3 replies to this topic

[momtok&m]

My two youngest kids (dtr and son) are gluten intolerant, we do not know if it's Celiac but plan to have genetic testing soon.  They are both being tested for Hemophilia and Von Wilebrand, this came about because my oldest dtr just tested positive as a symptomatic Hemophilia A carrier.  Anyway, when I mentioned the gluten issues to the hematologist today she did not seem surprised at all!  She talked about antibodies and some other stuff but I had talked to 3 nurses, a social worker, a genetic counselor and another doc already and my head was spinning!  Do any of you have any bleeding disorders?  I realize it's genetic but I have to wonder if one disease plays off of or can make a person susceptible to another?  Or is is just plain luck?!  I say that in jest because I have to-I'm exhausted and occasionally have to laugh at our issues

[shadowicewolf]

Nope, that one is, to my knowledge, purely genetic. There is an extinct family, i believe, in Europe (england?) that had it.

[nvsmom]

'Wolf - you might be thinking of the Romanovs, the last tzars of Russia... Those royals got a little inbred. LOL

 

I have ITP (a type of thrombocytopenia) which is an autoimmune clotting disorder where your body targets your platelets as an enemy. White blood cells basically latch onto the platelets and when they they go through lymph organs, mainly the spleen, what ever the WBCs have targeted gets killed. If you don't have platelets, you can't clot and then the anemia begins... I don't have a spleen anymore so it's under control even though my WBC's are still targeting my platelets.

 

ITP has a loose link to celiac, as well as thyroiditis, diabetes, and lupus. It is totally unrelated to hemophilia as far as I know.

 

Best wishes.

[momtok&m]

Thanks for your input!  I'm always hoping to link something that way it all makes sense.  I don't like to think that my genes caused problems for my kids