I share your frustration that they ran only this one test They did not even run the total serum IgA which would tell us if you make normal quantities of IgA and that therefore IgA testing can be relied upon. Doctors are in love with the tTG but it can be negative in people who will test positive on other celiac blood tests like the DGP (a newer test, and more sensitive and more specific for the development of celiac, i.e., shows results earlier and damage less likely to be caused by something else if positive). The EMA is also a very specific test for celiac but they don't normally run this unless the tTG is positive. But your tTG IgA will not be positive if you do not produce normal quantities of IgA - so it's Catch 22. Is there any chance of talking whoever ordered your test to also order:
Total Serum IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Yes, I follow up on March 12 because on Feb. 18 I had a colonoscopy. The reason being, Dr. leaning toward IBS but wanted to rule out other things before putting me on meds. Said that I am at an age where things could go wrong (I'm 45). Again, just to be on safe side.
After colonoscopy when Dr was speaking with my husband, he told my hubby that test went well however, he did remove a polyp and took a few biopsies but didn't expect them to be a problem. Therefore, he handed my husband a script for Levsin for me to take.
I have not started meds. I really do not want to take it if i can improve things with my diet. With that being said, I have been wheat/gluten free for only one week now and compared to the way I was feeling, I feel amazing! Still not 100% but feel very healthy like.
A brief history- I was told I cried the first 2 years of my life because I had colic (was born in 67). Always very sickly and skinny. My mom said it wasn't until I had my appendix out (via emergency surgery at the age of 8) that I started to "fill out". Therefore, she thought I must have been born with a bad appendix.
In 2003 I had my gallbladder removed so, all my bowel issues over the years, I blamed it on not having a GB. Said "issues" mostly happens right after eating, sometimes, I haven't even finished eating and I'd be running to the bathroom. Also, first thing in the morning as soon as my feet hit the floor i'd be running to the bathroom as well.
Not to mention the bloating and gas so bad I looked pregnant and it hurt to touch as well. And the exhaustion so bad that I would ask myself "am I really that lazy?" I forced myself to get through days. I'd go to bed tired and I'd wake up tired no matter how much I slept.
Anyway, back to the blood test. I'm no expert, but just from what I posted above...I'm NOT impressed!
Love this site! And have a great day!
Edited by karat514, 01 March 2013 - 08:16 AM.