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The Paleo Diet?!


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#1 Ashy555

 
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Posted 28 February 2013 - 08:39 PM

What are your thoughts on starting on the paleo diet in helping Coeliac disease.

 

I started on the paleo diet about end of October last year just after being diagnosed and avoided ANY take away what so ever and i actually started to feel really good. I read a book about paleo and its effects and it mentioned how great it was for people with coeliac to stay away from grains. I was on it properly up until christmas only eating omlettes for breakfast, salads or meat and veges for lunch and meat and veges for dinner. I found it so easy to follow solely because i was that depressed i barely thought about food or eating junk plus i had the support of my family(my mum was the one who suggested it) Now all my dad does is cook, its fantastic.

 

Unfortunately I then had indian take away one night a few nights after christmas(they assured me it was gluten-free) and i went home to experience one of the worst nights. I am assuming i have become more sensitive the more i dont eat it. I was vomitting for about an hr and pretty much curled up on my bed unable to lie flat and rocked myself to sleep. It was almost excrusciating. Ever since that night i have not been the same. I have been EXTREMELY fatigued.

 

 I went and saw a dietitian probably about 3 months too late. Complete waste of money. Cost me $100 and It seemed like i knew more than she did about coeliac disease and when i told her how i was feeling a lot better on paleo... She told me not to follow it. The only Excuse she could reply to that with was....'i dont think the paleo is very good for you as years and years ago on the caveman diet.. they only lived till they were 30-40 max' AND THATS IT... I was like are you kidding me... can you back that up with some more evidence?! You think all these introduced processed sugars, preservatives and chemicals is what is keeping us alive until we are 80. Im pretty sure that is modern medicine. It was disease that killed those people so many years ago, not fresh veges and meat. I know dietitians believe in grains but when i eat them they dont seem to make me any better. I told her that too.. but she didnt seem to listen to how i was feeling.

 

I have been trying to start back on the paleo but its been so hard as i have started to overcome my depression and found myself a little bit happier.. So when i have the energy usually on a weekend i will make my favourite shelf fresh rice noodles..  I can't seem to stop eating them, unfortunately my FAVOURITE rice noodles are half wheat flour/half rice flour but these ones are almost as good. But besides that has anyone else here seen a dietitian before and what was your experience?

 

Anyone completely given up grains while trying to heal?


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#2 EricaM15

 
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Posted 28 February 2013 - 09:58 PM

I had to completely eliminate grains as well and found I feel best on a relatively strict raw vegan diet, which I mentioned in a thread I posted earlier. I've found I'm sensitive to grains, animal products, and legumes, so I feel best on a strict diet of fruits, vegetables, nuts and seeds. It doesn't necessarily have to all be raw, but as a busy college student, I don't always have the time to cook and raw is simply more convenient at times. I feel better than I've ever felt, though I still struggle occasionally because my body is still adjusting. I think you have to find what works best for your own body. Definitely stop eating the rice noodles--especially if you're finding you're feeling addicted to it. When I develop an addiction to a food, it's usually a sign to me that I'm intolerant of it, which I've found to be accurate every time thus far. Also, ingesting any wheat can be harmful to a person with Celiac.

 

I've personally never nutritionist or dietician for my Celiac. I officially don't have Celiac, as I was never formally diagnosed, but I have several symptoms of it and I'm sure I have it; I simply follow my own instincts and do what I feel is best for my body.


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#3 Takala

 
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Posted 28 February 2013 - 11:07 PM

Yes, gave up grains completely while "trying to heal," and went very, very low starch on a variation of the Specific Carbohydrate Diet (which I had to tinker with quite a bit, as the list of good foods at times was either contradictory or here in the USA we had different ingredients in some of the processed goods. And I couldn't get along with yogurt for quite a while.)  

Finally re introduced some grains after about 4 or 5 years, had a honeymoon phase, then as I age and become more sensitive, I've taken a lot of them out again, or limit them to certain brands and types of things. 

 

Dietitians (at least the majority of them) are still perpetually stuck on the cereal this and toast that. 

 

"Paleo" has a lot of nuts and seeds, plus the potatoes (they prefer sweet potatoes) which one can do quite a bit with.  If I make a bread type food out of nut meal, and seed flours and sweet potato flours, with eggs and oil, that is technically "paleo."    I am not all the way there, because I am still eating some rice and rice products, but I am definitely lower grain content than a lot of celiacs/gluten intolerants.  Experimenting with how this effects my physical stamina has been interesting, now that there are athletic blogs and sports blogs that study this and talk about it.  

 

We had a gluten free Indian food restaurant down in the city, and the owner knew how to cook it, but, it closed. :(    However, this has forced me to adapt a few recipes for when I just have to have some chicken and vegetables in a yogurt/cream sauce.  I had to make my own curry powder, but it was successful.  If you do searches on recipes on the internet, you can find ones you can adapt to your own uses.  I highly recommend not using any commercial curry powders, or garam masala spice, but taking single gluten free spices from a reputable company and blending them yourself, to avoid gluten or any spice you don't get along with. 

 

Oh, and of course ancient people only lived on average to 30 or 40, they didn't have any concept of modern germ theory, they had no antibiotics, they had no way to recover from severe injuries so if they got injured killing their meat sources they were goners, if they had a pregnancy go wrong they were goners, too.   I just love how some people just don't remember a thing they might have been taught about human anthropology.  Wheat has only been cultivated for a few thousand years, is not the major grain for much of the world, rice in Asia and corn, amaranth, and quinoa in America were more predominant a few hundred years ago,  and to assume we are all adapted to it when we are stressed by environmental toxins or other things is a bunch of... ridiculousness. 


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#4 GottaSki

 
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Posted 01 March 2013 - 06:16 AM

I too stumbled into eating basically paleo as I found all the foods I am intolerant of - I can't do any seeds and no nuts except almonds so I can't eat many "paleo" recipes without a few substitutions.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 nvsmom

 
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Posted 01 March 2013 - 12:21 PM

I do best with that diet too.
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#6 bartfull

 
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Posted 01 March 2013 - 01:04 PM

I am going to try it. Ever since the cookie crumb incident a month or two ago, I have been struggling. I had gotten corn starch back, but now it seems I have lost it again. Right now my jaw is just about clampped shut so I have been eating gluten-free organic yogurt, but as soon as I can open it again I am doing away with all sugar, all grains, and will be living on meat and eggs and vegetables.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#7 Celiac Mindwarp

 
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Posted 01 March 2013 - 03:08 PM

Yep, I am meat fish, eggs veg, all unprocessed, tiny bit of fruit, seeds, nuts and rice. Suiting me well so far. I started 2 January and feel way better.
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#8 beachbirdie

 
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Posted 01 March 2013 - 04:00 PM

I have completely given up grains, and it wasn't until I did so that I started to feel really good.  A nice side effect is that I also lost 35 pounds, without any effort or thought whatsoever.  On top of that, I am guessing my generalized inflammation has gone way down; I no longer experience the swelling/fluid retention I used to have.  I used to wake up in the morning with slits for eyes, my face was so puffy.  NO MORE!

 

I am sort of paleo/primal though I very occasionally indulge in a crunchy treat made from rice flour.  I also have eaten ( not more than twice in a month) regular potato, though I'm finding that sweet potato fries and sweet potato hash browns are VERY MUCH to my liking!  I used to get horrible carb cravings in the mid-afternoon and would raid the kitchen scrounging all I could find.  I no longer experience this in ANY WAY!  I was also a sugar addict, and since giving up refined sugars I no longer crave sweets.

 

I also eat yogurt, but not store-bought. I make it myself from local, organic milk.

 

All in all, I am a VERY happy camper with this diet.


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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#9 GottaSki

 
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Posted 01 March 2013 - 10:06 PM

I think that sums it up nicely...I am a happy camper on this diet.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#10 Takala

 
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Posted 01 March 2013 - 11:06 PM

Right now my jaw is just about clampped shut

 

Darn, Bartfull, you just can't catch a break....

 

Well, that was strange, I tried to pull up the little emoticons, and it posted, instead !

 

Anyway, you can right now take the fruits/veggies and put them and some water in a blender/magicbullet type thing, and make smoothies and drink them. 


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#11 GottaSki

 
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Posted 02 March 2013 - 07:46 AM

Darn, Bartfull, you just can't catch a break....

 

Well, that was strange, I tried to pull up the little emoticons, and it posted, instead !

 

Anyway, you can right now take the fruits/veggies and put them and some water in a blender/magicbullet type thing, and make smoothies and drink them. 

 

 

 

So sorry to hear you lost corn again....feel better soon Bartfull!!!


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#12 cait

 
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Posted 02 March 2013 - 11:36 AM

I've been doing this too, though sugar is always the first thing to creep back in for me.  I'm trying to reduce it again.  I don't 100% avoid grains, but I only have them rarely.  Of course, becuase I'm just that lucky, my cholesterol has gone up, so my doctor lectured me about that.  Working on finding a new doctor since this one thought I was a head case anyway...


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Dad has Celiac
Neg Celiac tests, positive gene test
Life vastly improved off gluten
Dunno what that makes me, but I'm not going back.
Now corn, soy, and dairy free

#13 bartfull

 
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Posted 02 March 2013 - 12:14 PM

I didn't want to admit it out loud, nor scare any newbies, but I have to admit I am SO sick! I think I have a fever (related to the jaw thing) and I am so shakey and weak. I have come in and opened the shop every day this week, but left early every day. I stuck it out 'til 3:30 a couple of days, but left earlier on the others. As soon as I get home I go to bed. All I want to do is sleep. I have been sleeping almost straight through for 12 hours, waking only from the pain. Then I go back to bed.

 

I got some of my compounded Tylenol finally and it has helped some, and I am eating lots of yogurt and eggs (the only things I can get past my clamped jaw), but I know I need more nutrition. I haven't had the strength or energy to get to the store to get veggies for smoothies. I just want to sleep. I honestly feel like I'm dying. And at this point, I wouldn't mind if I did.

 

Oh, did I mention I'm a first class whiner? :lol:


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#14 Celiac Mindwarp

 
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Posted 02 March 2013 - 01:21 PM

Bartfull, sorry things are so bad. You know this will pass, but it stinks for now. We all know how strong you are :). Do what you can, look after yourself and don't forget to ask for help. I seem to remember you found a number of knights in shining armour last time there was a rough patch.

Is it possible you got a bug too? There seem to be some prize ones going round this year.

Cuddle that kitty and stay safe
Mw
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#15 ndw3363

 
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Posted 04 March 2013 - 06:50 AM

I am going to try it. Ever since the cookie crumb incident a month or two ago, I have been struggling. I had gotten corn starch back, but now it seems I have lost it again. Right now my jaw is just about clampped shut so I have been eating gluten-free organic yogurt, but as soon as I can open it again I am doing away with all sugar, all grains, and will be living on meat and eggs and vegetables.

May I ask about the jaw problem?  Do you think it's related to your corn intolerance?  I ask because over the last month I have developed INTENSE right side jaw pain that feels completely different from any TMJ issue I've had in the past.  Sometimes it's fine (a little sore, but nothing major), other times I can barely open my mouth!  I have a doctor appt tomorrow have basic blood tests done (vitamin levels, thyroid, etc) and was going to ask about the jaw pain.  I'm not expecting any quality answers unfortunately from them though.  So sorry to hear you are feeling so lousy - hope that improves soon!!!


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