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Am I Just A Wuss? (Staying Home After Gluten/soy/whateverings)


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94 replies to this topic

#91 GottaSki

 
GottaSki

    "The past is the past...I've got places to be."

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Posted 23 March 2013 - 09:19 PM

Oh my goodness..."mild villous atrophy" ?????????????

 

So sorry, forgot my manners when I read the above quote.

 

Welcome Finding My Way....you have come to the right place.

 

Ask questions...snoop around posts by searching similar symptoms - read the "newbie 101" if you haven't had the opportunity...for goodness sake -- please, stick around.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


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#92 IrishHeart

 
IrishHeart

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Posted 24 March 2013 - 03:46 AM

HI FINDING MY WAY

 

What the ....&^%$!  <_<


If I hear one more person say their doc said "it was only mild atrophy" or "you have mild celiac", I think my head will explode.

 

Ask the doc if you can be "mildly pregnant". 

 

Hon, you're one of us.

 

Welcome to the forum and please know we are here for you!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#93 Pegleg84

 
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Posted 25 March 2013 - 08:59 AM

Yes, welcome to the forum!

And what GottaSki and IrishHeart said, there's no such thing as "mild" celiac disease. You've either got it or you don't and you've got it.

 

Hibiscus was also one of the first places I went to when I moved here. I haven't been in a while, but so good! They have wonderful gluten-free/vegan treats too. I haven't made the trek to Goodbye Gluten yet (mostly cause I'm afraid I will leave it with a drained bank account)

 

I don't know how things are in Kitchener, but look up Ontario Gluten-Free (or something like that) and there's a database of gluten-free restaurants and such.

 

Good luck!

Peg


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#94 Findin my way

 
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Posted 25 March 2013 - 02:53 PM

Thanks for the welcome everyone!  I'm not sure why my gastro doc is so relunctant to say Celiac.  I'm suppose to tell HIM if I have it on our next appointment.  :blink:

 

Pegleg, Kitchener's not too bad for the gluten free stuff.  There are three places I go to that specialize in gluten free stuff, so I'm able to get treats when I need them. 


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#95 GottaSki

 
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Posted 25 March 2013 - 07:54 PM

Here is something you can tell him...

 

"Thanks Doc...I have Celiac Disease and you are fired" ;)

 

or "I have determined I have Celiac Disease and you need to read current research regarding my condition so you will know as much as I do".

 

Joking aside -- a good primary can take care of your follow up unless you need subsequent endoscopic biopsy....if that happens find the best Celiac specialist in your area.

 

Keep hanging out and ask questions - it really does make the transition much easier.


  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)





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