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Celiac Questions
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My daughter was diagnosed with Celiac disease 2 years ago and I am still trying to figure out all the do's and don'ts. It was hard enough learning how to cook and buy the right foods but trying to understand something that I personally can't feel is hard. My daughter tells me what is going on and I try to help her even though I have no idea what to do. 

Recently she has been waking up feeling hot with stomach cramps and will sometime throw up and have to use the restroom. It will eventually ease off after I have her put a little food in her to see if her stomach is just looking for food. I am not sure if this is something that is considered normal with celiac disease or not. I was able to get the doctor to give her some sample meds to see if it could be acid building up overnight in her making her feel this way. 

I have a lot of questions and I am just looking for help with things to help my daughter or the right questions to ask the doctor to see what can be done. I hate that my child is hurting and I have no way of helping. Any information would be greatly appreciated

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Tell us more. How old is she? Do you live in a gluten-free house? Does she have her own toaster, condiments, cookware? She might be getting cross-contamination from any of these. If she is a youngster, she may be getting exposed at school, either from her friends, from Play-Doh, or even from something her teacher has her doing.

 

If you read the Newbie 101 thread you will learn a lot about the places gluten can hide. I suspect though that if she has been gluten-free for two years and is only now starting with these  stomach problems that there is something new causing it.

 

Or she just might have a "bug".

 

Either way, it sounds like you are having some problems learning about how to keep her gluten-free. You came to the right place! After reading Newbie 101, check out other threads, especially the breakfast lunch and dinner threads.

 

Welcome, and feel free to ask lots of questions. We're here to help. :)

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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