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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Found 21 results

  1. I did Ideal Protein 2 years ago and (surprise!) got pregnant with my second child. Now that he's weaned, I want to do it again. They have Gluten Free options and I have ~ 50 lbs to lose. The weight has started coming back on after my diagnosis a few months ago, so I need to do something to get it under control. I've been eating 'whole, real foods' but the weight is not coming off. I want it off for more than cosmetic reasons. So, that being said, any Celiacs here have success with Ideal Protein? A woman I met yesterday did it Gluten Free is at her goal weight, but she's not Celiac, but NCGS. Pitfalls? Concerns? Really any thoughts at all are welcome.  I have Type 1 diabetes too, but that's so old hat to me now...and I obviously had it 2 years ago when I did IP before. I lost 20 lbs then. Just not sure what to expect when adding my fancy new disease. My goal for after the weight coming off is to of course stay 100% gluten-free, but also to lean more towards a paleo lifestyle. I'm dragging my whole family along at the adventure. I'd rather my kids not eat chicken nuggets more than 1-2x a month. If you catch my drift.
  2. Hey everybody, so I have a friend (female, 20 years old) who has NOT been diagnosed with celiac and does not think she is allergic to wheat but is having severe tummy issues. symptoms and factors: shooting stomach pain immediately after eating anything nausea and pain for almost 40 minutes after eating unintentional weight loss (30 pounds in 1 month) high stress environment on medicine from doctor (to coat her stomach throughout the day) long term, 8 months... Whenever she eats anything, for almost 8 months now, she experiences nauseating shooting pains that go through her stomach immediately whenever she eats anything. Her doctor put her on a medicine that coats her stomach throughout the day, so she takes it every morning before she eats, and it is the only way she is currenty able to eat. Since this began she unintentionally lost 30 pounds in a month and continues to loose weight. She is in college and taking many hard classes so stress could be a factor. She has not had a scope to look at her stomach to check for ulcers because she can't afford it right now. I got her to start trying kefir and see if that helps. Does anyone have any ideas or suggestions!? It would be super appreciated, any imput is really awesome! Thank you!!!!
  3. Hi all I am currently managing a gluten free diet and weight loss and am enjoying protein shakes in the mornings to kick start my metabolism. A while ago I had found a recipe to make low calorie chocolate cookies out of the protein shake mixture and they were delicious and a good low calorie treat. I am currently loving my strawberry flavored protein shake and am wondering if anyone has any recipes for low calorie desserts that can be made with the strawberry flavoring? Recipes for other flavors are also most welcome. A word of caution to those that are new to protein shakes you have to be careful to check ingredients as a lot are not gluten free. Thanks all for your contributions. I am loving reading the wealth of knowledge in the forums and have only recently signed up.
  4. I have a 19 month old son that I am suspecting may have Celiac. He is very small. He is 19lbs and only 27" tall. He has been sick since the day he was born. He is constantly constipated and vomits almost daily. He also has chronic respiratory infections. As of about 4 months ago, I started seeing these small liquid filled sacs in his stools. They are comparatively about the size of a grain of rice. The will pop if you squeeze them and a clearish yellow liquid will come out. I have had him tested for parasites and it came back negative. My son has always had issues with constipation and gas. His stomach stays big and swollen. We have an appointment at Texas Children's with a GI next month, I am just trying to narrow down things I can bring up to the doctor. When looking at the symptoms of Celiac's everything seemed to click. Right down to his asthma and size issues. When I asked his pediatrician about the sacs in his stool he was at a loss and could not even begin to make a guess. I myself also have had a diagnosis of IBS with bad episodes of constipation and diarrhea. Celiac is the first thing in my mind and I am kind of just wondering if these things sound like this may be the answer to our problems? Any help would be extremely helpful and appreciated.
  5. I was wondering if anyone else has lost massive amounts of weight ( I have lost >150 pounds) pre-diagnosis and wondering how you deal with all the extra flabby skin?  I know weight lifting will help with my arms, but my legs and belly have some hanging skin and stretch marks.  Any help would be appreciated.  Thanks
  6. I have been wheat free since December.  The main reason I made the shift in my diet was because I read Wheat Belly.  I have noticed great changes with my health.  I sleep better, have more energy, digestion is much better, skin looks better, and I overall FEEL better.  The one thing that I have not noticed is the weight loss.  I have not lost 1 pound.  Now, I know what you are thinking "this guy is obviously replacing the carbs with carbs".  The truth is, I eat the best I have ever eaten in my life.  I don't eat processed foods, chips, or sweets.  I have a Nutribullet smoothie every morning, eat nuts and seeds, lots of fruits and veggies... I still have not lost 1 pound... I have eliminated GMO foods... still not 1 pound...   This is very odd for myself as before I was very yoyo.  I would gain and then with little effort, I would lose.    I am wondering if any of you have any suggestions or similar problems.  Is there something that I am not being told or should I just stick it out and expect it to fall off shortly?
  7. I just had blood tests showing positive for Celiac disease and am awaiting an appointment with the gastroenterologist.  Since I had my child (2.5 yo) I have not been able to lose any weight whatsoever no matter what diet plan (though hadn't tried gluten free before).  Before I was told i had to continue eating gluten until my biopsy I gave it up for two days and had lost 4 pounds!  I'm wondering if there are many out there who were obese and lost weight successfully after they went gluten free?  I don't want to gain more weight like I see some people have done as I'm already way to overweight and have been since i was a child.........   Also, if you have lost weight (and needed to!) after going gluten free...any advice??? Thanks!
  8. I had my first prenatal with my OB (others have been with my reg. doc) and my doctor was a wee bit concerned with my weight gain. I've only gained 1 lb (in total and I was wearing my boots etc. so I don't know if I have even gained that).   I explained how my thyroid has been regulated recently, I've cut out gluten and that I eat the same if not more than my husband on a daily basis (who was there for a visual) - he's 6'1 and about 220). I also said that my regular doctor said my pre-pregnancy weight was likely higher than it should've been naturally and that is why I haven't gained much as my body was sorting itself out.   He said it's all well and good but that I should be gaining a pound a week going forward. I feel like other than having a food funnel that I can't physically eat more than I do currently!   Has anyone else experienced this and have suggestions about what to add to my diet? Here's my norm foods:   Quinoa, rice, rice pasta, avacado, nuts, yogurt, meat, eggs ,fruit, and veggies with a side of ice cream/cheese. I am sensitive to dairy so I can only have one serving or so a day.
  9. I'm wondering if anyone out there has an understanding of weight loss when it comes to gluten intolerance.  I'm still trying to figure out if GI or Celiac is my problem.  (Or maybe it's time for me to wave the white flag and go get some antidepressants.)   In the last two months I have lost 20 pounds.  It's true, I've been through a big life trauma (my son passed away).  But I have continued to eat, eat, eat.  In fact, I've been keeping a log, just to prove to my doctors that I am, indeed, eating at least 2000-2500 calories a day.    I am very constipated, and so I do NOT have diarrhea and there is no fat in my stool.  So, if I'm still eating about the same amount of calories, and do not have diarrhea, then how can I be losing weight?   So the question is... where does the food go, if not as weight onto my body?  In other words, do Celiac's lose weight only because they have diarrhea?  Can there be other ways to lose weight?  I'm just baffled...   I did do quite a bit of cheating on my diet in January...    Thanks for any thoughts you all might have on this!    
  10. I would like to hear from Celiacs with Chronic Kidney Disease. Recently there has been more research of a correlation between the two. I was recently diagnosed. I have been able to find a little information on a combined renal and gluten free diet. What I have not discovered yet is the comparison of gluten free flours and wheat flour in terms of phosphorus content levels.   Here is a synopsis of my sudden diagnosis. I hope it helps someone else, as well as finding someone to support me.   About a year ago the night sweats unrelated to menopause started, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.
  11. Hello everyone, (Warning: Extremely Long Post!) I am brand new to the forum and quite the confusing case. My not feeling well all began in late 2009 with extreme brain fog, mild tummy issues, mainly stomach burning and fatigue. I began breaking out in strange rashes off and on and seemed to be having peculiar reactions to food. At first I was so confused and caught off guard because I suddenly became Lactose Intolerant. I couldn't consume dairy without getting stomach cramps, gas and having to run to the bathroom. I seen a GI Dr. and was tested for Celiac back then (around the end of 2009) but it was negative and I have no idea what tests were run, the numbers or reference ranges that came of that test. Dairy continued to make me sick every time I had it. I appeared to react to everything from Dairy to Doughnuts and for some reason all sweets were making me kind of sick, so I thought maybe it was a sugar problem. I went to an alternative doctor and he suggested I go on a Dairy Free and Gluten Free Diet. Which I did - and I felt a lot better but not 100%. I'll admit, at the time I really didn't know a whole lot about Gluten Free diets and I have no idea if I was totally Gluten Free or not, it was a long time ago and I was a newbie. I indulged in quite a bit of supposedly gluten-free processed foods and even still ate oatmeal until oatmeal seemed to also make me sick. Then I removed oatmeal from my diet and still haven't eaten that to this day, I am too worried about it making me sick again. After eating that way for probably 3-4 months I developed an intestinal blockage in February of 2010. The ER Dr. said my intestine twisted shut on itself. I was referred for a Colonoscopy in March of 2010, they did an Endoscopy and Colonoscopy at the same time but were not looking for signs of Celiac specifically. The results were that I have a hiatal hernia and everything else appeared normal. (no biopsies were taken, as they were not looking for Celiac) I fell off the gluten-free Diet but remained Dairy Free almost entirely. I would occasionally consume a bit of dairy to make sure it still made me sick, which it did. So I ate pretty much everything but Dairy till mid 2011 where I went on a very strict, almost Grain Free (it allowed brown rice) - Nut Free, Sugar Free, Still Dairy Free Diet. And I felt really well eating that way because before going on that diet, it seemed like everything made me sick. A bowl of oatmeal, a tuna sandwich, you name it. I had been diagnosed infertile with high likelihood of Endometriosis in 2011 - I had been trying to conceive for two years at that point, so my doctor told me I was infertile. Till 2012 (after 3 years of trying) when I became pregnant! I have no idea how I was able to conceive but I suspect it may have been the diet I was following that helped. And I ate that diet from Mid 2011 till August of 2012 where my 1st trimester pregnancy cravings got the best of me and I began eating pretty much anything. I didn't feel well after going off my diet but I assumed it was just pregnancy stuff. I also discovered that miraculously I was no longer lactose intolerant. Which pretty much brings us to now, I ate whatever I wanted during my pregnancy, had my healthy, perfect son 9 months ago and my health has been going even more down hill since then. I am suffering from Chronic Diarrhea, Nocturnal Diarrhea that wakes me from a dead sleep, not every night but increasing in frequency. I am going as much as 2-8 times a day, most days but not every day. My Lactose intolerance seems to be coming back as I can only occasionally tolerate dairy now. This has been going on for several months and I am losing weight. I am Vitamin D. Deficient again but I was diagnosed Vitamin D Deficient back in 2010 as well, so that is no shock. Brain fog, fatigue, intestinal cramping, tummy pain and most recently Burning sensations, tingling and painful pins and needles in my feet and hands. Cold hands and feet, except when they are hot and burning. Still getting rashes off and on. Which prompted a B12 test that shows a huge decrease from 4 years ago but still good serum levels, no B12 Deficiency. I am having weight loss, unintended of course, my Dr. thinks it is most likely due to the Diarrhea. I have lost over 11 pounds in about 2 months despite having a pretty big appetite and having dessert after every meal and not trying to lose weight. My Dr. ran an IgA test and a TTG-IgA test on January 10th 2014. IgA     188     (Normal is 80-340)  So that is normal. TTG-IgA     <1.2     (Normal is 0.0-3.9)  So that is normal too. I am kind of at a loss, I seriously thought maybe Celiac was the answer for me, since so much seemed to fit. The Nocturnal Diarrhea, the weight loss, even the fact that I was able to go back to eating dairy after the special diet, I thought maybe that was from my Villi Healing and that now I am Lactose Intolerant again because my Villi are getting damaged again.. Even how I was able to conceive after being on my special diet for almost a year but who knows, I'm confused now... any suggestions? There are quite a few Autoimmune Disorders in my family. I have a Sister with Lupus with Kidney Involvement, I have another Sister who has 2 AI's, she has Eosinophilic Esophagitis and Areata Alopecia. My Mother is also sick but hasn't gotten a diagnosis yet and I have a cousin with MS. I am sorry for the long post, thanks for taking the time to read this and any suggestions or comments would be greatly appreciated. Thanks so much! ~ Thursday
  12. So...   As many of you know, I have been practically primal for over three months now. it does help a lot with my tummy, especially since I have limited my intake to 3 brazil nuts per day.   90% of what I eat is whole foods; the 10% of foods including human intervention are: milk and yogurt, coconut bread, sometimes two tablespoons of organic fruit spread (unsweetened) at breakfast, and, increasingly rarely because I've had reactions to it, very very dark chocolate. I only drink water, coffee, and tea; rarely enjoy a glass of wine if dining out (read: no more than twice per month).   I exercise 6 days a week (sometimes 7, or on the 7th day I walk a lot) for 90-120 minutes: usually half medium-high impact cardio, and half strength training; I rotate activities - dancing, bootcamping, running, etc.   I am hyperthyroid - or so I was in January. I have all antibodies for both Grave's and Hashimoto. My FT3 and FT4 were through the roof. I am getting treatment trying not to suppress my thyroid function because I have seen lots of "suppress and replace cases" around me which did. not. go. well. Many symptoms are disappearing. Insomnia, especially, is mostly gone. My period is back - sorry for TMI - after being in menopause for a year and a half (I am 30) following being underweight due to thyrotoxic crisis in 2011.   Now I am 30 lbs overweight, and no matter how hard I try I do not lose weight, but pounds keep creeping up. I gained 15 in a week in July 2012. I was hypERthyroid then. Then I gained 8 lbs in a month in October, soon after going gluten-free. I was still hypERthyroid. Then I gained 7 lbs in the past few months, while being primal/low-carb/calorie counting. AND *very* hypER.   My joints hurt from excess weight. I cannot move properly and I used to be a ballet bun. Lots of this is water weight - I have hypoalbulinemia. My cortisol levels are below range, so that's not what's making me fat.   What is going on with me? It is not just frustrating that no matter what I do my weight goes up and up, it is also scary, because no one seems to have neither an explanation nor a solution. :( :(   I want to cry
  13. Please help!!   I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start?      Any and all help would be greatly appreciated!!   Thanks so much!!
  14. Hello! I'm new here   I don't have celiac disease (confirmed by biopsy), but I am gluten intolerant and thus have been put on a gluten free diet. Actually, my gastroenterologist told me to go gluten free a couple years ago, but I didn't want to bother because I thought it was too big of a hassle and that I don't really need to do it...then the turning point came last week when my endocrinologist (I have hypothyroidism) increased my medication yet again and I remembered the possible connection between gluten intolerance and other autoimmune diseases/thyroid disease. I am actually a professionall trained ballerina, I study in Russia, but I became so ill from the hypothyroidism (and maybe the gluten intolerance) that I had to return home on medical leave and I am only cleared to go back to Russia in January! Oy. Anyway, something clicked and I decided to finally take the initiative to do what I was supposed to do two years ago and go gluten free! I have to be healthy to dance   So I am new to this - it's been less than a week! But within the first day I noticed an obvious difference - and I must say I am stunned. I am also pleasantly surprised that I am having an incredibly easy time with this! My mom said that the fact that it is so easy for me might suggest that my body really does need to be gluten free. I also think it's because I already don't eat many processed foods to start with, so I guess I didn't have to go through as big of a 'loss' as many others do.   Anywho. I have a bit of a dilemma and I would really appreciate your suggestions on this! I currently walk to work but I am now upgrading to RUNNING to work! This is awesome and I am so proud of myself It does bring with it a small issue - lunch - but luckily it can be worked around and remedied! On Monday mornings I will walk instead of run so that I can carry a backpack with lunch food for the week and work clothes for the week, and walk home to bring it back on Friday afternoons. As such, I am trying to make a list of foods I can keep at work to fix myself a lunch. The catch is that the items need to meet the following criteria: Very limited fridge space, but plenty of cupboard space Gluten free obviously Peanut/tree nut free (not allowed at the school) I DO have a microwave. I am in walking distance from a supermarket that I can go to if I must, but I am trying to save money so would rather not make a trip there every day. And I am trying to avoid snack items and focus more on actual real food (I don't like snack products so much). I figured I should invest in a microwave rice cooker and possibly a microwave pasta cooker in light of some of the items I have come up with, listed below.    So, anyone care to add to the beginnings of what I hope will be an extensive, creative, and impressive list?   100-cal packs of popcorn Packets of grits Gluten free oatmeal Cream of rice Bob's Red Milk gluten-free Mighty Tasty Hot Cereal Knorr Bouillon Yogurt Beef jerky V8 cans gluten-free cold cereal Milk Almond milk gluten-free Bars (KIND, NuGo, Luna, etc.) Tuna Avocados Baby carrots Fruit Applesauce/Buddy Fruit or other similar Rice, buckwheat (I can invest in a microwave rice cooker) Potatoes, sweet potatoes (I can make those in the microwave, right?) Are there any other self-stable veggies I can cook in the microwave?   That's all I have for now! I am so sorry this post was so long, I just wanted to introduce myself properly since it's my first post   
  15. Strange Things Going On

    So I'm about 10 days into my 100% gluten free diet because of celiac disease and let me tell you, it has been interesting to say the least. About 2 days ago, day 8 I started having very vivid dreams. Mostly erotic dreams, go figure!! Haha. Anyway, I know that we all dream but it seems like my subconscious has taken a walk down the red light district. The last time that I can really remember dreaming like this was when I quit smoking 3 years ago. It seems like I have the ability to stop and start and control when and where my dreams take me. Strange right? It must be a byproduct of my new lifestyle changes. Also, my anxiety and irritability has subsided considerably. My memory is working better and my mood has elevated and is more stable and I find it easier by the day to be my old self of glass half full again. I guess that it really is true that you are what you eat. No explanation for the red light district thing though but who's really a victim here right? Has anyone else experienced these types of things? What seemed to be a real bummer 10 - 12 days ago, has really turned out to be a very good thing so far. I just thought that I would share this with all and get some feedback.
  16. Hi Everyone! I am a 23 year old college student who is self-diagnosed gluten sensitive as of last week. I have had SO many behavioral issues in the last few years, ranging from mood swings, anxiety, memory loss, and obsessive behavior. NOT to mention chronic sleep disorders like running, hitting, and talking in my sleep. I also have suffered from anemic tendencies and fatigue in the afternoon.   I always would get terrible stomach pain as a child, and therefore grew used to the feeling of being uncomfortable after eating. Last week I decided enough was enough after eating out at an expensive dinner, and driving home in pain with a bloated stomach. (Literally, all I had was one small bread roll, half of a salad, and fish w/ veggies).   Just one day after cutting out all gluten, I felt AMAZING. Relaxed, clear headed, and content....for the first time in years. I haven't had any sleeping issues for a week, which is amazing considering I usually have an episode every other night. Obviously, not being bloated, cramped, and gassy every day is life changing as well.    I just wanted to say hello, and that I can't wait  to see the amazing effects it continues to have on my behavior! Did everyone see effects right away or did you see certain behaviors fade over time? I really hope this helps with my memory issues...
  17. Hi all, My first post here. First, I tested negative for Celiac Disease. I do think, however, that I am sensitive to gluten nonetheless. I have little to no G.I. symptoms. All of my symptoms are neurologically based. The main ones are... -Horrible brain fog (this is the main symptom) -Occasional migraine-like headaches -Fatigue -Dysautonomia (chronic orthostatic hypotension) -Loss of hunger (when its really bad) -Dizziness I've decided to start on an elimination diet and eat plain rice for a week or so. Then hopefully I'll see some improvement. I'm just wondering if anyone else out there has experienced a similar set of symptoms and could tell me their story. I'm wondering if this is 100% curable and how long it might take to get appreciably better. Thanks for your time and consideration.
  18. I have endured gastro-intestinal symptoms for a long time such as cramps, gas, constipation, fatty stools and diarrhoea. As a result I was diagnosed with IBS twelve or so years ago. Along with this I have experienced low weight and unexplained weight loss for nearly a decade. This has progressed from me finding it difficult to stay at a low but healthy BMI, to struggling to stay in the underweight rather than dangerously underweight category. I went to a doctor (not my usual GP) as I was worried about my weight loss and felt that it might be related to my GI problems. I explained that I felt as though I was not getting any energy from my food and was worried that despite gorging myself on high calorie food, I could not even maintain my weight, never mind gain any. This doctor said it was probably nothing to worry about as I am young and healthy. At this time I had never heard of coeliac disease. Not too long afterwards my sister started experiencing similar symptoms and saw our usual family GP who gave her a battery of tests. Her coeliac test game back positive which led to me looking into coeliac disease and realising how well it could explain the problems I was experiencing. I went to the same doctor who duly gave me tests for coeliac, iron levels, and inflammatory bowel disease - and expressed surprise that I'd had no such tests. After waiting what seemed like an age, all my tests finally came back. To my annoyance, the coeliac test was negative. I was so hopeful that I might have found the answer to my problems that I felt somewhat defeated, and sure that I was just going to by palmed off again as a time waster. The only thing that came out unusual was my iron levels, which were low. As a 25 year old man who puts a lot of effort into my diet this seems very difficult to explain. When I went back to my doctor he took my weight (60kg). Which he noted was a 9kg reduction from the last time I had been measured just five months prior. He also agreed that there was no easy way to explain why my iron levels were so low and told me he was going to refer me for an upper and a lower endoscopy with biopsies. He even said that in his opinion he feels coeliac disease is still the best candidate for the cause of my problems despite the negative blood test. I must say I feel fantastic that my problems are finally being taken seriously, though I have absolutely no idea what my endoscopies throw up. I really hope it turns out to be coeliac as it could be something much worse or even worse it could be inconclusive in which case I have no idea what might happen next. I wonder, has anyone else had an experience like this where their symptoms indicated the need for biopsy even after a negative blood test. If so what was the result? Are there any other conditions that might turn up which would cause the same profile of symptoms?
  19. Hi, I am new here, looks like I am pretty well in early diagnosis of celiac disease with a positive DGP test and my son has been experiencing some strange symptoms and I was looking for anyone whose child maybe going through the same whose child was dx'ed with celiac. It all started when he was about 2, he started getting swollen glands all over the neck. I was worried and took him to his pediatrician who did blood tests and all came back normal. Then about a year later I noticed more popping up so his doc had him referred to an ENT who decided to do a biopsy of the nodes which came back clear for cancer and they were mainly suspicious of lymphoma. They said the nodes were reacting to something, but they didnt know what and that he would most likely grow out of it. About 8 months ago, my son began acting differently also. He would get extremely hyper, and I know kids are hyper, especially little boys, but this was not normal. He was so full of energy that he couldn't stop running around the house and had a very very hard time sleeping. My husband commented about it saying he was very worried he has ADHD. I also noticed that he was sweating in his sleep profusely and he would often complain of ulcers in his mouth hurting while he was trying to eat. I took him to another pediatrician in the same office as his main doc who looked at the ulcers in his mouth and she said it could be autoimmune related and that she had never seen anything like that before. But she said autoimmune disorders are very hard to dx in kids. He gets reoccuring mouth sores quite often. My husband just pointed out the other day that he had bald spots on his hair, and I dismissed that thinking he just inherited my fine, thin hair, but today I noticed a patchy bald spot at the top of his head. Now I am franKly worried. I have been having my own health struggles and barely had one test come back positive as I said earlier in my post that indicates celiac disease. I want to know if any of you parents have had similar issues in your kids who you found out had celiac disease or possibly an allergy to milk, lactose or anything else. ANY input is so welcome and thanks in advance.
  20. I'm curious to know when you started gaining weight? I have been gluten free for more than 6 months and I just recently had normal antibody levels too. But, I'm still not gaining weight and having a tough time managing my weight. I'm dairy free. I eat until I'm full, eat 3 meals, 2 snacks and some fruit everyday. Thanks for your help.
  21. Hi everyone, my name is Josh and I'm 23 years old. I'm new to this forum and to Celiac disease, I haven't got an official diagnosis yet but I know I'm barking up the right tree.I used to weigh 310. I've lost 80 pounds in the last 8 months but I started having symptoms about 3 months ago, It was hell on earth. I just woke up one day with really bad brain fog, diarrhea and mucus in my stool (Sorry if TMI) and I just felt really lethargic and had. I had light sensitivity and a host of other symptoms. As the next few days went on things just got incredibly worse. I went to the ER and they told me I was dehydrated and my potassium was low, gave me a saline drip and sent me home. Went two more time in the next couple of months and nothing. I went to my doc and he ran some tests and my thyroid levels were: TSH 0.63 uIU//mL Free T4 0.82 ng/dl Free T3 2.50 pg/mL My doctor said it was fine. One day I realized that I always felt really bad after I ate. If I ate something high in gluten I would have a physical allergic reaction and get so mad for no reason. So I did some research and I tried to elimnate gluten as much as possible. I started to feel better but not back to normal. The brain fog lightened up, the light sensitivity went away, my stool was more normal and I had a little more energy and I wasn't getting mad. I only got the mucus if I got glutened. This lasted for a couple of weeks and now it's almost like being back at square one. I'm not eating gluten but I get the mucus and the brain fog has gotten a little worse, I'm fatigued. This biggest thing for me is the brain fog and memory issues. My short term and long term memory haven't been good. Sometimes I have to work hard to remember details from a couple of days before. I remember things that happened a long time ago but my thought a really fuzzy so it makes it difficult. I've also lost interest in things I used to love. I'm seeing a new doctor and he sys it sounds like some sort of malabsorption. He was the first doctor to actually listen. It felt so great to have someone take me seriously. He ordered test for my B12, Folic Acid, Vitamin D, Iron, Ferratin, and 3 gluten antibody tests. It's been a few days and I'm still waiting to get them back but they shouls come soon. I also have a lot of undigested food in my stool. If I eat spinach, I see spinach, I saw a whole sweet pea one time. I bought some plant based digestive enzymes but they haven't arrived yet. Do you think they will work? I know I need to get some vitamins but I'm very low on cash so I only ordered the enzymes because I felt they would help to get to the source of the problem. Has anyone else had memory issues? If so how long did you deal with it, how bad was it and did you recover? I just want my sharp mind and clarity back.