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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

22 Month Old Diagnosed With Celiac
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11 posts in this topic

I just found out my 22 month old has Celiac disease.  Neither my husband or I have ever thought we were sensitive to Gluten.

 

I am wondering if anyone had their child diagnosed and then found out that they too had the disease?  Or did anyone get tested and they didn't have the disease, but felt better after going gluten free anyway?  I'm debating between going totally gluten free in the house or trying for a mixed kitchen, but the more I read about mixed, the bigger of a pain it sounds.

 

When people went gluten free, did you just throw out everything with gluten in it?  Right now we have a cupboard with gluten free baby snacks for my son, but he still wants some of the things my  husband and I eat.  Today he tried to steal my grilled cheese!  It just seems so wasteful to throw out all that food.

 

I'm already beginning to see a difference in my little boy, and he's only been gluten free for a week.  He eats better, plays more, is more active, and just seems so much more normal.  We have to take him in for an endoscopy on Thursday as one final confirmation of the celiac, but his blood panel came back positive and our pediatric GI doctor said he sounds like a classic case.

 

More than anything, its a relief to have an answer as to what was making my child so sick.  Watching him lose weight and never eat was so hard.  I'm also glad to have found this website where we can join a community of people who are all dealing with these issues.

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I don't make special food for my daughter. She eats what we eat, and since I have to be gluten free, the vast majority of what she eats is gluten free. Then I don't have to worry when she tries to feed me her crackers!!

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Argh, the doc had you put your little guy on a gluten-free diet *before* the endoscopy? for the best chance at a positive biopsy, he would have needed to be on a full gluten diet leading up to testing. Will the doc diagnose based on blood work alone, regardless of biopsy result?

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Argh, the doc had you put your little guy on a gluten-free diet *before* the endoscopy? for the best chance at a positive biopsy, he would have needed to be on a full gluten diet leading up to testing. Will the doc diagnose based on blood work alone, regardless of biopsy result?

No, I must not have been very clear. She had an endoscopy about 2 months ago while she was still eating a full-gluten diet. Now she's scheduled for a colonoscopy to check for ulcerative colitis. She was up every 2 hours last night complaining about her stomach, so I really hope we can find some answers soon!

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No, I must not have been very clear. She had an endoscopy about 2 months ago while she was still eating a full-gluten diet. Now she's scheduled for a colonoscopy to check for ulcerative colitis. She was up every 2 hours last night complaining about her stomach, so I really hope we can find some answers soon!

 

 

I think the response was for the person who started this thread about her little boy?  Maybe you are in the wrong place?  :)

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When my then 8yo was diagnosed with celiac, we made the whole household gluten-free.  It really is easier (says the person who is traveling right now and dealing with a slightly mixed kitchen).  Mentally, it also helped me to really invest the time and energy into figuring out how to make good, tasty, gluten-free food.  I love to bake, and I had to relearn everything with gluten-free flours, but I put the effort into it in part because we were all eating it. 

 

We gave away any unopened gluteny food to a food shelf.  We gave opened food away to friends.  We cleaned the whole kitchen top to bottom.  And we started over with everything gluten-free.  

 

I'm glad your son is doing well!  It is an adjustment but it's worth it.  

 

For your other question, none of the rest of us have noticed any health changes going gluten-free.  We tested everyone and nobody else in the family had high antibody levels.  So at the moment, there were no other diagnoses of celiac. There are definitely people here who discovered they had celiac after their kids were diagnosed, or vice versa.  

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The Pediatric GI did the endoscopy today and showed us the scalloping on this small intestine.  He said he doesn't really even need the biopsy back to tell that he has celiac disease.

 

His appetite has improved so much that I have to imagine this is what kids his age are actually like. 

 

My son was eating so little and was so cranky, that we saw a huge turn around in a week on the gluten-free.  I'm glad the pediatrician had us do that even though we might not get a positive biopsy.  Since most of the visible signs are there, I'm pretty sure that's the diagnosis we'll get.

 

I appreciate all the feedback!

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I'm glad to hear he's feeling better so quickly!!

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You are lucky in that you guys saw significant improvement right away,since that helped to confirm that it was celics and that you guys are on the right track. While reading your post I kept thinking that I wish we would see results (it's been 4+ months on gluten free) and my 2 yr old still has not gained weight or increase her appetite. Her first endoscopy showed minimal blunting, and she just had another one which showed no blunting and a normal gut, but she still is same weight and eating has not changed. Reading your post makes me think that improvement in symptons should have occurred after 4 months so perhaps my 2 yr old doesn't have celiacs....

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I have a 19 month old who was diagnosed at 14 months.  When we first found out, we cleaned out the fridge and cupboards and separated them into "regular" and "gluten free" spaces.  The gluten free shelves are the shelves that are within reach of our child with celiac.  Any refridgerated gluten products are stored up high or in our second fridge in the basement, which is a lot less accessible than the main kitchen fridge. 

 

Our policy is that our main meal at supper time is totally gluten free.  That decreases the risk of cross contamination.  Breakfast for our celiac kid is usually fruit and a gluten free muffin or yogurt.  Lunch during the week is served at daycare, but is usually leftovers from our gluten free supper the night before. 

 

I find that making the main meal gluten free is just easier, because then I have leftovers for his lunch and I know it's not contaminated.

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We still have gluten stuffs in our house, but they are really only for my other dd's lunches.  The dinners I make have been gluten free, which hasn't been that big of an adjustment, really.  

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
      sella.........in 11 years gluten free, I have never been glutened by natural flavorings. I know some of the older literature on Celiac says it may contain gluten but they rarely do.  For more info, I have put in a link that briefly explains how it works with labeling for those.  The link is dated 2013 but I have yet to read any updates that list any pertinent changes to this.  It will take a few years or longer for a person with Celiac to really learn how to read a label to the point where they feel comfortable with eating that food but I guarantee you'll be a food expert! http://www.glutenfreeliving.com/gluten-free-foods/gluten-free-nutrition/gluten-questions-and-answers/natural-flavorings/ As to your other question, yes, Celiac most certainly causes balance and neuro issues.  I suffered from extreme vertigo for years, which disappeared after being on the gluten-free diet for a while.  I had no idea it was connected to celiac disease but it completely disappeared on the diet.  I also never had anxiety issues but now, on the rare occasion I sustain a hit, the anxiety is bad.  It disappears after about a week.  This is well know to Celiac's but many doctors still don't get all the symptoms we suffer from, that are related to gluten ingestion.  Frustrating!
    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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