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I was diagnosed with celiacs about 6 months ago and have been on a gluten free diet since then. I have been trying to conceive for 2 years now, but I pretty much have stopped getting periods. I have had regular periods my whole life up until about 2 years ago. My cycles just got longer and longer. I've had to take provera after a few 100 day cycles. I did get a period right after starting a gluten free diet, so I thought things were getting better, but after a couple 45 day cycles, I'm back to 100 and 75 day cycles. My OBGYN did some blood tests (after a year of not really listening to me that something was wrong) and some of my hormones were in the menopause range. My estrogen was also low. I am only 35! She referred me to a fertility specialist, but I wondered if anyone has had experience similar to this? Were you actually in menopause? Did your periods ever come back? Were you able to conceive naturally or via IVF? Thanks in advance for sharing your experiences.

Hello, this is my first post on here. I'm about at my wit's end, dealing with these symptoms, and the back and forth in my mind is almost as annoying as the intestinal trouble, so I thought I'd get input from others... Some background first: I'm not fully diagnosed with Celiac, but I strongly STRONGLY suspect it since I have had most of the symptoms and I have siblings riddled with autoimmune diseases (3 siblings with Type I diabetes, one of whom also has thyroid trouble, and a brother who can't eat gluten and isn't yet diagnosed with celiac but we strongly suspect it for him as well since he had the major and minor symptoms associated with it). My GI doctor was not working with me and barely even talked to me and instead stuffed me with meds, saying I had IBS. I never got the chance for an endoscopy (maybe at the end of this year...), even though I requested it to rule out Celiac. He didn't even support me going off gluten, just to see if it would alleviate my intestinal troubles; I had severe symptoms for a quarter of a year (some of which were embarrassing and put a huge damper on ANY out of home activity), was EXTREMELY fatigued (and I've always been a sparkplug), and I lost a lot of weight quickly once I hit my worst (almost 15 pounds in 2-3 weeks). I finally couldn't take it anymore and decided to go gluten free, as we'd done for my brother, because I could no longer do anything except force myself through a day's work (literally FORCE; I had to mentally gather myself while alone in the bathroom several times a day just to plow through) and practically beg for sleep each day. I wanted to see if it'd help. After going completely gluten free, for the first time in MONTHS, I noticed an improvement, and felt so good I was almost beside myself with happiness. I thought I'd found the solution. However, I've still had up and downs which make me really upset, because I start second guessing... But after several weeks now, I'm about 99% certain it's the gluten, since I've had more good days than bad. AND NOW MY INQUIRY! Does anyone (women, of course) have "Celiac symptoms" during their period, even when they haven't ate anything (so they think) with gluten? I'm starting to wonder if that's a common problem, because I'm currently on my period, and am having the same "glutened" side effects (severe bloating, constipation, cramps), and these are NOT my typical menstruating problems! I'd had this before but it was early on in my gluten-free venture, so I thought I was merely healing... I had also second guessed a restaurant choice early on, and thought maybe I'd contracted gluten (although it was made on a dedicated line; the place caters to food allergies), but now I'm wondering if it was only because I was on my period. The only questionable things I've eaten this week were 2 Jolly Ranchers.... I wasn't sure if I can trust them yet, but thought I'd try them out. Bad time to try, since I can't isolate a cause now, but... I suppose I'll see how I feel during my next cycle. Hopefully that all made sense.... Please write if you have "gluten" problems during your cycle!

A little over 2 months ago I was diagnosed with celiac disease, and began a gluten free diet. Since then my cycle has been really irregular usually it is maybe one day off but the last one was a week late and my most recent is two weeks and counting...? Did this happen to anyone else when they started their new diet?

My 20 year old daughter was diagnosed with celiac in January 2017. Her last normal period was just days after she stopped eating gluten last January and hasn’t had a period since (9 months!!!) She went to gyno and all hormone levels are normal and ultrasound showed no problems with uterus or ovaries, other than a few “normal” cysts which apparently we all have. Her doctor really didn’t have any answers and did not want to rush to put her on bc. My daughter is so frustrated and obviously concerned and I don’t know what to do. I’m wondering if my daughter should get a second opinion from another gyno or see a nutritionist. It can’t be a coincidence that my daughter’s very regular cycle completely stopped right after she stopped eating gluten.