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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Glutened Myself :(
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22 posts in this topic

I was grocery shopping today and got so hungry that I had the shakes. I'm newly diagnosed so it never even crossed my mind to check the label. I grabbed a protein bar at the store and ate it when I got to the car. I'm so sick and my DH on my scalp is itching like crazy. Does it become second nature to check every label? I can't believe I did that, it didn't even cross my mind at that moment.

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So sorry that you got hit!  It happens to us all.   It will become second nature to you and you will know what you can and can't grab in situations like you had today.  I usually grab Sunmaid raisins and a banana or an orange juice until I can get home for a more substantial meal.

 

Hope you feel better soon!  

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I would think it will be now, after being ill through eating gluten! Read everything twice, to make sure you are not eating something you shouldn't. Also, it would be a good idea to have an emergency gluten free snack bar of some description with you, so if you find yourself in the same situation, you don't just buy the first thing you see. Hope you feel better soon.

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Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

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Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

 

Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

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Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. I just can't believe I did that. I'm SO itchy know, it's driving me nuts. Not to mention all of the other undesirable symptoms I've got going on. YUCK!

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Nope, you still have to read the package.


Other names? If its got wheat, its gotta be disclosed. Rye is kinda obvious as its normally used in breads and bagels. Barley? This too will be labeled, generally as a malt. This is all in the US, by the way. I've yet to see gluten "hidden" in things.

 

I always eat before i go shopping. When i don't eat and its been a while I get hit with a bad case of low blood sugar (shakes, jitters, etc).

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Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. !

In the US and Canada - wheat has to day " wheat". Or what type of wheat it is like spelt. But those " fancy" wheat isn't used in most regular stuff. Barley will say " malt" or use the word barley. Rye isn't really in anything but Rye bread type things.

I always carry a packet of nuts or a nut bar like http://www.naturevalley.com/Snack-Bars/AlmondCrunch

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By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

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By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko: And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

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You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

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Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

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I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

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By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

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Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

Water, probiotics, gas meds, imodium, etc. whatever it takes...

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What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

Oh okay, gotcha!! I think I just look at all of the ingredients and get overwhelmed! I know I'll get it, it will just take time!

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Water, probiotics, gas meds, imodium, etc. whatever it takes...

I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

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I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

It might. Won't hurt...

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And if you can stand it, put ice packs on the itchy spots. That does help.

I think anything would be better than the itching!

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Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

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Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

I hope my family and friends get to that point as well. I have a very supportive husband but I get the feeling he thinks I'm being dramatic. I wish I could find a good documentary for him to watch so he can understand it a little better!

 

I'm terrified to eat in restaurants, there is one here in town that has a dedicated cookware and fryers. The owners have a child with Celiac.

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