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I'm New And Confused – Should I Get Tested For Intolerance?


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#1 huppa76

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Posted 26 February 2013 - 04:44 PM

Hey everyone, 

 

I'm sure there's been alot of the same question on this board from newbies, but I hope someone is reading. 

 

I recently decided to give up wheat/grains for a week to see if it would help me lose weight. It did btw, although I also cut sugar. On day 2 I had a pretty bad headache and felt almost flu-ey. I took painkillers and assumed it was withdrawal from sugar. 

 

By day four I felt AMAZING. Better than I can remember feeling in a long, long time. I had never cut wheat completely out of my diet before and suspected that was it. I had heard about gluten intolerance ofcourse but never in a million years did I think I might have issues with, it but now I'm not so sure. 

 

Some background, Im 37yo, I've been overweigth since age 7, when I started piling on weight despite a pretty wholesome, home-cooked diet. I did have a huge apetite for food though and was teased about it by my family - I was always hungry. I'd feel hungry so soon after eating that there was no way I was actually hungry lol... I had alot of headaches as a kid too. Migranes, where all sound and light and smell caused excruciating, throbbing pain. I got pretty severe period pain as a teenager, near passing out, unable to function, I would have diahhrea and vomit. 

 

This has followed me all my life. Overweight, feeling tired all the time, I never wake up feeling rested and full of energy, no matter how much sleep I get, I'm always tired, so tired theres always a dull ache. Most days I feel like my head is stuffed with cotton, I just can't seem to "wake up", I feel very groggy usually until after lunch time and be very tired again at 4pm.
I have night sweats where I wake up completely soaking, also wake up frequently feeling dizzy. I'll have 'fits', usually in the evening where I feel really hot and really irritated (my sister teases me that i've going through menopause since I was 20!) I'm on and off anti-depressants, diagnosed with clinical anxiety, I have aches in my knees, calves and elbows. I've acne along my jawline since early 20-something. (magnesium&vitB seem to help that). 

 

I've always blamed my being overweight for all my complaints and just berate myself for being lazy and greedy and not being able to control my cravings. 

 

Lately I feel like the headaches and migraines are getting more frequent over the last year or and worryingly frequent diahhrea too, which starts with very painful cramps, similar to bad period cramps. I break out in cold sweat and feel weak and faint. This is then followed by much rumbling and what I can only describe as 'peeing through the wrong opening'! I'll feel tired afterwards and very thirsty. I have noticed that this happens during the weekends more and actually I do tend to eat more bread on weekends.

 

Anyway, back to cutting the wheat out. On day 4 I felt amazing, I couldn't believe it. My stomach was 'quiet'... not constantly rumbling, constantly gassy and bloated and I felt awake and happy! On day 6 I had spagetti. The following morning I woke up with cramps and diahhrea. I cut out wheat again and felt great again. Everytime I go back to it now it seems I feel worse every time?  I had pizza and two beers last saturday night and I felt completely exhausted the day after, headache and body aches, heart was pounding, felt i couldnt breathe deep enough and I now have an acne-covered jawline, the biggest breakout I've ever had btw. 

 

So my question is; does this sound like celiac or sensitivity or intolerance?

I'm a bit confused about which is which, but I should I get tested for it just to be safe, right?

 

Thanks so much for reading, 

love & light

 


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#2 Takala

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Posted 26 February 2013 - 08:05 PM

There is gluten intolerance, which is a reaction to the proteins in wheat, rye and barley family of grains. 

 

Then there is Celiac disease, which is an auto immune reaction caused by very serious gluten intolerance to the proteins in wheat, rye and barley family of grains.  This auto immune reaction causes slow destruction of the lining integrity of the small intestine, which causes the gut to "leak" the slightly undigested food in to the bloodstream, where it really does NOT belong, and it then stimulates the production of antibodies.  The auto immune reaction causes a combination of malnutrition and havoc with certain organs and glands, giving rise to many different symptoms.  Celiac can also be diagnosed by medical tests of the blood looking for those antibodies,  and looking at and taking biopsies of the lining of the small intestine near where it meets the end of the stomach. 

 

Gluten intolerance has no formal test at this time, other than one can eliminate gluten from the diet and then see how one reacts to this.

 

One must be eating gluten to get a positive celiac test.  That is why it is good (and recommended)  to get tested to the max that one can put up with, before going on a gluten free diet.  Even if one then tests negative for celiac disease, that does not mean that they are not gluten intolerant and that a gluten free diet might not help their symptoms.   

 

So you would want to be tested for celiac first, then, if still not officially celiac, test the gluten free diet out to see if it is gluten intolerance. If you go off of gluten, then resume eating it after a period of time, and have a noticeably worse reaction, that is a hint that you definitely have a "gluten problem," whether or not it is officially celiac.  Normal people do not have this reaction, they can take it or leave it. 


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#3 guest134

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Posted 27 February 2013 - 05:46 AM

Takala, I have never heard of Celiac causing undigested food to leak into your blood, can you link me to where you heard this?

 


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#4 huppa76

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Posted 27 February 2013 - 10:09 AM

Hi Takala, 

 

Thanks for the information. I think I'm slowly getting the difference...

Will get myself tested. Let's hope it isnt celiac.


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#5 huppa76

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Posted 27 February 2013 - 10:11 AM

To anyone here though, I'd like to know if what I described above sound like it might be celiac? I know no one can diagnose me over the internet, but I'm a little worried.


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#6 frieze

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Posted 27 February 2013 - 11:32 AM

Takala, I have never heard of Celiac causing undigested food to leak into your blood, can you link me to where you heard this?

 

that is "leaky gut".....it is on a molecular level...


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#7 mushroom

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Posted 27 February 2013 - 11:40 AM

To anyone here though, I'd like to know if what I described above sound like it might be celiac? I know no one can diagnose me over the internet, but I'm a little worried.

 

Most definitely.  Or it could be gluten intolerance.  The symptoms are pretty much the same, but celiac is an autoimmune reaction and at this time they don't believe that NCGI is.  For anyone who feels better not eating wheat and feels worse when eating it, it is most likely celiac or NCGI that is causing it.


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