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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. I'm sure this has been covered here but I'm not debating the theory... more just looking for your personal experiences !  I started eating dairy again recently and am thrilled that yoghurt and probably cheese have no ill effect. I even got up the guts (ha) to start drinking coffee at the local coffee shop...WITH MILK. As in... not even fermented. JUST MILK. At first I had Lacteese to cover my bases/break associations... and after a few days I didn't take it and... STILL NOTHING. Success! Repeated every day for about 6 days. Lactose and I are buds. But. Yesterday I got coffee from somewhere else and had the same old dairy symptoms (I think).... and it could be due to the heat wave that hatched here or hormones (that time of the month) so I'm not jumping to conclusions but I did just find out upon returning to local cafe that they use Jersey milk... Seems unlikely to be the cause though because I don't think cheese was bad and that's still got protein in it... unlike icecream which also had a1 milk and was ok... Are you a celiac who struggles with dairy but tolerates a2? Or?
  2. Hi there, Hoping to get some thoughts from others out there who are familiar with the range of symptoms and issues associated with celiac disease (or gluten intolerance). My story is sad and complicated, but basically starts with the fact that I'm 26 and have had 5 early miscarriages in the past year. Testing was inconclusive, until finally my RE found that I have an autoimmune thyroid condition (anti-thyroid antibodies/hashimotos). He started me on a low dose of synthroid to boost me up (even though my current TSH is considered "normal". Anyways, in reading more about autoimmune thyroid conditions, I found out that they are highly related to celiac disease and that they can also respond to a gluten-free diet. So I decided to go gluten-free because, well, at this point I'm willing to try anything to be able to have a healthy baby. After doing all this reading, I've done done more reflecting and an convinced I have done kind of gluten intolerance issue. I did blood testing a couple of days after first deciding to try gluten-free, and the clinic said that should still be Ok for identifying the antibodies/tissue transglutaminase). I'll find out in January. Anyway, my symptoms include: - recurrent pregnancy loss (infertility) - thyroid autoimmunity - skin rashes (Not DH), possibly eczema or chronic hives - dairy intolerance developed in the last few years (this has *completely* improved since going gluten-free 2 weeks ago) - stomach gurgling, gas and bloating (also stopped on going gluten-free) - chronically loose, smelly stool (sorry TMI! But, my BMs have been completely normal on going gluten-free!) - grandmother recently told me my uncle "was celiac as a child but grew out if it" (right. ) It seems fairly compelling to ne, especially given my digestive improvements. I'm even thinking that if the blood test comes back negative, I might just stay gluten-free to see how it goes (with pregnancy, thyroid condition, digestive health, etc). What do you think? Thoughts, insights, or advice greatly appreciated! Thanks
  3. There was a documentary on netflix I watch I believe it was called "corn nation" something about corn. The guy showed how they have added the wheat gean to the corn as a way to make bugs not want to eat the corn.. He goes on to show an underground bunker where government has 1000's of varieties of corn stored in jars.. He asked the one in charge she said they new they (GMO companies) were modifying the gean or gen ( can't spell today) and they were protecting the original in case it made it uneatable and might pollinate other crops killing off corn.. He then went on talking about how even corn is feed to cattle because so many farmers started growing it.. That explains the dairy reactions too
  4. If I react subtly to trace amounts of dairy, does that mean I'd definitely have a bigger reaction to larger amounts of dairy? Or could I end up having the same subtle reaction regardless of the amount?
  5. Hey all, I've been diagnosed celiac for about a year, and until recently, was living fine with the gluten-free diet. About a month ago, I started noticing stomach aches after drinking breakfast shakes, and eating cheese. I found out that dairy intolerance often comes with celiac, which would have been fine as well, except around the same time I started having stomach/abdominal pain after eating almost anything. It started with gluten-free/DF homemade chili, then gluten-free chicken fried rice, and before I knew it I had to cut almost everything out of my diet. For the last 3-4 weeks I have been eating exclusively raw fruits/vegetables and poached chicken/turkey breast. Literally everything else that I've tried to reintroduce has given me abdominal pain. This includes all types of nuts, white rice, eggs, cod, salmon, peanut butter, even oven-roasted vegetables. I usually start feeling discomfort/tightness in my stomach around 30 seconds to a minute after eating any of these things. Despite eating 2 avocados and 1-2 chicken breasts a day, I'm not getting enough fat in my diet, and have lost about 15 pounds (down to around 120 lbs. as a 6', 21 year-old male). I recently spoke with my dietician who recommended that I start trying a low FODMAP elimination diet. Thankfully, most of the things I had to eliminate were things I already couldn't eat anyways. However, this limits my diet even further, and I can't even tolerate most of the things that are supposed to be okay to eat on this diet. I have noticed no improvement since starting this diet, which leads me to believe that there is something else going on. I have been taking multi-vitamins and probiotics daily for about three weeks but am currently losing hope, as none of my doctors/specialists have been able to give me a solid answer. The doctors that I have seen don't accept leaky guy as a legitimate medical condition and have sent me to a few different specialists instead, seeming generally clueless themselves. I am having a consultation for a colonoscopy soon, as well as for a cystoscopy (I apparently also have some sort of kidney/bladder blockage, maybe a stone. We're not sure if it's related to any of this yet). I have seen a naturopath and a dietician, but neither of what they've told me seem to be doing anything to solve the problem. I feel worse every day, low energy, irritability and a general feeling of tiredness are pretty much constant and it's becoming difficult to deal with school as well as other commitments. Does anyone have any insight as to what could be going on with my body, or at least some general advice on what to do in my situation? Let me know if you'd like any more information. Thanks for reading, and for any input you may have. Matt  
  6. I am sure this has been asked several times before, but does anyone recommend taking a probiotic?  I was thinking of trying one but need gluten, soy and dairy free.  Any thoughts on this and recommendations?  Thank you!
  7. so, i'm moseying along in the kroger, always snooping in the 'freak' frozen section (lolz) and what do i see??   gluten-free frozen pie shells!!  just in time for thanksgiving!!  W00T!  they are 'wholly wholesome' brand and come 2 to a package (i guess you can 'unmold' the 2nd one to make a 2 crust pie)  but perfect for punkin pie.  and they are basically allergy free  <even corn!)  so, to make the holidays a little less hectic, hopefully they don't taste like cardboard!  (shoot, they're even kosher, wow - they've got all their bases covered lolz)   i'm gonna give them a try sometime this week
  8. Here is A Science to the fact Soy can be contained in eggs and chickens and any animal as far as I'm concerned.     I had a reaction to my eggs, so I looked it up, and this is what I found after many days searching. For the people that need to see the facts.
  9. I was a vegan before I gave up gluten, and it is proving to be very difficult to be both gluten free and vegan. I'm considering reintroducing eggs, but I've read that people who are super-sensitive like me can sometimes react to eggs if the hens were fed gluten. Have any of you found that there some truth to this? If so, do any of you know of any brands that feed their egg-layng hens a gluten-free vegetarian diet?
  10. Hi, I have recently been having stomachaches after eating almost everything. I was wondering what was wrong so I went to the doctor today. I gave my doctor a food diary and she seemed to think it may be dairy and she said possibly Celiac but probably not because I had no symptoms after eating plain white rice. According to her white rice has gluten and that Is not true,right. Anyways so she ordered an x ray for me to check for constipation. I thought this was crazy because I have never had trouble "going". Surprisingly the x-Ray showed that there was a little backup. I know that constipation can also be a symptom of celiac so that also leads me to think its celiac. Anyways the doctor also ordered blood tests for celiac among many other things and I was told to stay off dairy until I get my test results. I think my issues with dairy may have to do with the damage celiac has done to my intestines. Anyways I'm jut looking for what you guys think of all this. Thanks, Stephanie
  11. I have been gluten free for about 6 weeks and I have noticed an improvement in my health (less bloating, less foggy, more energy) but am still having some issues.  A brief history: I was vegan for 7 years until last July when due to loosing too much weight and the fact that I was finding eating anything difficult I went back to eating some dairy fat free cottage cheese and fat free yogurt. I have mild Gastroparesis and a esophageal motility disorder. My thinking is maybe the dairy is causing some issues.  I still get some cramping and bloating after eating and wondered how commonly these 2 issues gluten intolerance and dairy intolerance are linked. I also seem to have a problem with corn and eggs and so already avoid those.
  12. Hello Everyone!   So I am new too all of this and I'm not really sure where to start, so I'll give you a little background on me and how I got here and hopefully you kind people can give me suggestions!    I am 32 years old and for YEARS, I mean YEARS (probably 20) I have been dealing with the most frustrating tummy issues. I would throw up nearly every day for what I thought was no reason, my weight fluctuated by the 10's on a monthly basis, severe cramps, bloating, bubbles... etc etc.   I went to every doctor imaginable and spent thousands of dollars on tests, bloodwork, special foods, and procedures with everthing coming back 'normal' and 'within range.' It got to the point where my co-workers dubbed my illnesses as amyfowleritis. I felt for sure that I was dying some slow, painful death and some scientist would name my unknown issues after me and I would be in medical journals. Okay, so that is a bit of an exaggeration, but its how I honestly felt for a long, long time.   On my birthday last month I decided I wanted shrimp and grits, one of God's finer creations, and I broke out in pretty impressive hives that three benadryl could not tackle and I was sent to the allergist to get an epipen. Only there, at the glorious allergist, did I learn that I not only had a shellfish allergy, but I also have a gluten and dairy intolerance, peanut allergy, and I should also be avoiding other nuts, citrus, mint, strawberries, chocolate, pork, and all salt-water fish.   Needless to say, a giant light bulb went off over my head and I had a coming to Jesus moment once I realized that yes, this is why I feel like crap all the time. All of my favorite foods are torturing me and my GI system. I really wanted to go back and yell at all of the other doctors I have had the pleasure of knowing over the years for chaulking it up to severe IBS, but I decided to take the higher road and sulk in my own misery for the time being.   My allergist appointment happened earlier this week (Monday, actually) and I am still in a shock type state of mind and I really do not have a clue as to where to begin. I am asking you, fellow gluten (and maybe other allergies like mine) suffers; where did you begin? Did you stop everything cold turkey like a bad drug? Did you start to ween yourself off the foods you cannot eat? How did you change your life and all of the eating habits you have had so long? What was the best piece of advice you received?   As of right this second, I have a bag of gluten free pasta and veggies I can eat in my home. I cant really afford to replace everything in my pantry and fridge all at once, but I also dont want to starve myself. Anything, everything, whatever you have in your lovely brain of yours that you can share with me while I start this lifestyle change, I would truly and forever appreciate.   I apologize for my novel, but I hope you made it through the end... or at least skimmed over it enough to pick up my cry for help. Thanks!!!!!
  13. Feeling a little overwhelmed and sorry for myself today. For the past 3 years I've been learning about my gluten intolerance.  I am intolerant of gluten, soy, dairy,  corn (and corn products such as vinegar and citric acid), gluten-free oats, quinoa and nightshades including tomato and potato.  This even includes liquor like potato vodka.  I know I'm SUPPOSED to be able to tolerate this....but I cant.     So, basically, I've been strictly gluten free for about 1 1/2 years now.  I have severe heart burn.  Better with medication.  Most of my gluten symptoms such as numb limbs, face, etc.  and severe stomach upset and gas has gone away.  Its magic as long as I stay away from gluten and the other offenders.   At this point though I'm just angry.  I smile and say its no big deal.  I get by and there are lots of foods I can still eat.  I put on a brave face most days.  I am truly happy to have my health.   I keep holding out hope that some of these multiple intolerances will go away as I get better but........    A part of me wants to say screw it, eat a bunch of gluten and call it a day.  I get really frustrated and sick of being "ok" with it.  Some days, it sucks!  I hate that I can't go out to eat anywhere like every other normal person.  I hate that people think I'm being picky.  I hate the sympathy I get from decent people.  Multiple intolerances SUCKKKKK!  I also hate that sometimes I get sick from foods that AREN'T gluten. Not fair!  It makes me so angry at my body.     So, I just needed to bitch everyone. Needed to whine and throw a hissy fit!   Thanks for listening! 
  14. How Long In The Penalty Box?

    3-12: I eat two slices of a three cheese gluten-free pizza. | | | ¥ 3-20/21: still paying for it daily with changing symptoms. Even things I normally eat hurt. Argh I feel like one of those squeeze toys where, when you squeeze the stomach, the eyes pop out. Never again cow dairy. In time, I'll have some goat yogurt but never again cow cheese. "Said the Raven...". 8-o Maybe it's stress compounding it too. The things I'm dealing with, worrying about. Who's stomach wouldn't be tied in knots? I heard my husband say I was managing an autoimmune condition. Manage is right, like managing a petulant little bull. Gosh, I was really doing well and had to start pushing... Really thought I could reintroduce some intolerant foods so that I could eat easier at a restaurant! What was I thinking? This must be one of those blessings in disguise. I can't afford to be glutened right now. Not going to eat in a restaurant now. Hmmm... Have to put my big girl pants on for several days of business/social gatherings around food. +energy! Yep. That'll be a lot. Good reason to rest up. Penalty box just transformed into solace. Tomorrow I sleep. Sleep and nourish.
  15. I was wondering if anyone has a good recipe for making bread in a bread maker that is Gluten free, dairy free and soy free? Can i use yeast? does that not also have gluten in it? I have a bread maker and was looking to make my own bread. I am alittle scaried as I am getting sick with just about evrthing I eat. willing to give it a try. Till the dreadful pain and sickness appear than I am done. I have not had not breads, pasta or grains in over 1 to 2 months. I can live without it I guess. but would like to try. If you can help I would greatly appreciate it. Thank you in advance.
  16. Hi, my 7 year old daughter has just been diagnosed with Celiac disease and is lactose intolerant. I am new to all this, and would like suggestions on foods that kids might like and the best places to buy them at. Also, is Trader Joe's cheaper than Whole Foods? Could you tell me the pros and cons? Can I find some of the same gluten free and dairy free foods and Walmart? Thanks so much!
  17. Hi everyone,   I am a newbie on this site but really needing some advice. I have had 'IBS' since my early childhood and have suffered with many days and nights lying on my bathroom floor or passing out on it with terrible cramping and diarrhea.   Last week a doctor looked over my history and asked me if I had celiac disease as I seem to gain weight even when I can only sip chicken soup and have diarrhea for days, I have chronic sinusitis, sore throat, ear infections, Acid reflux, had my gallbladder removed and recurrent mouth ulcers. He aske about my family history and as my mum is the same as me and my nan had hypothyroidism and passed away from Lymphoma he seemed pretty convinced. However he sent me home with some antibiotic ear spray for my sore ear....I decided to go gluten free and see if this sorted out my cramping and diarrhea too. this is the story of my life. I go to the doctors and they never give me any answers.   So I discovered that once giving up gluten for a day or two my cramping stopped but still had diarrhea. I quit dairy and all of a sudden I am pain and diarrhea free! Happy days. Then today my lovely husband went to costa and got me a soy latte and I ended up in hospital with an allergic reaction! I felt like I had the flu run up behind me and jump on me! I almost blacked out both at home and the hospital but felt much better with piriton and hydra cortizone injections. Now I have been told I need allergy tests to sort out what I can have and what I cant.   So now I am afraid to eat or drink anything and I feel that I dont know what to say to my doctor because I dont know what tests to ask for here in the UK. I am also worried for my kids as going gluten free seems to have helped my 4 year olld daughter with her witholding poo that has been going on for 1 1/2 years (told it was due to stress as her dad has been very ill with cancer) and my 6 yr old son is being tested for adhd and aspergers which can also be related to celiac can't it? I am not sure I am looking at the right websites so unsure. I am pretty sure the doctors are not taking me seriously because they assume I am suffering from anxiety from my husband's illnesses but I have been sick for over 40 years and he has only been sick for 2!   Anyhow, could someone please tell me if there is a list of allergy free foods I can be safe to eat until tested and if celiac will turn up on an allergy test?? I just don't know and I am afraid to look at too many websites as some of them are written by complete nutters.   thank you for your time Bunny
  18. Hi – I’ve been reading this forum for many months, and now have decided to take the plunge and join as I have a question.  But thank you by the way for all your help along the way, it has been so good to learn about the disease from fellow sufferers!   I am a female in my mid-forties and following gastro problems was finally diagnosed with celiac disease back in May, by endoscopy.   To cut a long story short some numbness and tingling I was also experiencing in my hands upon waking, and also occasionally in my left leg, has all but gone since adopting a gluten free diet. My vit B12 is around 200 now – it was down when I was first ill.   My iron is now much improved, my haemoglobin levels now excellent.   But now I have have some new symptoms.  What I am experiencing is the sensation of walking on a boat, or a moving surface, when I am not.  This is far more noticeable when walking on the flat, as opposed to say on grass or uneven surfaces.    I also noticed a sort of slow tremor which I thought was coinciding with my heartbeat, but in fact today I leant on a surface and felt it, it seems to affect my torso and upper body, but took my pulse and I think my pulse was going twice as fast as the tremor!  I don't feel these things all day - it comes and goes.  I don't wake with the sensations either - something seems to set them off.    I have just had my full liver enzyme and blood tests back from my consultant and he was really thrilled with the results – all normal, including immunoglobulins which were several points out of range six months ago.  My gluten free diet has been pretty good but perhaps on average one unintentional glutening a month.  I am trying to be much stricter now by taking my own food everywhere I go!   FIRST QUESTION: Has anyone else experienced this sort of tremor/walking on board a boat feeling – and do you think it could be celiac related.  I am of course, becoming a bit of a hypochondriac, concerned about other health problems being the cause.   SECOND QUESTION: Here in the UK getting tests takes a while so pending the next round of tests which I can only imagine are now on the horizon, with this latest set of symptoms, can anyone also tell me, apart from avoiding gluten, does dairy –or anything else come to that - also cause neurological damage?   The only other thing I should say is these new symptoms came on v. suddenly (within 48 hours) after lifting something heavy three months ago and I wondered, also, if this in fact might be the cause.   I have lower back an upper neck pain at times which seems to make things worse. Many thanks.  
  19. I am 10 months in gluten free, still not well. Stomach issues improved, but I´m still dealing with fatigue. I read that it´s recommended to quit dairy products. But what about lactose free dairy products?
  20. Hey,   I came across this awesome recipe online which is really really easy to make and super delicious.    Ingredients:   2 mashed bananas 1 egg 1 heaping tablespoon of almond butter     Mix ingredients together, and there's your batter.  Simple as that.  Cook on a low heat as you would normal pancakes.    If the mix is too runny simply add more almond butter (I buy the brand Nuts to You Nut Butter and get the Almond and Hazelnut Butter)  or what I have started doing is adding ground flax and chia seeds to help thicken.    Cinnamon added to taste is a great way to spice this up for a good morning jolt and is as well used medicinally as a digestive aid.    Hope you dig it. 
  21. Dairy Intolerance?

    So, I started getting stomach pains this week after eating dairy. I got diagnosed with Celiac at the beginning of April. Is it possible I developed this intolerance now?   How long should I wait before attempting anything dairy again? (I want to give it some time - the pains were BAD.)   Since being diagnosed I haven't suffered any intolerances (until now) and I've been thankful. Looks like my number came up haha.   Any advice is greatly appreciated.   And thank you all for your continued support.
  22. Howdy - Does anyone else (gals, of course) have this?  I *think* when I get exposed to gluten, then my period starts within a day, or my bleeding gets much heavier and my period is prolonged.  Am I imagining things?   I was diagnosed gluten intolerant in 7/07.  Have been eating gluten-free since then.  I'm caseinand lactose intolerant, have been on and off dairy since '92.  Six weeks ago I got much stricter about sticking with DF.  I'm pretty good about gluten-free- never cheat - but have not been careful with cross contamination.  I've had these crazy long periods (14 days? 21 days? a month?) for 9 months.  Three months ago I switched oral contraceptives - less spotting, but my last three periods have lasted 10 days.  Could it be that I've become far more gluten intolerant in the past year?   Help!
  23. My food issues began several years ago.  I am a self-diagnosed celiac.  I have been tested for allergies and have none. I first discovered gluten was a problem a few years ago then discovered soy, casien, corn, chicken, coffee and even peanuts made me sick as well.  The best part is that I feel the best I've ever felt. I know I am finding my health again and I feel normal most of the time.  I've learned how to find/cook really well and am happy most of the time.    Here is where I need some help:  I really miss eating in restaurants but I am terrified of doing so.  Corn is in EVERYTHING.  I can tolerate very small amounts (talking vitamins) but I have trouble with things like iodized salt.  I am very scared to eat out but I really miss it.  I am 28 and live in Chicago.  Best city for food ever!  I am very happy but it feels fairly isolating not to be able to go out.    How do those of you with similar intolerances do it?  Do I just need to wait a couple years for my gut to heal?  Do you bring your own food?    I'm feeling hopeful enough to try new things.  Help me figure it out? 
  24. Does anyone else have these allergies? It is difficult for me to find things that I am able to eat without spending too much money on it. I am on a tight budget and shopping gluten free is moderately expensive for me already. Any suggestions please? Thanks!
  25. I'm in need of a birthday cake recipe or good one I can substitute in.   Can haves: -buckwheat flour -eggs -vegetables of any sort -lard -sugar -baking soda -spices   Can't haves: -any other type of flour, including ground nuts -non-chocolate preferred -dairy -grain-based oils -baking powder     The only flour I have at my disposal is buckwheat. I usually wouldn't submit someone on their birthday to the strong flavor of buckwheat, but for who it's for, they'll probably like it, provided the recipe is a good one.   I've found a recipe involving nut flour that looks good, so I'll go scouring the 1 store left that I have for safe, whole nuts to grind, but I'm not crossing my fingers. Looking for non-nut cake ideas!   I've found a meringue topping requires shortening that I think I'll put lard in instead as an icing.