Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Transportation Issues After Egd...ideas Needed
0

11 posts in this topic

this post is the opposite of my screen name, but it's just been a day...

 

this post makes me sad even writing it  :(   I am finally scheduled for an EGD on March 6th in which I'll be put to sleep. All of my friends that I would feel comfortable asking to take me home after the procedure are working or are unable to do it so...I'm out of options.  My parents live over 2 hours away, and because they don't think it's an emergency...my Dad even asked if I really needed to get it done :angry:, they said they can't take off spur of the moment to come help.  

 

Maybe I'm being selfish, but I've waited a long time already, and to finally feel like I'm getting somewhere just to not have anyone able to pick me up from the procedure makes me feel terrible and alone.  Moving the EGD would move my follow-up appointment even later, and as of right now it's already scheduled for April 11th.  I've read stuff about calling the hospital and seeing if they have any programs that provide transportation.  has anybody done this?  any other suggestions?  

0

Share this post


Link to post
Share on other sites


Ads by Google:

Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.

0

Share this post


Link to post
Share on other sites

How frustrating for you!

 

I know my hospital won't let you take a taxi, which I think is ridiculous. I agree with the suggestions to ask the hospital/clinic staff....

1

Share this post


Link to post
Share on other sites

Thought of something else.

Do you have a local Celiac support group?  Maybe someone would pick you up.

I think your best bet is to ask the GIs office, the outpatient section and the volunteer dept ( if its a hospital). You could even call the fire station and offer to pay an off duty fire fighter for a ride. The ones here do things like that for free for kids and elderly.

A house sitting service?

If you live in the Kansas City area, I would take you.

0

Share this post


Link to post
Share on other sites




Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.

0

Share this post


Link to post
Share on other sites

I am sad too.  I do hope that it will work out for you.  I used to be in a volunteer organization that would give such rides.  It was local in Central MN.  A hospital should know of such an agency if it exists where you are.  A friend of mine has a medical driving business.  You can pay such a business to drive you.  My friend comes and goes from hospitals frequently in their business.

0

Share this post


Link to post
Share on other sites

thank you for all of your ideas and replies!!  just having those replies and ideas to go on made me feel so much better :) this was a long week, but everything has worked out.  I was looking into volunteer organizations and car services, but thankfully my Mom has come around and will be making the drive down to take me.  I've only been sedated once, when I got my wisdom teeth out, and I got sick afterwards.  now just hoping to get some more answers from the EGD!  

 

Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.

I will definitely make something easy on the stomach ahead of time.  great idea!

 

Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.

 

I had two celiac panels done with the following tests ordered:

DGP igA and igG

ttg igA and igG

EMA

 

Everything was negative, except a strong positive on the DGP igG on both panels drawn.

0

Share this post


Link to post
Share on other sites

I am so glad your mom has made herself available to help you!  That is a great comfort!

0

Share this post


Link to post
Share on other sites

Best of luck to you.  My son, who ended up having a positive biopsy, only tested positive on his IgG test - everything else was normal.  Glad you are continuing testing.

 

At our hospital, you can only take a cab home if you have another responsible adult with you.  I was completely loopy after mine - it would have been impossible for me to give the cab driver directions or get safely into my house by myself.  It makes sense that you wouldn't want to trust this to a stranger.

 

Cara

1

Share this post


Link to post
Share on other sites

back from my EGD, and now resting for the day :)   GI doctor took 8 biopsies, and I found out I have GERD and a hiatal hernia.  I will find out what my biopsy results are in a few weeks.  

 

Transportation wise...everything worked out , and now hoping that my Mom gets back safely to Pennsylvania before it starts snowing heavily again.  Meanwhile here in Delaware it's rainy with snow on its way tonight!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,110
    • Total Posts
      920,417
  • Topics

  • Posts

    • Personally, I would ask for the full Celiac panel and see what that shows.  I mean, the full Monty, not just cherry picking testing.  On the full panel, if the tTg and the EMA come back positive, that is a diagnosis without biopsy.  This is how I was diagnosed and there is absolutely no doubt I have Celiac.  I presented with classic celiac so it was a no brainer with my blood results. If you cannot stick to the diet religiously, without cheating, unless you have a biopsy picture, then I would go on to have a biopsy.  Like your daughter, I was way too sick to have one done at the time.  They would not have agreed to use sedation because I was so anemic and malnourished and that ended that!  Good luck with whatever you decide!
    • This Asian-style barbeque chicken makes a great summer treat. Barbecue chicken is a perennial summer favorite around these parts, and this recipe delivers barbecue chicken with a decidedly Asian flare. View the full article
    • And as for the green stools, you said you eat a lot of kale and spinach?  A generous, daily diet of kale and spinach will be reflected in the bathroom.  You are what you eat.  
    • I just traveled three weeks this summer in Europe (Eastern).  Do not trust that the airlines will remember to load a gluten-free meal for you.  There is a 50-50 chance that they will not (in my experience).  We packed ONLY carry on.  Still found plenty of room to stash some emergency food.  You should be able to find food within an International airport.  Chips and typical junk food clearly labeled, even fruit.  Print or load Celiac travel cards with you in all the languages you will need.  They are free.  Google it.  Found these handy (not only in restaurants) but in the markets when we could not read labels but the staff could read them and Help us to make gluten-free choices.  amazing how you can communicate without knowing the language.  A few words like "thank you" in their language go along way (so does Google Translator).  Never met anyone who was not willing to help.   I carry a collapsible cooler that I pack with food and bags of ice to eat on then plane or right at my arrival or connection.  I take extra zip lock baggies with me.  Sometimes TSA will let you through if the ice is still hard (not melting).  Some will make you toss them then I just ask a restaurant to refill my ziplock baggies after passing Security.   I also carry a doctor's letter on my phone to show I am celiac, but no one has ever asked for me to present it.   Even though I carry a "third" piece of luggage on board, I have not been stopped.  Both that and my day backpack fit under the seat.  I use this cooler as needed through our trips.  If not, it fits in my backpack.  
    • Welcome, Kierra. You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,147
    • Most Online
      1,763

    Newest Member
    Otto'sMom
    Joined