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Going To A New Doctor Thursday
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2 posts in this topic

*Eh. I put this in the wrong place. Guess I forgot how to use the board. Should probably be in the "coping" section.*

 

I haven't been on the board for a long time...maybe a year. Looking for some support, I guess.

 

It's been four years since I was diagnosed, and I'm still not doing all that well. I've pretty much given up on my mainstream doctors...it's just frustrating every time I go. I've been on the GAPS diet for one year. It has helped, I've been able to do more, but I can still only work a few hours each day, and my body is still doing some whacky things. Mostly, it's the fatigue that gets me down. That, and I have some chronic pains that haven't gone away yet. Lots of other typical things you read about from us non-standard symptoms people. 

 

Anyway, I've made an appointment to see a D.O. ...out of pocket - she doesn't take insurance, and she's not cheap. They booked me SIX MONTHS ago. She really helped out a friend of mine, so I'm hoping for a similar experience. She's an hour away - not terrible, but will definitely take a chunk out of my day and energy to get there.

 

...I'm trying not to put all of my eggs in one basket, but in all honesty, I'm going to be distraught if she doesn't have any new ideas for me. 

 

I'm nervous, excited and my usual insomnia is even worse. I've had a support system here to help me, but circumstances have changed, and I'm feeling quite alone. There are people around... but you know how it is - you can only talk about your health so much. I am already the first to leave at social events, and I don't want to be Debbie Downer or be getting *that* kind of attention.

 

So, yeah. Wish me luck. Trying to keep my chin up no matter what.

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  I had my son to an osteopathic doctor and he did help us.  My son had parasite damage to his small intestine.   The doctor did have some different ideas for us.  He used both mainstream medicene and natural supplements.  The safest, most effective treatment.

 

You waited a long time to see this doctor and I hope this works well for you.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
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    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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