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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Found 68 results

  1. I did Ideal Protein 2 years ago and (surprise!) got pregnant with my second child. Now that he's weaned, I want to do it again. They have Gluten Free options and I have ~ 50 lbs to lose. The weight has started coming back on after my diagnosis a few months ago, so I need to do something to get it under control. I've been eating 'whole, real foods' but the weight is not coming off. I want it off for more than cosmetic reasons. So, that being said, any Celiacs here have success with Ideal Protein? A woman I met yesterday did it Gluten Free is at her goal weight, but she's not Celiac, but NCGS. Pitfalls? Concerns? Really any thoughts at all are welcome.  I have Type 1 diabetes too, but that's so old hat to me now...and I obviously had it 2 years ago when I did IP before. I lost 20 lbs then. Just not sure what to expect when adding my fancy new disease. My goal for after the weight coming off is to of course stay 100% gluten-free, but also to lean more towards a paleo lifestyle. I'm dragging my whole family along at the adventure. I'd rather my kids not eat chicken nuggets more than 1-2x a month. If you catch my drift.
  2. Hey everybody, so I have a friend (female, 20 years old) who has NOT been diagnosed with celiac and does not think she is allergic to wheat but is having severe tummy issues. symptoms and factors: shooting stomach pain immediately after eating anything nausea and pain for almost 40 minutes after eating unintentional weight loss (30 pounds in 1 month) high stress environment on medicine from doctor (to coat her stomach throughout the day) long term, 8 months... Whenever she eats anything, for almost 8 months now, she experiences nauseating shooting pains that go through her stomach immediately whenever she eats anything. Her doctor put her on a medicine that coats her stomach throughout the day, so she takes it every morning before she eats, and it is the only way she is currenty able to eat. Since this began she unintentionally lost 30 pounds in a month and continues to loose weight. She is in college and taking many hard classes so stress could be a factor. She has not had a scope to look at her stomach to check for ulcers because she can't afford it right now. I got her to start trying kefir and see if that helps. Does anyone have any ideas or suggestions!? It would be super appreciated, any imput is really awesome! Thank you!!!!
  3. I was diagnosed with Celiac Disease 3 weeks ago. I am amazed as numerous symptoms that I didn't know I had are vanishing (post nasal drip, fatigue, joint pain, muscle weakness, de-yellowing in nail beds, etc.).   After cutting out gluten 100% including in body care and cleaning products, I am noticing that it's much easier for me to gain and sustain muscle, and that my muscle mass is double what it was. I lift weights and do yoga for health (am not a body builder). 6 months ago I had to stop yoga because I could barely get into downward dog without feeling my blood pressure shoot up, so needless to say weight lifting was out too. I couldn't even pick up a 15 pound weight to move it while cleaning the floor.   Has anyone else experienced this miraculous change? I easily see 2X the muscle gain that I did when I was lifting at my heaviest a year ago.
  4. I went gluten-free over nine years ago. I was always thin - 5'9" and roughly a size eight. After years of chronic pain and mood issues and insomnia a doc caught the celiac. Soon after quitting gluten all symptoms subsided but I quickly gained A LOT of weight. It's been many years, many docs and MANY different diets. I can't lose the weight. I've tried every variation of diets and it doesn't budge. I exercise regularly and eat a fraction of what others eat. I'm so tired of people telling me "calorie in calorie out." It's BS! I've seen tons of docs, most of which don't believe my diet log. I did crossfit for five years. The more paleo I ate and the harder I exercised the more with I gained. Doc told me I blew my adrenals so I stopped and stuck to walking for eight months. I recently took up yoga and I'm gaining again. I like to about about 90% paleo, organic with minimal red meat. I also don't eat soy and I never drink coffee. My thyroid tests are normal and I've tried all the thyroid meds and they don't do anything. I'm about 40 lbs over weight and SOOOOO tired of it. I'm covered in a very fatty layer and look full of cellulite. I do supplements, cleanses, you name it. If I eat fruit, it's low glycemic. I only eat minimal nuts to avoid calories.    It just doesn't add up. I'm pretty sure, whatever anyone suggests, I've tried it. I've seen the best docs in the area and they are baffled. I have high insulin but I'm not prediabetc. I have gorgeous blood work - It appears I'm very healthy. I've monitored my blood glucose and... normal. My A1C is 4.6! I have a team of naturopaths and no one can figure it out!   Anyone else have this problem!?!?  I'm fat as hell and I shouldn't be. If anyone wants to tell me I don't eat enough... I tried that route too (more food, more frequently to boost metabolism - nothing).   IDEAS!?!?!?!?!?!?
  5. Lost

    I'm at a loss.  I still haven't been feeling well and it's been over a year since my diagnosis.  I have recently gotten new doctors, moved to a different hospital, so I had all my yearly labs drawn from a new doctor.  My vitamin levels are all normal, barely, but normal.  My antibody levels have flat out stalled since I had them drawn in August.  They haven't gone down or up.  My new GI seems to think I'm some how getting glutened.  My daughter and I eat all the same foods, use all the same products and her antibodies are completely normal, the only thing different is I take Thyroid medication which I have called on and am told it's gluten free.  I never go out to eat, barely eat anywhere but home.  I don't feel like I'm getting glutened, even low level cc usually makes me get headaches, brain fog, the whole gamut.  Have I just not given it enough time?  I'm still losing weight, not nearly as fast as I was before, but still losing it.  My energy levels are next to nothing ( TSH is normal) and I'm dizzy all the time, fainting a few times a week.  My boyfriend and I have been over our house multiple times and find nothing.  I guess I'm just lost on where to even start looking.
  6. Hello all,   I have been suffering for some time now and just learned I am severly malnourished and have Celiac Disease (confirmed Monday).   The GI specialist said (in from of my boyfriend who has now become a mental basket case) that this is a last-ditch effort treament. He expects 100% cooperation YET I still haven't seen a dietician (only a student who is studying to be one when she grows up). He has given me a supplement plan including a peg for home IV but I- don't know yet how much of that is covered.   Any way, I have a medical app that allows me to set the number of carbs, protein, fats and SO much as my goals so I can measure them when my blood tests come back.   Does anyone know of a place to help figure these goals?   Thank you, Laurie
  7. Pregnant Celiac

    I rarely post on this forum, but given my change in circumstances, I'm hoping I might gain some good information.     I have had celiac disease for almost 3 years and a year ago was diagnosed with hypothyroidism.   I've just had a positive pregnancy result and am only a few weeks pregnant.   If anyone has or is going through the same condition and had a successful pregnancy I would love any advice you might have.    In particular I'm concerned about supplements and getting the correct nutrients from my diet.   Look forward to any replies!
  8. I was diagnosed with Celiac through a blood test. My doctor was checking my thryoid levels and tagged the Celiac test on because I mentioned I was having heartburn and acid reflux that had gotten better when I cut back on gluten. My thryoid levels were normal, but he noticed my thryoid was swollen when he examined me with his hands. I was referred for an ultrasound that revealed two nodules which were later biopsied through an FNA.   I was later diagnosed with Thyroid cancer and have been dealing with the emotional fallout from that. I am too overwhelmed with that, my final semester of grad school, and my demanding freelance work to seek out a doctor for the Celiac right now. I have been 100% gluten free and all of the symptoms of Celiac that I didn't even know I had are in the process of going away or are totally gone.   I plan to stay gluten free for life, but am wondering what the benefits are of seeing a gastro doctor for this? If I say I don't want the endoscopy (I don't feel it's necessary and I refuse to eat gluten again for 4-6 weeks simply for this test when I know what it's doing to me), will he still refer me to a nutritionist and to other specialists for testing of associated conditions? I am particularly worried about my bone density. I am 30 and in otherwise good shape, but the thought of having another condition (I suppose cancer is the first) caused by living for so long with undiagnosed Celiac is scary to me.
  9. Hi all, I had the best Dr's appointment yesterday, with my allergist, and he got me really thinking about what's going on with my body. After we talked about my allergies and how allergy shots were going (I'm so allergic 4+ to everything), I told him that I had been diagnosed with celiac disease in January and that I was still having trouble with bloating, D and fatigue. He says have you been tested for Hashimoto's? That it goes hand in hand so often with celiac. It turns out that his wife has both! This is the first Dr. I've encountered who has actual real life experience with this disease. So, I picked his brain for a while. We talked about how there are no good celiac Dr's where we live. He and his wife have been to see Fasano. He told me if I came up with any questions about celiac to feel free to call because he and his wife have been through it all over the past 2 years. Amazing appointment...a Dr who gets it!! Anyway, I was diagnosed with hypothyroid shortly after my oldest was born 14 years ago. I've never been tested for Hashimoto's. I've only ever had TSH and T4 tested. My allergist said that until the thyroid is working the way it needs to, the gut will have issues. Is that true? Could this be part of my issue? The last time I had my thyroid checked my TSH was 4.65. So, my Dr. upped my dose to 112 mcg. That was 4 weeks ago and I'm supposed to go in 2 weeks from now to have it re-checked. I think it's time that I ask for everything else related to the thyroid to be checked. Anyone know exactly what that is and what levels should be. Almost forgot...When I had my blood work done, both my ldl cholesterol and triglycerides were high...they've always been low before. I've been having so many weird issues lately....beyond the digestive, I've got some issues with my period and have realized thanks to my food diary that all of my digestive issues get much worse from ovulation-period. So 2 1/2 - 3 weeks out of the month I feel bad. Ugh. I guess I'm searching and wondering still, but things made sense yesterday. I guess it could also be female hormones...perimenopause? I will be 43 soon. I'm wondering if anyone knows how this all works together and how Hashi's and other hormonal issues could affect things like digestion, D, bloating and fatigue. Thanks in advance for all input and wisdom!
  10. Hello everyone! Hope you are having good days. I found this forum while I was yet again Googling furiously today. I do not have diagnosed Celiac disease. I was tested by blood test about a year ago, and although I can't find my test results at the moment I remember it was borderline, my antibodies were high but they said it was negative for Celiac. Before then I had been eating gluten-free for 12 months, reintroducing gluten maybe 1-2 weeks before the test. Anyways, here are the symptoms I have....I'm just at a loss of where to turn next. I've seen so many drs., so many specialists, tried so many medications, so many diets. I'm only 26 years old, Female, BMI 23 (normal weight). I would do anything for just a partial answer on what could be causing all this: Hyperthyroidism at age 15 (complete thyroidectomy due to stage 0 tumor on thyroid), now regulated Very low weight growing up Migraines since age 7 or 8 Frequent headaches IBS-D (IBS-C as a child, real bad) Frequent nausea/bloating/feeling full too fast Severe menstrual cramps, possible endometriosis or cysts Stomach ulcers/gastritis when I take NSAID pain relievers only a couple times Infertility (trying 5 years now) Anxiety (this is kind of a chicken or egg thing, I'm sure it makes everything worse) Hypoglycemia/sharp drops in blood sugar especially after carbs Terrible teeth Frequent sinus/ear infections I didn't start my menstrual cycle until after my thyroid was taken out, so almost age 16. I was also extremely skinny. I rarely had more than 1 or 2 bowel movements a week, despite eating what was probably 3,000-5,000 calories a day. It was extremely painful and caused long term nausea. Although, I don't really notice short term a difference when I cut out gluten. I feel better in general for sure. I can't tolerate hardly any dairy without IBS symptoms, even taking Align (which is amazing btw). My mom found Celiac a couple years ago and that's when I took it seriously but my negative test results sent me back to square one. Thank you for reading and I would appreciate any advice, thank you so much.
  11. I'm 18 weeks pregnant (19 weeks tomorrow). I've been on a gluten-free diet for nearly 2 years, and last year I found out I was also sensitive to dairy, corn, and several grains (tapioca, teff, millet). I also have Hashimoto's but I'm on medication and my antibodies have gone way down since going off of the foods I'm sensitive to. I'm 5'1" and right now I weigh 103.5 lbs. I weighed 100 before I got pregnant and I gained 3 pounds in the first few weeks of pregnancy, but then had horrible morning sickness for about 3 months straight, causing me to drop down to about 95 lbs. Then I got hit with a stomach virus about a month ago which caused me to drop again down to 92 lbs.    So I'm glad I've finally passed 100 again, but I am just not gaining much weight at all--maybe 1 pound every two weeks. The thing is, I have been eating like CRAZY. According to a calculator I used, I need to be eating at least 2500 calories a day to gain a pound a week. I'm eating over 3000, literally stuffing my face all day, and I hardly notice a difference. The baby is healthy and growing quickly, but I'm not! Any advice for me?    If anyone's wondering, my typical diet consists mostly of meat, fish, seafood, eggs, quinoa, rice, lots of fruit and veggies, nuts (I have to be careful with nuts because they cause sinus congestion if I eat too many--I've already been tested for nut allergies and have none), seeds, smoothies, and occasional snacky foods like chips and chocolate. I've also been adding powdered gelatin to smoothies and soups for extra protein.    My midwife told me I really needed to gain 5 pounds in the next 2 weeks. Help! I've seriously never eaten this much before in my life!
  12. Does anyone have any recent information from AbbVie regarding their Synthroid .112 or .125 and whether they will say they are gluten-free? I cannot find anything definitive so far and am waiting to hear back from AbbVie. Unfortunately I'm pretty sure I can predict almost word for word what the reply will be, as so many of you already know ("blah blah blah")... I have read about some concern for the red 27 and red 40 in the pink pills, but am not positive if they contain gluten or not.   Thanks much!
  13. Another List Of Unsuccessful Experiments

    Hi again, dear world. [size=4]This is my second blog post. In the meanwhile I have had a really busy time testing new theories about [color=#0000cd]my undiagnosed disease[/color]. Here is what has happened:[/size] [size=4]In the end of November I visited my GP, and got a referral to visit a gastroentrologist in February. At that time I was so sure that I had [b]Hashimoto thyroiditis[/b], and two months of waiting seemed a long time, especially because I was so sure that this horrible brain fog could be [color=#ffd700][i]maganged with a simple hormone intake[/i][/color].[/size] [size=4]Why I was so certain I had Hashimoto was because I had had some mysterious days when all my brain fog and tiredness went away, this could last for 6-20 hours. Within that time I could eat whatever I wanted (although I haven't risked trying gluten) however much I wanted without starting of symptoms (normally every food has it's max allowed quantity and following long recovery period). And I had this unfillable hunger, was over-energetic, and often I couldn't sleep for the whole night. Resembles [/size][size=6][b]HYPO[/b][/size][size=4]->[/size][size=2]hyper[/size][size=4]->[/size][size=6][b]HYPO[/b][/size][size=4]thyroidism, where the hyper period happens rarely (year 2014 only 5 times total). For many months I'd tried to induce these hyper-periods, but with very little succes. I noticed that if they happened, then usually [b]right after my body had gone through some kind of stress[/b].[/size][list=1] [*]Drinking 1l milk, 300g honey. Then riding a bike for 2 hours, feel really bad. Then eating rice, my heartrate goes to 90 (higher than usual when digesting), and got brain fog and tiredness. And then, after 2 hours, voila, I get 16 hours of clear mind and unsatisfiable hunger. [*]Drinking 1l milk. Then right away running very fast for 45 minutes. Then rest for 2 hours, then eat buckwheat flour. Again, 90 ppm. And voila - 14 hours of energeticness. [*]Drinking 1l yoghurt. 4 hours of foggyness. Then 6 hours of hunger and brightness. Did an experiment - eat 500 grams of the same rice withing these 6 hours. Nothing happened (normally I get more disturbing brain fog after eating 200g). [*]200g cocoa powder, following really foggy evening-night, then the next day - very little fog, energetic. [/list] Sometimes it also happens when I have [color=#0000cd][i]diarrhea[/i][/color]. And always after having [color=#0000cd][i]fever[/i][/color]. Sometimes also for a shorter period [color=#0000cd][i]after feeling very tired after eating[/i][/color], then taking a nap, and the following meal is fog free. So you see, it would seem like sometimes the [color=#ff0000][i]stressful events cause some kind of fever-like reaction[/i][/color], that first feels very bad, but then especially good (like the disease has been fought off with great struggle). Stressful event presses the deteriorated thyroid to do its job in an emergency situation (bad feeling), and then with a last struggle it releases an exceptionally big amount of hormones (following over-energetic feeling). Plus:[list=1] [*]I also have painless/feverless [color=#0000cd]throat inflammation[/color] (at least 3 years). Due to lack of fever/pain and the time it has been stayed (completely unchanged) it can't be viral/bacterial. [*]My [color=#0000cd]throat feels tight[/color] [*]Seldomly there is [color=#0000cd]radiating pain around thorat[/color] (in throat, cheek and ear regions) [*][color=#0000cd]No knee-jerk reflex[/color] (symptom of 1.hypothyroidism / 2.anemia / 3.spinal cord dysfunction) [/list] So, yesterday I gave a blood test, checked for TPO antibodies, TSH, T3, and T4 levels. [color=#ff0000][i]All were in very normal range[/i][/color][b], [/b]meaning[b] NOT thyroid problem[/b]. I really had hoped for 2 months that this test would finally reveal what's wrong with me, but again, disappointment. Later I did some background research and I found out that none of my 4 brothers-sisters and also my both parents had no knee-reflex, thus it is hereditary (and probably harmless). And my mother also has throat inflammation (pharyngitis), and she doesn't have hypothyroidism. Mysteriously each symptom my mother has fits into hypothyroidism profile (and she has ~80% of those symptoms) but the tests show negative, so I hope if I finally get diagnosed it will also shed light to her mysterious case. In the meanwhile I also tested all [b]vitamins[/b]+most of (bio)[b]minerals[/b] that there exists (figured if I have a celiac then vitamin deficiency may cause some symptoms). At first it seemed some of them worked (B6, B9, D, and Cr), but later experiments [color=#ff0000][i]proved me wrong[/i][/color], again! Then i figured I haven't tried [b]HCl[/b] (low stomach acid + SIBO would explain the immune reaction I get - undigested food enters bowels, immune system doesn't like it and attacks). Again, in the beginning it seemed to help a litlle bit, but later when I took 15x larger amounts (7.5mg Betaine HCl), it made a very little difference. And when I think about it, it doesn't affect my digestion even when I drink like 1l of water right after having a meal, so it really [color=#ff0000][i]can't be HCl deficiency[/i][/color]. (Stevie and Jordan say it also has to have pepsin in it, mine didn't have. But I really doubt it would make any difference in my case, because pepsin can't function in low-acid/watery environment.) Fortunately I did discover one thing that [i][color=#ff0000]helps me a bit[/color][/i] - [b]caffeine[/b]. When I tried black coffee it a while ago, then it induced a horrible fog. Little less worse with different teas. But now I got a Herbalife tea, that has some kind of raw coffee and tea powder in it, and it works much better - it actually helps me digest. So, I purchased caffeine pills, and it confirmed my results. Unfortunately they have quite strong side effects - mild [color=#0000cd]diarrhea, urination pain, stomach gases[/color] and [color=#0000cd]little pain in stomach[/color]. I will try to find some other raw coffee pulber that would not have these side effects. What the effect could be from:[list=1] [*]Caffeine [color=#ffd700][i]reduces inflammation and innate immunity[/i][/color]. Maybe it reduces inflammation in my stomach and tells my immune system not to develop a reaction to the foods I eat often. [b]Differentials:[/b] [*]Caffeine [color=#ffd700][i]activates blood flow + stimulates nervous system[/i][/color]. Maybe the nervous system/muscles in my bowel isn't active enough (don't get enough blood), actually the nonfunctioning nerve-gut axis is linked to Irritable Bowel Syndrome. [*]Studies have also showed that [color=#000000]caffeine[/color][i][color=#ffd700] [/color][color=#ffd700]stimulates thyroid[/color][/i]. - Now ruled out in my case. [/list] So, I'm waiting my first appointment with a new gastroenterologist in February (last one was 5 years ago). I will tell her everything I have tried in these 5 years, it will rule out a lot of conditions. And this time I won't let myself be diagnosed with "Irritable Bowel Syndrome" without doing colonoscopy and possibly endoscopy to rule out [b]Inflammatory Bowel Diseases[/b] or non-healing bowel damage from celiac disease. I am going to [b][color=#a52a2a]defeat this disease[/color][/b], and when I do, I will do everything to help science [i][color=#ff0000]eradicate[/color][/i] the incurable diseases/better [i][color=#ff0000]diagnose[/color][/i] them and give people [i][color=#ff0000]choices[/color][/i] they have no control over.
  14. i have been having trouble gaining weight, or keeping weight on.  maybe someone has suggested this before, but there is an app i got for my phone that is called 'my fitness pal' - it's free (yay) turns out, i felt like i was eating a ton of food and not gaining but this thing calculated my recommended calorie intake based on what i weighed, how tall, etc and how much weight i wanted to put on.  i am still not to my goal, but have gained 6-7 lbs since then end of august.  and it's staying on :  my pants are fitting!  yayyyy!!!   anyways, this thing will even scan a barcode and tell you serving size and calories.  you can double the portion or cut it into whatever you want.  it stores the things you eat every day/on a regular basis and it will multi-add ie;  i eat cereal with banana for breakfast (alot, evidently lolz) and it comes up as a list.  i click multi-add, check boxes for cereal, banana, milk POW added quickly.    *disclaimer! - i do not work for this company nor am i affiliated with any of it's owners.  i can barely work my phone    hahaha   ps - my son saw this app on my phone and cringed("oh, mom, you're not counting calories, are you?!"  i said i'm kind of doing it backwards....), so i guess 'fitness' people use it and i'm guessing it's handy if you're trying to lose, as well.  he has the 'betus (diabetes type 1) and uses it to track his carbs/calories   this would also work as a handy food journal if you're on the go     
  15. Hi all I am currently managing a gluten free diet and weight loss and am enjoying protein shakes in the mornings to kick start my metabolism. A while ago I had found a recipe to make low calorie chocolate cookies out of the protein shake mixture and they were delicious and a good low calorie treat. I am currently loving my strawberry flavored protein shake and am wondering if anyone has any recipes for low calorie desserts that can be made with the strawberry flavoring? Recipes for other flavors are also most welcome. A word of caution to those that are new to protein shakes you have to be careful to check ingredients as a lot are not gluten free. Thanks all for your contributions. I am loving reading the wealth of knowledge in the forums and have only recently signed up.
  16. (Here is my Celiac Blood Panel results to see them - it might help shed some light on things.)   Hey, everyone! I'm back. And, I have new things to ask. I think I have Thyroid problems. And, I'm also still eating gluten regularly to make sure I keep up on it just in case my G.I doctor which I'm still waiting to get refereed to  does decide to do the endoscopy and biopsy. But, right now within the past few days I feel horrible - miserable even. I feel like lava (really warm) which isn't fun....   Anyways, my suspected non-Celiac symptoms are   Increased sensitivity to cold Dry skin Puffy face Muscle weakness Muscle aches, tenderness and stiffness Thinning hair My grandmother also had thyroid problems which makes me suspect that I have them since they were passed down. And, I have low hormones and my overall IgA is low. My neck feels a little painful&puffy recently plus a little lump possibly, too.    Can anyone help?? Thank you! 
  17. Diagnosed Celiac by biopsy 1.5 years ago. After diagnosis & gluten free diet my body started to go haywire. Everyone chalked it up to my gut was healing, and that it was a good sign. Just wait it out they said. It will get better they said... Then things didnt get better. Everything has persisted, and some things have gotten worse.   Symptoms: Weight gain (going from 140lbs to 170lbs. 31 year old female, 5'10") Controlled diet, under 1300 calories a day. Active city dweller without a car. Walk 10-15km/day. Minimal processed foods.  No cross contamination (believe me, I know, I will vomit profusely with a spec of gluten.) Swelling of hands and feet (and sometimes face) Extreme lethargy, especially in the legs (having trouble going up stairs & lifting feet) Acne Ridges on my nails Anxiety (which fluctuates) Perodic night sweats   I have persisted with my doctors, and was told last week that my thyroid levels were within the normal range, and that the only thing they could do to help me was put me on antidepressants if I wanted. I obviously dont want antidepressants as I dont think I'm depressed. I have a big problem voicing myself in doctors appointments, and often will end up in tears. I dont think thats helping them take me seriously. I feel overwhelmed. I am at the end of my rope right now. The only other tests they scheduled me for are a heart echo and a lung xray (they wanted to make sure my lethargy/shortless of breath wasnt heart/lung related.)   I had previously had IV iron infusions, and I get a monthly B12 shot.They say my iron is good enough right now. My doctors do not tell me any of my test info or levels. So I have no idea what they are. It took them 3 years to diagnose me Celiac as my only symptoms prior to diagnosis were malnutrition and anemia.   Has anyone ever experienced anything like this? Any suggestions on how to get them to take me seriously? Everything I google comes up thyroid.
  18. Im a 32 year old male with hashimotos disease/hypothyroidism.(antibodies for that were in the 2000-3000 range last time I checked a few years ago).As long as I can remember I have had stomach issues, but up until now starting to think I have celiac disease too. One thing that makes me wonder is why am i gonna be on almost 300mcg of levrothroxine soon(seems weird for my age). Was taking 5 grain armour split in half plus 25mcg levrothroxine daily before switching over to levoxyl. I have always had constant gas/painful stomach bloating/(diahrrea maybe once a week or so)when eating meat/eggs/and possibly breads. Have to take probiotics and gas medicine each time I eat something.   The thing is I was reading the blood tests aren't really accurate for getting a diagnosis of celiacs disease.I live in a small town aswell so not sure about a biopsy and if that's anymore better or if they can do it.I have just been stuck in a major depression with panic attacks anxiety all my life.The brain fog is horrible as well.Im lucky if I can remember things that happened a few mins ago.Besides that rant, just wondering if this sounds like celiac disease to anyone? Can you not have major symptoms and still have it? Whats the likelihood of getting celiacs disease when you get hashimotos disease?I really don't know what to do.
  19. I have a 19 month old son that I am suspecting may have Celiac. He is very small. He is 19lbs and only 27" tall. He has been sick since the day he was born. He is constantly constipated and vomits almost daily. He also has chronic respiratory infections. As of about 4 months ago, I started seeing these small liquid filled sacs in his stools. They are comparatively about the size of a grain of rice. The will pop if you squeeze them and a clearish yellow liquid will come out. I have had him tested for parasites and it came back negative. My son has always had issues with constipation and gas. His stomach stays big and swollen. We have an appointment at Texas Children's with a GI next month, I am just trying to narrow down things I can bring up to the doctor. When looking at the symptoms of Celiac's everything seemed to click. Right down to his asthma and size issues. When I asked his pediatrician about the sacs in his stool he was at a loss and could not even begin to make a guess. I myself also have had a diagnosis of IBS with bad episodes of constipation and diarrhea. Celiac is the first thing in my mind and I am kind of just wondering if these things sound like this may be the answer to our problems? Any help would be extremely helpful and appreciated.
  20. I was wondering if anyone else has lost massive amounts of weight ( I have lost >150 pounds) pre-diagnosis and wondering how you deal with all the extra flabby skin?  I know weight lifting will help with my arms, but my legs and belly have some hanging skin and stretch marks.  Any help would be appreciated.  Thanks
  21. I have been wheat free since December.  The main reason I made the shift in my diet was because I read Wheat Belly.  I have noticed great changes with my health.  I sleep better, have more energy, digestion is much better, skin looks better, and I overall FEEL better.  The one thing that I have not noticed is the weight loss.  I have not lost 1 pound.  Now, I know what you are thinking "this guy is obviously replacing the carbs with carbs".  The truth is, I eat the best I have ever eaten in my life.  I don't eat processed foods, chips, or sweets.  I have a Nutribullet smoothie every morning, eat nuts and seeds, lots of fruits and veggies... I still have not lost 1 pound... I have eliminated GMO foods... still not 1 pound...   This is very odd for myself as before I was very yoyo.  I would gain and then with little effort, I would lose.    I am wondering if any of you have any suggestions or similar problems.  Is there something that I am not being told or should I just stick it out and expect it to fall off shortly?
  22. I have suspected I have celiac disease (or at the very least am gluten-intolerant) for several years. I know very little about this disease and the more I learn the more confused I get. There is still so much more to learn and I feel overwhelmed reading about it. A few years ago, I read Elisabeth Hasslebeck’s book (I think it’s called the gluten-free Diet?) and was pretty convinced I had this disease. I just thought ok well one day I will get tested for it and deal with it then. Honestly, I did not want to have it. I read about all that you CANNOT eat and it sounded awful. So, I just put it out of my mind and thought to myself I probably don’t have it anyway.   I have suffered from gastrointestinal problems since I can remember. My main issues are constipation, bloating, horrible abdominal pains, and every now and then nausea. I sometimes feel a sharp pain under my left rib cage. Sometimes the bloating and uncomfortable abdominal pain hurts so bad it hurts to move and I have to unbutton my jeans in order to ease the pain. Sometimes I have painful diarrhea after a particularily fatty meaI. I have tried loading up on fiber and water to help with the constipation. I have tried drinking Miralax. I have eaten prunes, drank prune juice, eaten 25 grams of fiber a day (along with lots of water), drank green smoothies, and just about all that is suggested. Nothing ever helps. I have accepted that this is just how my body is and I will “go when I go”. If I go days without a bowel movement I will take a laxative, which helps, although there have been times it didn’t. I have also used suppositories and enemas (both working most of the time, however, there have been times when no bowel movement was produced).  Last year I was having shooting, stabbing pains in my tummy and a friend rushed to the store to get an enema. I layed on the bathroom floor until she came back because it hurt to move. I am currently suffering from tummy issues (as usual) and today I randomly looked celiac up online again. I am once again convinced I have this. I just discovered that iron-deficiency anemia is often linked to celiac disease and that Candida is linked to celiac disease as well. Here is some background info:   1.       Had surgery when I was 2 years old due to a hernia. My mom says that from then on I had issues with my bowels. I have read that stress or surgery can trigger or cause celiac disease. 2.       Had bad yeast infections  since I was a little girl. As an adult I asked the gyno what made me get them so often and she told me that some women are just more prone to them. 3.       Diagnosed with IBS when I was 18 years old. 4.       Diagnosed with an auto-immune disease when I was 20 years old. (It is a rare disease called henoch-scholein purpura and attacks the kidneys) 5.       Diagnosed with hypothyroidism last fall. The doctor told me she wanted to wait and see if my thyroid would get better on its own because once I start the hormone replacement I will have to take it forever. 6.       Diagnosed with iron-deficiency anemia and started on Ferro-sequels, a potent iron supplement. I was happy to discover I was anemic because I was horribly fatigued and it gave me an explanation as to why. (I was also deficient in vitamin D, but I think this is pretty common?) 7.       Auto-immune diseases run in my family (my grandma has Addison’s disease, cousin has thyroid disease, multiple sclerosis, etc)   Can anyone relate to this or give me any insight? What is the likelihood that I have celiac disease? I have not lost weight, if anything I cannot lose weight. From what I've read constipation isn't common with celiac, it is usually the opposite (having to go too much). I am going to have blood work done in a few weeks and am thinking about requesting to be tested for celiac disease. My only reservation is the cost of the additional tests (I do not have insurance and am paying out of pocket). Also, from what I have read, false-negatives are common for celiac disease so should I even bother with spending money on the test right now? Should I just go gluten-free and see how I feel? I know that if I should NOT go gluten-free if I do decide to have the test done, as this can affect the accuracy of the results. I will definitely have the test done at some point, just trying to figure out if I should pay out of pocket right now or wait a year until I have insurance.  Any suggestions would be extremely appreciated. The more I learn about celiac disease the more questions I have. I know there is so much more for me to learn and I will continue to do research.   Thank you! Meagan  
  23. Let me start off by giving a little background on myself.  I am 27 years old and was diagnosed with Hashimoto's Thyroiditis back in 2006.  Since my diagnosis I have taken different doses of levothyroxin and everything seems to be under control except for my anti-TPo antibodies which are very high.    Now fast forward to the present.... I've recently noticed that my eyebrows have started really thinning out so the obvious first thought is my thyroid, but once again everything seems to be in decent shape.  The only lab work out of range that is concerning to me was my Ferritin, it was a 10!!  I should add that I work in a laboratory so I have tests at my fingertips when I'm there so a day later I check it again and its down to 8! Why all of a sudden am I in the beginning stages of Iron deficiency anemia!? I say beginning stages because my hemoglobin has not dropped below normal as of yet. My Vitamin D was also low for the first time ever but with the winter we had it wasn't as alarming to me and also my Vitamin B12 was to the lower end of the range.  So I started googling.....google such a great tool but also frustrating at times!! I started seeing that there is a possible link between people with Hashimoto's and Celiac disease... It made sense to me!! I could possibly have both and this is why I'm not absorbing the right nutrition.  We ran some celiac tests such as tissue transglutaminase IgG/IgA as well as Gliadin IgG/IgA,  everything came back normal except Gliagin IgG,  Mine was 3.59 IV and the range is greater than or equal to 1.1 for positive.     My primary physician said that this could be a false positive and that I should see a GI doc because the only way to truly confirm a celiac diagnosis is to do a biopsy... which is fine.. I can't get an appointment with the GI until June though so I'm just a little inpatient and I guess I just want to see if anyone else has had a similar situation? 
  24. I just had blood tests showing positive for Celiac disease and am awaiting an appointment with the gastroenterologist.  Since I had my child (2.5 yo) I have not been able to lose any weight whatsoever no matter what diet plan (though hadn't tried gluten free before).  Before I was told i had to continue eating gluten until my biopsy I gave it up for two days and had lost 4 pounds!  I'm wondering if there are many out there who were obese and lost weight successfully after they went gluten free?  I don't want to gain more weight like I see some people have done as I'm already way to overweight and have been since i was a child.........   Also, if you have lost weight (and needed to!) after going gluten free...any advice??? Thanks!
  25. Weight Gain After Recovering

    Its been nearly 4 years since I went off of gluten.  Last year in January I suddenly put on 15 lbs in about two weeks. That might not seem like much, but I could never put on weight and always looked gaunt and sickly from the time I was a child.  I've been working out, eating well, and haven't been poisoned too often lately, and yet this extra weight still remains a year and a half later, not growing, not shrinking.    I have a theory that maybe I've healed to the point where finally my body can absorb nutrients and fats again and its adjusted me to a proper healthy weight.  My doctor thinks the stubborn weight gain is from a thyroid issue, but I exhibit no other symptoms of such a thing.    If anyone has had a similar experience after being off of gluten for a few years I'd love to hear about it!