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Thyroid Antibodies Have Disappeared
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I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah

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I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah

Great News Sarah!  Whatever the reason.

I don't know what your symptoms are, but if you feel they are food related, keep a diary of everything you consume, and keep a eye on your symptoms.

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I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah

 

I've been gluten free since celiac disease dx in 1994. After years of hypthyroid symptoms I was finally dx'd w/ Hashimoto's hypothyroidism in 2009. My first TPOab (antibodies) were at the top of the normal range. 2 years later they are low normal. I agree that avoiding gluten helps eliminate the antibodies. However if you had hypothyroid symptoms for years before diagnosis (and going gluten free) you may have sustained enough damage to your thyroid gland that you will need thyroid supplements.  I feel soooo much better with an effective dose of thyroid supplement. No more low blood pressure, low body temperature, fatigue, constipation and lousy fingernails.

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Most of my symptoms are with my menstural cycle.  I have severe PMS and heavy menstrual cycles every 25 days.  I am tired alot (which all dr's say it's because I have five children).  I am cold all the time, my body temp is never over 97.5,  which they say it's winter!  I think they figured after all the years I am just a hypochondriac!!  I have started taking chasteberry or vitex, I am hoping that it will help me get my cycles straightened out.  We will see! 

I do think that I am having some other food issues as well, but I am still in denial, I don't want to give up anything else quite yet.  I am already allergic to peanuts, hazelnuts, red grapes and raisins, soy, eggs, and I am gluten free...  I actually got very sick last night from a salad!  Everything on there was gluten free, so I don't know what bothers me...

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That's great news! I hope that they continue to stay normal for you. I have hashimoto's and my thyroid antibodies are through the roof (over 1000). I've always had severe symptoms, but my thyroid levels are within normal range through treatment. I was recently told to go Gluten-Free by my doctor. My doctor said that theoretically my levels should be lower with treatment so gluten may be the culprit. I hope that it helps lower my antibody levels, too.

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Most of my symptoms are with my menstural cycle. I have severe PMS and heavy menstrual cycles every 25 days. I am tired alot (which all dr's say it's because I have five children). I am cold all the time, my body temp is never over 97.5, which they say it's winter! I think they figured after all the years I am just a hypochondriac!! I have started taking chasteberry or vitex, I am hoping that it will help me get my cycles straightened out. We will see!

I do think that I am having some other food issues as well, but I am still in denial, I don't want to give up anything else quite yet. I am already allergic to peanuts, hazelnuts, red grapes and raisins, soy, eggs, and I am gluten free... I actually got very sick last night from a salad! Everything on there was gluten free, so I don't know what bothers me...

The low body temp, exhaustion, cold, heavy cycles, etc. are symptoms of adrenal or hormone imbalances that frequently accompany hypothyroidism. I understand your antibodies may be currently in the normal range; however, if a certain amount if damage was done to your thyroid you will need to address it, along with adrenals, to feel better.

I do understand denial. I think most of us here do.

I also had gi symptoms resolve after thyroid treatment - so treating your thyroid may help.

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My thyroid antibodies were 1200 the year before I was diagnosed with Celiac.  I already was being treated for Hashi's for many years prior.  Nothing seemed to help in making them decline but I was not absorbing the meds due to Celiac.  That was 2005.  I have been gluten-free for 8 years this Easter and I just had my thyroid panel done and my antibodies are in the lower end of normal.....around 32.  So, going gluten free really was key for me, along with natural dessicated thyroid hormone.  Mine are prescription.  I will always need thyroid hormone due to the damage done but my antibodies are now happy and calm. 

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I'll play the role of a doom sayer ... ;) TPO Ab can also drop off once enough of your thyroid is destroyed. Hopefully this is not true in your case.

If you are hypothyroid, you should still get treatment. Perhaps you won't need as much of the hormones now that you are gluten-free. Best wishes.

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Great news! :) That was one of the factors that made me want to try the gluten-free diet. I have all antibodies through the roof, but my symptoms are mostly hyperthyroidism-like (I was in menopause for 19 months and I'm barely 30!).

 

I have had this for a couple of years, on paper, but I think I've always been a higher-level hormones functioning type: ever since I have memory I was constantly hot and sweaty, high energy (read: restless and sometimes anxious), scary fast metabolism and hunger, very light periods, frequent BM (but that could have been wheat?). :ph34r:

 

I was ok, so no one ever tested me, and I guess if  had been very hyperthyroid I would have felt as awful as I have in the past, but it makes me believe that I usually function in the borderline-high range, because when I was, for a short period, in a lower "normal" range I felt severely hypo. Bizzarre.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
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