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Blood Test Results?


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30 replies to this topic

#16 Chris04626

 
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Posted 28 February 2013 - 01:14 PM

see his GI yesterday his ttg level was 28 the normal range is 1-14. She said most likely it was caught fairly early as she has seen that number in the 100's on some people. She is setting up a Gi scope and said if they find something that take him off gluten then, if not then do a 3 month trial without glutten, if he starts feeling better than keep him off it, if ni changes give him gluten again and then they would restest his ttg level to see if its gotten any worse.

 

What i dont get is if it was caught early why has he always had this distended belly and full of gas?          She is also going to test for lactose intollerant when she does the biopsy


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#17 nvsmom

 
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Posted 28 February 2013 - 03:26 PM

It probably was not caught that early, he just had a blood sample taken where the numbers weren't that high. There are quite a few celiacs who have completely negative blood tests and are diagnosed on biopsy alone.

I personally do not think it's how positive a test is, I think the important point is that it is positive.

Hope he feels better soon.
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#18 Chris04626

 
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Posted 28 February 2013 - 03:38 PM

They will be doing the biopsy in 2 weeks.   How long after does it usually take to get the results.     What sucks for us is it is a 4-5 hour drive.


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#19 Chris04626

 
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Posted 01 March 2013 - 03:04 PM

i had by blood test done today, i go back for the results on the 14th.


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#20 Chris04626

 
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Posted 05 March 2013 - 01:53 PM

my youngest blood test game back within normal ranges.   Monday my son will have his biopsy. then that friday i will get my blood test results


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#21 Chris04626

 
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Posted 12 March 2013 - 10:01 AM

He had his scope yesterday,The doctor said nothing looked abnormal to the naked eye which it never does. She said she took a bunch of samples and would hgave the results in a week.

 

We asked if he should stop eating gluten now and she said she would just wait till after the results t ogive him another week of normalcy.

 

Ok so what if the blood test came back as postive and the biopsy comes back normal?      Does that mean he doesnt have celiacs and we dont need to do gluten free?


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#22 nvsmom

 
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Posted 12 March 2013 - 10:10 AM

Ok so what if the blood test came back as postive and the biopsy comes back normal?      Does that mean he doesnt have celiacs and we dont need to do gluten free?

 

That happens more frequent than you would think. If the damage is patchy, it means that the doctors missed the damaged parts in the biopsy.

 

I can't remember if he had any other blood tests beyond the ttg (IgA?)? If the biopsy is normal, I would really push to get the complete blood panel done before he goes gluten-free so he won't have to go back onto gluten if he is doing well on the diet.

 

When he does his gluten-free trial, consider trying it for longer than 3 months. Some symptoms will resolve almost immediately but others take months and months. I noticed improvements at 6 months into the gluten-free diet, and others have said that they didn't feel really good until after a year had gone by.

 

Good luck!


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#23 Chris04626

 
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Posted 12 March 2013 - 10:16 AM

when we first saw her she told us this

 

if they find something that take him off gluten then, if not then do a 3 month trial without glutten, if he starts feeling better than keep him off it, if ni changes give him gluten again and then they would restest his ttg level to see if its gotten any worse.

We almost hope it shows something as it will be a definate answer and we can work on fixing it


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#24 Chris04626

 
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Posted 12 March 2013 - 11:14 AM

they only did the ttg test and another one,

 

TTg was 28 out of a 1-14 scale

 

I am not sure what the other one was but that came in as normal range


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#25 GottaSki

 
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Posted 12 March 2013 - 12:41 PM

I agree with Nicole -- have them run a complete celiac antibody panel:

 

tTG - IgA and IgG

EMA - IgA

DGP - IgA and IgG

 

along with nutrient blood tests:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc.

 

If he hasn't had a CBC (Complete Blood Count) or CMP (Complete Metabolic Panel) add those in as well.

 

Nicole is also right that the damage can be spotty and if the GI doesn't have specific Celiac biopsy experience the results are not as good as they can be -- that being said people can have a very experienced celiac specialist take the samples and still end up with negative pathology -- especially kids as the damage is often not as severe as folks that go years without diagnosis.

 

After all that is complete - I agree that it is time to remove gluten for at least 3-6 months to watch for symptom improvement.

 

Welcome to the forum....take a look at the "Newbie 101" thread and let us know if you have any questions :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#26 Chris04626

 
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Posted 12 March 2013 - 01:47 PM

I know know they tested his stool, his blood counts, not sure if that was apart of the complete blood pabel or not, and the only thing that came back postive was the ttg.


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#27 Chris04626

 
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Posted 13 March 2013 - 01:26 PM

My nurse called today and said my blood test was all within normal range.


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#28 mushroom

 
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Posted 13 March 2013 - 02:40 PM

The tTG is normally part of the blood panel - in fact it is often the only test a doctor will run.  You should get a copy of all your results.


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#29 Chris04626

 
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Posted 14 March 2013 - 08:39 AM

called today with biopsy results. Said  there was no evidence of celliac disease.  They are doing one for lactose but that takes longer to get back.

 

Pretty discouraged, was hoping we finally found an answer to his issues.


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#30 Ninja

 
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Posted 14 March 2013 - 08:51 AM

Make sure you get copies of the biopsy report, too! Sometimes doctors don't consider celiac until the biopsies show severe damage. ...but there are signs earlier than that: increased intraepithelial lymphocytes being one of them!


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