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Blood Test Results?


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30 replies to this topic

#1 Chris04626

 
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Posted 22 February 2013 - 04:03 PM

Does anyone know what the normal and above normal ranges are for celiac blood tests?         My 6 year old just had some tests done, and the doctor showed my wife a peice of paper with results, but didnt get to see it very good.  It appeared they only tested 2 different things.

 

Anyone know the ranges?


Edited by Chris04626, 22 February 2013 - 06:03 PM.

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#2 mushroom

 
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Posted 22 February 2013 - 04:43 PM

Each lab sets their own ranges for the various tests performed.  They will generally have a negative, a weak positive (equivocal), and a strong positive.  The numbers can be different at each lab.  You should get a printout of the lab results from your doctor for your own records, and if you would care to share them with us we would be happy to comment.


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#3 Chris04626

 
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Posted 22 February 2013 - 05:26 PM

HE kinda just flashed them in front of my wife and sounded like he didnt think we even need to get a biopsy and is setting us up with a nutrionist

 

There was one that had a range of 0 to 180s  and my sons was 140ish

There was another that was 1 to 14 and my son had a 28

 

What 2 would they normally test for?


Edited by Chris04626, 22 February 2013 - 06:03 PM.

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#4 mushroom

 
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Posted 22 February 2013 - 05:42 PM

Doctors do have this "flashing" habit, if they bother at all.  Most of the time they just TELL you.  It is always a good idea to have your own copies of results for reference down the line.  I get copies of all mine, and of consultant's reports.  You really need to know what they're saying and doing.

 

That being said, most likely the first test was the total serum IgA which would probably have numbers in that range for a six-year-old - normal IgA falling anywhere within the stated range up to 180 something.  The other test was probably the doctors' favorite, the tTG (tissue transglutaminase), and if the range only went to 14 and his result was 28, he was solidly positive.  This is probably why he considered the biopsy unnecessary (an advanced thinker :P ) and sent you straight to the nutritionist.  I assume he did pronounce that your son was a celiac?


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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#5 Chris04626

 
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Posted 22 February 2013 - 05:58 PM

Doctors do have this "flashing" habit, if they bother at all.  Most of the time they just TELL you.  It is always a good idea to have your own copies of results for reference down the line.  I get copies of all mine, and of consultant's reports.  You really need to know what they're saying and doing.

 

That being said, most likely the first test was the total serum IgA which would probably have numbers in that range for a six-year-old - normal IgA falling anywhere within the stated range up to 180 something.  The other test was probably the doctors' favorite, the tTG (tissue transglutaminase), and if the range only went to 14 and his result was 28, he was solidly positive.  This is probably why he considered the biopsy unnecessary (an advanced thinker :P ) and sent you straight to the nutritionist.  I assume he did pronounce that your son was a celiac?

My son has had this large belly pretty much since he was a baby, we always asked if it was normal and was told yes.  We finally got them to do an ultra sound and the person doing it said its hard to see hes so full of gas.    So then the dr calls with results from that saying t showed an enlarged spleen so they wanted to do blood tests, they did a bucnh of different tests which all came back nagative except for celiac ones.


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#6 mushroom

 
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Posted 22 February 2013 - 07:15 PM

Welcome to the club no one expected to join :)

 

There's a lot of reading on here which you should find helpful, starting with the Newbie 101 thread.  Here you will find where gluten lurks and how to ferret it out and keep your son safe.  Read as much as you can, and as questions arise, don't be afraid to ask them.


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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 Chris04626

 
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Posted 22 February 2013 - 07:21 PM

Thanks for your help, my youngest needs to be tested on Tuesday just in case/  Should as as parents be tested as well? I have heard its genetic?


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#8 mushroom

 
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Posted 22 February 2013 - 10:14 PM

Yes, all first degree relatives should be tested.


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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#9 Chris04626

 
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Posted 23 February 2013 - 06:11 AM

Yes, all first degree relatives should be tested.

everything ive read says dont start gluten free untill they do a biopsy but they said we should start it now.  Is that right? Dr tried to say we can start eating gluten again 3 days before the biopsy and it will show up on the Biopsy?         From what ive read that dont sound right. Any idea if the spleen has any connection to celiac?


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#10 nvsmom

 
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Posted 23 February 2013 - 10:44 AM

everything ive read says dont start gluten free untill they do a biopsy but they said we should start it now.  Is that right? Dr tried to say we can start eating gluten again 3 days before the biopsy and it will show up on the Biopsy?         From what ive read that dont sound right. Any idea if the spleen has any connection to celiac?

 The biopsy shows the damage so as long as he hasn't healed completely it should show up... I think your doctor could be taking a risk with telling you to stop eating gluten now and then restart it 3 days before the biopsy unless the biopsy is in the next couple of weeks. As long as he is handling the effects of gluten okay, I would try to keep him on some gluten until as close to the test as possible.

 

The spleen does have a connection to to celiac disease but I'm not sure if it's exact link.  I do know that a celiac's spleen often does not work as well as a regular person's spleen but i'm unsure if it's because of an autoimmune attack on the spleen (celiac can attack anything from the gut, to joints, nerves, the gall bladder, and the skin) or if it's because the spleen is working extra hard to clear out parts in the blood that it feels is "the enemy" (ie. gluten).

 

A spleen gets enlarged when it's fighting germs, mounting an autoimmune attack, or with cancer. Please don't jump to that final conclusion though. An enlarged spleen is not that unusual, and I'm sure your doctors checked for cancer right away. They knew there was a link to celiac (to an enlarged spleen) and that's probably why they ran the test.  :)


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#11 Chris04626

 
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Posted 23 February 2013 - 06:49 PM

A little history about my son. He has had a rough go off it since birth

 

Had a rough delivery for him and my wife. They had to use the vacuum like 4 times to suck him out he stopped breathing for a bit once the cord was cut.   Had alot of ear infections ended up with 3 sets of ear tubes and tonsils and adnoids out. Still has alot of sinus infections.


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#12 Chris04626

 
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Posted 23 February 2013 - 06:51 PM

 The biopsy shows the damage so as long as he hasn't healed completely it should show up... I think your doctor could be taking a risk with telling you to stop eating gluten now and then restart it 3 days before the biopsy unless the biopsy is in the next couple of weeks. As long as he is handling the effects of gluten okay, I would try to keep him on some gluten until as close to the test as possible.

 

The spleen does have a connection to to celiac disease but I'm not sure if it's exact link.  I do know that a celiac's spleen often does not work as well as a regular person's spleen but i'm unsure if it's because of an autoimmune attack on the spleen (celiac can attack anything from the gut, to joints, nerves, the gall bladder, and the skin) or if it's because the spleen is working extra hard to clear out parts in the blood that it feels is "the enemy" (ie. gluten).

 

A spleen gets enlarged when it's fighting germs, mounting an autoimmune attack, or with cancer. Please don't jump to that final conclusion though. An enlarged spleen is not that unusual, and I'm sure your doctors checked for cancer right away. They knew there was a link to celiac (to an enlarged spleen) and that's probably why they ran the test.  :)

The dr talked to a hematologist or something like that and they told him to due cat scan of the spleen. Dr said that was before they found out it was celiac so we will just ultra sound the spleen in 3 months and look at it then.


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#13 Chris04626

 
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Posted 25 February 2013 - 05:29 AM

just called my doctor to get set up for my blood test. Of course they couldnt just set it up so i could go to the lab and have it done, i first need an appointment so they then can set it up.


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#14 frieze

 
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Posted 25 February 2013 - 08:55 AM

just called my doctor to get set up for my blood test. Of course they couldnt just set it up so i could go to the lab and have it done, i first need an appointment so they then can set it up.

of course that is a bunch of...organic fertilizer...just to generate income.


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#15 Chris04626

 
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Posted 25 February 2013 - 10:40 AM

exactly


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