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Question For People With Casein Intolerance As Well As Celiac...


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#1 josh052980

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Posted 25 February 2013 - 12:26 PM

I thought I was having lactose intolerance issues to milk only, so I started on Lactaid milk, and was still having issues. I dropped the milk out in favor of Silk almond milk this morning, and my issues are already gone. As far as I know I can eat cheese, butter, cream, etc with no issues. Can I have a casein issue and it only effects me with straight milk? Has anyone else stumbled on this?


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#2 shadowicewolf

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Posted 25 February 2013 - 12:30 PM

If it was casin, I believe all of those would effect you. Thats how my understanding works.


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#3 josh052980

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Posted 25 February 2013 - 12:37 PM

That's what I thought as well, but all symptoms I had when on even the Lactaid milk disappeared even after just one day with it. I feel like a new man. It's really bizarre...


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#4 nicolebeth

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Posted 25 February 2013 - 02:02 PM

I personally eat butter just fine. The problem is when I start eating more than just a very little cheese. I think that casein is worse in things like milk and cheese, and is minimal in butter (a fat).


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#5 Denine

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Posted 26 February 2013 - 06:45 AM

My daughter has both a casein and a whey intolerance.  The whey is the liquid, the casein is the solid.  Hard cheeses would have next to now whey in them, but milk has plenty,


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#6 cavernio

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Posted 26 February 2013 - 07:17 AM

My daughter has both a casein and a whey intolerance.  The whey is the liquid, the casein is the solid.  Hard cheeses would have next to now whey in them, but milk has plenty,

 

I have never heard the difference between casein and whey being liquid and solid. However, whey and casein are separate things but both are proteins in milkd.  I've read articles that seem to be calling whey casein and vice versa. The wikipedia article on lactose intolerance says that lactose is water soluble but not fat soluble, so it's not found in high quantities in things like butter.

 

I've heard that ghee (if made extremely carefully) is supposed to have no casein, but consists of whey as well as fat. You can also buy whey (not sure how pure) for body building powders and such. You could test eating whey only and see what happens. I've known people with whey allergies specifically.

 

However, I suspect that the broken down lactose is still bothering your system. A little reading and I found that lactose breaks down into glucose and galactose. Galactose seems to only come from milk, and of course, as in digesting anything it seems, there's some sort of transport mechanism for both absorbing glucose and galactose, which will likely be damaged.

Any brand of lactose free milk I've seen just has lactase added to it, so that the lactose is already broken down. This is not the same as in pure dairy fat because the lactose will have never been there in the first place, (I don't think) so you don't have to worry about glucose or galactose in them.

http://www.ncbi.nlm....books/NBK22210/ there exist diseases where the intestine can't absorb glucose or galactose, so it seems entirely plausible for celiacs to have issues with this too.

(aside, 10% of the population have glucose digestion issues???!)

 

I had diarrhea issues with lactose free milk too (and I never had D with any sort of regularity before being gluten free, so it was pretty obvious it was the milk), although I strongly suspect I have issues with all dairy too. Body temp fluctuations, feel like I'm almost getting sick, swollen dry tongue, but I'm not about to test that with absolute certainty anytime soon as I'm still restricting my diet more as I still don't feel better.


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diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#7 mushroom

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Posted 26 February 2013 - 12:51 PM

Lactaid works for some people and not others.  It initially worked for me, but eventually I had to eliminate milk, cream, ice cream, frozen yogurt, while still being able to tolerate those foods which were cultured (yogurt), high fat / low lactose (butter) or where the lactose was consumed by enzymes (cheese).  I can now eat all dairy again.


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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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