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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. Good night   My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals.    After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??   It is my third doctor ,  i can't spend more money with more exams ! It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year.  I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.   I needed to share this ! Thanks =)    
  2. Howdy - Does anyone else (gals, of course) have this?  I *think* when I get exposed to gluten, then my period starts within a day, or my bleeding gets much heavier and my period is prolonged.  Am I imagining things?   I was diagnosed gluten intolerant in 7/07.  Have been eating gluten-free since then.  I'm caseinand lactose intolerant, have been on and off dairy since '92.  Six weeks ago I got much stricter about sticking with DF.  I'm pretty good about gluten-free- never cheat - but have not been careful with cross contamination.  I've had these crazy long periods (14 days? 21 days? a month?) for 9 months.  Three months ago I switched oral contraceptives - less spotting, but my last three periods have lasted 10 days.  Could it be that I've become far more gluten intolerant in the past year?   Help!
  3. My two youngest kids (dtr and son) are gluten intolerant, we do not know if it's Celiac but plan to have genetic testing soon.  They are both being tested for Hemophilia and Von Wilebrand, this came about because my oldest dtr just tested positive as a symptomatic Hemophilia A carrier.  Anyway, when I mentioned the gluten issues to the hematologist today she did not seem surprised at all!  She talked about antibodies and some other stuff but I had talked to 3 nurses, a social worker, a genetic counselor and another doc already and my head was spinning!  Do any of you have any bleeding disorders?  I realize it's genetic but I have to wonder if one disease plays off of or can make a person susceptible to another?  Or is is just plain luck?!  I say that in jest because I have to-I'm exhausted and occasionally have to laugh at our issues
  4. Hi all, I was diagnosed with a gluten intolerance this past fall (positive serology, but inconclusive biopsy), and I have been on a gluten free diet ever since. All was fine until I recently began to react a lot more severely when exposed to gluten, I went from have the "regular stomach issues" to having such extreme stomach pains/cramps that I nearly called for an ambulance. In addition I will have something that looks like acne all over my face for the following 7-10 days. I will also get extremely fatigued for several days following, as well as lightheaded. I also appear to react to much smaller quantities of gluten, initially I would be fine eating something that was prepared on the same surface as something that contained gluten, but now cross-contamination is a big problem. More recently I have also begun to suffer from itchy skin and throat, which is why I was referred to see an allergy specialist, where it was determined that I do not have any food allergies. Now it appears that I might have some issue with my mast cells, I found out today that I have Dermatographic urticaria, and I am being tested now to see if this somehow correlates to my increased stomach pains. Has anyone had a similar experience? Is there a correlation between gluten sensitivity and a possible mast cell disorder? Is it possible that I my gluten intolerance has been just "hiding" a mast cell issue? I obviously don't expect anyone to have any concrete answers on the issue, but from what I can make of it, there does not appear to be a whole lot of information about this out there... which is why any personal experience on the issue would be appreciated Thanks!
  5. From the UK Daily Mail, after the ridiculous story in the Daily Beast earlier this week, "When Going Gluten Free is Dangerous" http://www.thedailyb...angerous.html�� comes yet another one of these slams on the necessity of a gluten free diet for those with gluten intolerance, even if one has not been formally diagnosed with celiac disease, claiming that it is the equivalent of an eating disorder. The Daily Mail conveniently quotes a Daily Beast story with the same theme. link: "Are gluten free dieters just hiding an eating disorder ? How self diagnosis of serious food allergy can help take diet to extremes" 1/28/2013 by Sadie Whitelocks http://www.dailymail...t-extremes.html The FDA has yet to release the new regulations. And certainly everyone wants to get the last word in on that, whether or not it's a good word or a sort of "neeyah, we don't really need this anyway, since the majority of gluten free eaters could be merely neurotic people trying to lose weight."