Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Just Got Back From The Doctor
0

5 posts in this topic

Well I had my appt with my PCP. I told him I had a big list of symptoms but my most prominent ones are muscle pain, forgetfulness/memory loss, hypoglycemia, and lightheadedness upon standing. I then told him that 3 days ago I decided to avoid gluten and as many processed foods as possible. He said it did sound like a food intolerance. But he said he doubts if it's gluten because I'm getting kind of old and would have had past problems with it. I'm 33. I do realize that is contradictory to a lot of people who are diagnosed with Celiac late in life. He doesn't think my symptoms of hypoglycemia are my blood sugar. Last time I had an episode my bs was 66, not that low from what I understand. He thinks it's related to a food intolerance, but we just don't know which one. Then I mentioned my ulcer. I asked him if ulcers can be cured. He said yes, and then I asked if we were just covering up the symptoms of mine and not curing it. He said probably. To give him credit he was not the dr who "diagnosed" my ulcer in the first place. She left the practice and he took over my care. 

 

So here's the plan: I have a consult with the surgeon on Thursday afternoon. My dr thinks we need to do a scope (not sure if that's the same thing as endoscopy) and probably a CT scan to look at my stomach. He and the surgeon think the problems I'm having is related to my gastric bypass surgery. I asked him if he thought I should continue avoiding gluten and he said right now if it makes me feel better to go ahead at least till we figure out what's going on with my stomach.

 

So there you go. I feel good that he didn't just look at me like I was crazy. Perhaps the scope will give more answers. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Um, I just was diagnosed this year and I'm 34. So, 33 is not too old. :)

 

I didn't have any problems until after my pregnancy. So it may be that you just had a trigger in the past few years. Endoscopy is where they go down the esophagus and look at the stomach and duodenum (first part of small intestine). The biopsies they take from the SI will show if you have any damage. They will also be able to look at the ulcer if there is one in your stomach. My reflux and stomach pain resolved and I was able to go off Nexium when I went gluten-free. I am back on a PPI now after my scope b/c I did have esophagitis and active reflux during the scope. But I don't have the painful symptoms any longer.

 

Good luck with your appt on Thursday.  It might not be a bad idea to ask and see a GI doc as well. They can coordinate with your surgeon. Surgeons don't always know the best ways to fix problems that aren't necessarily surgical, kwim?

0

Share this post


Link to post
Share on other sites

I was diagnosed at 33, I believe mine was triggered by an open abdominal surgery in which I spent 8 days hosipitalized with sepsis after a burst appendix. I've also had 2 pregnancies, I feel that all contributed.

I would see a GI and get further testing, no question!

0

Share this post


Link to post
Share on other sites

Don't worry about the endoscopy either I had one and was out if it with the drugs they gave me it went by fast

0

Share this post


Link to post
Share on other sites

Good luck with the scope. Try to ensure they take at least 6 samples for a biposy, 8 or more is better. Hopefully that won't miss patchy damage.

 

I read somewhere that the average time to diagnosis for a celiac is 8 years.... Most people i've heard about seem to  fall into one of two groups: 1. Symptoms come on fast and hard and they are diagnosed in months to a couple of years, or 2. Symptoms build and build over time until we figure it out for ourselves in adulthood.   I was in the second group and discovered my diagnosis in my late 30's too....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,688
    • Most Online
      3,093

    Newest Member
    AbuBakar
    Joined