Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Scalloping And Redness Seen During Endoscopy, Moderate Positive Ttg--Has Anyone's Child Had This And Gotten Negative Biopsy Results?
0

12 posts in this topic

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

 

 

I think if the damage is bad enough that they can see it, the biopsies will have to be positive for Celiac.  The villa are the first to be damaged and that is microscopic damage. 

0

Share this post


Link to post
Share on other sites

I'm guessing that you will get a positive result back.  The damage would need to be pretty extensive for it to be visible.  If for some reason it does come back negative, don't assume he doesn't have celiac.  A positive blood test is a positive blood test.

 

Is he feeling better gluten free?  Sometimes it gets worse before it gets better.

 

Cara

0

Share this post


Link to post
Share on other sites

Thank you for your responses :)

He has been gluten free since Wednesday and I can already see a difference in him. He has more colour in his cheeks, his face sees fuller, he has been eating a lot more, and the scale has gone up 3 pounds!! Since Wednesday!! I KNOW that he has Celiac Disease, I guess I am just so worried about not having a definitive diagnosis that I am graping for other people's experiences.....

Having to wait a whole month for results is going to make me crazy!!

0

Share this post


Link to post
Share on other sites

A month is crazy -- try calling the doctor's office after a week -- my path is usually back within that time period.  Make sure you ask for written copies of both the doctor's procedure report and the pathology report!

0

Share this post


Link to post
Share on other sites




Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

0

Share this post


Link to post
Share on other sites

Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

 

Mine were about 3 days.  The docs office isn't processing them well!

0

Share this post


Link to post
Share on other sites

Waiting, waiting, waiting, lol. I called the Dr's office last Friday and left a message for someone to call me back. A nurse called me back on Monday and apparently the Dr is on vacation until next Tuesday. She told me to call next Tuesday and she would probably give me the results over the phone.

Things are going well here otherwise though. I just watched my son eat 3 slices of gluten free pizza when it has always been a struggle for him to eat one slice of normal pizza without curling up in a ball afterwards! And no more complaining about belly aches after eating! The dark circle seem to have faded from below his eyes somewhat, and his cheeks have colour in them again. 2 weeks and 1 day gluten free and already such a change in his physical ailments and appearance! Such a great feeling when we have spent the past two years watching him waste away and become so pale and ashen.....

I just hope to goodness that the biopsy results come back positive so that we have 100% proof.... I am the worrying kind, and negative results wouldn't convince me to change his diet, but I would always worry that there was something else wrong that the Dr missed. Send some good vibe out into the universe for us if you get the chance if you can! Xo!

0

Share this post


Link to post
Share on other sites

I am happy for that report on improvement!

 

Diana

0

Share this post


Link to post
Share on other sites

Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

0

Share this post


Link to post
Share on other sites

Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

 

This is reason to be happy!   Testing is such a pain.

 

Even better news is the improvement you have already seen.

 

I am over-the-moon happy for your family :D

 

Let us know if you have any questions.

0

Share this post


Link to post
Share on other sites

I can totally understand you being happy and excited about him having a positive test result.  It means you can start getting him healthy.  In the first few months you will be BOMBARDED with people giving you advice about his diet ("my neighbor cured herself by eating a little bit of wheat every day . . ").  Get ready to just smile and nod while you know better.  I was also very surprised by the skeptics who simply didn't believe that wheat could make him sick and that I was just trying to control everything by controlling his diet.  People are weird.

 

Be sure to get the whole family tested - I found out I was positive after my son was diagnosed.  

 

Cara

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined