Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Am I Just A Wuss? (Staying Home After Gluten/soy/whateverings)


  • Please log in to reply

94 replies to this topic

#61 CaliSparrow

 
CaliSparrow

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 250 posts
 

Posted 08 March 2013 - 10:48 AM

Welcome Adela! I'm glad you have an answer. It's difficult not knowing the answer to "why" and the constant second-guessing (feeling like a wuss). I once sat on the couch in a stupor for five hours. I thought it was either dissociative identity disorder or the worst case of ADD/OCD ever! It sounds like your boss really understands.

I'm into this about 4.5 months and am feeling like a wuss today - mostly because my expectations don't match reality and I wanted to accomplish more than am able. But needless to say, the unexpected changes that are occurring make me truly hopeful and excited. For the first time in my life, I wonder what I'll be when I grow up (and I'm way past that stage of development age-wise)!

Good luck to you on your healing path. New beginnings :)

Cali
  • 0
Last glutening: 12/28/13 (long time FOR ME!)
April 2014: no more reintroducing foods, not rocking the boat, no studying (except during insomnia)
March 2014: Reintroducing intolerant foods. Yolks & banana are a "no". Dairy NO
Year 2: Mental clarity improving. Hello to normalcy.
October 2013: Functional Medicine doc ref to cardiologist for possible sick sinus syndrome (deadline May)
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
January2013: Dairy-Free, Soy-free
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope

Celiac.com Sponsor:

#62 JNBunnie1

 
JNBunnie1

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,326 posts
 

Posted 08 March 2013 - 09:36 PM

I have to step in and say something about your comment.

 

You could not possibly be more wrong in your assessment of Gemini.

Common sense is her strongest asset. She is, in fact, the first person who reached out to me when I first came on this site and she has more compassion in her little finger than most people I know.  She is very celiac-savvy and knows more about autoimmune diseases than most people, offered me her personal help when I was struggling (because I too had a soy, dairy and about 10 other foods intolerance going on) and I have even met her in person. She is a down-to-earth, funny woman.

 

What she isn't --is a "coddler".

 

Just because she tells it like it is---does not mean she is "abusive" in any way and I do not see any violation of the rules.

 

Her approach may be  different from mine, perhaps, but she is always willing to help.

I for one, appreciate her "veteran" knowledge.

I'm sorry to beat a dead horse, but I just don't see how responding to a heartfelt post about the profound

effects that chronic depression has on someone with "When you stop feeling sorry for yourself" qualifies

as 'telling it like it is'.


  • 1
If you're going through hell, keep going. ~Winston Churchill

#63 GottaSki

 
GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,100 posts
 

Posted 08 March 2013 - 10:11 PM

Ah Peg - think you may be confusing me with Irish - which is a huge compliment.

And for others reading along - removing gluten alone did not bring health to me -- yet it did for two of my kids and two grands....my family could be the poster for early diagnosis.

Ps..someone asked.why we wouldn't tell newbies it takes years to heal? MOST celiacs do heal with the complete removal of gluten for a period of 3 to 12 months. Why would we, that have had the worst possible outcome of this disease want to put scary thoughts into those newly diagnosed?
  • 1

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#64 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,550 posts
 

Posted 09 March 2013 - 01:34 PM

Ah Peg - think you may be confusing me with Irish - which is a huge compliment.

And for others reading along - removing gluten alone did not bring health to me -- yet it did for two of my kids and two grands....my family could be the poster for early diagnosis.

Ps..someone asked.why we wouldn't tell newbies it takes years to heal? MOST celiacs do heal with the complete removal of gluten for a period of 3 to 12 months. Why would we, that have had the worst possible outcome of this disease want to put scary thoughts into those newly diagnosed?

Exactly why I do not say how long it took for me. I had complications that are not typical of most celiacs and so, saying it took me over 2 years plus  intensive physical therapy to boot may sound disheartening for some newly diagnosed. I am not the "norm". My GI doctor says he has never seen celiac disease manifest in the myriad of symptoms as it did in me. (believe me, I wish I did not have this distinction. <_< )

 

If asked, I tell the truth, of course.

 

My point in revealing it now is that healing times vary, but staying the course and keeping positive and patient is crucial. Every day is a healing day.

 

Above all else, I think being your own health advocate, researching celiac and staying on top of current info is the key.

 

When Gemini said "if I can do it you can" I am sure she meant it as encouraging because she was almost dead. She climbed out of the hole.

 

If I say "You can do this, I promise, just hang in there"--- I mean the same thing. It's just worded differently.

 

I was about as bad as it gets, but I am walking proof that healing happens.

 

Hope this clears up what I was trying to say.I hope it clears up what I believe Gemini was trying to say.

It is easy to take one sentence out of someone's long posts and isolate it and use it to somehow change the intention of the message.

 

Like all messages posted on forums, they are "take it or leave it". Some people may come across as "tough love" and some are more temperate.  But the intention is not unkind.

 

It may be time to let this topic go.

Peg got the input she was looking for, I believe.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#65 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,550 posts
 

Posted 09 March 2013 - 01:53 PM

Welcome Adela! I'm glad you have an answer. It's difficult not knowing the answer to "why" and the constant second-guessing (feeling like a wuss). I once sat on the couch in a stupor for five hours. I thought it was either dissociative identity disorder or the worst case of ADD/OCD ever! It sounds like your boss really understands.

I'm into this about 4.5 months and am feeling like a wuss today - mostly because my expectations don't match reality and I wanted to accomplish more than am able. But needless to say, the unexpected changes that are occurring make me truly hopeful and excited. For the first time in my life, I wonder what I'll be when I grow up (and I'm way past that stage of development age-wise)!

Good luck to you on your healing path. New beginnings :)

Cali

 

 

Cali, hon---you may need to drop the expectations so you do not put too much pressure on yourself to be "instantly healed". I had to learn that one early on. The times I felt "wussy" were when I did not respond quickly enough. It was during those times that Gemini and the others told me--just hang in there. It may take a long time. I did not like that answer, but I accepted it.

 

Look at one day at a time, don't put a time limit on it and if you want to be encouraged, I suggest making a list of your symptoms and then, every month, cross off the ones that resolve.  Just a suggestion! Hang in there.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#66 Gemini

 
Gemini

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,142 posts
 

Posted 09 March 2013 - 02:08 PM

Gemini, I just want to say your posts have helped me since I arrived here last year. they made me realize I am driving the bus of my health, and if I want to feel better I have to figure out what was making me sick. no one else could do that for me or help. thankfully, I am doing great now, and rarely have to cancel plans or become fearful to make them.

 

I teach yoga and pilates, and just before I figured all this out I was going to give up all my classes. can you imagine feeling dizzy, nauseous and overall fogged then inverting in front of a crowded gym? was not a pretty picture. thankfully I didn't give up my classes and am doing great!

 

so thanks to you and all the truth tellers on this board. you literally saved my life.

  julissa......I wasn't going to add anything to this thread because I've had my say and stand behind everything I said BUT.....I am thrilled to death if I have managed to help you get better.  I, too, suffered from extreme nausea, dizziness and foggy head so understand totally your concerns with regards to your exercise.  But......exercise does help, doesn't it?  I was not well enough to start a class until 5 years into the gluten-free diet but I did join a gym and have never looked back.  Some nights when I go, I don't feel like exercising or am tired but force myself to go and it never fails to make me feel better after an hour of exercise.

It takes a person to a whole new level of healing and I bet you are an inspiration to your clients.  Pilates is HARD so I give you a ton of credit for sticking with it!

 

Keep up the good work!  :)


  • 0

#67 cavernio

 
cavernio

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 428 posts
 

Posted 10 March 2013 - 07:11 AM

Our society revolves around eating food which isn't safe for a celiac. Physically our bodies demand food, and the smell of glutinous foods still make us hungry. Going out to eat and getting glutened 'more oftened than necessary' is hardly the same as drinking yourself into hangovers so bad you can't work. Mainly, you have to knowingly consume a lot of alcohol to get that drunk. Secondly, alcoholic consumption doesn't have much of a societal push past teenage years whereas if you are social at all, you will get food you can't eat being offered to you daily. Excessive alcoholic consumption is frowned upon. Eating a piece of cake isn't. They don't fall into the same category when it comes down to self-control, not unless you're an alcoholic. I wouldn't want to work at a place where my boss, if I decided to eat out with the rest of the employees at a restaurant where I took all the precautions one can, but still got sick and missed a couple days work, then fired me for it. You wouldn't offer an alcoholic a drink and then blame them for taking it.

Eating at restaurants has become a part of a regular working person's life.

 

Of course, that alcohol consumption was brought into this as an example just supports what I was saying even more. Over 50% of alcoholics in the US have a diagnosed mental illness. (The rest of the alcoholics probably fell through the cracks of the system, or lack thereof, and never got diagnosed, but that's just my opinion.)

http://mbldownloads....P_Westreich.pdf


  • 0
diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#68 kareng

 
kareng

    Be Royal

  • Moderators
  • PipPipPipPipPipPip
  • 14,148 posts
 

Posted 10 March 2013 - 07:27 AM

Our society revolves around eating food which isn't safe for a celiac. Physically our bodies demand food, and the smell of glutinous foods still make us hungry. Going out to eat and getting glutened 'more oftened than necessary' is hardly the same as drinking yourself into hangovers so bad you can't work. Mainly, you have to knowingly consume a lot of alcohol to get that drunk. Secondly, alcoholic consumption doesn't have much of a societal push past teenage years whereas if you are social at all, you will get food you can't eat being offered to you daily. Excessive alcoholic consumption is frowned upon. Eating a piece of cake isn't. They don't fall into the same category when it comes down to self-control, not unless you're an alcoholic. I wouldn't want to work at a place where my boss, if I decided to eat out with the rest of the employees at a restaurant where I took all the precautions one can, but still got sick and missed a couple days work, then fired me for it. You wouldn't offer an alcoholic a drink and then blame them for taking it.

Eating at restaurants has become a part of a regular working person's life.

 

Of course, that alcohol consumption was brought into this as an example just supports what I was saying even more. Over 50% of alcoholics in the US have a diagnosed mental illness. (The rest probably feel through the cracks of the system, or lack thereof, and never got diagnosed, but that's just my opinion.)

http://mbldownloads....P_Westreich.pdf

 

 

You missed the point.  The point being - if you are having issues with gluten that are affecting your life adversely and you can do something to prevent them, you should.  If that means not eating out or not eating dairy or taking your meds, than do it. 

 

I'm not arguing with you anymore because it won't make any difference.


  • 1

LTES

 
"We've waited 29 years for this and not even a Giant can stand in our way." - Mayor Sly James
 
 
 
 
Celiac.com - Celiac Disease Board Moderator
 

 


#69 julissa

 
julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 157 posts
 

Posted 10 March 2013 - 09:33 AM

Gemini, thanks, I do intend to keep working at it :)

 

Cavernio, I strongly disagree here, socializing may revolve around eating out, at work, with friends, wherever, but just because eating out is so common to our lives, doesn't mean we have to. I take a cooler wherever I go. I go to certain restaurants with my food, I refuse to eat something that may get me sick. people I am with totally understand and help me with choosing places, etc.  other restaurants that I wouldn't take food to, I just don't go.

 

people ask me if just a little would hurt, how sick could I possibly get. I ask them how sick they could possibly get eating rat poison.

 

I am also done here. 


  • 1

#70 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,550 posts
 

Posted 10 March 2013 - 10:32 AM

Before I bow out of this discussion too, I'd like to add that the majority of us on this board had multiple health issues from celiac, including 

anxiety and depression. Adherence to a gluten-free diet, supplementing with appropriate vitamins, minerals, amino acids and probiotics, eliminating other food intolerances if they arise and finding ways to enjoy life--despite the restrictions of a gluten free diet--has given us our lives back.

 

Did we bitch and moan about it at first? sure.

Did we feel like there was no light at the end of the tunnel? Sometimes, yes.

But then it was time to embrace the "new norm" and get on with living. I always get myself in a tizzy when someone says we are "not normal".

what does that even mean? who says we're not normal and the rest of the world is screwed up? 

 

There's a line from the Shawshank Redemption swimming through my head. It goes "you can get busy living or you can get busy dying".

I chose living.

It took me a long time to get some semblance of good health back, but I did everything in my power to get here. 

 

I have traveled over 2,050 miles since Feb. 28th, with a cooler, a portable kitchen, some supplies AND I have eaten at restaurants cited on "Find me Gluten Free" as being celiac- friendly and I am having the time of my life. I am staying by the ocean and could not be happier.

3 years ago, I was ready for a wheelchair or a mental health ward because my brain was so impaired.

 

Until I was comfortable with making trips like this, I dined in, frequented a strictly gluten free cafe near me OR invited people to MY house, where I cooked and enjoyed their company. THERE IS ALWAYS A PLAN B, C. D....

 

It totally sucked at the beginning and I thought my life was over, but NOT because I have to be gluten-free/SF/SF or any other free--that's so miniscule in the large scheme of things that I do not even think about that anymore--but because I was so ill and physically incapacitated. Was I mentally ill too? I guess, to some degree. I felt I had no control over the deep depression I was falling into (  tanked D, B-12, & folate levels will do that to a person), yet I would not give in to it. I certainly was a raging insomniac for 3 years who could barely make sense of things.

 

I am not saying all mental health issues will resolve off gluten, but even our member Skylark reported to us that her alleged bipolar resolved

and she requires no meds. She does not post anymore because she did a ton of research for us all and she has gone off to live her life and not dwell on what had happened to her. She does not want to talk to nay-sayers and doom- and -gloomers anymore, no doubt. 

 

Why do the rest of us stay? To help. If sometimes our messages seem like "tough love", so be it.

But at some point, you all have to say "it is what it is", so I have celiac, big freakin deal. 

We're still here. Some of our members are battling cancer and some have passed away, but they never gave in to the whining or the "poor me" stuff for very long. They just live--one day at a time.

It's all any of us can do anyway.

 

Just my two cents. FWIW

Now if you will excuse me, there's a margarita and a deck chair with my name on it. B) 


  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#71 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 10 March 2013 - 11:49 AM

Why do the rest of us stay? To help. If sometimes our messages seem like "tough love", so be it.

But at some point, you all have to say "it is what it is", so I have celiac, big freakin deal. 

We're still here. Some of our members are battling cancer and some have passed away, but they never gave in to the whining or the "poor me" stuff for very long. They just live--one day at a time.

It's all any of us can do anyway.

 

Well said, IH.  I thought it needed repeating.  We are still here.  And we are still here in the hopes that we can help others to be still here, living life.  We are not here to be the wicked witches of the west.  We are not here because we like arguing or because we feel sorry for ourselves.  We are here to try to give you whatever help you need.  If you don't like the message, feel free to disregard it.  But don't complain because it was offered -- you did after all come here seeking it, even if it wasn't the message you hoped for. 


  • 2
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#72 K-Dawg

 
K-Dawg

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 118 posts
 

Posted 10 March 2013 - 03:11 PM

Hi there:

you're not a wuss. I also stay home more than I'd like when I get glutened. It's a terrible feeling and best to just stay in, lie down, drink water, take digestive aids and ride it out alone. It's miserable and sad and it hurts me and I'm sure it hurts you. Nobody likes to feel bad and miss out on living.

 

And, since we are kinda complaining, I'll add that it's impossible for my friends and family to understand.  Recently I was with someone and felt pretty good. We went out to eat and had a nice meal. Within half an hour I was in pain, exhausted and couldn't do anything other than lie down on the hotel bed (we were travelling).  It was a real bummer because my friend wanted to go to the hotel bar and have a good time. I'd been all for it and suddenly, BAM: OUT OF COMMISSION. I know the friend didn't really get it.

 

So you are not alone. 

 

And yes, I do sometimes miss work. I try not to as my work is not at all understanding. Usually when I refuse to eat something at a work event at random regular restaurant, I get ridiculed or asked "why aren't you eating the food at this restaurant? How could chicken possibly contain gluten?" and the question is always so accusatory. it pisses me the feck off, in fact.  Anyway, when I respond  by talking about cross-contam, I get the eye -- roll. lol. So I think it's just not worth explaining further. Though I gotta tell ya, it's getting really fecking annoying that everytime I say "NO" to eating X, I get push back. I think that is my biggest struggle....I graciously refuse food and the people i'm with can't graciously accept my refusals.


  • 0
Many autoimmune disorders: Graves Disease in 1998, Psoriasis on or about 2000, Hashimoto's in 2008.

Severely anemic in 2007 (undetectable iron levels)

Elevated liver enzymes (ALT and AST) as of October 2008.

Negative blood test for celiac disease in February 2009, followed by diagnosis of celiac disease in April 2009 after positive biopsy.

#73 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,550 posts
 

Posted 10 March 2013 - 06:33 PM

K-Dawg, Here is what I would do: Stop being so gracious about the refusal.

 

What part of NO don't they get? Eating is not mandatory for any job I know.

 

(unless you are a food critic)

 

This borders on harassment, if you ask me.

 

I have never once had to repeat myself about the treatment for celiac as being "no gluten!".

 

Tell them it's doctor's orders and be done with it.   You do not need to explain yourself to anyone-- be it family, friends or co-workers.


  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#74 anabananakins

 
anabananakins

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 438 posts
 

Posted 11 March 2013 - 03:40 PM

ell said, IH.  I thought it needed repeating.  We are still here.  And we are still here in the hopes that we can help others to be still here, living life.  We are not here to be the wicked witches of the west.  We are not here because we like arguing or because we feel sorry for ourselves.  We are here to try to give you whatever help you need.  If you don't like the message, feel free to disregard it.  But don't complain because it was offered -- you did after all come here seeking it, even if it wasn't the message you hoped for. 

 

 

I haven't been around much lately but I am still so grateful to 'shroomie and many others for all their help when I was preparing to go gluten free.  Even though I am not around so much, I am super grateful for them and that they are still here helping others who came after me. Thank you.

 

This borders on harassment, if you ask me.

 

I agree. I don't get any grief about what I do or don't eat and I would never take it from anyone.  It's not worth it to my health, and I don't want to associate with anyone so nasty.  I get that you can't chose your co-workers, and work situations are a lot harder, but I wouldn't bother being gracious to anyone who treated you like this, even if it's in your nature to be nice to people.  Sometimes, they deserve a not so nice response to those kind of insane argumentative replies. 

 

I do disagree with the comment that that alcohol is not pushed so much beyond teenage years as food is.  That may be the case in communities in the US but Australian culture includes a lot of drinking and so did life in London where going out for after work drinks a number of times a week was super common and accepted.  Many of us turned up for work feeling rather worse for wear and in retrospect, I think that was an issue. But it was work encouraged and often endorsed (we had drinks at work, or were out drinking with our managers and coworkers).  When my team was seen as a bit cliquey and not attending drinks with everyone else, they moved the location to our office and some Friday evenings we were literally sitting at our desks finishing up our work while coworkers from less busy teams drank and socialised around us.  Whereas food, pfffft, no one cared about that.  I also think the style of food in the US is much more gluten-y than I am used here to so I do sympathise there. It stresses me out a fair bit when I travel to the US whereas in Australia and the UK it's no big deal and there are usually quite a few items that would be naturally gluten free.

 

To the OP, I can be pretty wussy and want to stay home if I feel ill. I figure if I don't feel well at home, communting an hour each way on the bus is really not going to help.  So don't beat yourself up about it, you have a fellow wuss in me :-)


  • 1

#75 CaliSparrow

 
CaliSparrow

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 250 posts
 

Posted 14 March 2013 - 09:56 AM

Cali, hon---you may need to drop the expectations so you do not put too much pressure on yourself to be "instantly healed". I had to learn that one early on. The times I felt "wussy" were when I did not respond quickly enough. It was during those times that Gemini and the others told me--just hang in there. It may take a long time. I did not like that answer, but I accepted it.
 
Look at one day at a time, don't put a time limit on it and if you want to be encouraged, I suggest making a list of your symptoms and then, every month, cross off the ones that resolve.  Just a suggestion! Hang in there.


Thank you, Irish. That's a good idea on keeping a symptoms list. Since you are the third person in a week who has spoken to me about expectations, I think I'll listen. I messed up last weekend because I went somewhere famished and am currently paying the price. I only wish I was in the place to have high expectations right now! The bargaining stage isn't bearing much fruit.

Maybe it was just a bad day. I see a lot of intelligent, supportive posts from Gemini. Have started taking an enzyme at mealtime but seriously wonder if anything is much help right now. I don't feel like a wuss today, just beaten. Tomorrow is a new day, eh?

Thanks for the support.

Cali
  • 0
Last glutening: 12/28/13 (long time FOR ME!)
April 2014: no more reintroducing foods, not rocking the boat, no studying (except during insomnia)
March 2014: Reintroducing intolerant foods. Yolks & banana are a "no". Dairy NO
Year 2: Mental clarity improving. Hello to normalcy.
October 2013: Functional Medicine doc ref to cardiologist for possible sick sinus syndrome (deadline May)
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
January2013: Dairy-Free, Soy-free
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: