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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Found 30 results

  1. This specific product was shared on a Facebook group where the member learned there was indeed wheat in her melatonin. Natrol 5mg Fast Dissolve Melatonin.  On many sites (such as Vitacost.com) it is listed as "no wheat" and so on. However when you click on "supplement details" it states "contains wheat" and inactive ingredients lists modified food starch -- the likely culprit.  -- http://www.vitacost.com/natrol-melatonin-fast-dissolve-tablets-strawberry?q=natrol&ta=natrol  I sent a message to vitacost.com to at least make them aware they display conflicting information. Here is what is confusing. The same product of fast dissolve, but in the 10mg, also lists "no wheat" and DOES NOT indicate any modified food starch or suspicious ingredients. Their "time release" melatonin products also list "no wheat" and nothing stands out on the inactive ingredients. I can't trust a brand that is so mixed with such similar make of products. I truly did trust them to begin with... the product shows no ingredients that worried me. I have taken their "Time Release", which specifically states no wheat, gluten, dairy and so on, but not the above mentioned Fast Dissolve.  However, this is too hit or miss on products (especially the fast dissolve 5mg (with wheat) and 10mg (without wheat) for me to believe anything they say. Grrr! Edit: Natrol's website lists "modified food starch" in it's 10 mg.  https://www.natrol.com/p-72-melatonin-fast-dissolve.aspx I still do find what this all frustrating and definitely wish there were better regulations. Supplements will likely be the last to ever get regulation up to our standards :-/ Sigh! Just a rant and hopefully others will double check their products just in case.
  2. There is a recall on Dove Chocolate Assortment Snowflakes for undeclared wheat & egg ingredients. See: http://www.fda.gov/Safety/Recalls/ucm478253.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery
  3. Hi hi! Just a question for the people who do react to glucose syrup... Are your symptoms the same as with a regular glutening or slightly different or...?  
  4. My son had blood work done Cyrex Labs. The array 3 & 4.  I didn't start having him eat grain foods until around noon the day before the test. They took his blood around 11:30 am the next day. My son felt his usual gelatinized symptoms but not as extreme as usual.  By that night though he was full on sick and took over a week to fully recover. I'm worried that he did not eat enough and long enough before the test for it to give accurate results. Does anyone have any experience or feed back for us. We are still waiting for the results.  
  5. There was a documentary on netflix I watch I believe it was called "corn nation" something about corn. The guy showed how they have added the wheat gean to the corn as a way to make bugs not want to eat the corn.. He goes on to show an underground bunker where government has 1000's of varieties of corn stored in jars.. He asked the one in charge she said they new they (GMO companies) were modifying the gean or gen ( can't spell today) and they were protecting the original in case it made it uneatable and might pollinate other crops killing off corn.. He then went on talking about how even corn is feed to cattle because so many farmers started growing it.. That explains the dairy reactions too
  6. Hello, all!  I am proudly owned by two cats that have been kind enough to change their diet when I was forced to go gluten free.  The problem is finding cat food that is gluten free without the company slipping in Barley Grass or Wheat Grass and acting like it is completely safe.     Right now my kitties are on a combination of brands that label their food as "Grain Free", with Blue Wilderness/Buffalo being the major brand.  I recently got them a bag of Red Meat Feast but my skin is getting irritated and my stomach is getting that gluteny ache.  Has anyone had issues with the dry food in the last six to twelve months?  The last post I found here when trying the keyword search was back in 2009, and it was dog food.  The Blue company has made some changes, and the wet food has been just fine for us, however we do need some nice crunchy food that won't get me contaminated.   Thank you for any suggestions.  Ive been gluten-free since 2012 but things can still be challenging.
  7. Hi!  I'm a 15 year old from Seattle, Washington and I'm working on making a documentary about Celiac Disease specifically to raise awareness of it, because as you all probably know, it needs more awareness, especially positive awareness.  For the documentary I wanted to get some history and background information on Celiac disease as well as gluten or wheat.  Does anybody know anyone that has good knowledge about the history of Celiac disease and/or gluten. It would be good if they live in Washington state or close by but if they don't it's fine, please still mention them. Also anybody else you think would be good for me to speak to please let me know. I would really appreciate it. Thanks!   Have a great day! 
  8. Hi, I'm new to the forum so I don't know if I'm posing this in the right category. I've only been living at my current place for a little over a month and I'm already thinking I might have to move out. I've been gluten-free for over a year, but I am self-diagnosed celiac disease or gluten sensitive from doing the elimination diet. The problem is that I've become more and more sensitive the longer I remain gluten-free (and now dairy and soy free since I react to those too). I would love to get a proper diagnosis but I have heard that you have to be eating gluten to get diagnosed and any amount of gluten is not an option for me. Anyway, to my horror and dismay I walked into my landlord's kitchen to find dozens and dozens of cupcakes and a few cakes made from scratch. Even from my room, I could smell it and new that it was going to be a problem. I have read about being glutened from airborne flour and I have experienced it myself when I worked (for one day) at a Thai Food restaurant. I got a reaction from being in a gluten-filled environment but I don't know if it was through contact or by breathing it in, probably both. Anyway, I spent the whole day in my room being afraid to go into the kitchen. I opened by bedroom window but had to close it when it got cold. Finally, I had to go into the kitchen to get something to eat but even before then I was already experiencing symptoms so it must've been just from smelling in my room. Unfortunately, I don't have a doctor's note to show my landlord to get her to stop baking, I don't know If she even would. For example, if I had a proper diagnoses would she legally be required to not bake? Anyway, I talked to her and she was understanding but since she is the owner of the house she feels entitled to continue to bake if that is her wish. She said she would warn me when she is going to bake but that means I'll have to stay in my room or leave for at least 24 hrs. and still risk cross-contamination since I am so sensitive. I don't have enough money to get my own place, I am a full-time student in a teaching credential program and I've had to move way too many times for different reasons so all I could do was cry because I'll probably have to move again :/
  9. Since going gluten free almost 3 years ago I have relied on Lindt 85% chocolate bars as my go to chocolate (I live in Japan so limited choices). The allergens have always been listed as "may contain: soy, nuts, milk". Not a problem for me. Last night I went to buy some (I stock up!) and I noticed the label looked different. I read it and sure enough, the allergens now read "may contain soy, nuts, milk, sesame and wheat."   I have no idea why this has changed. It still says "manufactured in France." The Japanese Lindt homepage still does not list wheat. The UK homepage does list wheat and the US homepage does not!!! I wrote to the company but it was after hours on Friday.   Any other Lindt eaters notice a change????    
  10. Hey everyone, just wanted to share this great FREE eBook that I've found super helpful. It's got some great recipes and a solid meal plan that helped me get started. Best part, it's free right now! Just figured I'd share    You can get it here: http://www.amazon.com/Wheat-Free-Eating-Digestive-Sacrificing-ebook/dp/B00O5HYMYO/ref=sr_1_21?s=digital-text&ie=UTF8&qid=1413411032&sr=1-21&keywords=wheat+free+recipes
  11. Hello everyone, I have been on a gluten free diet for about 4 weeks now. I had originally went on this diet because I am having the same symptoms and someone that may have a gluten sensitivity bad headaches, feeling very fatigued, joint pain, depression, numbness and foggy brain I was to a point where I couldn't get the word out of my mouth that I was trying to say and that's the point where I really started to research some things. I went to a neurologist and had an M.R.I. done all came back negative the Dr. said there is nothing wrong with me. Quite frankly I cant believe this so I started doing my own research since I wasn't going to get help from that Dr. I do plan on getting a second opinion done here soon, But none the less frustrating. So I found that pretty much all the symptoms that describe a gluten sensitive individual is everything I felt as well, so I thought I might as well give this a shot. I started this diet 2 weeks in I noticed that the numbness went away for the most part the pain still lingered the foggy brain hasn't shown its ugly face still fatigued and still had the headaches. So now 4 weeks in the numbness and the pain has been coming back more frequently and the headaches are still around foggy brain is still gone for now. But as the numbness and pain intensify and start showing up more often now it kind of makes me think am I really having to do this diet, and for the record I am not one of those people that cheat diets nor thinks its okay to cheat a diet especially with this kind of health dependency. I have been very strict with this hence why the frustration with it seeming like its not helping so high. I have done my research on the hidden gluten what to look for etc I actually try to buy only certified gluten free foods that say on the packages. I mean if all I have to do is change my diet to a gluten free one and it changes my life for the better because of this i'm all on board not just half way. Some places I read 6 weeks others say 6 months before you start to add wheat back into your diet to see if it affects you in a negative way, of course only if you feel like its not working for you. I definitely don't want to do this to soon because any chance that this is helping me I would hate to ruin that. At first I thought it was helping me, But not so sure anymore. Any help advise words of encouragement opinions would be much appreciated please. Thank you so much guys to all of you for taking the time to read my story and help with what you can.
  12. Hi there, Firstly, thank you for reading my plight. I have been struggling with this digestive issue for a while now, and I figured a good way to figure out what I may be going through would be to ask a bunch of other people who could potentially be suffering from the same or similar issues. I believed I had a problem with gluten. If I eat wheat bread, I get bloated. I feel sick. Sometimes I have problems with going to the bathroom (but I've largely remedied that just by taking fiber supplements). Here's the thing, though. I can eat white bread all day. But I can't eat white pasta. If it's a wheat or whole grain product, it will make me gassy and bloated. Any type of pasta does the same--but white bread is totally fine. I feel just fine after eating it. I've been taking probiotics and my fiber supplements. It's definitely helped, but it just seems to unpredictable. Does anyone else have this issue? White bread is fine, but no pastas or wheat/whole grain bread. Thanks so much in advance for any insight!
  13. I thought I was doing a good things by getting on liquid vitamins. I thought I could trust the label that said "gluten free" from nature's plus. I thought I could email them now and ask questions but their email page mysteriously doesn't work. The international email looks like goes through to them but who knows who is going to answer that.     My symptoms: Heat strain, palpitation, lethargy, pain down arms Nerve pain, numbness, tingling Cold hands and feet hot and cold flushes blue colored skin, dry ashy look dizziness, nausea, eye pressure in the left eye headaches wry neck, muscle spasms, muscle pain, ataxia like nothing I've experienced before Mood swings, depression, nightmares, daymares hay fever and pet allergies increased substantially indigestion, pain while going to the bathroom, bloating, swelling     I remember having all this before I knew I was a celiac. That was way back in highschool.   I was wondering where the hell all this came out of, checking all my sources and looking at everything with suspicion....then this morning after 3 months of taking the liquid vitamins by Nature'sPlus, I noticed on the bottle in fine print under "Source 70 Whole Food Complex" there it was.   Barely Grass is NOT gluten free when allowed to begin to seed or to fully seed, then harvested and put into the vitamins. NOT GLUTEN FREE!!!   This have put me back months in my gluten free diet and I've BEEN GLUTEN FREE FOR YEARS!!! SINCE 2004!!!   Not cool people. Not cool.
  14. Hello helpful strangers and thanks, for what has already been posted. I recently took the Cyrex Array 3 test and am trying to figure out what the results suggest. I have researched the "out of range" /positive results but am still unclear on how I should interpret them without taking the next step and seeing a specialist.   I have been inhaling small amounts of wheat flour where I work, there is always a thin film of dust(wheat)  in a 20feetx20feet area, so even when I have intentionally not been ingesting gluten I am getting some in me, is this significant?   Previous to the test I was eating wheat for a month (but not as much as two slices a day) , following a two month gluten free diet but still inhaling the wheat flour during this time.  .. So is this enough info to suggest Celiac disease or a gluten sensitivity?     My results are :   Wheat Germ Agglutinin IgG 1.2  (Reference .4 - 1.3) this is considered an "Equivocal" result. A borderline result?   Gluteomorphin +Prodynorphin IgG  1.37 ( Reference .3 - 1.2) (Would anyone who eats wheat test positive for this one?)   Transglutaminase-2 IgG  1.63 (Reference .3-1.6)    I will be glad to give more details if so requested but wanted to be as brief and concise as I could. Thanks again!  
  15. Hello. I'm making gluten free cookies for my friend's lacrosse team where at least two girls have gluten allergies. I have Stop n Shop brand canola oil which says it may contain wheat. It is related to food product isa and I have to know if it is safe to use. Thank you.
  16. Hi everyone, this is my first post. Every time I do a search on celiac, the most helpful responses seem to be this website/forum, so I figured I would sign up.   I am recently diagnosed with a wheat allergy. I've dealth with years of gastrointestinal distress. I went to a few GIs in the last two years. One called my problems IBS without running any tests and sent me out the door.  Another doctor did a colonoscopy, which came back negative, and also chalked up my symptoms to IBS.  I've dealth with alternating diarrhea, constipation., gas, bloating, and a number of other non-GI related symptoms - asthma, finger swelling, hives, runny nose, nauseau.  My symptoms seem to come and go every few years but it's back and I've decided I'm not willing to deal with this anymore. My gen practicioner found the wheat allergy, and I decided to make an appointment with a GI on my own to further investigate. Seems a lot of my symptoms could point to a potential celiac or gluten sensitivity issue.   I am pending the results of a celiac genetic test.My doctor said it would be the test of choice since I've already been gluten-free for a few weeks (since my wheat allergy diagnosis). I do have a few questions:   1. Doctor's assistant wanted me to come in to review my results of the genetic test, saying it was a complicated result, based on percentages, and it better to review with the doctor in person.  Is this legit? I know the doctor ran a celiac profile - would this also test of antibodies, or just genetic testing? Does anyone have an idea of what I can expect once I go in. I can't wait to hear the results. As crazy as it sounds, I want a positive result so I can just work on getting myself better again.   2. On a somewhat related topic, I figured I woudl ask ... how do you all deal with the anxiety of going out in public, when there's always a chance of the big d? I'm in constant fear of public D, to the point where I sometimes cancel plans because I am too embarassed. I don't go all the time, but it's enough where there's a chance it could happen, and I'd rather not deal with it. I know my friends won't judge me, but regardless, I am embarassed to go to the bathroom multiple times, esp in public. I'm afraid strangers will judge me, or that i won't get to a bathroom in time.   thanks in advance! I'm looking forward to getting you know you all more here   ~Ami
  17. I am 28 years old and recently had an allergy test at my immunologist and tested positive for a wheat allergy, which has been life changing once I removed it. She referred me to a gastro pursuing celiac (I tested positive on the celiac gene test and am also IGA deficient). Waiting for biopsy, but in the meantime, I am curious if anyone here has an allergy to wheat and celiac disease? I've tried looking up if it was possible to have both wheat allergy and celiac, I assume it is, but all I can find is explanations of the differences between them.    Thanks!
  18. Quick question about wheat grass and barley grass concentrate... Long story, short: I noticed "wheat grass concentrate" and "barley grass juice concentrate" as ingredients on a multi vitamins supplement I planned on buying (muscle pharm armor v). I reached out directly to the company and was told that this product IS GLUTEN FREE. Taking a risk, I purchased it. I have been taking the supplements for the past 5 days and haven't had any type of reaction. I'm a Celiac and I'm actually pretty sensitive to even the slightest CC. I've been living a strict gluten free lifestyle for almost 3 years now and I'm well aware of the yes/no controversy about these ingredients. I have never seen anyone with Celiac co-sign a product with wheat/barley grass, but yet I've had zero reactions after almost a full week. I'm wanting to know if anyone has: 1) Successfully used Muscle Pharm's "Armor V" with no issues 2) Successfully consumed wheat/barley grass [concentrate] The only explanation I can think of is that maybe this particular harvest of wheat/barley grass was grown the correct way that allows it to be deemed gluten-free... Or maybe that since this multi vitamin has soooo many ingredients, the amount of wheat/barley grass concentrate is so trivial that it's less than 20ppm? Really just looking for anyone with a similar experience. I said "long story, short" at the beginning of my post and now it's turned into "long story, longer." Thanks everyone!!
  19. Hey,   Question for you guys. I've been gluten free for a year (celiac) and only eat products that 1.) don't contain wheat products in the ingredient list and 2.) don't say anything about being processed in a facility that also processes wheat.   So my question is..   Can something be processed on lines that also process wheat without having to disclose it on their label? Do you only eat foods that are explicitly labeled as gluten-free, or you've done research/found out they are okay?   Because I think I've gotten a reaction from foods whose ingredients/label look okay (i.e., nacho doritos) but I think are cross contaminated even though they don't disclose it. Is that even possible? What do you guys usually do? Is the ingredients list/label enough?   Thanks a bunch!   Nick
  20. *sigh*   So my bloodwork showed everything normal exept slightly positiv DGP IgG. My biopsi was kind of negativ. I do have some inflamation in my small intestine, 'similar to that of celiac', but not enough for it to actually be celiac, it seems. I have just about the whole list of symptoms for celiac, including perifiral neuropathy, and when I eat gluten I will throw up within 15 min. That was offcours making the gluten challange quite trying, but I feel confident some gluten made it all the way down to my intestine every day.   Obviously I can not have gluten, for whatever reason, and the european 'glutenfree' foods hold alot of wheatstartch, of about 20 ppm of gluten, this is enough to give me some symptoms. So I only eat naturally glutenfree foods and tht works well for me, but I just can not understand how docs can say I don't have celiac, when none of my tests are negativ and with the symptoms and high sensitivity that I have? Also, at the same time, I'm thinking that as I am more sensitive than most, my tests should be 'more' positive if all this was caused by celiac? I have had some of the symptoms ever since childhood, so this is not a new thing ,but I have eaten very little gluten the last few years.   Is it posible that I have had non celiac gluten intolerance for many years, that is just recently starting to develope into celiac? Or are the two not conected?   Some of the reactions I have seem sort of like allergic reactions, like itches, puffy face and stuffy nose, so I am now beeing sendt to a allegy specialist to see if I might be allergic to wheat, but I don't feel like that fits all thet well.   Does anyone have any thoughts or information aboute cases like this?
  21. Since the time Benefiber switched its ingredient from corn dextrin to wheat dextrin several years ago,  has anyone used the new Benefiber which has the wheat dextrin (and under 20 ppm gluten)   and what was your physical reaction?   If none, please report none, if yes, please explain.    Thank you.
  22. Now I'm totaly confused. I went today in my supermarket and wanted to buy me a quick  meal for lunch. In the gluten-free Schelf was also Organic Burillios and a something it looks like a filled cake. Also Organic. Both have organic wheat in it. Are these product no Gluten free? IF now Why are the standing in the Gluten free shelf???   SteffiW
  23.   Does anyone know if wheat grass is gluten-free? I always assumed it was not and avoided it until recently I read an article that stated that wheat grass does not contain gluten. Can that be true?    I was even more confused when I ordered a smoothie at Jamba Juice and felt very sick, definitely glutened. Of course I thought it was from contamination from wheat grass, but perhaps not. Any ideas or articles?
  24. I have been gluten-free for about 2 months now due to intolerance.  One of the books I have recently read in researching the topic of celiac and gluten intolerance is  book "Wheat Belly".  This book talks about the reasons why EVERYBODY should be gluten-free regardless of whether or not they have celiac or gluten intolerance.  Based on the info in this book and to support me, my husband has gone gluten-free.  As a result, he has already experienced several improvements with arthiritis in his hand and plantar faciatis.  He also is slowly loosing inches from his waiste.   I also have recently  heard and seen talk about the "Gluten-Free fad diet" and how for people without celiac issues, it is a fraud and an unnecessary lifestyle change.  I am just curious about any opinions you all might have on people without gluten issues following the gluten-free diet and how to encourage others to follow the diet if indeed it is a healthy thing for all people.  Thanks!  
  25. hi all my name is joe ! anyhow i am 27 years old and in around September i kept feeling mysteriously ill and getting alot of anxiety and depression mainly anxiety and feeling ill all the time, sick dizzy a feeling of not myself stomach pains and cramps alot of feeling ill after eating someday ok other days very bad flu like symptoms feeling foggy in the head panic attacks 2 of my main symptoms where red eyes or like a blood shot eye and post nasal drip constant swallowing basically i want feeling well lol in lots of ways anyway i noticed in around December January that i would feel ill after eating certain types of foods pastry ect and other things so around 2 and a half weeks ago the anxiety had gotten good and i decided after reading about celiac and gluten intolerance to compleatly cut out gluten even in condiments toothpaste i cut it completely out the very nexy day i still felt abit ill but slightly less i then felt iller than before i almost like withdrawal symptoms they soon went and i didnt feel ill any more my red eyes that where red almost everyday compleatly went the post nasel drip stopped almost other night with the red eyes and i didnt feel sick after eating anymore my stools started to look better and within a week i was feeling great like i hadent felt in a long while then 5 days ago i eat somethings that contain glutain without knowing i let my guard down and within one hour i started to feel sick and then i had ditherer bad aswell i felt very anxious the next day i felt sick ill had slightly red eyes and the post nasel drip was back the day after that i felt abit dizzy and very sick afetr eating and more runny stools then the day after i felt a bit better then we get to today post nasil drip has gone ted eyes gone anxiety good no depression and dont feel sick atall doctor thinks i have had a virus along with anxiety but the nutritionist thinks the proofs in the pudding and i am gluten sensitive ok sorrry for lack of punctuation as i am not good at typing thanks for reading my post i have enjoyed learning about celiac and what i can and cant eat i would like really for as people with epericance your thoughts on what i have gone throgh kind regards joe