Hi, new here, 20 year old female. Curiosity and need to advice an opinions brought me here.
Ive had some really terrible digestive problems for as long as I can remember. Ya know, excess gas, bloating that hurts so bad I think I'm having a heart attack, the big D, never being "regular". As well as maybe related, maybe unrelated issues such as sinus problems, crazy sensitive skin that is always dry and itchy, slow healing, easy bruising, and I fell and skinned my knee once when I was 6 months pregnant... my daughter is now 2 months and the skin is still all red and not healed! Hah! And it seems any bruises I get take months to go away. My nails are brittle and break and I have a lot of tiredness and lack of motivation for a 20 year old who's in fairly good shape.
Well... I strongly suspect celiac.. And so does the nutritionist that I saw just a few months ago BUT... a few years ago I had the blood test for it, twice (I think the two tests were 6 months apart) and they both tested negative. I know getting a negative result is possible but how likely? How many of you got negative blood but ended up having it anyway after getting an endoscopy to really diagnose?
I went gluten free for a month under the guidelines of a nutritionist but didn't see speedy results and got kind of discouraged, are you supposed to feel better fast or does it take time? I was angry my digestive problems stuck around and only seemed to get SLIGHTLY better but I attributed that to the fact that I was eating very bland anyway. Also, on the third week of the gluten free diet I started taking probiotics, which helped a good bit so I said Hey! This helps! Maybe this was all I needed! So I started eating gluten again annnnnnnd within the next few days I started to feel bad again. But also some weird symptoms came back. Ive always had anxiety problems but pretty much had it under control, a month off gluten and then as soon as I started eating it again I started having minor panic attacks, dizziness and all the digestive upsets but with MORE gas! Now I'm almost totally convinced gluten is my problem but if it was why didnt I see that much of an improvement over the course of a month? Annnnd also I'm the type of person that needs that diagnosis from a Doctor so I know I'm not wasting my time. I want to go for the endoscopy to really get a diagnosis but my question is do I need a colonoscopy as well or just an endoscopy to be diagnosed? Also.... since I was off gluten for a month how long should I eat it again so that the test can be accurate? I know some "gluten challenges" say 8 weeks but since I was only off for a month does this still apply?
Help me out here! Thanks!