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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. FDA proposed rule on gluten-free labeling of fermented or hydrolyzed foods: If you haven’t already, please take the time to comment on the rule. The comment period closes February 16. But this is truly a CALL TO ACTION.  Your input is needed. You have a voice, you are an advocate for the gluten-free community. Now is the time to stand up and be heard.  Your voice, your words, can help all of us stay safe when purchasing food labeled gluten-free.  Johnna’s Kitchen posted a sample letter you may find helpful It takes almost no time at all to copy & paste Johnna's letter into the FDA comment site & it will help us all.
  2. I know people generally don't worry about hair care products (shampoo and rinse-out conditioner). I've used my same shampoo and conditioner for years and just try to rinse without getting any in my mouth.  But I want to step up my routine and use some leave-in products (conditioning cream, anti-frizz, styling cream, etc.) and wonder if I have to worry about a stray hair strand or two getting in my mouth-  my hair is long.   Does anyone worry about these things?  Should I be?  Are there Gluten Free good quality styling products?  I specifically want to use Devachan products, but most seem to have some sort of wheat in the ingredients.   Thanks
  3. Just wondering if anyone has ever used or knows anything about Alba Botanica - they make shampoo, lotions, and other personal care products. First, does anyone know if their products are gluten free? I have contacted the company directly but they have not gotten back to me. And if so, are they worth purchasing?  Any input would be helpful.  Thanks!
  4. Hi everyone, A few years back my doctor told me that he believed I might have Celiac disease and to start trying to remove gluten from my life. A month ago he confirmed that I have Celiacs. He also told me to remove processed sugar from diiet because it doesn't help with the disease So now I am trying to figure out this new lifestyle and I have all sorts of questions that I  need help with. Food wise: It is very hard to find gluten-free foods that don't have sugar in them. How do you tell the difference between good sugar and bad sugars? I understand the difference between natural and not, but some products seem to be all-natural, but have a high sugar count. Does that make sense? I pretty much eat on bananas all day because they are the easiest thing to grab and go with my busy lifestyle. Does anyone have any tips on things that stay well and can be eaten quickly [like in a minute or less]? Depression: I have been suffereing depression for a few years now as well. Has anyone experienced their depression improving after removing the gluten completely or does it get worse? I finally had mine under control and now I feel depressed everyday. Does it get better? Fatigue/Forgettfulness/ Lack of caring: I am constantly tired and just not there anymore. I forget things like not other; I also have frequent blackouts where I don't remember what exactly I was doing. I also have lost interest in a lot of things.  I don't know whether this is the disease or something else. Beauty Products: I know they say to avoid gluten in beauty products. Does anyone have any brands they can recommend? From supermarket brands to salon products, I would like to get a grasp on what i can use. Lip Balm in particular because I"m a chapstick addict. Cross-contamination: How worried should I be about this? I suppose those are the questions I can think of right now. Besides that, does it get better?  
  5. Hey,   Question for you guys. I've been gluten free for a year (celiac) and only eat products that 1.) don't contain wheat products in the ingredient list and 2.) don't say anything about being processed in a facility that also processes wheat.   So my question is..   Can something be processed on lines that also process wheat without having to disclose it on their label? Do you only eat foods that are explicitly labeled as gluten-free, or you've done research/found out they are okay?   Because I think I've gotten a reaction from foods whose ingredients/label look okay (i.e., nacho doritos) but I think are cross contaminated even though they don't disclose it. Is that even possible? What do you guys usually do? Is the ingredients list/label enough?   Thanks a bunch!   Nick
  6. I need some help in finding a gluten free at home hair dye kit.  I have called up all the major companies asking them to help but they all say take list to your doctor. Yes - i am sure my doctor knows what every ingredient in hair dye is and wants to spend time with me picking out hair color - NOT!!!  Does anybody have any thoughts/knowledge on this?
  7. I recently gave in and purchased the NutriBullet.  This is a new blender from the makers of the MagicBullet.  There are many differences with the NutriBullet and the MagicBullet.  The first would be the look.  The NB is so much bigger than the MB.  The blades are different as well.  With the MB there are only 4 small blades while the NB has 6 large blades.  One difference that you cannot see is the power, internally there is more juice.     Now the NB suggests you put 50% leafy greens, 50% fruits and some seeds or nuts and top off with water.  I have one for breakfast and generally one with or after supper.  This is an amazing product.  It literally extracts all of the good stuff our bodies need and sometimes do not get by just eating the foods.  Sometimes things like the skins just go through us and our bodies do not have a chance to fully digest all of the nutrients.  The NB truly blends EVERYTHING you put in it!  I was able to see a difference within the first few days.  I am sleeping better, feeling better and I know I am doing better.   This was recommended to me by a friend, I used it and recommended it to another friend, she used it and recommended to another friend.... It is a chain reaction.  Be the first in your group to bring this life changing product in.
  8. I just emailed TIGI to check on their hair products. Thought I might share the list: "Thank you for contacting TIGI Haircare. The following products do not contain Gluten as an ingredient, however, I cannot guarantee whether the ingredients were manufactured or packaged in a facility that is gluten free." SHAMPOOS AND CONDITIONERS Colour Combat Colour Goddess Shampoo Colour Combat Dumb Blonde Shampoo Epic Volume Conditioner Extreme Straight Conditioner Extreme Straight Shampoo Hi-Def Curls Conditioner Hi-Def Curls Shampoo Superstar Conditioner Superstar Shampoo Foxy Curls Shampoo Foxy Curls Conditioner Urban Antidote Re-Energize Shampoo Urban Antidote Re-Energize Conditioner Urban Antidote Recovery Shampoo Urban Antidote Recovery Conditioner Urban Antidote Resurrection Shampoo Urban Antidote Resurrection Conditioner SPECIALTY CONDITIONERS Colour Combat Colour Goddess Leave-In Conditioner Ego Booster Superstar Leave In Conditioner STYLING PRODUCTS After-Party Bed Head Stick Control Freak Serum Creative Genius Dumb Blonde Smoothing Stuff Foxy Curls Contour Cream Foxy Curls Mousse Foxy Hi-Def Spray Hard Head Mohawk Gel Hard To Get Headrush Manipulator Mastermind Power Trip Small Talk Spoil Me Superstar Queen For a Day FINISHING PRODUCTS Hard Head Masterpiece Maxxed-out Superstar Volumizing Hairspray SPECIALTY STYLING Mega Whip Totally Baked Sugar Shock Glaze Haze Sugar Dust
  9. Hi, I am new here, looks like I am pretty well in early diagnosis of celiac disease with a positive DGP test and my son has been experiencing some strange symptoms and I was looking for anyone whose child maybe going through the same whose child was dx'ed with celiac. It all started when he was about 2, he started getting swollen glands all over the neck. I was worried and took him to his pediatrician who did blood tests and all came back normal. Then about a year later I noticed more popping up so his doc had him referred to an ENT who decided to do a biopsy of the nodes which came back clear for cancer and they were mainly suspicious of lymphoma. They said the nodes were reacting to something, but they didnt know what and that he would most likely grow out of it. About 8 months ago, my son began acting differently also. He would get extremely hyper, and I know kids are hyper, especially little boys, but this was not normal. He was so full of energy that he couldn't stop running around the house and had a very very hard time sleeping. My husband commented about it saying he was very worried he has ADHD. I also noticed that he was sweating in his sleep profusely and he would often complain of ulcers in his mouth hurting while he was trying to eat. I took him to another pediatrician in the same office as his main doc who looked at the ulcers in his mouth and she said it could be autoimmune related and that she had never seen anything like that before. But she said autoimmune disorders are very hard to dx in kids. He gets reoccuring mouth sores quite often. My husband just pointed out the other day that he had bald spots on his hair, and I dismissed that thinking he just inherited my fine, thin hair, but today I noticed a patchy bald spot at the top of his head. Now I am franKly worried. I have been having my own health struggles and barely had one test come back positive as I said earlier in my post that indicates celiac disease. I want to know if any of you parents have had similar issues in your kids who you found out had celiac disease or possibly an allergy to milk, lactose or anything else. ANY input is so welcome and thanks in advance.
  10. Rudi's Wraps - I tried them at a gluten free fair earlier this year but they have not hit any of my local grocery stores. We have 2 organic markets, Weis, Wegmans, Giant, Giant Eagle, Safeway and Wegmans in my town many of which carry other Rudi's products. Anyone know where to find them? Goodbye Gluten - read so many great reviews but haven't seen it in any of the above stores. Has anyone tried it and is it as good as I've read. If so, what grocery store did you find it at?