Posted 12 March 2013 - 12:41 PM
I agree with Nicole -- have them run a complete celiac antibody panel:
tTG - IgA and IgG
EMA - IgA
DGP - IgA and IgG
along with nutrient blood tests:
B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc.
If he hasn't had a CBC (Complete Blood Count) or CMP (Complete Metabolic Panel) add those in as well.
Nicole is also right that the damage can be spotty and if the GI doesn't have specific Celiac biopsy experience the results are not as good as they can be -- that being said people can have a very experienced celiac specialist take the samples and still end up with negative pathology -- especially kids as the damage is often not as severe as folks that go years without diagnosis.
After all that is complete - I agree that it is time to remove gluten for at least 3-6 months to watch for symptom improvement.
Welcome to the forum....take a look at the "Newbie 101" thread and let us know if you have any questions
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
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