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Celiac Questions

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My daughter was diagnosed with Celiac disease 2 years ago and I am still trying to figure out all the do's and don'ts. It was hard enough learning how to cook and buy the right foods but trying to understand something that I personally can't feel is hard. My daughter tells me what is going on and I try to help her even though I have no idea what to do. 

Recently she has been waking up feeling hot with stomach cramps and will sometime throw up and have to use the restroom. It will eventually ease off after I have her put a little food in her to see if her stomach is just looking for food. I am not sure if this is something that is considered normal with celiac disease or not. I was able to get the doctor to give her some sample meds to see if it could be acid building up overnight in her making her feel this way. 

I have a lot of questions and I am just looking for help with things to help my daughter or the right questions to ask the doctor to see what can be done. I hate that my child is hurting and I have no way of helping. Any information would be greatly appreciated


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Tell us more. How old is she? Do you live in a gluten-free house? Does she have her own toaster, condiments, cookware? She might be getting cross-contamination from any of these. If she is a youngster, she may be getting exposed at school, either from her friends, from Play-Doh, or even from something her teacher has her doing.


If you read the Newbie 101 thread you will learn a lot about the places gluten can hide. I suspect though that if she has been gluten-free for two years and is only now starting with these  stomach problems that there is something new causing it.


Or she just might have a "bug".


Either way, it sounds like you are having some problems learning about how to keep her gluten-free. You came to the right place! After reading Newbie 101, check out other threads, especially the breakfast lunch and dinner threads.


Welcome, and feel free to ask lots of questions. We're here to help. :)


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    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
    • I was in Zambia, Zimbabwe, Botswana & South Africa this summer, with very few problems.  I brought a ton of Kind bars, Justin's peanut butter packets and Costco beef jerky just in case!  I get the Kind Bars and Justin's on Amazon Prime.  Africans eat a lot of meat (try the Kudu, it's awesome!) and veggies.  Stay away from sauces.  I don't recommend eating the Mopane tree worms, even though they are gluten-free.  I tried to get out of it, but my tour leader said they were gluten-free and I had to try it as part of the experience....ewwwww!  lol  gluten-free is quite popular in South Africa...they call in the Banting diet.  Maybe they know it up north as well?  I would definitely stay away from chips because you have no idea what else has been in the same fryer oil.  One chicken nugget and you're toast.  I've never had a problem with rice.  Have a great trip...Africa is amazing!  
    • Hi Jan, Have you had any allergy testing? Could be you are allergic to something else. My daughter is Celiac and was still getting ill & feeling awful after going gluten-free. Found out through several blood tests that she is allergic to shrimp, wheat, yeast & sesame seeds. Many GlutenFree foods contain the things she is allergic too so her food choices just had to change. But she was recently diagnosed with EoE from her lastest endoscopy after being  sick with horrible acid.  Go have more testing with a GI doctor that is current with celiac disease and it's many different symptoms. Knowledge is a powerful weapon and you need to try and stay positive. You have many people who you can turn to and a big Celiac family that is always ready to listen & help where they can! Welcome to the forum 👍🏻
    • Hi Janst, It might help to simplify your diet.  Eliminate possibilities of gluten sneaking into your diet.  It's pretty easy to make mistakes with your diet when transitioning to gluten-free eating.  I suggest eating only whole foods for a 6 month period until you get used to things.  Cross contamination is another thing to look out for.  Shared peanut butter, butter, or other condiments can spread gluten in small amounts and make us sick.  Sometimes medicines or vitamins can have gluten, even teas and spices are possibilities.  Kissing a person who has eaten gluten recently can cause problems too. Keep trying because every time you make a mistake you learn something. You might want to try stopping all dairy for a while to see if that helps also. And welcome to the forum
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