Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newly Diagnosed Very Overwhelmed
0

4 posts in this topic

I've been sick for the last couple of years with severe abdominal pain diarrhea migraine headaches joint pain skin rashes tingling numbness in hands and feet fever muscle aches fatigue weakness dehydration.I was referred to a gastroenterologist two years ago and I have had several procedures and operations to find out what was going on.I finally did my research on celiac disease and thought that i might have it i suggested they test my blood and two weeks ago the test came back positive for celiac.I need to know if i should have another endoscopy because i had one before the blood work came back.When they did the endoscopy the didn't biopsy my small intestine only my stomach.I would love to hear your feedback on this.Having to go gluten free overnight has been so overwhelming for me and i'm still having the same symptoms as before. xoxo

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you wish to do the endo, you should be on gluten beforehand. Not being on it can possibly mess with the results.

0

Share this post


Link to post
Share on other sites

OH, here is your story!  Welcome and give yourself some time to adjust. I wish I could send someone to take over your kitchen and show you the ropes   Wouldn't that be great?   It takes a while to study the needed information and put it into use in your kitchen.  It is hard to do when you are feeling low.  I hope that the dream of improving your health will inspire you to do just that over some time. 

 

.I am hoping you will soon have the information you need, and will be improving your health.

 

Diana

0

Share this post


Link to post
Share on other sites

thanks for the feedback 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,522
  • Topics

  • Posts

    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,427
    • Most Online
      1,763

    Newest Member
    BrookN3WJ
    Joined