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Biopsy Positve In Routine Egd
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I am new to this forum, I am 35 years old with a life history of reflux (have barrets esoph now), ulcers, constipation and diarrhea that alternates (never normal bowel habits), bloating, gi bleeding, diverticilitis (just found in scopes done this month). Along with checking for chrons and ulcertive colitis (my mother has both) my gi did biopsies to check for celiac. 

He made the remark that he didnt think I had it but would do a biopsy to rule it out (he is very ocd with his patients in covering every possible thing). Well a week and a half later my biopsy results came in the mail and it was positive for celiac along with a order for the bloodwork to go with the positive biopsy.

They are waiting for the next step of treatment for me until the blood work is done (going tomm to get it drawn). 

 

I am wondering if the biopsy is positive does that mean I have celiac? I do have a family member that has celiac (cousin). With that being said, out of my fathers family that cousin and myself are probably the only ones who have been  checked.

 

I am also worried about my oldest son, he has been having a lot of gi symptoms for 5 months now. (we are making him an appointment with a gi specialist).

 

Thank you for any advice you all can give me.

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I have hope that you are coming to a deep root of your problem.  I am happy for that!.  I think many hear consider a positive biopsy conclusive.  They usually verify blood results with biopsy and hope one or the other will be positive if gluten is the problem.

 

I would try to get your son tested as soon as possible.

 

Welcome, and GET WELL  ***

 

Diana

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I would assume so.

 

Stay on the gluten until after the bloodwork is over and then try the diet.

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That is great that your gastro doc was thorough and checked for celiac while he was in there.  If this is it, you have a chance to make yourself well by adhering to a gluten free diet, after testing is completed. :)    You have symptoms of celiac, and the positive biopsy is usually the "gold standard" to get the official celiac diagnosis.  So you are "trending" that way.  Getting your first degree relatives, such as your son tested, is an excellent idea.   And there are plenty of people here who can help you with any sort of diet fine - tuning and advice on how to cope with a gluten free diet that may have to avoid a few other ingredients (we are all different. ) 

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Welcome. You should go gluten free as soon as you have had the blood drawn. You have a great doctor and although it likely doesn't feel like you are lucky you now have the answer for your problems. Do get your son checked and encourage all first degree relatives to be screened. Your ped can order the blood work for your son but do be aware that there can be false negatives on blood work especially with children. After he has finished all testing for celiac do try him on the diet for at least a couple months. Ask any questions you need to. It can seem hard at first but you will feel much better soon.

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You should consider this good news.  You have celiac and you can start on the road to recovery very soon (as soon as they take your blood.)  You will be amazed at how much better you feel.  I didn't even realize some of my symptoms were symptoms - I just thought I was getting old and tired.  You are lucky your doctor is so sharp.  Everyone in your family should be tested - even if they have no symptoms at all.  

 

Good luck -

 

Cara

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
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    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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