I had 30+ years of celiac disease symptoms. My symptoms are mostly neurological. Namely brain fog, fatigue, and numbness.
Now, I have been gluten free for 10 months. My family is complying with most of my pleas for my diet to be right. They have seen me eat in the car when they go to restaurants. I have brought my own food when going to relatives. I am taking many supplements daily. IS this just for fun?
Yesterday, my husband came up with the idea of having a prayer meeting for someone's health in our family. None of my children 8-20 knew who in the family we would pray for. They didn't see us having any problem so severe as to require one. We had just attended a prayer meeting for someone with an Auto-Immune disease. Now, that is severe enough to warrant it.
We have experienced this denial for quite a while. My doctor wrote a letter to my family last summer. She said that I had an illness (5 years back) that was severe enough to cause death or severe disability. She also stated that I had been making progress, but still had a ways to go.
All of the while (and still) my family doesn't know?! I have a great family; I don't know how I got them. But I just can't understand how come my severe illness is not acknowledged. Do I hide it that well? Or do I just look like a complete jerk?