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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. hello Me and my family are brand new dog owners and we have had our dog Lucy for a week today, my mother and brother have celiac so we had to buy gluten free dog food to keep my brother and mother from getting sick, we've been using natural balance gluten free dog food for about a week now and yesturaday my mother informed me that on the back of the bag in the ingredients it said that it had oats in it, which is something that my mother and brother cant have because of the allergy. We are now on the look for a new food that truthfully doesn't contain and gluten or wheat inside, do you have any recommendations? thanks,Alexa
  2. I started having a lot of digestive issues and was tested for many things. I tested negative for celiac disease and positive lactose intolerance, fructose malabsorption, and SIBO.  I was put on a low fodmap diet which excluded gluten. When I began to feel better, I tried adding gluten back in and had digestive symptoms return as well as a red bumps on my face with burning and itching and a strange tightness in my throat. A few weeks ago, I went on a vegan diet in an attempt to heal my gut and stopped eating gluten again as well, of course. Recently, I tried eating meat and discovered it gave me the same reaction; digestive discomfort, rash on my face, and terrible tightness in my throat. Has anyone else had issues with this? If I'm negative for celiac, could I have a wheat allergy? Could I have developed an allergy to animal protein because of damage to my gut? Also? I had been eating gluten free for quite some time when my doctor decided to do the blood test for celiac. She told me I only needed to eat gluten for a couple of days before being tested. I've looked around on here and see that many say you have to be back on gluten for 8-12 weeks!
  3. Hi, I've posted on here before and everyone's input was definitely helpful so I thought I'd do it again.   I'm 22 and I was diagnosed with celiac via an endoscopy biopsy a year ago.  After a couple of months of going gluten free, I was feeling really great and, dare I say, pretty close to being back to "normal."  So from about January to July I was feeling well, other than once or twice when I was accidentally glutened.  However, around July this past summer, I started having stomach problems again, including cramps, diarrhea, bloating and heartburn (which I never had heartburn until I got celiac).   These symptoms are milder than when I had undiagnosed celiac, occurring 1 to 3 times a week, rather than almost every day like before.  But still, they are pretty similar symptoms.  I take immodium and bentyl pretty regularly, maybe overuse of the meds is messing me up. I got another round of labs done about 2 months ago, and everything came back normal.  Thinking it might be another food allergy, I visited an allergist and they did skin tests and did not find anything.  I am not having any histamine reactions, either, but I never really have from the get go.  Of course, the allergist said that he could not really do much testing, otherwise, as blood work would not detect anything food related.  He pretty much advised to take foods out of my diet to see how I'm feeling and try to narrow it down.   As careful as I am, I know there is a risk of cross contamination.  However, I didn't think I was THAT sensitive, as back in the winter I accidentally drank a sip of regular beer thinking it was my own, and felt fine the net day.  So I figured that a teeny tiny amount did not really affect me.  I am slightly frustrated in that I was feeling really well and out of nowhere I started slipping back again.   I have read articles that say that a celiac's stomach is never fully healed, but they always seem gimmicky and promote a really specific diet.  I am skeptical when reading things like, "gluten free diets alone don't work."  But, I can't deny that I am still having issues.   I am definitely willing to alter my diet in terms of eating more clean, but realistically I don't think I could ever go 100% clean.  I eat pretty well already but, like everyone, I enjoy junk food once in a while and love dining out once a month or so.  At this point, the next step is for me to go back to the gastro, but I wanted to see if I was maybe missing something or not thinking about something else that may be causing this.   Basically I am wondering if anyone else has experienced something similar to this and if it was due to diet, or maybe another related gastrointestinal disorder.  I am also not sure about which foods to test out removing from my diet.  I went dairy free for a while and I was still having the same issues.  Has anyone had their sensitivity increase after being gluten free for a few months?  Is there a factor I could be neglecting to take into consideration?  Any input would be greatly appreciated! Thanks.    
  4. Hello all, I just found this forum and I would like to introduce myself. I have recently been to the allergist due to a host of food allergies. Like, this is really not cool, I'm running out of stuff to eat! Over the course of 10 years or so, I've been to the allergist 3 times for skin testing. I've got horrible environmental spring, fall, summer, and even winter 'allergies'. Nothing has come up save for this last time: cat and dog. I can't eat beef, I break out in hives, get miserably itchy, and oh yeah, the wheezing. Yet, I'm not "officially" allergic. Dairy gives me horrendous gastrointestinal issues. Most recently, I damn near had to go to the ER again after a reaction to almonds. The list goes on. My Dx the last time around for the allergies was nonallergic rhinitis. That didn't tell me anything else, really. Since nothing really showed on this round of testing, and a lot of my reactionary symptoms center around the itching, the doc ran a liver panel. I've seen the preliminary results and my AST, ALT, and GGT are elevated. Not astronomically, but outside of the "normal" range. At this point, I'll mention that I've got an aunt with Sjögren's, and an aunt with celiac disease. I've had asthma since I was a teen, and digestive issues in the way of constipation for as long as I can remember. After a little bit of google-fu on this liver function thing, Celiac Disease cannot be ruled out at this point. I looked at the rather extensive list on the U of Chicago website for celiac symptoms, and I'll be damned if just about every single thing that's ever been wrong with me isn't on that list! I feel like I'm going crazy with this right now, as celiac disease and/or Sjögren's are my primary suspicions. My mom's sisters are the aforementioned aunts so of course, my mom thinks I'm crazy for thinking celiac disease, but I really, really don't think it's even a stretch. I think it's a very viable possibility at this point. I've naturally gravitated away from breads, pastas, etc because I'm trying to lose that last 10 or so. I haven't gone gluten-free, but hadn't really put two and two together with the malaise, fatigue, nausea until the past few days. I'll be damned, I feel like THIS COULD REALLY BE IT!!! Brain fog, bloating, headache, after eating gluten - crackers, wheat in my tofu product, bread. Oh, the stomachache too. Keep in mind, while I'm glad that my aunt has many more food options nowadays, I've been wary of the gluten-free fad thing. For people that don't actually NEED to go gluten-free, it's unnecessary and ridiculous. Now that I'm looking at this possibility, there's a chance that I may be eating some crow with gluten free fixings. Ha. While I wait to discuss this further with the doc, I'll be here, probably asking questions as I go. I'm not completely crazy for making this leap, am I?
  5. Hi guys, so I don't know about anyone else, but I have a lot of problems with the brand Kinnikinnick. I've never heard of other people having a problem with it, but for whatever reason, I can't eat it-which sucks because they're the only brand i know that makes graham crackers) So, I've tried Kinnikinnick on five seperate occasions, all different products. I've had their bread, their cinnamon sugar donuts, animal crackers, graham crackers and their vanilla cake. Each time I tried the product (whether to see if i might still have the same reaction or I wasn't paying enough attention to the box to tell it was the same brand) I would get a foggy mind, upset stomach, bone cramping, my heart would race, i felt terrible and my panic attacks sparked like mad, causing me to go into a frantic state of feeling sick and completely emotional and upset. It is literally one of the worst feelings ever. I don't have any other intolerances other than lactose and it has never given me a reaction like what I just described. So, i was wondering if anyone else had similar experiences with the brand or if there's something else I should be looking out for. 
  6. Let me introduce myself. You can call me MK. I was diagnosed with Type 1 Diabetes about 6 years ago. I found the complete life change to be a major challenge, as would anyone. I admit, I never really fully was able to, leading to many health issues and many stays in the hospital with diabetic ketoacidosis. Then, to make matters even worse, about a year and a half ago, I was tested and it was confirmed that I have Celiac’s Disease. I have yet to eliminate gluten from my diet. I have made many attempts to do it, but I fall off the band wagon every time. Now to top things off. I lost my job over the summer and found myself living out of my car. I managed to find a part time job, but that barely pays for the car itself. I have to buy food on the fly, since there is nowhere to store food and nowhere to even cook it. This, as you can imagine, limits my options to the point where I don’t even know what to do. I eat anything I can, whenever it is possible. If I eat over another person’s house, I take what I can get. It is wreaking havoc on my intestines and my digestive tract. It has become a nightmare. Recently, my mother has been letting me stay on her couch, which opens up some possibilities for me to finally start getting myself straight. Although she buys a lot of bread and gluten full products, I have been talking to her about trying to work with me and buy some better options for me. That can get expensive and neither she nor I can truly afford to do it. Everything I have seen for sale that is gluten free, such as bread, pasta, etc., is way out of our very limited budget. I need to fix this, though. I need to get healthy or I am afraid I will die. Not even exaggerating. I need some support and didn’t know where else to look. I found this place and was hoping I could maybe find some help and advice. Or even just an ear (or a set of eyes?) to turn to. Thanks in advance. MK
  7. Having multiple food sensitivities can be frustrating (and downright painful), but finally identifying one that has been creating havoc in your life is like winning back some of your life. My biggest battle won was discovering the link between my bi-weekly migraines (not good when you are trying to work as a surgeon) and corn-starch (which, as most here know, is in almost everything, including most gluten-free foods). In my case, it was also in the powered gloves and toothpaste I used, plus the medication I took for the migraines! Corn starch also triggered Sjogren's Syndrome (an immune-mediated situation in which I have no tear production, no nasal mucus and no saliva production - painful!!)  Anyone with chronic dry eye, dry mouth or dry nostrils should research this. Sjogrens, for me, is a mixed blessing/curse. Because it starts very, very quickly when I ingest or get exposed to an intolerable ingredient, I have learned that I can't tolerate some pretty weird things that I wouldn't have suspected would cause trouble. Short and sweet, the following triggers my migraines and/or Sjogren's Syndrome: corn starch, wheat/barley gluten, apples*, shrimp, cauliflower*, grapes*, plus exposure to artificial fragrances, cedar or pine chips, cat litter, molds & mildews, dog fennel and dust mites. (*even home-grown organic) Problematic, but dose-dependent: rice, raisins, cats. A godsend for me, to deal with fibromyalgia and neck/torso pain secondary to a very bad horseback-riding accident, is dry-needling done by my physical therapist. That and deep muscle work have given me a huge chunk of my life back. For those of you with similar corn-starch sensitivities, BC Powders (aspirin and caffeine) contain no corn starch, and they work well. My best to all.  
  8. Steak And Shake?

    Can anyone provide any thoughts on whether Steak and Shake's gluten free menu is something that is a wise choice?   I am on a cross-country roadtrip; I am non-Celiac gluten insensitive, and am pretty sensitive.  I am worried about error rate and cross-contamination, but can't find many reviews online of the gluten free menu.  It would be nice to add Steak and Shake to the list of emergency options when our Triumph Dining suggestions or other options fall through or when we are in areas that don't have many choices.   Thanks much!
  9. With the holidays approaching, I feel some sadness about being deprived of the holiday foods I used to enjoy.  Then I remember Sammy (not his real name).  He was a four-year old patient of mine when I was working as a pediatric hospital pharmacist.  Sammy used to visit me every day in my 3rd floor pharmacy satellite.  He would come strolling by with his IV pole and his nurse.  They would stand in my doorway and dance to the music I played in my satellite.  His nurse told me it made his day.  I know it made mine.  I so looked forward to seeing Sammy.  He was in the hospital a lot.  Sammy never ate any food.  Never.  All his nutrition came from IV admixtures.  He never smelled, or tasted, or enjoyed any food.  Not any Halloween candy, no Thanksgiving pie, no Christmas cookies, no Birthday cake.  Ever.  Sammy almost made it to adolescence.   Now when I feel deprived, I remember  Sammy and my sadness or even anger turns to gratitude for all the pleasures I do enjoy.  Maybe it can do the same for you.
  10. Do you watch for any other problematic ingredients when cooking gluten-free aside from gluten? A recent post on Paleoandjuliet dot com talked about the magazine, Gluten-Free Living and recipes that included food coloring. Wondering whether you're strictly gluten-free, but will eat other unhealthy ingredients, or you're gluten-free and try to eliminate all unhealthy choices?
  11. My doctor gave me the clinical diagnosis two days ago that I have celiac disease.  She based this on my symptoms combined with a blood test for the genetic marker coming back positive.  I think the test that came back positive was the HLA-DQ8 test.   I asked her to order a biopsy which she has agreed to do.   She feels the biopsy is unnecessary because she is certain I have celiac disease based on the tests and my symptoms.   She also said I have Candidiasis and Leaky Gut Syndrome.   So, I am going to start a course of Nystatin.  Can you tell me if I should consider myself as indeed having the Celiac Disease?  Am I being weirdly insistent to want the biopsy done? Also, can I touch wheat- i.e.make a sandwich for my husband if I wash my hands after?  My doctor filled me with anxiety about having celiac disease saying I can't even use lotions or hair dyes unless they are gluten free.  She said that even foods that say gluten free are not always really gluten free. She said they had to say "celiac free" which is something I have yet to see on any label.  Please give me any information you think would help me as I navigate this new diagnosis.   Thank you.  ​
  12. Hey everybody, so I have a friend (female, 20 years old) who has NOT been diagnosed with celiac and does not think she is allergic to wheat but is having severe tummy issues. symptoms and factors: shooting stomach pain immediately after eating anything nausea and pain for almost 40 minutes after eating unintentional weight loss (30 pounds in 1 month) high stress environment on medicine from doctor (to coat her stomach throughout the day) long term, 8 months... Whenever she eats anything, for almost 8 months now, she experiences nauseating shooting pains that go through her stomach immediately whenever she eats anything. Her doctor put her on a medicine that coats her stomach throughout the day, so she takes it every morning before she eats, and it is the only way she is currenty able to eat. Since this began she unintentionally lost 30 pounds in a month and continues to loose weight. She is in college and taking many hard classes so stress could be a factor. She has not had a scope to look at her stomach to check for ulcers because she can't afford it right now. I got her to start trying kefir and see if that helps. Does anyone have any ideas or suggestions!? It would be super appreciated, any imput is really awesome! Thank you!!!!
  13. Is there anyone else out there that has been diagnosed with Celiac (by surprise) that had no symptoms?  To me it makes it harder to identify if I have accidentally ingested gluten.  I went to a 4th of July party and almost everything prepared was gluten free. (good friends of mine!)  I just don't know if anything was cross contaminated, etc......
  14. Confused- Help

    I have been reading through a lot of these posts yesterday and today.   I have very few symptoms, I don't get extremely ill if I accidentally eat something with gluten in it so it is hard for me to know for sure if a restaurant, etc..... didn't prepare the food properly, therefore I am not sure if I am receiving additional damage to my intestines.  So on with my question.  My husband drinks beer (not gluten free) and yes I kiss him.  Some have posted that it's not a big deal and some have said it is.... Which is it?  I am trying to be totally gluten free (it's only been 2 months since diagnosis) so with conflicting posts I am just wondering......
  15. I was in the grocery store today when I noticed that several Lean Cuisine entrees say gluten free on them (the one I remember is fiesta grilled chicken). I have not noticed this before. Wondering if anybody has tried the Lean Cuisines and whether they were something I should try. I live in a small town and have to drive to get to a store that has gluten free food, so it is nice to know that there may finally be something I can get here for nights I just want to do something quick. Thanks for any insight!   Update: I am sure it is Lean Cuisine. Here is a pic.
  16. The picture of the couscous is odd. I think she is supposed to be sorting food and removing it. Otherwise, this is a new food pantry here in the KC area. I have heard that they already have a big demand.
  17. So Nervous

    I am super happy I'm celebrating my 2 yrs anniversary of being where I work, so they are taking me to lunch. This would be a yay moment but I have celiac disease which we all know makes going out to celebrate a time of anxiety and nervousness. I am trying to find out where the lunch will be as its for a group of anniversaries so I can call ahead and ask questions to see if it's even worth my while to go. Do these call ahead to notify things really help prevent one from being possibly glutend or will I be wasting my breath and time on the phone.
  18. Hello, all!  I am proudly owned by two cats that have been kind enough to change their diet when I was forced to go gluten free.  The problem is finding cat food that is gluten free without the company slipping in Barley Grass or Wheat Grass and acting like it is completely safe.     Right now my kitties are on a combination of brands that label their food as "Grain Free", with Blue Wilderness/Buffalo being the major brand.  I recently got them a bag of Red Meat Feast but my skin is getting irritated and my stomach is getting that gluteny ache.  Has anyone had issues with the dry food in the last six to twelve months?  The last post I found here when trying the keyword search was back in 2009, and it was dog food.  The Blue company has made some changes, and the wet food has been just fine for us, however we do need some nice crunchy food that won't get me contaminated.   Thank you for any suggestions.  Ive been gluten-free since 2012 but things can still be challenging.
  19. New Idea

    EDIT: Is there a "wrap text" option for the text to eliminate the now-present horizontal scroll of this entry? Today I was thinking about my back pain during when waking up in the mornings and decided to do some research in the internet. I bumped into diseases like scoliosis, lordosis and kyphosis. I decided to take a look in the mirror and saw that I my back is actually bent, my head hanging far in front of my torso - a clear sign of kyphosis. Now it also struck me that my mother also has some kind of congetial spine curvature (she even had to too some stretching exercices in her youth because of that), and she also like me can only sleep on her side (not on back or on front). And that my karate couch (who's a medical student) noticed during the stretching exercises that my back bends "irregularly". Image of kyphosis: [url=",d.d2s&psig=AFQjCNEO9me8IrQj81LWGL_2YiwRt0T1zw&ust=1416947794510696"],d.d2s&psig=AFQjCNEO9me8IrQj81LWGL_2YiwRt0T1zw&ust=1416947794510696[/url] Okay, I have a kyphosis. But can it somehow be connected to my unsolved digestive problem? What I know about my digestion:[list=1] [*]Problems started in the summer of 2008 (age 14), right after my big growth spurt, gradually worsening, culminating in 2010. [*]Symptoms: constant diarrhea, severe brain fog, muscle weakness and constant fatigue [*]In 2010 celiac disease was excluded (blood test negative), although I'm extremely sensitive to gluten (few grains of wheat can cause 10 days of fatigue, especially at mealtimes). [*]But still, another antibody tests for food intolerances was positive (for wheat, rye, yeast...some vegetables). From my trial-and-error diet I quickly found out that these results were true. [*]4 year diet on allowed foods has revealed that I'm mildly intolerant to everything - there is no single food that I could eat as much as I want with returning of symptoms (brain fog, exhaustion, diarrhea). E.g. allowed quantity for certain rice species is 200 grams and rotation period ca 20 days. For some rice species it's much less (e.g. 30g with 20d rotation). And some brain fog is present even when I follow the rotation. [/list] The fifth point and my special rotation is what I've never found in the internet before. I know immune system must be involved here, because it's the only thing that explains "the memory" - something in my body remembers how much I've eaten different foods. And this memory has an IQ of 160 - it knows exactly how much during past 20 days I've eaten this carnarroli rice grown in Italia and how much basmati rice grown in India. It even differenciates between carnarroli rice grown in different parts of Italia (different products by different companies). The only thing that remains a mystery is the type of immune system: it can't be the allergic part (IgE), because that one is not so specific (it only differentiates between food families, that's where the common 4-day rotation diet comes from) and I don't have a "fast-reacting life threatening allergic reaction" to anything, nor have ever had a skin rash of any kind. Perhaps then the widely debated and contoversial IgG?, I've also eliminated other explanations like[list=1] [*]Gradually running out of specific enzymes for different species of rice over time that need 20 days to be reproduced by pancreas [color=#ff0000][i]Counterargument[/i]:[/color] there are very few enzymes responsible for digestion, far not enough to "have an enzyme for each species", [there are just general enzyme labels like protease, amylase and they have don't have many subenzymes]) [*]Specific species of harmful candida/bacteria thrive on specific species of rice, consuming too much of that product will cause this candida/bacteria species to multiply and cause my symptoms [color=#ff0000][i]Counterargument[/i]:[/color] there is just candida albicans that everyone is talking about, that can overgrow, not thousands of species for covering each product of food. I also took a month of anticandida herbs + Itraconazol, nothing changed. Also, I become intolerant to probiotics over time - it's not likely that there are bacteria/candida who eat other bacteria. [/list] So, it's my immune system. Immune system's memory cells remember the half-digested particles of carnarolli rice, and the more I eat it the more the immune system detects these potenitally harmful invader particles and the more it tries to fight back by releasing chemicals that damage my nerve cells and muscle cells (causing brain fog and muscle fatigue respectively). The involvment of the immune system means that undigested food particles have to be in my blood stream (immune system doesn't reach to the bowel), thus my bowel has to be leaking every food I eat (I become intolerant to everything). Leaky gut syndrome. Now, I've tried to heal my leaky gut with treatments like SCDiet and taking supplements like L-Glutamine (15g per day), quercetine (2x300mg), deglycorized licorice root, fish oil. SCDiet doesn't work (I'm too intolerant to nuts, homemade yoghurt, lentils, veggies, fish and the food that is left [meat, fruits] with its rotation periods isn't enough to feed me). No notable improvement on the supplements (although I've taken them only 3 weeks, they could still have an effect in the future). Actually, all I've achieved with my 4 year diet is that I know the rotation periods of foods and selected 40 products of rice, buckwheat, millet (out of 150, wheew, that was an arduous 2 year project!) that have long rotation and cause FEW (but still some) symptoms AND strictly following these periods hasn't prolonged them even a bit. Meaning the [b]intolerances haven't been healing at all[/b] and that with all my effort the leaky gut hasn't improved even a bit. Isn't this odd? Now, today an idea stroke me. I read that sometimes kyphosis can pincing or stretching of the spinal nerves.[code=auto:0] Kyphosis: While most cases of kyphosis are mild and only require routine monitoring, serious cases can be debilitating. High degrees of kyphosis can cause severe pain and discomfort, breathing and digestion difficulties.[/code] I am quite sure that I have some kind of nerve damage, because[list=1] [*]I have very little or no knee jerk reflex. [*]I'm very tolerable to pain. That was noticed for example by a masseur who struck my toes with needles. [*]My arms and legs fall asleep often (although this is pretty common symptom). [/list] So, here is my new theory: Kyphosis -> spinal nerve pinching/stretching -> impaired nerve impulses. Now what would be unique in my is that my kyphosis isn't very severe (otherwise my doctors would have noticed it a long time ago) AND incidently the impaired nerves are the ones that control the digestion part.[code=auto:0] Nerve Regulators: Two types of nerves help to control the action of the digestive system. Extrinsic (outside) nerves come to the digestive organs from the unconscious part of the brain or from the spinal cord . They release a chemical called acetylcholine and another called adrenaline. Acetylcholine causes the muscle of the digestive organs to squeeze with more force and increase the "push" of food and juice through the digestive tract. Acetylcholine also causes the stomach and pancreas to produce more digestive juice. Adrenaline relaxes the muscle of the stomach and intestine and decreases the flow of blood to these organs. Even more important, though, are the intrinsic (inside) nerves, which make up a very dense network embedded in the walls of the esophagus, stomach, small intestine, and colon. The intrinsic nerves are triggered to act when the walls of the hollow organs are stretched by food. They release many different substances that speed up or delay the movement of food and the production of juices by the digestive organs.[/code] If the problem is in these nerves, then from the quote above we know that it can cause lack of digestive juice with all its enzymes can cause all my symptoms: lack of enzymes->undigested food. Undigested food causes all other symptoms like candida overgrowth, and some of this food surely gets into bloodstream (even if there aren't any holes in my gut (typical to "leaky gut" that could be present in case of celiac disease)). Stuff like veggies and nuts cause diarrhea because I just lack the enzymes to digest its fiber and no wonder gluten is the worst thing I can eat, because it's one of the most difficulty digestable proteins. The theory isn't perfect. I have taken a lot of different enzyme supplements and they had absolutely no effect. So there maybe other factors that I can't perceive. Or also my kyphosis->indigestion theory could be entirely wrong (maybe despite the all I am celiac and my blood test was false negative, despite the kyphosis being geneological I actually have so severe vitamin D deficiency caused by celiac that accounted for the formation of crooked spine,although I have no other obvious malnutrition symptoms, and my celiac case is just "special" with my leaky gut not healing and with all its rotations; doesn't make sense, does it?). But hey, what are you gonna do if whatever you do your symptoms still persist and make your life intolerable. I'm definitely going to present my theory to my GP and hope that she will at least consider my claims, and besides recommending me exercises to straighten my back she would also send me to some cool nerve tests (EMG, NCV,SSEP) that will determine if my kyphosis has anything to do with my nerves and digestive problems. EDIT (Nov 26): The theory above is wrong.[list=1] [*]My kyphosis is really small. And I found out that the text I quoted saying [i]"high degrees kyphosis can cause...,..., digestion difficulties"[/i] obviously meant that they have difficulty swollowing the food or acid reflux coming up the throat due to the curvature upper body. [*]Pinched nerve usually also causes pain/numbness. So my pinched nerve causing a little numbness in the rest of my body but "big numbness digestive system" is just delusional. Also, I read that [i]"enteric nervous system can and does operate independently of the brain and the spinal cord"[/i], so this makes my theory pointless. [/list] Also, my mother actually had scoliosis, thus this is not heredetary. I think I have celiac+Hashimoto, I'm going to talk about this in my next post.
  20. Does anyone know if the 'standard' way of preparing these might be gluten-free?  I went with my mother to a local take out place near her house yesterday, and she ordered these (I had a soda) and they honestly looked like the best spare ribs I've ever seen. (I used to love spare ribs when I was younger).   I tried to ask the clerk what was in the sauce - she said no soy sauce but she wasn't sure what else.  I could see where they were preparing them and it looked like a dedicated space.  I was so tempted to try them, but I couldn't.  These looked amazing.   Just curious if anyone knows if the usual way of preparing spare ribs is gluten free.  Thanks.
  21. As the end of October approaches, my garden is finally full of those long-awaited tomatoes. Time to make salsa! Let's share our salsa recipes, shall we?      Ingredients: 4-5 mangoes (firm, not quite ripe) 4 Serrano peppers (more or less depending on how spicy you want it 1 Jalapeno 10 cloves of garlic 6-7 firm avocados 10 firm roma tomatoes  1 cup chopped cilantro  2 limes squeezed throughout 1 tsp of olive oil 1/2 of a red onion Dash of salt   Chop mangoes up first in medium sized chunks, then add the diced red onion and squeeze half a lime over it. Let this marinate for an hour.  Dice the tomatoes, add chopped cilantro/peppers/garlic to the tomatoes.  Squeeze half of lime over and let marinate for an hour as well.  Halve the avocados right before you are ready to serve it, and cut them up in cubes.  Pour the olive oil and squeeze a half of lime over avocados before adding the other two bowls.  Finally combine three bowls, lightly mix it all together and squeeze another half of lime over entire dish. Lastly add salt as needed.    I'm curious to see other folks' recipes. Feel free to recommend your favorite gluten-free chips as well!        
  22. They say raw foods are perfectly healthy but I guess that's not true for some celiacs. First time I went gluten-free I felt great, but as my gut was still not fully recovered in the second or third month I started reacting seriously to raw food like pepper and the eggs in mayonaise. I didn't react to eggs in baked gluten-free cakes, nor to cooked peppers though. So I guess some gluten-free people should avoid some raw foods for a while as they may irritate the gut or enter the blood stream. Especially if you don't chew your food enough like me. Anyone agree?
  23. Hello, everybody! I'd like to share with you my interesting case.   My problems started 2008, soon after growth spurt. Most significant symptoms: Severe brain fog. Low energetic level. Constant diarrhea. I noticed that the symptoms always worsened after eating (especially at lunch). Among another tests I was also taken blood test for celiac, but it came back negative. In 2010 finally a diagnosis was given: multiple food intolerances. The worst of them were foods containing gluten (now I know I am extremely sensitive to gluten). After that diagnosis I have been on gluten free and low-histamine diet + a lot of other foods excluded. My condition has undescribably improved since then.     Most important experiments since 2010: Exclusion of foods containing gluten - bowel movement more solid, increase: energetic levels, decrease: brain fog Excl. of histamine containing/releasing foods - incr: en. level; decr: brain fog Excl. of most vegetables - bowel movement even more solid Excl. of gluten cross-contaminated foods - significant incr: en. levels; decr: brain brog Rotation diet (4 days) - incr: en. level; decr: brain fog Product Rotation Diet - incr: en. level; decr: brain fog Physical exercise - incr: en. level; decr: brain fog Enzymes - no effect Probiotics   *taken in powder form only - no effect   *powder cultivated in yoghurt - some incr: en. level; decr: brain fog What I eat now are gluten-free grains (rice, millet, buckwheat, oat, lentilles), potatoes, variety of fruits/berries, some milk products, sometimes meat, some vegetables (pumpkin, tomato). I stricktly follow my Product Rotaion Diet. I also do physical exercise each day to help my body digest.   Although my symptoms have decreased very-very much, I have still not yet reached to the level I was before 2008. After each mealtime I have some symptoms (some brain fog and low en. level), starting 15 to 30 minutes after eating and lasting for 2 hours. This is likely because of leaky gut (although I'm not celiac). If I want to be completely symptom free I somehow have to achieve food induced elevated heart rate (read about it below at point 7), this will give me 24-hour symptom free day. Notes: The most interesting fact about my disease, I call it Product Rotation: Every food (with no exceptions!) that I eat has certain allowed quantity. If I eat more than allowed, I get significant brain fog and low en. level. Then I have to wait some time before I can eat the same food again. This may seem similar to "rotation diet" which is applied in case of food allergies. Certain food family is eaten one day and then again after passing of 4 days. But I don't have any allergies. And the thing about food families also doesn't apply to me: I could eat rice only, each meal a different product of rice (could be even the same sort, just needs to be grown in different areas; although it is hard to determine whether two products labeled as the same sort actually are the same, they may actually be different sub-species). I eat one product maximum 200 grams (without starting of more disturbing symptoms) and then have to wait ca 20 days before I can eat exactly the same product again 200 grams. The same applies to every food product: buckwheat, oat, meat, milk, fruits etc. For example allowed meat quantity is 60 grams and 10 days of rotation period, but during the same day I can eat 60g of pig meat, then 60g of lamb meat, and then 60g of pig meat from different company. In case of gluten the allowed quantity is almost non-existing. My guess is that this is because of food intolerance - two different products have slightly different nutritional consistency, and when eating different nutrients my already meager digestive enzyme supply for certain nutrient isn't exhausted. Rotation period allows this supply to slowly regenerate.   3. Intolerant to most of vegetables. E.g. small amount of raw cabbage causes severe diarrhea. 4. Cross contamination - few grains of wheat can cause a week of brain fog and low en. level. 7. Physical exercise - elevated heart rate pumps toxins out of my body. The effect lasts from couple of hours to 24 hours. 24-hours when food induced elevated heart rate - this happens when my pulse hits up again after having first meal after sport and stays at 90 beats per minute for an hour. I am not always able to achieve this condition. Similar effect can be caused due to infection (fever causes constant elevated heart rate). 8. Enzymes - I've tried Veganzyme, Gluten Ease, Celiact, and some more 9. Probiotics taken during mealtime = low en. level + brain fog. This is also when I drink yoghurt (cultivated probiotics) with food. Probiotics have to be taken separately. I think this is because histamine intolerance - live cultures mixed with food cause its fermentation, fermented food contains histamine. I've also tried some special diets (pH diet, Special Carbohydrate Diet), but they had no effect.   I hope my experiments will have some use for other people too who have similar condition:-) If you have noticed similar effects that I describe here, then please share your thoughts. Or I you have any advice to give me, then you'd be more than welcome.
  24. My husband and son are travelling soon and have a layover there.  Does anyone know if Uno's in O'Hare has gluten-free pizza?  Any other options for a hungry young man?
  25. Please help me out. Hello, I am a 17 year old boy in CA. I have recently been made aware that i 90% have celiac. And after research, it is almost certain that I have the disease. I am scheduled for an endoscopy within the next 2 months or so. I am fairly healthy with eating and exercise as I started this lifestyle over a year ago. I lift weights 6/7 days a week. And do some form of cardio 6/7 as well. I have become overly obsessed with exercise as I get anxiety and depression if I miss a workout. I have lost 60 pounds over the course of a year, (whether or not celiac helped.) Although over the past few months I have been feeling fatigued and brain foggy, I am tired, and the only relief is through vigorous exercise. I work so hard and see little to no results so far. And over the course of a few months I have been getting worse at my physical activity. I went from doing 30+ pull ups to struggling to do 10. People tell me to take more rest days, even a week of to repair my muscles, but whenever I do, I lose all muscle tone and feel terrible. I get severely depressed. I am a little underweight and want to get bigger. So I eat more and rest more to rebuild and repair my muscles. And when I do, I feel bloated, sick, and I only gain dead weight to my stomach and lose muscle. It's terrible. I want to start gluten free now because of the wonderful stories of getting stronger and feeling clearer but I need to wait for the endoscopy. I hear problems of people who needed to stop working out for their body to heal (the villi, neuro, and muscular systems), and they eventually lose their motivation to work out. The twisted part in me is that I want to sort of keep this terrible feeling so I stay motivated to work out. Because my motivation is everything. I am severely lost, and depressed. My goal in life was to join the military, yet celiac shuts the door on those who want to join the armed forces. So my question is.. What do you suppose will change for me after the gluten-free diet? Will I feel better? Will I get stronger? Will my performance be affected? Will the depression stop? What do I do if my endoscopy result come back negative? Thank you, this is a huge problem for me.