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Celiac Disease & Gluten-Free Diet Blogs

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  • Cheryl
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  • Gluten Challenge
  • twins2's Blog
  • just trying to feel better's Blog
  • Celiac Teen
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  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
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  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
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  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
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  • keyboard
  • Louisa's Blog
  • Guts & Brains
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  • Connie C.'s Blog
  • garden girl's Blog
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  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
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  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
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  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
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  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
  • JessicaB's Blog
  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
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  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
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  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
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  • CeliacChoplin
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  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
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  • Daily Life and Compromising
  • Vonnie Mostat
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  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
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  • Kim
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  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
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  • Adventures of a Gluten Free Mom
  • Fiona S
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  • Carla
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  • Jim L Christie
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  • Alcohol, jaundice, and celiac
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  • Gluten Free Mastery
  • james
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  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
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  • Gluten Free High Protein
  • Ari
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  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
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  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
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  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • User Is it safe to use GB WhatsApp pro in 2024?
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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  1. Celiac.com 10/21/2023 - Celiac disease, an autoimmune disorder triggered by gluten consumption, has long been associated with a range of digestive symptoms. However, the story doesn't end in the digestive tract. For some individuals, celiac disease unveils itself through an unexpected medium: their skin. This presentation is known as dermatitis herpetiformis, and it's a vital but often overlooked facet of celiac disease. Dermatitis herpetiformis, affectionately referred to as "DH" by some, is a chronic skin condition characterized by intensely itchy, blistering rashes. It might sound like a mere irritation, but DH is, in fact, the skin's way of echoing an underlying immune response to gluten ingestion. Just as celiac disease affects the small intestine, DH is its external manifestation, giving voice to the body's immunological revolt. In our in-depth exploration of dermatitis herpetiformis, we delve into the intricacies of this unique condition. We'll unravel its connection to celiac disease, exploring why it appears and how it's diagnosed. We'll discuss the unmistakable and sometimes bewildering symptoms, along with the challenges of managing this skin condition. Moreover, we'll guide you through treatment options and offer practical advice for living a gluten-free life to keep DH at bay. Despite its undeniable role in the larger celiac disease narrative, dermatitis herpetiformis remains an enigma for many. It's time to shed light on this aspect of celiac disease that affects the skin and, in doing so, empower those who face this condition to navigate its complexities with confidence and knowledge. So, let's embark on this enlightening journey, demystifying the link between celiac disease and the unexpected language of the skin: dermatitis herpetiformis. Unraveling the Connection Between Dermatitis Herpetiformis and Celiac Disease For those who have encountered dermatitis herpetiformis, the initial onset can be perplexing. Unexplained rashes and relentless itching lead many on a quest to uncover the root cause of their skin woes. This is where the intricate connection between dermatitis herpetiformis and celiac disease comes into play. Celiac disease is a well-known autoimmune disorder, triggered by the consumption of gluten—a protein found in wheat, barley, and rye. When someone with celiac disease ingests gluten, it initiates an immune response in the small intestine. This response damages the intestinal lining, impeding the absorption of nutrients and leading to a host of gastrointestinal symptoms. So, what's the connection between celiac disease's internal battleground and the itchy rashes of dermatitis herpetiformis? The answer lies in the immune system's memory. Individuals with celiac disease have a particular genetic predisposition. When they consume gluten, their immune system recognizes it as an invader and produces antibodies, mainly tissue transglutaminase 2 (tTG-2). These antibodies don't limit their activity to the digestive tract; they circulate throughout the body. Here's where dermatitis herpetiformis makes its grand entrance. The same antibodies that target the small intestine are drawn to the skin. When they reach the skin's surface, they provoke an inflammatory response. This reaction results in the characteristic blistering and intense itching of DH. In essence, DH is the skin's way of expressing the body's rejection of gluten—manifesting on the exterior what celiac disease inflicts internally. But this dual-action response, where gluten triggers a reaction in both the intestines and the skin, also means that those with dermatitis herpetiformis often have underlying celiac disease. While not all celiacs experience DH, a substantial number do. As a result, diagnosing DH often leads to a celiac disease diagnosis, making it crucial to recognize the symptoms and understand the connection between these two conditions. The Symptoms of Dermatitis Herpetiformis Dermatitis herpetiformis is a skin condition known for its distinct and uncomfortable symptoms. Understanding these symptoms is crucial for timely diagnosis and management. Here, we delve into the key indicators of DH and how they affect those who experience this unique skin disorder. Intensely Itchy Skin: The hallmark symptom of DH is intense itching. Affected individuals often describe the itch as deep and unrelenting. This itchiness typically precedes the appearance of the rash and can be so severe that it significantly impacts a person's quality of life. Scratching the itchy areas can further exacerbate the condition. Blistering Rash: The most recognizable feature of DH is the appearance of a blistering rash. The rash typically consists of red, raised bumps or blisters filled with clear fluid. These eruptions often cluster together and create symmetrical patterns on the skin, appearing on both sides of the body. The rash's appearance can vary from person to person but is characterized by its tendency to group in clusters. Elbows, Knees, and Buttocks: DH often affects specific areas of the body, with a predilection for the extensor surfaces. This means that it frequently appears on the elbows, knees, and buttocks. However, the rash can also emerge on other body parts, including the scalp, back, and shoulders. Burning Sensation: In addition to itching, some individuals report a burning sensation or discomfort in the affected areas. This burning sensation can add to the overall discomfort and distress associated with the condition. Skin Lesions and Scarring: If left untreated, DH can lead to skin lesions, erosions, and secondary bacterial infections. Prolonged scratching or friction can result in scarring, which, in severe cases, may be permanent. Recurrence and Chronic Nature: DH tends to be a chronic condition with a relapsing-remitting pattern. Symptoms may improve and reappear over time, making it essential for individuals to have a long-term management plan. Understanding the symptoms of dermatitis herpetiformis is vital for early recognition and proper management. It is essential for affected individuals to seek medical attention for a definitive diagnosis and to initiate appropriate treatment, often in conjunction with managing the underlying condition, celiac disease. How To Diagnose Dermatitis Herpetiformis Diagnosing dermatitis herpetiformis can be challenging due to its resemblance to other skin conditions. However, a correct and timely diagnosis is crucial as it often points to an underlying condition, celiac disease. Here, we'll explore the key steps involved in diagnosing DH. Clinical Assessment: The diagnostic journey typically begins with a visit to a dermatologist. DH's hallmark symptom is its distinct blistering rash, but it can resemble other dermatological conditions like eczema, contact dermatitis, or even herpes. An experienced dermatologist will conduct a thorough clinical assessment, taking into account the specific characteristics of the rash, its distribution, and the accompanying symptoms such as itching and burning. The presence of the rash's unique pattern, which typically forms in clusters and symmetrical groups, can be a telling sign. Skin Biopsy: In many cases, a definitive diagnosis of DH requires a skin biopsy. A small sample of the affected skin is taken and examined under a microscope. The biopsy typically reveals specific markers such as granular immunoglobulin A (IgA) deposits in the skin layers, a key indicator of DH. These IgA deposits, also found in the small intestine of those with celiac disease, provide a crucial link between DH and the underlying autoimmune condition. Blood Tests: Alongside a skin biopsy, blood tests can be conducted to detect elevated levels of antibodies associated with celiac disease, particularly IgA-tissue transglutaminase (tTG) and IgA-endomysial antibodies (EMA). Finding high levels of these antibodies in the bloodstream adds another layer of evidence linking DH to celiac disease. Response to a Gluten-Free Diet: Perhaps the most compelling diagnostic tool for DH is the patient's response to a gluten-free diet. If the rash and other symptoms improve or disappear with the elimination of gluten from the diet, it strongly suggests dermatitis herpetiformis in the context of celiac disease. The diagnosis of DH can be complex, requiring a combination of clinical expertise, laboratory tests, and a dietary evaluation. Once confirmed, patients can begin effective management of both the skin condition and their underlying celiac disease, often with significant improvements in their overall health and well-being. In the following section, we'll explore strategies for managing dermatitis herpetiformis. Home Remedies for Symptoms of Dermatitis Herpetiformis While home remedies can provide some relief from itching, it's important to note that DH typically requires medical treatment, including a gluten-free diet. Be sure to consult a healthcare professional for proper diagnosis and treatment. Here are some home remedies that may help alleviate itching associated with dermatitis herpetiformis: Gluten-Free Diet: While not a prescription medication, adherence to a strict gluten-free diet is the cornerstone of DH treatment. Eliminating gluten from the diet can prevent the formation of new skin lesions and reduce the need for medications over time. Benadryl (consult a doctor before use in young children): First try the over the counter cream, but if that does work a member of Celiac.com's forum reports that the very best thing to stop DH itching is to grind up a 25mg pill of Benadryl (or perhaps get capsules and just open one) into two teaspoons of water, and then spread it over the rash and itchy areas with your finger. Just be careful not to use too much too often, as you can absorb the drug through the skin. Allegra (Fexofenadine): Those with DH report that taking Allegra, which, in the USA, is an over the counter allergy medication, provides relief. Be sure to read all package warnings before giving it to children. Cold Compress: Apply a cold, damp cloth or an ice pack to the affected area. This can help reduce inflammation and numb the itching sensation temporarily. Gluten-Free Oatmeal Bath: Adding colloidal oatmeal (available in drugstores) to your bathwater can soothe irritated skin. Soak in the oatmeal bath for 15-20 minutes and be sure the oatmeal is certified gluten-free. Baking Soda Bath: A baking soda bath may help relieve itching. Add a cup of baking soda to a lukewarm bath and soak in it for relief. Aloe Vera: Apply aloe vera gel directly to the affected area. Aloe vera has anti-inflammatory properties and can provide soothing relief. Calamine Lotion: Calamine lotion can help relieve itching and soothe the skin. Apply a thin layer to the affected area and allow it to dry. Topical Hydrocortisone Cream: Over-the-counter hydrocortisone creams can provide temporary relief from itching and inflammation. Follow the instructions on the product label. Keep Skin Moisturized: Apply a fragrance-free, hypoallergenic moisturizer to your skin regularly. Dry skin can worsen itching. Ben-Gay Cream: Some people with DH have reported that using Ben-Gay cream on the affected areas relieved the itchiness. Chiggerex cream: Some people with DH have reported that using Chiggerex cream on the affected areas relieved the itchiness. Avoid Irritants: Avoid foods high in iodine like seafoods and dairy products as iodine may exacerbate symptoms in some people with DH. Also avoid harsh soaps, fragranced products, and hot water, as they can exacerbate itching. Opt for gentle, hypoallergenic products. Wear Loose-Fitting Clothing: Tight clothing can irritate the skin. Choose loose-fitting, breathable fabrics to minimize friction. Antihistamines: Over-the-counter antihistamines may help reduce itching. Consult your doctor or pharmacist for the appropriate dosage and type. Niacin and Niacinamide (Vitamin B3): There is some evidence that niacin and niacinamide may offer some relief from DH symptoms. Stress Reduction: Stress can exacerbate itching. Engage in relaxation techniques such as deep breathing, meditation, or yoga to manage stress. Dietary Modifications: While not a home remedy, it's crucial to address the root cause of DH by following a strict gluten-free diet. Consult with a registered dietitian to ensure you are avoiding gluten-containing foods. Remember that these home remedies are not a substitute for medical treatment. If you suspect you have dermatitis herpetiformis or are experiencing severe itching, consult a dermatologist or healthcare provider for proper diagnosis and guidance on managing the condition, which typically includes a gluten-free diet and medication to control symptoms. Prescription Treatments for Symptoms of Dermatitis Herpetiformis Dermatitis herpetiformis is typically treated with prescription medications aimed at controlling the symptoms and underlying condition, which is celiac disease. The primary treatment for DH is a strict gluten-free diet, as DH is closely associated with gluten intolerance. Additionally, medications are often prescribed to manage the skin symptoms. Common prescription treatments for DH include: Dapsone: Dapsone is the most commonly prescribed medication for DH. It is an oral medication that belongs to the sulfone class of drugs. Dapsone helps reduce skin inflammation, itching, and the formation of new blisters. It is usually started at a low dose and gradually increased as needed. Regular blood tests are necessary to monitor potential side effects, such as changes in blood cell counts. Topical Steroids: In addition to oral medications, topical corticosteroid creams or ointments may be prescribed to reduce itching and inflammation. These are applied directly to the affected skin and should be used as directed by a healthcare provider. Oral Corticosteroids: In cases of severe flare-ups or when Dapsone is not well-tolerated, oral corticosteroids like prednisone may be prescribed for short periods to quickly control symptoms. Long-term use of oral corticosteroids is generally avoided due to potential side effects. Sulfapyridine: Sulfapyridine is sometimes used as an alternative to Dapsone. It is also an oral medication that can help control DH symptoms. Like Dapsone, regular blood tests are necessary to monitor for side effects. Immunosuppressants: In some cases, immunosuppressive medications such as azathioprine or methotrexate may be prescribed to control DH symptoms. These medications work by suppressing the immune system's response that leads to skin inflammation. They are typically considered when other treatments are ineffective or not well-tolerated. It's crucial to work closely with a healthcare provider, preferably a dermatologist and a gastroenterologist, if you have dermatitis herpetiformis. They can properly diagnose the condition, monitor your progress, and adjust your treatment plan as needed. Additionally, regular follow-up appointments are important to assess the effectiveness of treatment and manage any potential side effects of medications. Remember that self-diagnosis and self-treatment are not recommended for DH, and medical guidance is essential for effective management.
  2. Hello, I have continued to be vigilant in my gluten free diet; sticking with mostly whole foods with the exception of peanut butter, oikos yogurt, larabar's and the very seldom certified gluten free chip/cracker when I just want to have something that makes me feel "normal". I was doing quite well up until the end of February, when I started to have fatigue, brain fog, Diarrhea, severe daily continuous headaches, congestion mostly at night, sneezing often mostly at night, itchy top of mouth and rash that started on both hands. Later, the rash started to appear on my neck and left side rib area. I saw my GI and got some labs drawn. Celiac antibodies all trending down appropriately for the amount of time I have been gluten free. CBC and CMP looked fine. I figured I had been glutened and that the symptoms would go away. The symptoms persisted and I kept looking into my diet to eliminate any possible gluten exposure. I decided to get rid of a seasoning I had purchased that was labeled "gluten free" and my headaches went away but the other symptoms persisted. Symptoms continued with the addition of Nausea that began after I would eat and would persist for about 1 to 2 hours after. I wouldn't ever vomit but just felt "ill" whenever I would. The rash on my hands, neck and left ribs continued to be flared up. I again reached out to my GI doctor due to the continued symptoms and new symptoms. They ordered repeat CBC and CMP, CRP, Stool culture, Calprotectin (stool), and Stool GI panel. all of the stool studies came back negative for infection/parasites/inflammation. However, on my CBC, now I had significant Eosinophilia that was not present just over a month before. My eosinophils rose from 4% up to 28% and my GI referred me to an Allergist/dermatologist for further testing. I had a scoop biopsy from directly on some of the bumps/pustules on one of my fingers and then they took a punch biopsy from unaffected skin on my forearm (not near any lesions). I'm still waiting to hear back on the biopsy results for these. However, I was put on a 1 week medrol dose pack by my GI to help calm my system down and while I was on the steroid the rash slightly improved but the day after I completed the steroids, the rash flared right back up and actually was worse than before. Now, the rash continues to worsen and involves the entire tops of both hands and on all of my fingers. the neck rash and torso rash went away with steroids and haven't come back since. I have been using triamcinolone cream on my hands and it doesn't seem to be helping. The rash is extremely itchy, with burning and I am developing large cracks on my fingers with thickening skin. The cracking is painful. I saw the allergist and had scratch testing done. I reacted to pretty much every environmental allergen tested and reacted to many foods that they tested for. I reacted on the skin test to peanuts, watermelon, cucumber, walnuts, pecans, pistachios, hazelnuts, dairy, and almonds. The allergist then sent me for blood work testing for total IgE and specific food IgE to what I reacted to on skin test. I came back with Class 4 "very high" specific IgE levels for pistachio, almond, dairy, walnuts, peanuts, hazelnuts, and pecans. My total IgE came back 8,800 kU/L (standard range less than 214 kU/L). I'm still waiting to hear back from allergist regarding these results. It appears that my body is mounting a huge immune response and maybe a lot of the on-going symptoms I am having are related to possibly new food allergies. Does this sound like a gut permeability issue leading to new allergies, related to my Celiac disease? Also, important to note, the allergist specifically ordered a serum histamine level to assess for mast cell activation syndrome and my histamine was high normal at 8 (standard range 0-8). She also checked a rheumatoid factor and ANA which both came back normal. My allergist said she thinks I am just extremely Atopic and she wants to wait until the biopsy results come back for the rash to make any further plans. She mentioned wanting to put me on a biologic (dupixent) depending on whether the rash is atopic dermatitis....I have no idea about any of that though... She also wants to discuss putting me on allergy shots tailored to my specific allergens. Allergist mentioned wanting to check for EoE as well at some point because I have been having issues with food getting caught in the back of my throat and having trouble getting it to clear when it happens.. I have an EGD tentatively scheduled for October as my GI wanted to go in and look after 1 year gluten free. She actually mentioned she may want to do the EGD sooner if my symptoms persist and at that point EoE could be assessed. I was going to be checked for SIBO on May 7th but a part on the machine broke and they had to cancel it until it can be fixed. Does Leaky gut related to Celiac disease cause full blown IgE mediated allergies to develop or is it generally more of just food intolerances that develop from leaky gut? It appears my re-occurring/on-going symptoms may be indirectly related to my Celiac disease, by way of new food allergies but not specifically by getting glutened like I originally thought I was. Anyone experience something similar? It feels like I'm on the right track to getting things figured out. Any thoughts or suggestions would be appreciated!

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  4. I got a rash between my thumbs and forefingers on both hands , red , burning , itching rash . I noticed it was where my dogs leash was touching my skin . It was the rope type leashes , I got another with a leather handle and my rash is going away. Wondering if this could be related to my Celiac Disease ?
  5. Hi everyone I am new here and still trying to get a diagnosis for the hideous rash that I have been living with for over a year but I have started to go gluten free while I wait and I am just wondering how long it takes for the rash to clear up once strictly gluten-free? It’s only been one week and so far I cannot tell any difference But I’m thinking maybe that’s too soon to know anything? Would love any and all input from you lovely people!
  6. Hi everyone! New here. Still in the process of diagnosis and discovery. My sister has celiacs and got diagnosed about 15 years ago now, classic GI symptoms. I got a blood test back then and was negative. Never really had an issue, but always had a bit of IBS. I did tend only develop a severe stomach cramping that would come on after eating shrimp in my early 20’s, stopped eating shrimp. Back in November 2020 i began getting an itchy rash on my scalp and hip, didn’t tie them together at that moment. The one on my hip I could see and it sort of looked like a cold sore so I was worried it might be shingles. It sort of came and went for a few weeks. Then it started to pop up on my elbows, on my ankles, on my shoulder blades, on my lower back and it was sooooo itchy at night. Finally went to doctor, told me it was just a rash gave me steroid cream. Didn’t work so went to dermatologist, told me it was eczema, told me to use cream 4x a day. Didn’t work. Went back to deem gave me an oral steroid, didn’t work. Finally googled all the places I had my rash and found DH. None of my doctors have a clue what it is or how to test for it so I asked to see a specialist. Stopped eating gluten and it went away within a month. Just saw the specialist (GI at U of Michigan) and he’s all I’m not sure it’s celiac if you don’t have stomach problems. Waiting on tests to come back but i haven’t been eating gluten and they told me I didn’t need to so not sure how accurate it will be! But I’m just curious for others with this, how long after ingesting gluten does it usually take for you to start to get the rash/itch? And what is the normal pattern for others as far as where your rash appears?
  7. Celiac.com 10/06/2020 - One question we get often is about celiac disease and rashes. Specifically, is it common for people with celiac disease to have a rash? Skin rash alone is not a specific symptom of celiac disease. However, people with celiac disease can have higher rates of certain skin conditions that can cause rashes. Rashes are also not commonly in the top ten complaints of people with celiac disease. However, these seven common skin conditions are associated with celiac disease: Acne; Canker Sores (Aphthous Stomatitis); Dermatitis Herpetiformis; Dry Skin; Eczema; Psoriasis; and Rosacea. Dermatitis Herpetiformis (DH) is Common Cause of Skin Rash in Celiac Patients Dermatitis herpetiformis (DH) is a common extraintestinal manifestation of celiac disease, marked by itchy papules and vesicles on the elbows, knees, and buttocks. Dermatitis herpetiformis is a common in people with celiac disease, and is one immediate suspect for anyone with celiac disease who develops a rash. About 1 out of 8, or about 12 percent of people with celiac disease will also have Dermatitis Herpetiformis (DH). In fact, DH is now regarded as external manifestation of celiac disease in the skin. It is also possible for people to have DH and not have celiac disease, but everyone with DH should be screened for celiac disease. The good news is that most people with DH see significant improvement on a gluten-free diet. Moreover, patients with refractory DH see major gut improvement on a gluten-free diet. Some patients with celiac disease have complained of hives, but hives are not common in celiac patients. There have also been studies to show that six out of sixty patients (10%) with Non-Celiac Wheat Sensitivity (NCWS) suffered from contact dermatitis and nickel allergy, double the 5% rate seen in the control group. DH, Eczema & Psoriasis Often Improve with Gluten-Free Diet Other conditions that can cause skin rashes in celiacs (and non-celiacs) include eczema and psoriasis. As with DH, a gluten-free diet is becoming a more common treatment for eczema. People who are gluten intolerant also tend to have more advanced psoriasis. Like eczema, many people with psoriasis improve when patients follow a gluten-free diet. Herpes Zoster or Shingles and Celiac Disease People with celiac disease have a slightly higher risk of developing shingles (herpes zoster), which could also be triggered by a COVID-19 infection. Again, a rash all by itself is not a sign of celiac disease. However, if you have a rash associated with one of the above conditions AND you have celiac symptoms, such as nausea, vomiting, stomach upset, then you might want to consult a doctor about celiac disease.

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  9. Celiac.com 10/03/2020 - Did you know that eczema may be triggered by gluten? Well it often is! This is one of the most exciting and biggest breakthroughs my research into the harm caused by gluten. A mum wrote to me: “I used to get eczema on my knees which cleared up on a gluten-free diet. My mother knows when she has been contaminated with gluten as she gets eczema all over her arms, and my sister gets it on her neck. It is strange that eczema is localized on different places for each of us!” After beginning gluten-free eating, she recognized that gluten aggravated her eczema – and that it probably caused it in the first place. She is not alone in her observations. I have seen this myself and many others have told me similar stories. I am a pediatric allergist and have investigated children with food allergies for 30 years. I am also a gastroenterologist, and have studied children with celiac disease over all this time. Naturally, I began to wonder if gluten was causing more harm than just producing gut damage: I wondered if it was also causing eczema? I soon discovered that it was! I noticed that many children who had celiac disease also had eczema. And, when they went onto a gluten-free diet their eczema usually got better. Of course I already knew about Dermatitis Herpetiformis (an itchy skin condition provoked by gluten), but nobody had previously documented that gluten could cause eczema. The next step was to test all my chronic eczema children for gluten reactions. And guess what! I found that 75% of these children with eczema had an abnormal gluten blood test (their IgG-gliadin antibodies were high). Logically, I suggested that these children try a gluten-free diet. They did, and they got very much better. This excited me. I used to struggle to help these children who suffered with itching, bleeding skin and disturbed sleep. Now, when a child with severe eczema comes into my clinic, at last I can offer hope of a cure. It has revolutionized my practice and the lives of these families. Yes! I have discovered that the majority of eczema in children (and adults) is triggered by gluten. This is a staggering result. Think of how many people are suffering unnecessarily from eczema that could be mostly cured by a gluten free diet. Eczema is part of “The Gluten Syndrome” which comprises gut, skin and nerve problems caused by gluten. I have written all about this is my new book “Eczema! Cure it!” You can get this on the webpage. Cheers, Dr Rodney Ford.
  10. Hello, I wanted to share my personal experience of what cured my Perioral dermatitis. I hope this will help others find a solution to their Perioral dermatitis problems as well. I know how awful it is and how painful those blistering hives are, so my heart goes out to anyone dealing with it. The steps below are what cleared the devil rash off my face, in addition to cutting gluten completely out of my diet. My PD flared up and got so much worse each time I ate anything with gluten. *Disclaimer*: I am not a medical professional. I'm just a fellow victim of Perioral dermatitis trying to help! I do mention products/brands, but this is not a sponsored post in any way. This is just what has worked for me personally. I tried to make this as detailed as possible, but if anyone has any questions, please feel free to reply to this post or message me. 1). DO NOT PUT ACNE CLEARING PRODUCTS ANYWHERE NEAR IT!!! I had absolutely no clue what Perioral dermatitis even was when it first showed up. I just thought it was acne since it was on my face. I made the massive mistake of putting acne washes that contained alcohols, acne creams, toners, and then finally hydrocortisone all over the bumps. Which caused the rash to viciously spread like wildfire. This is why it is so important to see a dermatologist about your skin problems. 2). Doxycycline. My dermatologist prescribed me doxycycline 100 mg, 1 per day for 6 weeks (Currently still taking it because the 6 weeks aren't up yet.) But after 3 doses, I am not even kidding you, the PD rash/bumps began to disappear. And the inflamed, burning, blistering itch was no more!!! Talk to your dermatologist about the best option for you, but I give doxycycline the most credit for clearing my Perioral dermatitis so fast. The first dose did make me feel nauseous, so I just take it before bed. It also causes increased sun sensitivity, so be mindful of that. 3). Pimecrolimus Cream 1% (Again, must be prescribed. This is not an over the counter medication.) This cream treats dermatitis and eczema. This is NOT a steroid cream. I warn you all... stay FAR, FAR, FAR away from any steroid topical creams!!! Steroids will make the PD incredibly worse. 4). Spectro Jel Cleanser Frangrance Free. I read about this cleanser on a blog for curing Perioral dermatitis. You can buy this cleanser on Amazon. Read the reviews! You will see that almost every person mentions how great it has been for their PD. From my personal experience, this is the only face wash that hasn't felt like I'm rubbing acid onto my skin. It has seriously worked wonders for me! I wash with it twice a day. I don't use any sort of face washing tool, and no toners, scrubs, serums, etc. If you're suffering from PD or have sensitive skin, I highly suggest you do the same. My skin drastically cleared up once I stopped using unnecessary products. I know that doesn't seem glamorous and fun, but neither is the dermatitis... am i right?! --- Here's a link to the cleanser: https://www.amazon.com/Spectro-Cleanser-Fragrance-Free-200ml/dp/B00CUIKYJW/ref=sr_1_1?dchild=1&keywords=spectro&qid=1598559522&sr=8-1 5). Fluoride free toothpaste. My dermatologist told me to throw out my toothpaste if it contained fluoride. She said toothpaste containing fluoride can actually cause or irritate PD. The brand I like and recommend is 'Toms'. It's fluoride free and is made with natural ingredients. 6). Get a gluten free chapstick. I was so surprised to find out how many chapsticks or lip balms actually contain gluten. My lips have always been dry or irritated, regardless of how much water I drink or how much chapstick I use. After discovering my gluten allergy, I realize it's because my lips couldn't handle the ingredients. An amazing, super hydrating option is 'EOS: The Hero Extra Dry Lip Treatment' It is gluten free and hypoallergenic. (but always check labels for ingredients you may be sensitive to) 7). Gluten Free Shampoo and Conditioner. Now obviously, I know (or hope) that no one is ingesting their hair products. However, think about how close they get to your face! Duh it goes all over your scalp, but it also can come in direct contact with your face during a shower. I have been using 'Garnier Fructis Pure Clean' which is free of gluten. I believe it's also free of some other common allergens. Google it and check it out for yourself! 8). All Free Clear Detergent. Oh my gosh... ANYONE with sensitive skin, allergies, eczema, Perioral dermatitis, whatever!!! Please be careful of the detergent you are using to wash your clothes. Detergents have been one of the biggest irritants for my sensitive skin, especially my neck and face. 'All Free Clear' is great and is my go-to. It's the only one that doesn't turn my skin red and make me itch like crazy. 9). Makeup. When my Perioral Dermatitis first happened and was at it's absolute worst, I didn't put any makeup on my face for 2 weeks. Trust me, I know you want to cover it up any way you can. I did too, because I thought I looked like a horrifying monster. But the rash will heal so much faster if you aren't putting foundation or powder on your face. Putting makeup on also means taking it off, and using makeup wipes while I had the rash drove my skin absolutely nuts.
  11. I’ve had this rash appear on my elbow many many times. Not very itchy but noticeable. I’ve also had it appear once on both knees and hands. I’ve had ongoing stomach problems but a negative celiac blood test three times. I do have the celiac gene. Could this be DH?
  12. Celiac.com 07/09/2020 - Celiac disease is an autoimmune disease that occurs in genetically predisposed individuals. It is estimated to affect 1 in 100 people worldwide, and is treated by a gluten-free diet. However, there’s also dermatitis herpetiformis (DH) to consider, which is basically celiac disease of the skin instead of the intestines. It’s a skin condition characterized by groups of itchy blisters that commonly occur on pressure points such as the elbows, the front of the knees, the buttocks, back, shoulders, face, and scalp. However, they can occur anywhere on the body. Dermatitis herpetiformis is eruptions can be very painful, and the itchy rashes may progress to red, raised patches of skin that can develop into small, watery blisters. To get a DH diagnosis you need to make an appointment with a gastrointestinal (GI) doctor and a dermatologist. Note that you need to continue to consume gluten until all tests for celiac disease and DH are concluded, and for DH a doctor will take a skin biopsy. (It should heal relatively quickly, with very little scarring.) Then, a lab will use dye to see if you have IgA in a particular type of pattern. This tells your doctor whether you have dermatitis herpetiformis or not. They can help you to get the inflamed reaction under control with cortisone (a steroid), while you simultaneously begin your lifestyle adjustment of not eating wheat, rye, barley, oats, and even dairy (specifically casein because the protein is very similar to that in gluten.) After diagnosis you will need to maintain a 100% gluten-free diet, and you’ll need to use topical products that are gluten-free as well. Be sure to double check your makeup (lipstick, mascara, eyeshadow, eyeliner, blush, etc.), hand lotions, facial wipes, detergents, soaps, sanitizers, perfumes, bug spray, sunblock, and much more. Basically, what it comes down to is reading all ingredients, checking FAQ sections on websites, and calling the manufacturer directly to question cross contamination procedures. Taking these extra precautions will help to keep your skin clear, smooth, and free from continuing outbreaks. However, even with doing all of the above the healing time can be different for everyone. Some individuals heal in a few months, while some take a couple of years. Even if you’re clear for years but accidentally get gluten from cross contamination, you could suffer another outbreak. This is why it’s very important to be extra focused on your nutrition and beauty products after a positive DH diagnosis. A picture of DH from one of our forum members "amine33". References: gluten.org celiac.org Forum discussions about dermatitis herpetiformis.
  13. Hi there, Can someone give me some in sight on this please. I have this itchy red rash on my elbow for about 2 weeks now. It had popped up small then got bigger. Something like this popped up last year around summer time but I generally thought it was a spider bite but its not. I put hydrocortisone on it but it only lasts but for so long. Now this time around its gotten a little worse. Can anyone tell me what this is?
  14. (Photo links at end) Hey guys, Please bare with me as my journey has been a long one. Im looking for advice on if I should push my pediatrician to get my baby tested for celiac disease. I have a long history of celiacs in my family (my mom, aunt, uncle, and grandmother are all confirmed to have celiac and possibly family before that who werent diagnosed but had similar problems- doctors didnt really know about it then). Anyways, so my 1 year old baby (born Oct. 2017) has had a TERRIBLE, ITCHY rash since mid October/ November. When I initially brought him in they though it was a fever rash. Then it progressively got worse and started oozing. They then diagnosed him with impetigo (not sure if spelling right). He did a treatment of that with no results. He then got a bacteria biopsy (nothing showed but they still treated him for the other strain of impetigoin in case). Still no results. I was sent to a dermatologist where they weren't sure but treated him for scabies and some -itis (inflammatory) disease. Again nothing. I come back and they say they think it is this rare skin condition in babies called EPF (infatile eosinophilio folliculitis). They have never personally seen a case though. They say there is nothing they can do for him and it will go away on its own but it can take months to years. So at this point I have spent an arm and a leg on trying to figure out what is wrong with my baby and come back with a can do nothing. I mentioned to both my pediatrician and dermatologist that my family has a strong history of celiac disease and they blew me off and said he is too young. I had my aunt come down and visit recently though and she had dermatitis herpediformes before being diagnosed with celiac and thought it has a similar appearance. The rash usually starts out by looking like a bug bite. Just a pink lump and it has a much larger red circle around it. Next stage it starts oozing and blistering. Then my son usually scratches it so next stage is scabbing. (I try to put anti-itch cream and lotion but it only helps so much). I have attached 1 photo. What do you guys think? (Also the file size you can add is so small it wont let me attach photos, so let me know if the link works). https://photos.app.goo.gl/EwTg9xk3xw6Fdm5q6 (the not as scabby spots are new and will turn into the really bad looking ones) https://photos.app.goo.gl/DTrBmFqVKn3QWrnk6 (close up of some of the really itchy ones) https://photos.app.goo.gl/rXBKynD8YZrZtcHP8 (example of how some blister - I think they might all before he gets at them but not sure). Thank you guys for any feedback! -A concerned mom
  15. I was diagnosed with Severe Celiacs last November plus 2 forms of glaucoma and recently degenerative arthritis. I'm only 22 and finding all this out is exhausting and stressful, well recently I decided to take a break from the gluten free diet and ordered a stuffed crust pizza from pizza hut, a few things from taco bell and a buffet at golden corral! And I have not gotten sick! Maybe I rash but the rash was there before hand, now I'm concerned my doctor was wrong and misdiagnosed me somehow? Before I started the gluten diet I was severely sick, throwing up and couldn't eat, I thought I had cancer, can someone help idk who else to go to, is this normal? Getting sick and then not getting sick? Oh and the rash has been there for weeks doctor has no idea what it is gonna see specialist, auto immune diseases are in family, I did have pelvic inflammatory disease could that of caused something?
  16. I was diagnosed w/ celiacs a year and a half ago. I have so many symptoms possibly related to other autoimmune diseases and other possible medical issues. That it has been so hard for me to recognize that they are most likely related to my celiac's disease. 10 months ago I started having skin issues. First it was dry itchy skin. Figured related to my thyroid. They I started breaking out on my face. I thought "I have acne for the first time in my life?". They a small skin lession under my breast. I it was a burn scar from hot oil. 7 months ago my skin issues on my face started spreading and getting worse. My PCP diagnosed me with eczema. Treated me with hydrocortison. 4 months ago my skin issues got worse. Darkening of skin areas affected. Dry flaking skin. Very sore and itchy. 2 months ago my PCP gave me triamcinolone to treat eczema. Within 2 days my skin issues were gone. Only this cream is very strong and you can not use it for more than 7 days, or it will thin your skin. I stopped it after 7 days, and within 24 hours my rash that looked like acne started coming back. The next day I noticed my neck was hot and itchy. Looked it the mirror, and it was red and swollen. Looked like hives. Took a benedryl, and it went away. Yesterday, my PCP told me Dermatitis Herpetiformis, or Duhring's Disease might be causing this. This is caused by an abnormal immune system response to gluten. Diagnosed by having a skin biopsy. Treated with Dapsone, an antibiotic, and gluten free diet. My symptoms are not exactly as I have read about, and pictures my doctor showed me are a little different. Also, I have been using coconut oil to treat dry itchy skin. If allergic to it, it can cause contact dermatitis. I guess this is also a possibility. Has anyone else had Dematitis Herpetiformis? If so, what were your symptoms? What helped? Did you have a biopsy? How long did it take to go away? Did it come back?
  17. Can gluten-exposure cause elevated liver enzymes during DH rash outbreak?
  18. I’m 30 and have not been tested for any gluten sensitivities, intolerance, or celiac disease. Best as I can recall, two years ago during my first and only pregnancy to date, I began to notice a rash that would appear on my elbows, inner thighs, and knee caps. The rash comes and goes, varying in severity. Until recently, I’ve dismissed the rash, assuming it was/is hormonal or due to weather, or dry skin. I hadn’t even thought to mention it to my doctor. This time around, the rash has been present, but not very prominent until this past week. It has flared up again and is itching and burning more often than not. In addition, I’ve been experiencing abdominal muscle twitching that feels extremely similar to fetal movements. I took two pregnancy tests that came back negative. I honestly would have sworn, despite having no other symptoms and taking birth control, that I was feeling fetal movement. I’ve recently begun researching possible causes for both the rash and muscle spasms, and of course there are so many possibilities, but it seems like the locations of the rash coincide with dermatitis herpetiformis. The above symptoms are the only ones I’m currently experiencing as far as I can tell. I should probably also mention that my diet has been absolute trash until recently, as I’ve committed to trying to get back in shape and maintain a healthier life style. I don’t even know where to begin as far as making appointments, and with which specialists and so on. If anyone has similar experiences and/or any helpful advice or recommendations, I would greatly appreciate the help. Thanks. *EDITED TO ADD- I forgot to mention two other possible symptoms. Depression and anxiety. I struggle with both. I also realize that it’s possible that I’m overreacting and jumping to conclusions. Apologies in advance. I’m beyond frustrated with this stupid rash and the muscle spasms.
  19. ok today is officially one week i've been gluten free and i haven't made any noticeable differences in feeling better. my first question is: how long should i wait to expect changes to occur? am i not giving it enough time? prior to going gluten free one of my issues was constipstion, as well as other health issues usually involving an upset stomach, nausea or an uneasy feeling in my stomach. but since going gluten free i have had a bowel movement different from usual. and today it was more loose and diarrhea like and it is very rarely like that. oh and about half way through the week i got a random rash pop up on one ankle???? advice or suggestions??
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