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Transportation Issues After Egd...ideas Needed


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#1 powerofpositivethinking

 
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Posted 27 February 2013 - 08:28 PM

this post is the opposite of my screen name, but it's just been a day...

 

this post makes me sad even writing it  :(   I am finally scheduled for an EGD on March 6th in which I'll be put to sleep. All of my friends that I would feel comfortable asking to take me home after the procedure are working or are unable to do it so...I'm out of options.  My parents live over 2 hours away, and because they don't think it's an emergency...my Dad even asked if I really needed to get it done :angry:, they said they can't take off spur of the moment to come help.  

 

Maybe I'm being selfish, but I've waited a long time already, and to finally feel like I'm getting somewhere just to not have anyone able to pick me up from the procedure makes me feel terrible and alone.  Moving the EGD would move my follow-up appointment even later, and as of right now it's already scheduled for April 11th.  I've read stuff about calling the hospital and seeing if they have any programs that provide transportation.  has anybody done this?  any other suggestions?  


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Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


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#2 shadowicewolf

 
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Posted 27 February 2013 - 08:37 PM

Taxi? Stay at hospital until recovered?


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#3 kareng

 
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Posted 27 February 2013 - 09:18 PM

Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.
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#4 gatita

 
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Posted 27 February 2013 - 09:27 PM

How frustrating for you!

 

I know my hospital won't let you take a taxi, which I think is ridiculous. I agree with the suggestions to ask the hospital/clinic staff....


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#5 kareng

 
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Posted 27 February 2013 - 09:34 PM

Thought of something else.

Do you have a local Celiac support group?  Maybe someone would pick you up.

I think your best bet is to ask the GIs office, the outpatient section and the volunteer dept ( if its a hospital). You could even call the fire station and offer to pay an off duty fire fighter for a ride. The ones here do things like that for free for kids and elderly.

A house sitting service?

If you live in the Kansas City area, I would take you.


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#6 ravenwoodglass

 
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Posted 28 February 2013 - 05:47 AM

Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 1desperateladysaved

 
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Posted 28 February 2013 - 06:04 AM

I am sad too.  I do hope that it will work out for you.  I used to be in a volunteer organization that would give such rides.  It was local in Central MN.  A hospital should know of such an agency if it exists where you are.  A friend of mine has a medical driving business.  You can pay such a business to drive you.  My friend comes and goes from hospitals frequently in their business.


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#8 powerofpositivethinking

 
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Posted 01 March 2013 - 04:28 PM

thank you for all of your ideas and replies!!  just having those replies and ideas to go on made me feel so much better :) this was a long week, but everything has worked out.  I was looking into volunteer organizations and car services, but thankfully my Mom has come around and will be making the drive down to take me.  I've only been sedated once, when I got my wisdom teeth out, and I got sick afterwards.  now just hoping to get some more answers from the EGD!  

 

Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.

I will definitely make something easy on the stomach ahead of time.  great idea!

 

Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.

 

I had two celiac panels done with the following tests ordered:

DGP igA and igG

ttg igA and igG

EMA

 

Everything was negative, except a strong positive on the DGP igG on both panels drawn.


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#9 beachbirdie

 
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Posted 02 March 2013 - 02:07 PM

I am so glad your mom has made herself available to help you!  That is a great comfort!


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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#10 Cara in Boston

 
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Posted 04 March 2013 - 06:33 AM

Best of luck to you.  My son, who ended up having a positive biopsy, only tested positive on his IgG test - everything else was normal.  Glad you are continuing testing.

 

At our hospital, you can only take a cab home if you have another responsible adult with you.  I was completely loopy after mine - it would have been impossible for me to give the cab driver directions or get safely into my house by myself.  It makes sense that you wouldn't want to trust this to a stranger.

 

Cara


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#11 powerofpositivethinking

 
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Posted 06 March 2013 - 09:01 AM

back from my EGD, and now resting for the day :)   GI doctor took 8 biopsies, and I found out I have GERD and a hiatal hernia.  I will find out what my biopsy results are in a few weeks.  

 

Transportation wise...everything worked out , and now hoping that my Mom gets back safely to Pennsylvania before it starts snowing heavily again.  Meanwhile here in Delaware it's rainy with snow on its way tonight!


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 





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