Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

gluten-free For 2 Years, Now What?
0

7 posts in this topic

Last week was the 2 year anniversary for me being diagnosed with celiac disease.  Overall I feel 100% better than I did two years ago.  Like most of you I have a few vitamin deficiencies to deal with.  So here I am still dealing with other issues.  For the last year and a half I've gained 15lbs (i know this can be related to celiac disease)  Extreme tiredness for the last 4-5 weeks, I have had issues with my hair and skin being dry, Brittle nails. I get 8-9 hours of sleep a night and yet still tired daily to the extreme.  Tired of being tired.   I have been tested for my thryroid but it's been a year or more since the last test.  I have emailed my doctor about following up with her.  

 

So for all you who have been gluten-free for awhile does this seem par for the course?  Knowing my luck my Doc will tell me it's all still related to my celiac disease but not much more I can do at home to be gluten-free at this point.  Have any of you had normal thyroid test and then within a year that changed?  TIA for any info you may have. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes your thyroid can change drastically in a short amount of time.  Vitamin defiencies can also make you exhausted.  Get these things tested again.

0

Share this post


Link to post
Share on other sites

Before I knew I had celiac disease or hashimoto's, I had my doctor check my thyroid (I was having symptoms) and my TSH went from a 6.8 to a 4.7 in two weeks entirely on its own. I just took my doctor's word for it that I was normal and didn't realize that was high (our outdated lab goes up to 6.0 for its reference range).  When they "discovered" my Hashi's 8 months ago, my TSH went from a 15 something to a low 14 in just 2 weeks..... A TSH can change by the day, week or season (higher in winter) never mind over a year; yout thyroid could very well be out of whack.

 

If you do get your thyroid rechecked request:

 

TSH - should be near a 1

Free T4 and free T3 - should be in the 50-75% range of your lab's normal reference range

TPO Antibodies - should be basically non-existent

 

Good luck.  :) I hope you find some answers soon.

1

Share this post


Link to post
Share on other sites

Last week was the 2 year anniversary for me being diagnosed with celiac disease.  Overall I feel 100% better than I did two years ago.  Like most of you I have a few vitamin deficiencies to deal with.  So here I am still dealing with other issues.  For the last year and a half I've gained 15lbs (i know this can be related to celiac disease)  Extreme tiredness for the last 4-5 weeks, I have had issues with my hair and skin being dry, Brittle nails. I get 8-9 hours of sleep a night and yet still tired daily to the extreme.  Tired of being tired.   I have been tested for my thryroid but it's been a year or more since the last test.  I have emailed my doctor about following up with her.  

 

So for all you who have been gluten-free for awhile does this seem par for the course?  Knowing my luck my Doc will tell me it's all still related to my celiac disease but not much more I can do at home to be gluten-free at this point.  Have any of you had normal thyroid test and then within a year that changed?  TIA for any info you may have. 

Nicole,

 

Have you had any luck with figuring out what was making you so tired, or how to have more energy.  I've been gluten-free for about 3 years now.  Overall I feel so much better, but over the last few months I have been extremely tired again.  I started taking vitamins and those seem to be helping, but I feel like fatigue is a pretty consistent issue with me.

1

Share this post


Link to post
Share on other sites

Nicole,

 

Have you had any luck with figuring out what was making you so tired, or how to have more energy.  I've been gluten-free for about 3 years now.  Overall I feel so much better, but over the last few months I have been extremely tired again.  I started taking vitamins and those seem to be helping, but I feel like fatigue is a pretty consistent issue with me.

How is your thyroid? My first hypo symptom has always been slowing down while running and just not feeling strong. As it worsens, I find that I have to take lots of work breaks, eyebrows thin at the outer edges and I feel a bit cold. Anemia causes fatigue for me too as well as shortness of breath. It was basically my only symptom that my caused my doc to suspect celiac disease.

0

Share this post


Link to post
Share on other sites




Nicole,

 

Have you had any luck with figuring out what was making you so tired, or how to have more energy.  I've been gluten-free for about 3 years now.  Overall I feel so much better, but over the last few months I have been extremely tired again.  I started taking vitamins and those seem to be helping, but I feel like fatigue is a pretty consistent issue with me.

 

My hypothyroidism had a large impact on my energy. Treating it just halfway made no difference, I had to get it to the perfect level with a different medication that is normally prescribed - and it took almost a year to get there. Hypothyroidism can slow your metabolism by 30%; if it's a factor for you, treating it can make a great difference.

 

If you check your thyroid, ask for:

TSH -should be close to a 1 regardless of your lab's range

free T3 and freeT4 -  should be in the 50-75% range of your lab's normal range. Do not test T4, T3 or total T4 and Total T3 as those won't tell you as much.

TPO Ab - should be low

 

I do still get what I call "autoimmune flare-ups" where I get more tired, almost fluish, headaches, joint pains and more headaches. I am guessing that is related to my celiac disease or thyroiditis but it could be something else.

 

Diet is a large factor for me too. If I eat a lot of carbs or sugars, I get the blahs.

0

Share this post


Link to post
Share on other sites

Just jumping in here to suggest that it's also possible to OP has developed another food intolerance. It might be a good idea to do a food diary and take a good look at commonly intolerant foods, like soy and corn. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,488
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined