Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Here
0

9 posts in this topic

Hi. I am 36  and new to all of this. I am awaiting an appointment with a doctor to discuss possible Gluten Intolerance or Celiacs disease. I have all the symptoms: rash, bloating, pain, low on Vit. D and B12, diarrhea/constipation, indigestion, tingling in fingers, cravings, etc. 

 

I also have a history (since I was 9 years old) of colon polyps. 

 

This past week has been the worst with stomach pain, bloating and the rash. I'm so tired of being itchy. I've gotten itchy before but this time is the worst. My neck, scalp, behind my knees, arms, and stomach are covered in the rash. 

 

Anyway, hoping to find answers soon. I want to feel normal again. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome, ***

I hope you will find answers too.

Diana

0

Share this post


Link to post
Share on other sites

Welcome Missy!

Make sure you read the Newbie 101 thread and ask any questions you may have. The diagnosis process for Celiac Disease can be frustrating - yet it sounds like you are aware of many of the often dismissed symptoms.

Here are the necessary tests - bring a list - just in case your doc is not up to speed....

Total Serum IgA

tTG - IgA and IgG

EMA - IgA

DGP - IgA and IgG

Nutrients = B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

Complete Blood Count

Complete Metabolic Panel

AND...you mentioned itching - if there is an active rash - a dermatologist that knows how to take a sample for celiac - dermatitis hepiformus -DH-apologies for sp?

Good luck to you :)

0

Share this post


Link to post
Share on other sites

Welcome Missy!

Make sure you read the Newbie 101 thread and ask any questions you may have. The diagnosis process for Celiac Disease can be frustrating - yet it sounds like you are aware of many of the often dismissed symptoms.

Here are the necessary tests - bring a list - just in case your doc is not up to speed....

Total Serum IgA

tTG - IgA and IgG

EMA - IgA

DGP - IgA and IgG

Nutrients = B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

Complete Blood Count

Complete Metabolic Panel

AND...you mentioned itching - if there is an active rash - a dermatologist that knows how to take a sample for celiac - dermatitis hepiformus -DH-apologies for sp?

Good luck to you :)

Thank you for the information. I'm feeling pretty miserable today. I ate really well yesterday. However, last night, my daughter made baked potatoes and asked if I wanted half of one. I thought potatoes were okay so said yes. However, I'm not sure what she put on them because within an hour, I was bloated, in pain and my rash is spreading today. I'm tempted to just live on fruits and water for a few days. I'm scared of eating anymore. 

 

About the rash, from my research of it, DH has blisters. Mine is just clusters of red dots that are very itchy. Some are larger than others and the rash is raised. But there are no blisters. 

 

Anyway, I will read more on here as I  get time and wait to see my doctor. 

 

Thank you everyone. 

0

Share this post


Link to post
Share on other sites

Thank you for the information. I'm feeling pretty miserable today. I ate really well yesterday. However, last night, my daughter made baked potatoes and asked if I wanted half of one. I thought potatoes were okay so said yes. However, I'm not sure what she put on them because within an hour, I was bloated, in pain and my rash is spreading today. I'm tempted to just live on fruits and water for a few days. I'm scared of eating anymore. 

 

Missy - have you already eliminated gluten from your diet? It's possible that you could have false-negatives on your tests if you aren't eating gluten, and the doctor may advise you to start eating gluten again before having any tests done. But wait and talk to the doctor first - my doc advised me not to go back on gluten because it made me so sick, and looked at other evidence to diagnose celiac.

 

Since potato made you react, have you looked into the possibility of a reaction to nightshades? Nightshade sensitivity has a lot of the same symptoms of celiac, and the two can exist together.

0

Share this post


Link to post
Share on other sites




Missy - have you already eliminated gluten from your diet? It's possible that you could have false-negatives on your tests if you aren't eating gluten, and the doctor may advise you to start eating gluten again before having any tests done. But wait and talk to the doctor first - my doc advised me not to go back on gluten because it made me so sick, and looked at other evidence to diagnose celiac.

 

Since potato made you react, have you looked into the possibility of a reaction to nightshades? Nightshade sensitivity has a lot of the same symptoms of celiac, and the two can exist together.

I was going to eliminate gluten. I did for 2 days. My rash actually started clearing up. Yesterday, while at the doctor with my daughter, I asked the N.P. about my rash and told her I was going to get tested for Celiacs due to other symptoms. She stated it was a very good idea (waiting on insurance at this point) but also said to NOT go gluten free so the tests are accurate. So I ate some dinner last night and had a few beers with my girlfriends. Today, rash is worse, I look pregnant, I'm sluggish and I'm in pain. The rash is now getting some blisters. I just hope the insurance gets here this week so I can get to the doctor quickly. If I still have the rash, I'll make an appointment with a derm. 

 

This is ridiculous. I feel horrible and I've never looked so bad in my life. I wish I could get the test and NOT have to consume gluten but I don't want to go through all this to get a false negative. 

0

Share this post


Link to post
Share on other sites

Hi Missy...you need not overdo the gluten consumtion -- there is some arguement about how much gluten is enough, between 1/2 to 2 slices of bread a day is your target -- some have had a bit of luck eating their daily gluten in the evening to help limit the worse effects to sleep hours.

 

I find that a bath with a half a cup of baking soda can really calm the severe itch.

 

Hang in there :)

 

Edited to add:  Just re-read your post -- if you are in pain -- make that bath 1 or 2 cups epsom salt and a 1/2 cup baking soda for the itchies.

Edited by GottaSki
0

Share this post


Link to post
Share on other sites

Hi Missy...you need not overdo the gluten consumtion -- there is some arguement about how much gluten is enough, between 1/2 to 2 slices of bread a day is your target -- some have had a bit of luck eating their daily gluten in the evening to help limit the worse effects to sleep hours.

 

I find that a bath with a half a cup of baking soda can really calm the severe itch.

 

Hang in there :)

 

Edited to add:  Just re-read your post -- if you are in pain -- make that bath 1 or 2 cups epsom salt and a 1/2 cup baking soda for the itchies.

Yes, I think I am definitely going to stick to mainly gluten-free and just do the bread. I'll also do the bath. We keep Epsom salt on hand for my daughter, so I'll add that to my bath tonight. Thank you for all the answers everyone. My insurance paperwork should be here in the next week so I can get into the doctor's and hopefully get answers soon. 

0

Share this post


Link to post
Share on other sites

Well, the rash was even worse yesterday so I went in to be seen. They gave me some anti-histamines and a shot to relieve symptoms. It's helped a little, mainly I just slept for 14 hours, ha! I did have a bit of gluten at breakfast this morning and already feel more itchy as well as nauseous and bloated. So I think that I'll be gluten-free the rest of the day. 

 

Also about the nightshades. I forgot but when I was little, anytime I ate potatoes or tomatoes, I would break out in hives and get really sick. So I am taking those foods off my list as well. 

 

The doctor I saw yesterday about the rash was very agreeable about me doing further checking into food allergies or Celiac, especially with my colon issues I already have. So that's  a good start. 

 

Again, ty for all of the advice. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,310
  • Topics

  • Posts

    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined