Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Trace Gluten Responsible For Ongoing Symptoms - Study
0

11 posts in this topic

Jane Anderson writes about a new Fasano study.  There is a link to the study in the article.  Some people with refractory celiac disease responded to a diet designed to limit trace gluten contamination.

 

http://celiacdisease.about.com/b/2013/03/04/study-trace-gluten-responsible-for-ongoing-celiac-symptoms.htm

 

It is nice to see super sensitive celiacs acknowledged by Fasano. 

 

Edited to add article link.  Sorry I forgot it.

1

Share this post


Link to post
Share on other sites


Ads by Google:

Thanks for posting this. It took me a while to find the link, so here it is: http://celiacdisease.about.com/b/2013/03/04/study-trace-gluten-responsible-for-ongoing-celiac-symptoms.htm

 

This was the diet designed to limit trace contamination:

"For three to six months, the study subjects ate only fresh fruits and vegetables, fresh meats, poultry and fish, eggs, unflavored dairy products and rice. They were allowed to have oil, vinegar, honey and salt, and could drink 100% fruit and/or vegetable juice, Gatorade, milk or water."

 

The results are very positive indeed: 

"At the end of the study, 14 out of the 17 had responded to this diet, which the researchers dubbed the "Gluten Contamination Elimination Diet," and five of the six who had met the criteria for refractory celiac no longer did."

 

;)

0

Share this post


Link to post
Share on other sites

Whoops, thank you so much.  I must have forgotten to link it.  I'm editing the OP to make it easier for others to follow.  Sorry if that makes your post look weird.

 

Some of the things in the gluten contamination elimination diet I have found to contain some contamination and I need to carefully source them to not react.  I think that with further elimination/challenge dieting, some of the non responsive subjects might see elimination of symptoms too.

 

I just wish that someone would do analytical studies of which foods contain trace gluten contamination.

 

It is very encouraging for those of us who continue to experience symptoms on the gluten free diet.

0

Share this post


Link to post
Share on other sites

I have been doing a similar diet since January and haven't been glutened in that time. I am wondering where I was getting my cc previously. I am reintroducing foods now, so I guess I will find out eventually.

I agree it is great that Dr Fasano is looking at this area, he is such a great advocate

0

Share this post


Link to post
Share on other sites

I was mad at him for his 20 ppm recommendation, but maybe I can forgive him now. LOL 

0

Share this post


Link to post
Share on other sites




We already have it in the UK :( I still can't make my mind up if it is better than nothing. I do think any gluten-free food should have to state that some people may react to small amounts of gluten, wwhether 20ppm or cc or shared lines. All we want is info. I have only needed reading glasses since scrutinizing labels! So many people seem to get caught out by gluten-free food with gluten in.

I am sticking to mostly naturally gluten-free for now :)

0

Share this post


Link to post
Share on other sites

Great article.  I am sticking to my naturally gluten free diet too.  If I go off of it and add something processed, I get sick.  I would love to be a celiac who could eat the gluten free labeled packaged foods but this just is not the case for me.  

I stick strictly with meat, fruit and vegetables.  I am making my own orange juice.  I am eating honey for my sweet snack.  I have been frying banana in a little Earth Balance and putting honey on top.  Pretty good!  I've been grinding rice in my blender and making my own "cream of rice" cereal for breakfast.  The only processed thing that I am keeping for now is Sierra Mist soda.  

 

What are you other super sensitives up to?  Any other tips or ideas or foods to try?  

 

I am still dealing with inflammation in my intestines and gas and bloating but the dh is starting to clear and I am having more energy. 

 

I do seem to have one really good day and then it's usually followed by searing gut pain and cramps.  Not sure why exactly.  The healing process I suppose.  

 

How are the rest of the super sensitives feeling these days?

 

- MO

1

Share this post


Link to post
Share on other sites

I'm doing much better.  My son and I are both extremely sensitive.  We try to do mainly home grown because that eliminates a lot of the uncertainties involved with getting food from elsewhere.  I'm not saying that we react to everything.  It is just that when we react, we can't tell what it is from without spending months on elimination challenge diets sometimes. it seems like it would be easier to grow everything ourselves, but then again, it is hard to turn your suburban property into a farm.

 

At the beginning of this winter one of our formerly safe purchased elsewhere products became unsafe.  First we thought it was a stomach bug and by the time we knew that there was a contamination problem we were so symptomatic that it was really hard to figure out the culprit with elimination/challenge dieting.  It was even more challenging to find some food that we could purchase to replace it.  I didn't have enough safe stuff in my freezer.  

 

Finally we have found some things, and I am mainly symptom free and my son is finally improving.  I'm hoping to get him back in school soon.  What a long road this has been.  It gives me a lot of motivation to garden, process, freeze and dehydrate my butt off this season.

 

I enjoy sparkling water with homemade juice for my soda fix.

1

Share this post


Link to post
Share on other sites

I am going to start a big container garden this spring out on my deck so I can do the same.  

 

I am glad that you and your son are improving.  I have been on the long hard road myself.

 

What brand of sparkling water do you buy?

0

Share this post


Link to post
Share on other sites

I am going to start a big container garden this spring out on my deck so I can do the same.  

 

I am glad that you and your son are improving.  I have been on the long hard road myself.

 

What brand of sparkling water do you buy?

 

Wegmans, it's a store brand and they aren't very widespread.

0

Share this post


Link to post
Share on other sites

Thanks for posting this, dilettantesteph.  It's a great confirmation that trace gluten is still causing symptoms and the 20 ppm simply does not go far enough for some celiacs.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,647
    • Total Posts
      921,596
  • Topics

  • Posts

    • Tell your medical doctor that you want a full Celiac panel before you go gluten-free.  A family history of Celiac should be enough reason to run one every couple of years.  The stool tests aren't considered medically valid, so they probably won't accept those.  It would be good to know if you actually have Celiac.  That would tell you how careful you have to be with gluten consumption.  If you don't have Celiac, it will make your life easier...you can still be gluten-free but you might be able to do things like take a burger off a bun and eat at most restaurants safely.
    • Sure, if you are feeling better from the Celiac, now you might notice other things you didn't before.     a very real possibility is that you have changed your diet and are now eating something you didn't eat much of before.  Or you are eating larger or smaller amounts of protein or fiber....that sort of thing
    • This board is quite old but I'm hoping someone can continue on this topic. I am 61 years old and in all my life and doctors' visits, I have never had a western doctor ask me if I have a family history of celiac or suggest a gluten free diet. In all honesty, I have only started having what could be considered "gluten sensitive" symptoms within the past 2 years - chronic, unexplained bouts of diarrhea, mainly. Although bloodwork has shown in the past 2 years I now have high cholesterol, blood sugar, blood pressure and a bone density scan showed osteopenia. My PCP put me on meds for everything, of course. I recently began seeing a naturopath - and when I was running down my health history and list of symptoms she immediately asked about the family history of celiac. My father was positively diagnosed, through biopsy, with celiac sprue about 25 years ago, when nobody talked about gluten sensitivity. Anyway, she had me do the full panel testing at Enterolab. I have one celiac gene and a gene that indicates neurological manifestations of gluten sensitivity (I have long been plagued with panic attacks and depression). I also showed extremely high (215 units, below 10 is normal) for fecal anti-gliadin and varying high results for dairy, eggs and soy. My fat malabsorption stool test also tested high (431 units and normal is less than 300). The interpretation from Enterolab and my naturopath both strongly advised I eliminate gluten from my diet for the rest of my life. Naturopath said after a year or two I may be able to try introducing limited dairy, eggs and soy back; but not until the glutin response is completely under control. I am really struggling with this. Everyone I've talked to (including adult children, spouse, other family members, friends) is skeptical about me making such a radical change in my (our) diets based on these results. They seem to view gluten sensitivity as a "fad" and think I am going off the deep end. "Get a second opinion" - or "talk to your PCP about it". I've read enough to know that my PCP will not be of much help. And since I really only had one irritating symptom that could be related to gluten sensitivity, it's not like my life will be radically improved by going gluten free. I guess I could choose to ignore the test results - for now. I'm trying to view going gluten, dairy, egg and soy free as preventative and something that will contribute to a healthier life as I age. But it's so hard ... especially when the people who mean the most to me think I'm over-reacting and kind of cuckoo. Can anyone help me out here? I feel so alone ...  
    • Hello everybody, I'm new to the forum but am so happy to have found somewhere where people living with coeliac can share their thoughts! I've only been gluten-free for two weeks.  About three days in, I started experiencing awful heartburn which hasnt let up and I'm wondering if anyone else had this after giving up gluten? It wasn't a typical symptom for me before so feeling very uncomfortable.  I am not due to see my gastro consultant again until December and my GP (who was about as helpful as a chocolate teapot!) just gave me lansoprazole (its a PPI) which isnt even touching it.  Just wondering if giving up gluten is unmasking other symptoms or if this is a normal or common withdrawal effect?  I feel like burping/belching could help but its something I've never been able to physically do. Im in my early 30s so hoping its not another thing... Any advice would be appreciated A
    • O sorry. Negative biopsy. But this was months ago but i have no energy. My teeth are rotting i feel sick all the time. And i was told by someone who has celiac that it can also be difficult to have a diagnosis cause you would have to eat 6 pieces of bread for 6 weeks in order to get a proper diagnosis. And i just know that something is up
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined