Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Scalloping And Redness Seen During Endoscopy, Moderate Positive Ttg--Has Anyone's Child Had This And Gotten Negative Biopsy Results?
0

12 posts in this topic

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

 

 

I think if the damage is bad enough that they can see it, the biopsies will have to be positive for Celiac.  The villa are the first to be damaged and that is microscopic damage. 

0

Share this post


Link to post
Share on other sites

I'm guessing that you will get a positive result back.  The damage would need to be pretty extensive for it to be visible.  If for some reason it does come back negative, don't assume he doesn't have celiac.  A positive blood test is a positive blood test.

 

Is he feeling better gluten free?  Sometimes it gets worse before it gets better.

 

Cara

0

Share this post


Link to post
Share on other sites

Thank you for your responses :)

He has been gluten free since Wednesday and I can already see a difference in him. He has more colour in his cheeks, his face sees fuller, he has been eating a lot more, and the scale has gone up 3 pounds!! Since Wednesday!! I KNOW that he has Celiac Disease, I guess I am just so worried about not having a definitive diagnosis that I am graping for other people's experiences.....

Having to wait a whole month for results is going to make me crazy!!

0

Share this post


Link to post
Share on other sites

A month is crazy -- try calling the doctor's office after a week -- my path is usually back within that time period.  Make sure you ask for written copies of both the doctor's procedure report and the pathology report!

0

Share this post


Link to post
Share on other sites




Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

0

Share this post


Link to post
Share on other sites

Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

 

Mine were about 3 days.  The docs office isn't processing them well!

0

Share this post


Link to post
Share on other sites

Waiting, waiting, waiting, lol. I called the Dr's office last Friday and left a message for someone to call me back. A nurse called me back on Monday and apparently the Dr is on vacation until next Tuesday. She told me to call next Tuesday and she would probably give me the results over the phone.

Things are going well here otherwise though. I just watched my son eat 3 slices of gluten free pizza when it has always been a struggle for him to eat one slice of normal pizza without curling up in a ball afterwards! And no more complaining about belly aches after eating! The dark circle seem to have faded from below his eyes somewhat, and his cheeks have colour in them again. 2 weeks and 1 day gluten free and already such a change in his physical ailments and appearance! Such a great feeling when we have spent the past two years watching him waste away and become so pale and ashen.....

I just hope to goodness that the biopsy results come back positive so that we have 100% proof.... I am the worrying kind, and negative results wouldn't convince me to change his diet, but I would always worry that there was something else wrong that the Dr missed. Send some good vibe out into the universe for us if you get the chance if you can! Xo!

0

Share this post


Link to post
Share on other sites

I am happy for that report on improvement!

 

Diana

0

Share this post


Link to post
Share on other sites

Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

0

Share this post


Link to post
Share on other sites

Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

 

This is reason to be happy!   Testing is such a pain.

 

Even better news is the improvement you have already seen.

 

I am over-the-moon happy for your family :D

 

Let us know if you have any questions.

0

Share this post


Link to post
Share on other sites

I can totally understand you being happy and excited about him having a positive test result.  It means you can start getting him healthy.  In the first few months you will be BOMBARDED with people giving you advice about his diet ("my neighbor cured herself by eating a little bit of wheat every day . . ").  Get ready to just smile and nod while you know better.  I was also very surprised by the skeptics who simply didn't believe that wheat could make him sick and that I was just trying to control everything by controlling his diet.  People are weird.

 

Be sure to get the whole family tested - I found out I was positive after my son was diagnosed.  

 

Cara

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined