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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Found 20 results

  1. Let me introduce myself. You can call me MK. I was diagnosed with Type 1 Diabetes about 6 years ago. I found the complete life change to be a major challenge, as would anyone. I admit, I never really fully was able to, leading to many health issues and many stays in the hospital with diabetic ketoacidosis. Then, to make matters even worse, about a year and a half ago, I was tested and it was confirmed that I have Celiac’s Disease. I have yet to eliminate gluten from my diet. I have made many attempts to do it, but I fall off the band wagon every time. Now to top things off. I lost my job over the summer and found myself living out of my car. I managed to find a part time job, but that barely pays for the car itself. I have to buy food on the fly, since there is nowhere to store food and nowhere to even cook it. This, as you can imagine, limits my options to the point where I don’t even know what to do. I eat anything I can, whenever it is possible. If I eat over another person’s house, I take what I can get. It is wreaking havoc on my intestines and my digestive tract. It has become a nightmare. Recently, my mother has been letting me stay on her couch, which opens up some possibilities for me to finally start getting myself straight. Although she buys a lot of bread and gluten full products, I have been talking to her about trying to work with me and buy some better options for me. That can get expensive and neither she nor I can truly afford to do it. Everything I have seen for sale that is gluten free, such as bread, pasta, etc., is way out of our very limited budget. I need to fix this, though. I need to get healthy or I am afraid I will die. Not even exaggerating. I need some support and didn’t know where else to look. I found this place and was hoping I could maybe find some help and advice. Or even just an ear (or a set of eyes?) to turn to. Thanks in advance. MK
  2. Please help me out. Hello, I am a 17 year old boy in CA. I have recently been made aware that i 90% have celiac. And after research, it is almost certain that I have the disease. I am scheduled for an endoscopy within the next 2 months or so. I am fairly healthy with eating and exercise as I started this lifestyle over a year ago. I lift weights 6/7 days a week. And do some form of cardio 6/7 as well. I have become overly obsessed with exercise as I get anxiety and depression if I miss a workout. I have lost 60 pounds over the course of a year, (whether or not celiac helped.) Although over the past few months I have been feeling fatigued and brain foggy, I am tired, and the only relief is through vigorous exercise. I work so hard and see little to no results so far. And over the course of a few months I have been getting worse at my physical activity. I went from doing 30+ pull ups to struggling to do 10. People tell me to take more rest days, even a week of to repair my muscles, but whenever I do, I lose all muscle tone and feel terrible. I get severely depressed. I am a little underweight and want to get bigger. So I eat more and rest more to rebuild and repair my muscles. And when I do, I feel bloated, sick, and I only gain dead weight to my stomach and lose muscle. It's terrible. I want to start gluten free now because of the wonderful stories of getting stronger and feeling clearer but I need to wait for the endoscopy. I hear problems of people who needed to stop working out for their body to heal (the villi, neuro, and muscular systems), and they eventually lose their motivation to work out. The twisted part in me is that I want to sort of keep this terrible feeling so I stay motivated to work out. Because my motivation is everything. I am severely lost, and depressed. My goal in life was to join the military, yet celiac shuts the door on those who want to join the armed forces. So my question is.. What do you suppose will change for me after the gluten-free diet? Will I feel better? Will I get stronger? Will my performance be affected? Will the depression stop? What do I do if my endoscopy result come back negative? Thank you, this is a huge problem for me.
  3. Cultivating Health During Crisis

    I enjoyed this article from Mark's Daily Apple. It's good advice for those of us dealing with our health during a time of crisis: [url="http://www.marksdailyapple.com/cultivating-health-during-crisis/#axzz2yDxYRwlB"]http://www.marksdailyapple.com/cultivating-health-during-crisis/#axzz2yDxYRwlB[/url]
  4. Hi all, I'm new to all this...only 3 months or so. Being a novice it's been quite a ride but at least now I know why I've been so sick for so long. Not only am I extremely sensitive to wheat gluten, I have discovered that corn gluten and MSG makes me just as ill. I can't even feed our animals anymore as the dog food has gluten in it and just touching the dry food or particles in the air (I guess)...my eyes begin to itch and water, I start sneezing, runny nose, then the 'tummy rolls'...they are the worst! I get so nauseous...in waves. My question is, I wear dentures and from time to time I get sore spots/cuts on my gums. I use to use Benzodent but when I used it yesterday I felt all the symptoms of having been glutenized. I mentioned it to my wife and she looked it up on line...seems there is something called eugenol in the gel that she thinks may have gluten in it. She also tried to query Poligrip Comfort Seal Strips but couldn't find anything. Does anyone know if either of these are gluten free?
  5. Up The Mountain, And Out Of The Fog

    I began my gluten free trek in about May of 2012. I did classic gluten free for a few months and then went grain free. Last November at about 6 months gluten free I had my first nutrient absorption test. In spite of my natural, whole food, organic diet, and many supplements my nutrient levels were low. Especially the Vitamin B levels were unacceptable. I felt rundown and foggy. I dragged myself through my days, Sometimes I felt better and sometimes really bad. I knew I had to do something more and fast. I thought I should focus on healing my gut. It was recommended that I take IgG for that, which I did. Next I had a food antibody test done and began a rotational diet. After a while of that I cut out all foods that I had antibodies too for a few months. Finally, I began to take digestive enzymes to help break down my food. The Functional Medicine Nurse I visit also asked me to take herbal adrenal gland support. After 30 years of foggy fatigue, I AM BETTER. I feel it. My recent nutrient test showed my B levels have gone up to high levels. Each and every other nutrient was adequate to good! Except Asparagine which was mildly deficient. Now, I have no desire to run a marathon,(I feel I have already done that) but am excited about what I can do with my life now. For one thing I have 2 more young ones to get through home school. I have 5 youth children who are beginning to have exciting ideas of what they can do with their lives! My husband stayed true in spite of the great trials of celiac. So, as the Lord gives me strength, I am getting up and going on with my life. This has forever changed me. I plan to write my "owed to Celiac" one of these days. If you need courage, I am living proof that one can be delivered from 30 years of celiac. I was dying, but am alive again. There is HOPE! I couldn't always see it, but there is! D
  6. I am searching for a gluten free dentist on Manhattan island. Anyone found one?
  7. I have been gluten-free for about 2 months now due to intolerance.  One of the books I have recently read in researching the topic of celiac and gluten intolerance is  book "Wheat Belly".  This book talks about the reasons why EVERYBODY should be gluten-free regardless of whether or not they have celiac or gluten intolerance.  Based on the info in this book and to support me, my husband has gone gluten-free.  As a result, he has already experienced several improvements with arthiritis in his hand and plantar faciatis.  He also is slowly loosing inches from his waiste.   I also have recently  heard and seen talk about the "Gluten-Free fad diet" and how for people without celiac issues, it is a fraud and an unnecessary lifestyle change.  I am just curious about any opinions you all might have on people without gluten issues following the gluten-free diet and how to encourage others to follow the diet if indeed it is a healthy thing for all people.  Thanks!  
  8. Hi, I'm a celiac and have been completely gluten free for two years now. I've been reading a lot of articles that discuss health problems that celiacs are more prone to than non-celiacs. What I did begin to notice is that none of the articles really say whether or not the celiacs that they mention who are prone to these health complications were maintaining a strict gluten free diet. I know that the gluten free diet does make a celiac less prone to future health problems like cancer and a whole bunch of other problems (I've been noticing more and more instances than not where the celiac is at more risk than the non-celiac), but is a celiac who is maintaining a strict gluten free diet still more prone to health problems such as cancer than someone who isn't a celiac? I guess I just want to know whether or not the disease has more complications down the road than just maintaining a gluten free diet for life (and, of course, the symptoms from ingesting gluten).
  9. I know gluten is a problem for me, but I tested negative for celiac with 2 blood tests. I'm awaiting the results of an intestinal biopsy. One symptom I have that I attribute to the effects of gluten is bad teeth (eroding enamel and teeth that break easily- 2 in the past 11 months). Did anyone experience an improvement in dental health after going gluten free, or has the damage already een done?
  10. Ok for those of you who do not know me I travel a lot. So from time to time I accidentally ingest gluten in one form or another. For instance I found out today that [b] Sodium Starch Glycolate[/b] is technically gluten and can cause a full reaction in someone who is as sensitive to it as I am. Thanks to #glutenfreeinsc post I now know what I was getting in my diet that was causing a reaction. So I've decided to start trying different things that can help me either get better faster once I ingest gluten or reduce the reaction if taken daily. Keep in mind that I am a little bit eccentric at times. Tral 1: zGlutn by systemic formulas I decided to eat a slice of bread and take 4 pills at the same time. I know this is insane but I wanted to know if it worked. So I ate the bread during lunch and told my boss that If i didn't make it into work the next day I was probably dead... The next two hours: a little cloudy feeling but not very severe. And no GI issues. That evening: Kept working and didn't feel very cloudy but had to pace myself. I was a little tired but still no severe reaction Went home and went to bed after a light dinner. My stomach was growling a bit but no pain and no noticeable diarrhea or nausea. This was a surprise to me since I always feel very sick, get stuck in the bathroom and can't think straight after I get gluten. I also get a rash around my mouth. I know that's gross but you understand my plight. Next Morning: a little bit of a hot feeling in my stomach but nothing too bad. I felt a little bit cloudy but still functional. Worked through the day no problem except for a two trips to the lavatory. Conclusion: helped a ton. Wouldn't recommend trying this at home because it wasn't a cure but if you get gluten by accident it can reduce your symptoms dramatically. I've been taking it every day and it seems to be helping. Has anyone else tried this product? I got it from a nutritionist. Iang if anyone has a product that works for them as vitamin I want to try it. apparently ciliact is terrible. I'll keep trying supplements and diets and keep you guys updated.
  11. Hey everyone, I have been wondering, I know that a common symptom of gluten intolerance is bad teeth or declining dental health. Since I was a kid, my teeth have given me nothing but problems. I get cavities all the time, once I got 8 in the course of 7 months. And my gums get irritated very easilly, despite everything I do to keep them clean and healthy. I follow a very strict diet apart from the gluten free, style, so it's not what I eat that is causing it. But my mother and brother have healthy teeth and they don't have gluten intolerance. Have any of you experienced the same sort of problems with your gluten intolerance?
  12. Hi all. this is my first post on the forum. well i heard that women are 9x more likely to get dx than men. Is this true? if yes do we know why? I think it might just be that women are more likely to see a doctor, more likely to have insurance, and to admit certain symptoms, etc. thoughts?
  13. From Mn To Pensacola, Florida And Back

    I am interested in any restaurants absolutely safe for grain free celiac around the route. I might consider visiting one on my way home, maybe. Other than that my family would be interested in organic food restaurants. I am needing organic nutrition stores in or around Pensacola. I want to be able to buy meats, eggs, and organic vegetables. If you know of organic produce direct from nearby farms ... I would be really glad. My family and I (Seven of us) are traveling. I find it difficult to imagine that I can fit all of the food for a week into our loaded van. We found a hotel with full kitchen, but I need to pack all of the pans I want.
  14. *groans*

    [color="#FF0000"]My problems are starting to scare me. I keep getting worse quickly enough that I swear by the time I actually get the answer to what it is I am going to fall over dead...[/color]
  15. [color="#FF0000"]Yeah i feel like whining about the pain in here, too. I dont know why I even have this blog, but all I can add (so I dont forget) is that its been 52 days that I have been sick and getting worse...[/color]
  16. Blah

    [color="#FF0000"]I wonder what else is truly wrong with me. I'm serious already, the arthritis, rib pain, mysterious stomach pain, constant flu-like symptoms, and worst of all: Jeans falling off!! If I lost weight again I'm going to scream. Maybe I should just scream anyways[/color]...
  17. My Health Story

    Hey everyone! I have always had a problem with stomach aches. Although they were not bad, they were still there. In sixth grade they started getting worse. The summer between sixth and seventh grade, I started getting acid and some kind of burping. It was horrible. Every night after dinner, it would almost sound like a fireworks show. Also one day at the beginning of summer, I got dizzy. Not just a little bit though, it was HORRIBLE! It wouldn't stop! All day I would just lay on the couch with a wet washcloth over my head. I didn't eat much, I wasn't sure what was wrong with me. I went to my pediatrician and he didn't know what was wrong, so he had me have an MRI. I got the results and nothing was wrong with my head. Then, my doctor sent me to an ear, nose, throat doctor. I had a hearing test and some kind of ear/dizzyness test (where they blew cold and warm air in to my ear... it made me so dizzy that at one point the doctor said that in my head I was going 60 mph in circles in my head) done, and they thought that I have less water in one ear than I should. I guess nothing serious because they didn't do anything to me. I still have it, although my body has gotten used to it, except if I go in the ocean or dive into a pool. Also planes bother me. I am going to the doctor soon, because I am SOOO tired of being dizzy all the time (even if its just a little bit).Back to my stomach- my pediatrician sent me to a gasneurologist. He was a really good doctor and asked about everything. He was especially interested that my cousin was diagnosed with Celiac when she was 5 years old. My uncle recommended that the whole family get tested when she was diagnosed, but I guess we forgot. Anyway, I got the blood test done, and when I got back to the doctor he said it was positive. I had the endoscopy done, and the doctors said that they couldn't tell if I had it because there wasn't enough damage (thankfully!) so they took a sample. A couple days after, the results were in. I had Celiac Disease. I was kind-of glad to have tests done and find out what was wrong with me. But the only problem was, I had worse stomach aches then before than the gluten-free diet. I am still trying to figure that out, but hopefully its just a stage to getting completely better. Lisa
  18. Aches And Pains

    [color=red]Arthritis is horrible. Its got me in the left shoulder, the left hand and wrist (especially the thumb joint), the right wrist, and my right ankle. [/color]
  19. Zzzz..or Not

    [color=red]something has to be wrong with me..its nearly 5 am and I am wide awake. I need to get up at about 9. stupid stress much be setting off Celiac, causing it to set off insomnia I guess. I hate it. Or maybe I am just thinking about certain guys too much..... [/color]
  20. Hmm..

    [color=red]Oh man I am not feeling good at all today. Thats what I hate about Celiac, that I dont know if whats wrong is the flu or cold or celiac. But its slowly been building up (the sickness) the last 4 days and today seems to be the worst. But thats not going to stop me from anything. If I get everyone else sick thats ok. But there is Centennial and class reunion in town starting today and I wont let a flu or whatever ruin it for me. For once, I have a chance to have some fun. Not many chances like that come around. Whatever is making me sick, it better not last! I am sweating yet my temperature is lower than normal. Tis strange! [/color]