Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

So Sick, And Not Sure Where To Go


  • Please log in to reply

2 replies to this topic

#1 ImagineEscape

 
ImagineEscape

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 27 February 2013 - 10:47 AM

I am at my wits end with this sickness. 

 

My story -

 

  • I was raised on junk food, tv dinners, cans of veggies, etc. 
  • Around 3rd grade my abdomen became shockingly distended, stretch marks and all. Never went away, regardless of overall body weight. I suffered constipation daily. I was very overweight.
  • As a teen, I suffered extreme D, lost a ton of weight for seemingly no reason. I went vegetarian around age 13, but I still ate the junk food my parents would buy, in large amounts.
  • D remained throughout college, to the point of me fearing going anywhere without a restoom nearby. I could not drink cold water or drinks without immediately having D. I snuck away from my dorm and used the general university dorm bathroom downstairs to avoid embarrassment. I could eat anything I want, in any quantities I wanted without gaining weight. I also experienced extreme nervous bowels. 
  • In grad school I changed my diet to whole foods, and went vegan. The lack of dairy improved things immensely. Now, when I "cheat" and eat dairy, I feel the effects obviously. I gained weight because of this whole foods diet, and struggle with controlling portion sizes as I used to be able to eat anything.
  • However, I'm still sick. No dairy, no eggs, no meat, all whole foods. I drink a green smoothie for breakfast, and eat healthy for lunch and dinner. I exercise. I am still so sick, so often, however.  While I finally have normal-ish bowel movements, they are closer to D than what I imagine they are for other people (they're usually a run-to-the bathroom asap or be sorry, but not pure liquid as they used to be)

I'm so sick of being sick. A really bad doctor who I talked to for 5 minutes said I have IBS. I finally talked to a doctor about my concerns with gluten, but she did not seem to take my concerns seriously in the least, perhaps because I am overweight. I was going to get a test done, but she made it very complicated and by the time I convinced her to schedule it, I lost my health insurance. 

 

I get headaches, stomach aches of all kinds, my immune system just seems to turn off for a week at a time - in which case I get rashes and feel awful, and I just generally feel sick. Just sick. Dizzy, disconnected, sick to my stomach, just sick.

 

I don't now if it is celiac, I am kind of hoping it is, so I will have a cure. Does any of this sound like celiac?

 

I still lack health insurance, however, so I suppose my only choice is to attempt a gluten-free diet to see what happens?


  • 0

Celiac.com Sponsor:

#2 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 27 February 2013 - 11:34 AM

Hello, and welcome to the board.  It does sound like gluten could be a problem for you.  Most doctors don't know that gluten can make you overweight and automatically dismiss the idea of celiac in someone who isn't skinny.  It actually can make you skinny or overweight.  Sorry you found one of these doctors.  It's no wonder we don't get diagnosed :rolleyes:

 

So unless you can conjure up some insurance from somewhere, or some funds of your own, it looks lke you might have to be content with just eliminating the gluten and seeing what happens.  Do be aware before doing this that if you are gluten intolerant, you will probably never be able to go back to eating gluten without suffering worse than you are already - our response seems to get worse after we have been off gluten (scientifically proven), so if you think you are going to doubt yourself down the line and need the diagnosis now is the time to do it.

 

Before trying the diet, read the newbie 101 thread here http://www.celiac.co...se-coping-with/ as it has a lot of useful information to get you started.  I hope you are able to figure out if this is your problem and are feeling better soon.


  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#3 pricklypear1971

 
pricklypear1971

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,684 posts
 

Posted 27 February 2013 - 01:20 PM

You can order the tests yourself from an online lab. https://www.directla...US/Default.aspx

 

If it's in your budget, and you can get to a lab draw location I'd try this before going gluten-free. Because if gluten-free works for you, I doubt you'll want to go back on it for testing later.


  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: