and peptides to enter the bloodstream and the brain. Many of these foreign substances may well impact on brain function in various and unpredictable ways. The possibilities for negative impact on brain function are almost infinite. The Feingold Association has long held that a variety of synthetic food additives and colorings have a powerful impact on symptoms of attention deficit hyperactivity disorder (ADHD) in some individuals (https://www.feingold.org). Perhaps these individuals have undiagnosed celiac disease or gluten sensitivity and are over-producing zonulin, thus allowing these chemicals access to the bloodstream and the brain. The leaky gut is only one feature of celiac disease that may be at work in the symphony of interacting variables that result in our brain fog. Malabsorption may also play an important role here. Fat malabsorption, a long recognized feature of celiac disease, is often signaled by pale, floating stools and may be another contributor to brain fog. Our failure to absorb fats will include reduced absorption of essential fats. They are called “essential” because these fats are necessary to maintaining good health. Our bodies use essential fats to make cell membranes for neurones in the brain, to make a range of hormones that are involved in immune function, platelet aggregation, inflammation, and other important functions. Shortages of essential fatty acids have been reported in connection with neuro–degenerative diseases such as Alzheimer’s and depression (2). Mineral malabsorption is another important, well recognized feature of celiac disease. In fact, one common finding that often leads to the diagnosis of celiac disease is long term, treatment resistant, unexplained iron deficiency. Many untreated celiacs experience iron deficiency anemia. Some of us, despite the gluten-free diet, continue to experience challenges in achieving and maintaining iron repletion. Because most medical focus is on measuring hemoglobin, (which is the iron component of blood that distributes oxygen throughout the body) to identify iron deficiency, many more celiacs are likely to experience low iron stores and never be identified as long as their iron deficiency falls short of inducing anemia. A number of reports have identified reduced intellectual function in association with deficiencies in iron stores. These individuals are not anemic but they are likely to experience many of the symptoms of impaired intellectual function that are associated with iron deficiency. Since iron ions are critical to the hippocampal function of encoding memories, it is not surprising that other researchers report improved memory and cognition among iron deficient subjects following iron supplementation. Iron is also involved in some facets of immune function, mood, and impulse control. It is easy to see how subclinical iron deficiency may be a large factor in brain fog. To learn more about how iron deficiency can cause or contribute to poorer memory, lower intelligence, confusion, and despair, pick up a copy of my new book, “Get the Iron Edge”. More importantly, this book will guide you through a process that will help you to optimize your iron status, memory, and cognitive capacities. Of course, iron is not the only mineral that may play a role in brain fog. Magnesium and zinc are also important to healthy brain function, and magnesium supplementation alone has been shown to mitigate ADHD symptoms in some subjects (3). Malabsorption of any or all three of these minerals is likely to contribute to brain fog. By the time we finally get a diagnosis of celiac disease many of us try to improve our bone density by taking calcium supplements. Unfortunately, other minerals compete for the same transport mechanism that moves them across the intestinal barrier. Excessive calcium supplementation may swamp our transport capacity and result in induced deficiencies of other minerals that are important to brain function. Given all these data, brain fog is likely due to an unpredictable, unique, individualized mixture of contributing factors. Thus, each of us will experience brain fog a little differently. Gluten avoidance is the first step. For some, dairy avoidance is another important step. Balanced intake of minerals and other nutrients is also very important. The elevation to a state of alertness, optimum brain function, and a healthy brain will help us rise above our present difficulties, one step at a time. Sources: Gerra G, Calbiani B, Zaimovic A, Sartori R, Ugolotti G, Ippolito L, Delsignore R, Rustichelli P, Fontanesi B. Regional cerebral blood flow and comorbid diagnosis in abstinent opioid addicts. Psychiatry Res. 1998 Aug 26;83(2):117-26. Caramia G., The essential fatty acids omega-6 and omega-3: from their discovery to their use in therapapy. Minerva Pediatr. 2008 Apr;60(2):219-233. Starobrat-Hermelin B, Kozielec T. The effects of magnesium physiological supplementation on hyperactivity in children with attention deficit hyperactivity disorder (ADHD). Positive response to magnesium oral loading test. Magnes Res. 1997 Jun;10(2):149-56.
  12. Celiac.com 04/10/2020 - There is a growing epidemic of obesity, type II diabetes, cardiovascular disease, and predictions that 15,000,000 people in the United States alone will have Alzheimer’s Disease by the year 2050. In 2001, Dr. Richard L. Veech of the NIH, and others, published an article entitled, “Ketone bodies, potential therapeutic uses.”(1) In 2003, George F. Cahill, Jr. and Richard Veech authored, “Ketoacids? Good Medicine?”(2) and in 2004, Richard Veech published a review of the therapeutic implications of ketone bodies.(3) These articles are not found in journals that the average physician would read, much less the lay public. Unless you are researching the topic, it is unlikely that you would ever randomly come across this information. My husband Steve, age 58, has had progressive dementia for at least five years. He had an MRI in May 2008 showing a diffuse involutional change of the frontal and parietal lobes and moderate left-sided and severe right-sided amygdala and hippocampal atrophy with no ischemic change, which would support a clinical diagnosis of Alzheimer’s Disease. For non-medical people, this means that he has shrunken areas of the brain. Many days, often for several days in a row, he was in a fog; couldn’t find a spoon or remember how to get water out of the refrigerator. Some days were not so bad; he almost seemed like his former self, happy, with his unique sense of humor, creative, full of ideas. One day I would ask if a certain call came that I was expecting and he would say, “No.” Two days later he would remember the message from so-and-so from a couple of days earlier and what they said. Strange to have no short-term memory and yet the information was filed somewhere in his brain. My gut feeling is that diet has something to do with the fluctuation, but what. I knew that he was locked up in there somewhere, if only there was a key to open up the areas of his brain that he didn’t have access to. Steve has a BSBA in accounting, and did billing, bookkeeping and accounting for my neonatology practice from home, so that he could stay with our girls. He loved computers and was a fast typist. He could open computers up to repair them and fix practically anything else without ever having instruction. If he did not have a tool to do something he would “invent” it and make a usable prototype. He loved to kayak and made an attachment to keep his kayak moving in a straight line. About five years ago he began to have trouble organizing to do his accounting work. He would procrastinate as much as possible. He made mistakes with the payroll and I began to sit with him to help him get it right. I thought it was just that our practice had gotten more complicated with more employees. He knew that something was wrong and depression set in. We took him to a neurologist about 4 years ago, who did a Mini Mental Status Exam (MMSE,) and Steve scored a 23 out of 30, putting him into the mild range of dementia. On this test, the lower the score is, the worse the dementia. His MRI was reported as normal at that time. About three years ago, Steve started taking Aricept and two years ago Namenda. We were hopeful that, if we could slow his decline enough, a treatment would come along that would turn things around for him. He was changed over from Aricept to Exelon in August 2007 after losing ten pounds over several weeks. In the past 12 months there was a noticeable change. He can no longer cook for himself, remember to eat a good meal, use a calculator or even perform the simplest addition, however he still keeps busy all day working in the yard or in his garage and he is still in good physical condition. I now do all the cooking for a man who used to cook for his family regularly. I give him the medications because he can’t remember to take them, much less take the right pills. Every night, we hold each other before we go to sleep and I wonder how many more times we will get to do this. It has been a nightmare to watch his decline and feel helpless to do anything but watch it happen. He is fully aware of his dementia, and we talk about it frequently. He is no longer depressed, probably with the help of counseling, Lexipro and Wellbutrin, or maybe worsening of his disease. I subscribe to various alerts and check the website clinicaltrials.gov periodically to look for drug studies that he may qualify for. Two years ago we tried to get him into a study for a promising anti-inflammatory drug, Flurizan, but he did not qualify because he had a history of depression within the previous two years. Wouldn’t you be depressed if you knew you had Alzheimer’s? In fact, depression may be a symptom or precursor of Alzheimer’s. Until very recently, I didn’t see anything regarding the potential use of medium chain triglycerides (MCT oil), or ketone bodies (also called ketoacids,) the end product of their metabolism, which may not only treat, but also prevent Alzheimer’s disease. Further, this is a potential treatment for Parkinson’s disease, Huntington’s disease, multiple sclerosis and amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease), drug resistant epilepsy, brittle type I diabetes, and diabetes type II, where there is insulin resistance. Ketone bodies may help the brain recover after a loss of oxygen in newborns through adults, may help the heart recover after an acute attack, and may shrink cancerous tumors. Children with drug resistant epilepsy sometimes respond to an extremely low carbohydrate ketogenic diet. MCT oil appears to be useful as an aid in weight loss and body builders use it already to improve their lean body mass (MCT oil can be easily purchased on the internet.) Athletes and soldiers could use MCT oil as a source of fuel when the body runs out of carbohydrates, which occurs rather quickly when food is not readily available. What do these entities have in common? Our cells can use ketone bodies as an alternative fuel when glucose is not available. Brain cells, specifically neurons, are very limited, more limited than other cells, in what kinds of fuel they can use to function and to stay alive. Normally, they require glucose (sugar), but they can also use ketone bodies. Humans do not normally have ketone bodies circulating and available to the brain unless they have been starving for a couple of days or longer, or are consuming a ketogenic (very low carbohydrate) diet, such as Atkins. In Alzheimer’s disease, the neurons in certain areas of the brain are unable to take in glucose (4), (5) due to insulin resistance and slowly die off, a process that appears to happen one or more decades before the symptoms become apparent. If these cells had access to ketone bodies, they could potentially stay alive and continue to function. It appears that persons with Parkinson’s disease, (6) Huntington’s disease, (7) multiple and ALS (9) have a similar defect in utilizing glucose but in different areas of the brain or spinal cord. MCT oil is digested differently by the body than other fats. Instead of storing all MCTs as fat, the liver converts them directly to ketone bodies, which are then available for use as energy. Oral and intravenous administration of MCT oil produces hyperketonemia, (10) or circulating ketone bodies, which are then available to the brain for energy, in the absence of glucose (19) and even in the presence of glucose. (22) In addition, hyperketonemia results in a substantial (39%) increase in cerebral blood flow, (18) and appears to reduce cognitive dysfunction associated with systemic hypoglycemia in normal humans. (19) About 2 months ago, we took Steve to the Johnny B. Byrd, Jr. Alzheimer’s Institute at University of South Florida (USF) in Tampa, Florida for an annual evaluation and screening for a vaccine study (Elan). He was fasting for blood work and had an MMSE of 12, much too low to qualify for the vaccine study – a minimum score of 16 was required. We were very disappointed, but were advised that we could come back another time to try again, since he met all of the other criteria. We made an appointment in mid-May 2008 in St. Petersburg, Florida to screen Steve for an Eli Lilly gamma-secretase inhibitor and made another appointment for Steve to be screened for entry into the Elan study at USF the following day. The evening before the first screening in St. Pete, I researched the two drugs to help us decide which drug to choose, should he qualify for both studies. I came across another drug, Ketasyn, or AC-1202, that was also recruiting healthy older people to test the tolerability of three different formulations. Investigating further, I learned that this treatment brought about significant improvement over a 90-day period in about half of the subjects who had a certain genetic profile (APOE2 or APOE3.) The APOE4 group remained about the same, whereas the controls (people taking the placebo) continued to show decline. The results were even more impressive for people who were already taking certain Alzheimer’s medications. In a pilot study, some people improved on memory testing with the very first dose. Upon doing an internet search for Ketasyn, I found a January 2008 patent application (see freepatentsonline.com) (10) a continuation of a 2000 application, 75 pages long, with a well-written and thorough description of the science of Alzheimer’s disease and description of the “invention,” including these study results and numerous potential formulations in combination with other substances that may enhance its effect. I learned that the promising “ingredient” in Ketasyn is simply MCT oil, and that a dose of 20 grams (about 20 ml or 4 teaspoons) was used to produce these results. The MCT oil that these researchers used was obtained from Stepan Company and consists of primarily 6 and 8 carbon chains, however they state that MCT of any combination of medium chains (6 to 12 carbon chains are medium chain) would also be effective. Just once in this application, the author mentions that MCT oil is derived from coconut or palm oil (this is incorrect, the author should have stated palm kernel oil.) I didn’t know at that point that I could easily purchase MCT oil online, so I researched coconut oil and found out that coconut oil is about 60% medium chain fatty acids (MCFA), contains no cholesterol and also contains omega-6 fatty acids and some other short and long chain fatty acids of up to 18 carbon chains. (11) Coconut oil can be found in many health food stores and even some grocery stores. Wal-Mart sells a non-hydrogenated (no transfat) brand of coconut oil in a one-liter size (almost 32 ounce containers) for about $7 in our area of Florida. It can be purchased in quantities as small as a pint and up to five gallons online. It is important to use coconut oil that is non-hydrogenated and contains no transfat. There is a widely held misconception that coconut oil is the “artery clogging oil,” a term coined in the mid-1900’s by the president of Proctor and Gamble, the manufacturer of Crisco and other hydrogenated vegetable oils. The early studies in animals used hydrogenated coconut oil, which we now know produces the notorious trans-fats, and the essential fatty acids were excluded from the diet. (13) The largest producer of coconut oil is the Philippines, where coconut and its oil are food staples, and it is also produced in India, Thailand and other parts of Southeast Asia, the Caribbean islands and even in south Florida. The Philippines has one of the lowest incidences of cardiovascular disease in the world. Studies have shown that total cholesterol to HDL ratio improves with non-hydrogenated coconut oil. (14, 15, 16, 17) The people in this part of the world also eat fish regularly, providing them with omega-3 fatty acids, which probably contributes as well to the lack of cardiovascular disease. My nurse friends from the Philippines tell me that many of their relatives back home cook everything in coconut oil and have coconut in one form or another at nearly every meal. I have also learned that after coconut and palm kernel oil, the food that medium chain triglycerides are most concentrated in is human breast milk. (12) It is also found in smaller concentrations in goat and cow’s milk, as well as the butters from these milks. In fact, we used to add MCT oil 20-25 years ago to premature formulas to add calories, and MCT, coconut and palm oils are currently added to premature and full term infant formulas, along with ARA and DHA to mimic breast milk. Back to Steve, it was too late to find coconut oil before the first screening. On the way, I reminded him repeatedly that we were in St. Petersburg, in Pinellas County. On the MMSE, he remembered the city but not the county, and he couldn’t remember the season, the month or day of the week, much less the date, even though he had to initial and date numerous pages of consent forms before the MMSE. He had to be reminded on every single page where to initial and what the date was and even how to write out the date. He scored a 14, too low for entry into the study. Dr. Margarita Nunez spent considerable time with us and asked Steve to draw a clock (see clock #1), which she said was a specific test for Alzheimer’s. She took me aside and told me that his “clock” indicated he was leaning more towards severe than moderate AD, a devastating, but not surprising revelation to me, considering that I am his wife of 36 years and now his caretaker. Thinking, what have we got to lose, we stopped at a health food store on the way home and picked up a quart of 100% “virgin” coconut oil. I calculated that in order to provide 20 gm of MCT, he would need to take 35 grams or just over two tablespoons (about 35 ml or 7 level teaspoons) of coconut oil. The following morning, around 9 A.M., I made oatmeal for breakfast and stirred two tablespoons, plus more for “good luck,” into his portion. I had some as well, since I cannot expect him to eat something that I won’t eat. On the way to the 1:00 P.M. screening, I tried to prepare Steve by asking him the season, the month, the day of the week, reminding him that we were going to Tampa, in Hillsborough county. He couldn’t remember the word “spring,” came up with April instead of May for the month every time I asked him and he couldn’t remember it was Wednesday. During the hour-long drive, we went through these facts at least 10 times, but he still couldn’t remember. Shortly after we arrived he was whisked away for the test, about 4 ½ hours after consuming the coconut oil. When he returned, he was very unhappy about his performance. Laura, the research coordinator, returned shortly thereafter and began to take his vital signs and blood pressure, and, suspecting that we were continuing with the screening process, I asked her if she could share his score with us. She said, “Didn’t he tell you? He scored an 18!” more than he needed to qualify for the vaccine study. He remembered it was spring, it was May, it was Wednesday, that he was in Tampa, in Hillsborough County and that we were at the Byrd Institute, all points that he missed on the previous attempt at USF. As a result of the screening, we learned that he is positive for APOE4, but do not know at this time if he has one or two copies. According to the Ketasyn studies, Steve should not have improved, but rather he should have stayed about the same. Since then he has retested for the Eli Lilly study drug, now available closer to home and scored an MMSE of 17 - he even remembered the date of July 2, 2008 this time. We have decided, after looking at the potential side effects of the vaccine for APOE4+ people, to go with the Eli Lilly drug. At the time of this writing it has been 60 days since he started taking coconut oil (May 21, 2008.) He walks into the kitchen every morning alert and happy, talkative, making jokes. His gait is still a little weird. His tremor is no longer very noticeable. He is able to concentrate on things that he wants to do around the house and in the yard and stay on task, whereas before coconut oil he was easily distractible and rarely accomplished anything unless I supervised him directly, a source of some contention between us! After about two weeks, and again at 37 days, after starting the coconut oil, I asked him to draw a clock (see Clocks #2 and #3.) There is an obvious marked improvement. I promise that I did not help him. He tells me that he could not even picture a clock at the St. Pete screening, but with the last two attempts, he was very concerned that the 6 was opposite the 12 and the 9 opposite the 3 on the face of the clock. He drew “spokes” to help them line up. I did not ask him to try to put in a time, the next part of that test. Steve has not been able to type for at least two years, but he feels that he can picture the position of the letters on the keyboard. At this point he is afraid to sit down and try to type, worried that he will be discouraged if it doesn’t come back right away. We are considering trying occupational therapy to see if he can relearn some of the skills he has lost. I cannot explain why he has improved, except that perhaps the 10 and 12 carbon chains are important, or the APOE4 people in the Ketasyn studies were not taking omega-3 fatty acids. We eat salmon at least twice a week and take fish oil supplements twice a day and have for at least the past two years. I have been researching on the internet everything I can find about coconut oil, MCT oil, fatty acids, ketone bodies, fatty acid composition of breast milk, ketones and various disease states. When I researched ketone bodies, I came across the name of Dr. Richard Veech of the National Institutes of Health. I contacted him to ask questions about all of this and he very kindly spoke with me and emailed me articles he had written on the subject. I have had numerous questions and ideas, and he has continued to provide me with answers and more papers to read. I am thinking not only about people with neurodegenerative diseases like my husband, but also the sick and premature newborns that I take care of, and potential uses for those at both ends of the spectrum of life and everyone in between. I wonder about autism and whether something very important is missing in infant formulas and in the diets of women who are breastfeeding. (23) Beta-hydroxybutyrate is the primary ketone body that is the end product of fatty acid metabolism and appears to protect neurons when glucose is not available. (20) Dr. Veech can make an ester form of beta-hydroxybutyrate in his lab from MCT oil that can be taken orally and converted to energy by neurons and other cells. Potentially, higher levels of ketone bodies could be obtained by ingesting beta-hydroxybutyrate directly. He has done studies on animals, but needs to produce this in quantity to be able to do human studies. He could start testing this year, if only he had the funding. He needs $15 million to build a plant to produce his beta-hydroxybutyrate. That is a lot of money, but not so much if you consider that it is $1.00 for every person that is expected to have Alzheimer’s disease by the year 2050. We visited Cincinnati at the end of June and all of my family and Steve’s family noticed a very significant difference in how he interacted with them socially compared to a year ago. Instead of looking lost, he was involved and interested in what they had to say. He recognized relatives (brothers-in-law, nieces and nephews) by name immediately that were unfamiliar to him a year ago. His facial expression was more animated. He participated actively in conversations, understood jokes immediately and even came up with his own humorous comments. He still had difficulty finding some words, but he was talking in sentences and even stringing sentences together. In the morning he would come to the kitchen and ask me to walk the “big hill” with him before breakfast to get some exercise. He is a very different person than he was a year ago and perhaps even two or three years ago. He has serious atrophy of his brain and will never be “normal,” but for now we are very pleased with where he is at and, should coconut oil stop or slow down the progress of his disease, it will be worth every drop that he takes. My sister Lois told a lady she works with about the coconut oil and Steve’s response to it. Her father began to give this to her mother, who has Alzheimer’s and she has had a similar response, with more alertness, conversation and sense of humor. On July 9, 2008, Steve had blood samples drawn at various times before and following breakfast and dinner. He received 35 ml of coconut oil at each of those meals. He did not receive any other coconut oil or other coconut products during the rest of that day. Normally, he receives more coconut oil than that on the average day. Steve’s ketone body levels began to increase after breakfast over 3 hours, but at relatively low levels, dropped again before dinner and were steadily rising about 3 hours after dinner. We do not know when his levels peaked because we did not draw any further levels thereafter. Dr. Veech stated that it is surprising that Steve would improve with these relatively low levels of ketones. This study reaffirms his belief that it is necessary to go forward with the production and testing of his ketone body b-hydroxy butyrate esters, since considerably higher levels of ketone bodies, timed and controlled could be achieved, and more ketones would be available for the neurons to use, and therefore greater improvement could be expected. It is urgent that funding become available to move forward for the sake of the millions who currently suffer, and will in the future suffer, from Alzheimer’s disease, Parkinson’s disease, Huntington’s chorea, multiple sclerosis, ALS, type I and type II diabetes, as well as any number of other conditions that involve a defect in transport of glucose into neurons and other cells. Until Dr. Veech’s beta-hydroxybutyrate is tested and available for use, a simple dietary change to coconut oil could make a difference for people who believe they are at risk and for those who already have one of these diseases. To duplicate the dose of MCT taken in the Ketasyn study, about 7 level teaspoons should be taken at one time, once a day, which should circulate ketone bodies for about 24 hours. I do not know if it is necessary to take this much at one time or if the dosage could be spread out over the course of the day. Studies obviously need to be done to determine this. We actually give this amount to Steve at least twice a day to make sure that there are no periods without ketone bodies circulating. Many days he receives at least 50% more than this. The amounts we are taking would not be excessive in areas of the world where coconut is a staple. If a person can tolerate more, or can work up to tolerating more, it may be a good idea to do so. As an alternative, one could take 4 teaspoons of MCT oil once or twice a day, or more often as tolerated. Some people may experience a sense of “fullness” or even have diarrhea after taking this much to start, but this problem can be reduced by starting with one or two teaspoons and increasing over a week or so to the full amount. We put it in oatmeal, combine it with salad dressings, use it to cook with, and put it on anything that one would normally put butter on, such as potatoes, sweet potatoes, rice, pasta or noodles. Coconut ice cream can be purchased at Asian stores, contains coconut oil and is the most pleasant way I can think of to make ketone bodies. Likewise, coconut milk is a combination of coconut oil and coconut water and can be found in the Asian and condensed milk sections of many grocery stores. It is a pleasant substitute for milk, and can be added instead of milk, for example, to make scrambled eggs, French toast and mashed potatoes. You can figure out portion sizes of various combinations of foods containing coconut and coconut oil equivalent to at least 35 grams of fat from coconut oil. If you are using any type of hydrogenated vegetable oil or any oil with transfat, do not use any more and get rid of it! Extra virgin olive oil, butter and other natural, non-hydrogenated oils are okay to use along with the coconut oil. It is possible to use coconut oil in place of all other oils, however, since it contains no omega-3 fatty acids, it is very important to eat salmon twice a week or get enough omega-3 fatty acid from other rich sources such as fish oil capsules, flax meal, flax oil (not for cooking) or walnuts. It is inconceivable that a potential dietary prevention and cure for Alzheimer’s disease, and other neurodegenerative diseases, has been out there for so many years, and yet has gone unnoticed. It is very likely that these diseases are becoming more prevalent due our current diet. The American diet has changed drastically from what it was before the 1950’s, when our parents and grandparents used lard and coconut oil to cook. Cardiovascular disease was rare at the beginning of the 20th century, and has skyrocketed, along with other devastating diseases, such as Alzheimer’s, diabetes type II, obesity, since mass produced hydrogenated vegetable oils containing trans fats were introduced into our diets and replaced these other natural fats. Sadly, the incidences of cardiovascular and other serious diseases are becoming more and more common among people in other areas of the world who have changed over from their indigenous foods to the “western” diet. I plan to tell everyone I can and get this information to persons in positions to investigate this with the hope that Dr. Veech and other MCT oil and ketone body researchers get the funding they need. Feel free to make copies and pass this write-up on. If you have a loved one or a patient with Alzheimer’s or one of these other degenerative neurologic diseases, consider trying coconut oil. Dr. Veech suggests that, if possible, a videotape of the person before starting and at various points after starting the coconut oil would be very useful to document change. He suggests including segments of the persons face, speech and gait (walking). He also advises to have ketone bodies measured. What have you got to lose? References: “Ketone bodies, potential therapeutic uses,” RL Veech, B Chance, Y Kashiwaya, HA Lardy, GC Cahill, Jr., IUBMB Life, 2001, Vol. 51 No.4, 241-247 “Ketoacids? Good Medicine?” George F. Cahill, Jr., Richard L. Veech, Transactions of the American Clinical and Climatological Association, Vol. 114, 2003. “The therapaeutic implications of ketone bodies: the effects of ketone bodies in pathological conditions: ketosis, ketogenic diet, redox states, insulin resistance, and mitochondrial metabolism,” Richard L. Veech, Prostaglandins, Leukotrienes and Essential Fatty Acids, 70 (2004) 309-319. "Diminished glucose transport and phosphorylation in Alzheimer’s Disease determined by dynamic FDG-PET,” M Piert, et.al., The Journal of Nuclear Medicine, Vol.37 No.2, February 1996, 201-208. “Glucose metabolism in early onset versus late onset Alzheimer’s Disease: an SPM analysis of 120 patients,” EJ Kim, et. al., Brain, 2005, Vol. 128, 1790-1801. “Cerebral glucose metabolism in Parkinson’s disease with and without dementia,” RF Peppard, et.al., Archives of Neurology, Vol. 49 No.12, December 1992. “Cortical and subcortical glucose consumption measured by PET in patients with Huntington’s disease,” Brain, October 1990, Vol 113, part 5, 1405-23. “Reduced glucose metabolism in the frontal cortex and basal ganglia of multiple sclerosis patients with fatigue: a 18F-fluorodeoxyglucose positron emission tomography study,” U Roelcke, et. al., Neurology, 1997, Vol. 48, Issue 6, 1566-1571. “ALS-linked Cu/Zn-SOD mutation impairs cerebral synaptic glucose and glutamate transport and exacerbates ischemic brain injury,” Z Guo, et. al., Journal of Cerebral Blood Flow Metabolism, March 2000, Vol. 20 No. 3, 463-8. “Combinations of medium chain triglycerides and therapeutic agents for the treatment and prevention of Alzheimer’s disease and other diseases resulting from reduced neuronal metabolism,” United States Patent 20080009467, Inventor Samuel T. Henderson, Accera, Inc., Broomfield, Colorado (Ketasyn). Nutrient analysis of coconut oil (vegetable), NDB No: 04047 – www.nal.usda.gov/fnic/foodcomp . “Lipids in (human) milk and the first steps in their digestion,” M Hamosh, et. al., Pediatrics, 1985, Vol. 75, 146-150. “Nutritional factors and serum lipid levels,” EH Ahrens, American Journal of Medicine, 1957, vol. 23, 928 (used hydrogenated coconut oil). “Trans fatty acids and coronary artery disease,” NEJM, 1999, Vol. 340, 1994-1998. “Effect of mixed fat formula feeding on serum cholesterol level in man,” SA Hashim, American Journal of Clinical Nutrition, 1959, Vol. 7, 30-34. “Modified-fat dietary management of the young male with coronary disease: a five-year report,” JL Bierenbaum, JAMA, 1967, Vol. 202, 1119-1123. “Cholesterol, coconuts and diet in Polynesian atolls-a natural experiment; the Pukapuka and Toklau island studies,” IA Prior, American Journal of Clinical Nutrition, 1981, Vol. 34, 1552-1561. “Changes in cerebral blood flow and carbohydrate metabolism during acute hyperketonemia,” S.G. Hasselbalch, et.al, Am J Physiol, 1996, Vol. 270, E746-51. “Effect of hyperketonemia and hyperlacticacidemia on symptoms, cognitive dysfunction, and counterregulatory hormone responses during hypoglycemia in normal humans,” T. Veneman, et. al., Diabetes 43:1311-7 (1994). “D-b-Hydroxybutyrate protects neurons in models of Alzheimer’s and Parkinson’s disease,” Y Kashiwaya, et. al. including RL Veech, PNAS, May 9, 2000, Vol. 97 No. 10, 5440-5444. “High carbohydrate diets and Alzheimer’s disease,” Samuel T. Henderson, Medical Hypotheses, 2004, Vol 62, 689-700 (Another article of interest). “Effects of b-Hydroxybutyrate on cognition in memory-impaired adults,” MA Reger, ST Henderson, et. al., Neurobiology of Aging, 2004, Vol. 25, 311-314. “Breastfeeding, infant formula supplementation, and Autistic Disorder: the results of a parent survey,” ST Schultz, et. al., International Breastfeeding Journal, 2006, Vol. 1 No. 16. Other Important Resources “Ketones: Metabolism’s Ugly Duckling,” TB VanItallie, TH Nufert, Nutrition Reviews, Vol 61, No 10, 327-341. • “Fuel Metabolism in Starvation,” GF Cahill, Jr., Annual Reviews in Nutrition, 2006, 26:1-22. “Ketone Bodies as a Therapeutic for Alzheimer’s Disease,” ST Henderson, Journal of the American Society for Experimental NeuroTherapeutics, Vol 5, 470-480, July 2008.
  13. Hi All, I was diagnosed with celiac about 4 months ago and am having persisting symptoms. I'm looking for some advice. Since January of this year I was having gastrological symptoms (sharp abdominal pain after consuming gluten or acidic foods, constipation, acid reflux, bloating, mild weight gain). Throughout the year I noticed other symptoms like face puffiness, especially around my eyes, mouth, and under my chin. I went gluten free in June because I realized it alleviated some intestinal symptoms. They tried to give me omeprazole for the acid reflux but it made me very nauseous so I stopped. I also found out I was anemic and began taking iron supplements. In August I went back on a gluten diet for two weeks in order to have the celiac blood test, which came back positive. The next available appointment for an endoscopy/biopsy wasn't until November and my doctor said I could remain gluten-free because it would put me in too much pain, but that it may cause a false negative in the biopsy. So I decided to act as if I had celiac-- I stuck to a VERY strict gluten-free diet and started to really pay attention to cross-contamination. I got all new cookware, etc. However, at that point a whole host of other symptoms began, mostly neurological. I started getting debilitating brain fog (like I couldn't think clearly at all, couldn't pay attention, felt brain dead), my anxiety and depression went through the roof, I felt dizzy constantly (like the room was spinning), headaches, fatigue. The intestinal symptoms got better-- no more sharp pain, no acid reflux unless I got gluten sick, less bloating. My skin and face also began to suffer-- it started looking dull and sagging like I was aging (I'm 24 and otherwise healthy), acne got worse, my face was more swelled than before, my eyelids started drooping (the left one droops all the way to my eyelashes). But the neurological symptoms were the most difficult to endure because it made functioning in daily life almost impossible. I suspected a thyroid issue and got that tested but the results were normal. I finally had my endoscopy and the biopsy results were negative other than some "mild chronic inflammation." Slowly over the course of 4 months there has been some improvement (my face looks less puffy some days/acne has cleared up), my dizziness is better but still persistent, my brain is still foggy but better than before. My first clue to getting gluten cross-contaminated is a bout of dizziness followed by a panic attack and acid reflux, constipation the next day, and pretty bad brain fog for a few days until I level off. I have little to no other gastrological symptoms. Despite being better than before, I still haven't felt "normal" in 4 months since August. I had been feeling like I was improving slightly but recently I feel like it's leveling off and I'm stuck at this half-sick stage. I am very strict with my eating habits and I eat mostly vegetables and meat. I exercise multiple days a week. I don't understand why these neurological symptoms came on so suddenly when I had already been on a gluten-free diet for a few months... I don't understand why I'm not getting better. When I consulted my doctor about this she said I might be having physical manifestations of anxiety/depression (since they came on so quickly after I was formally diagnosed and that could've triggered it). But I feel like there is more going on in my body. I just want to feel like a normally functioning human again. So I'm asking for some advice on what to do next? Why am I not improving? Do I just need to give it more time? Any other tests I could be taking to see if something else is going on? My doctors have been so unhelpful. Thank you!
  14. Hi all, I’m new to this group. I’ve been gluten free for a year now with celiac. I’m very careful at home, but find I get diarrhea every time I eat out. Recently we moved and I’ve been having a severe flare up. I’m experiencing what I think is brain fog, dizziness, vertigo, to the point that it’s affecting my everyday functioning-similar to when I’ve forgotten to take my medication for a few days. I’ve been on generic Zoloft for years without issue, but I recently read that a reader found that a flare up prevented the absorption of medication. Has anyone ever heard of this? Am I just experiencing brain fog?? Any suggestions are welcomed. Thanks in advance. Nicole
  15. This small study suggests that taking probiotics may contribute to brain fogginess and bloating. While it may be good to keep the large intestine (colon) populated with healthy bacteria, taking probiotics in patients with impaired gastrointestinal mobility (e.g. diabetes, celiac disease) may contribute to issues like SIBO where the bacteria may populate in the small intestine instead. https://medicalxpress.com/news/2018-08-probiotic-link-brain-fogginess-severe.html Talk to your doctor about taking a probiotic. Consider modifying your diet to include foods that can help populate the large intestine (e.g. fermented foods), instead of taking a supplement.
  16. I was diagnosed celiac approx. 5 years ago and have been eating gluten-free. My 15 yr old son was just diagnosed 6 months ago and has been doing well with his gluten-free diet. We are both suffering from exhaustion and he feels brain fogginess at times. I have had problems with b12, low iron and ferritin levels, but the seems to be “normal” and I’m still exhausted to the point I can’t keep up with my family, need naps throughout the day, etc. My son is the same. He’s going to have to pull out of sports until we resolve our problems. Can anyone offer some help or suggestions? Thank you.
  17. My 8yo daughter has been doing the gluten challenge for almost a month now. There is one thing I've noticed has been getting worse and to the point she has to leave her classroom to go for a walk to get away from the noise or needs to wear sound cancelling headphones. She says she can't concentrate with all the noise. Her brother also has autism and he stims, and repeats words or sounds over and over again. She seems to get super anxious and begs him to stop. I asked her if the noise was hurting her ears and she said no. She said it's like her brain is all jumbled. Does that sound like something brain fog would do? I have tried to google brain fog to get a better understanding of what it might feel like but I'm not sure.
  18. So I posted back in early February2017 about having some extreme brain fog, light headed, vision problems amongst other symptoms. I thought it was because I had started a strict gluten-free diet again (after eating carelessly for a couple months and being a celiac) and was possibly have gluten withdrawals or even cross contamination some how in my diet. I literally went to 3 different MD’s and even my Optometrist. And they all told me I needed to eat more and get better “quality” sleep. After a year of strict sleeping/eating schedules the symptoms never went away and it felt like this constant drunk state of going about my day. Finally I switched to a Holistic Doctor (I think that’s what type of Doctor he is). Anyways after the first appointment he pretty much knew what I had and sent my home with two take home tests. One for SIBO, the other for Adrenal Fatigue. I tested positive for both with extremely solid results. I always told myself I’d come back on this forum to share my info if I ever figured out what was wrong with me because no one seemed to know exactly what was going on and looked at me like I was some crazy lady making up stuff. I am one week on the Rx. and already feel so much better. My ability to communicate and focus in conversations is much better. I literally felt buzzed when talking before and it took way too much effort to really even stay on topic with people. And even if I did stay on topic I couldn’t remember hardly what was discussed. As of right now my vision is still slightly off, even though my optometrist said I have perfect vision. It’s more so like the room has a hard time catching up with itself when I redirect my focus. But my energy is up and I can only assume my results will keep getting better with each passing day. I hope this helps someone who’s trying to figure out what’s going on with themselves.
  19. Soy destroys my life entirely. I know what has soy and what does not, by touch taste or smell. I can tell if it contains soy in a few seconds. Being soy free is a acquired lifestyle. Everything I eat, I make from scratch, candy, chocolate,cookies, crackers,chips, flavored drinks. I do no t wear deodorant, can't. Cant drink most sodas, most contain soy now. Handshakes are a thing of the past after shaking a hand of a doctor and getting a soy contact, must have used moisturizers (vitamin E) manufactured from soy. All my meds are compounded. My neosporin is one my most expensive drugs, on 7$ tube runs me $80 compounded. My Ibuprofen 200mlg $1 a pill. pain meds a ton more. Going to a store, any store is adventurous. The air fresheners contain soy. makes a bad day for me real quick. I've left stores in a hurry due to the soy contact that overcomes me. Today, I'm looking into air mask so I can go into stores with out risking a soy contact, also finding gloves are hard. most of the easy fit gloves contain a soy powder. I have a facebook page dedicated to being soy free (Soy Lecithin) crossbones for a pic. My life of becoming soy free was a real adventure. I feel great, until I mistakenly come in contact with it. Soy starts With brain Fog, memory loss, then the panic attacks start. get overwhelming fast. Some days I feel trapped in my own body. Outside is land mines just waiting for me to eat, taste,smell or touch. In the past I would have been fine, but all these regulations has made it easy to have soy in everything manufactured. Its the cheapest thing to use, so was asbestos, maybe one day they will realize what soy does to your brain, as its doing to mine 100 fold. Soy is in almost everything, If you cant make it your self than its in it. My start in going soy free, the day I realized it was soy,soy lecithin killing me slowly. I was suicidal, a few days at best before I realized it was soy. There is no info out there about i. If there is, Soy manufactures have snuffed it out.
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