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Celiac And Periods
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Lately celiac has really been messing with my period.  Like for instance, in Nov.  I had 2 periods in one month.  Dec. and Jan were normal-ish.  I had one in Late Feb. and now I am having another one.  They seem to come at random.  Very annoying.  I also feel like crap on my period.  I am still dealing with intestinal inflammation and malabsorbtion issues.  My intestine is still really raw and inflamed.  (i've only been at this since the beginning of Jan with screw-ups in between.  I had to do a gluten challenge and it was horrible. I am dealing with all of that still)  a period does not help matters.

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I found that gluten makes any PMS type symptoms worse.  I also had issues with very heavy periods on gluten.  Depending on your age, it could be peri menopause.  Celiac can cause early menopause.  I heard that in a recent webinar you can access here: http://www.celiaccentral.org/webinars/archive/

 

I'm really sorry that you had to suffer through a gluten challenge.  Whatever it is, I hope that you feel better soon.

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Thanks Steph.  I have noticed that gluten makes my PMS worse.  It also causes heavy and irregular periods.  Sadly, my undiagnosed celiac that went on for years robbed me from my chance of having children.  I think it is a combo.  of gluten and peri.  I am over 40 so that could def. be involved.  

 

I was gluten free for 3 years and started having problems.  I went to a new gastro and he had me do a gluten challenge.  I lasted a few days and am still paying the price.  I developed DH everywhere and the intestinal issues are still causing me problems.  My gut feels tender and swollen and a period made it so much worse.

 

Thanks.  

 

Edited for my horrible typing skills.   :)

Edited by GFreeMO
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Hippocratic Oath

 

"I will prescribe regimens for the good of my patients according to my ability and my judgment and never do harm to anyone."

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I'm glad you brought this question up.  I find that sometimes it is difficult to know if symptoms I deal with are related to Celiac Disease, aging, peri-menopause, "normal" woman issues...it's crazy to sift through!

 

Have you been in to see your gyno just to make sure everything is ok?    

 

I have had some issues with ovulation & my periods also...I am 41 yrs old & was dianosed Celiac in Fall of 2011...not sure how many years undiagnosed.  What is crazy with me, is my G.I. issues get worse during ovulation & my period.  My paps are normal & I've had my ovaries ultrasounded.

 

Thank you, Steph, for that link to the webinar about perimenopause.  I've talked to my G.I. dr about my issues with my period.  The main response I get is that inflammation during those times of the month can affect our whole system, but to make sure I am seeing my gyno. also.

 

Anyways, sorry you are dealing with this...keep us posted on how things are going.

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Steph, that is my thought exactly!

 

mommy of 4, I was at the gyn in Dec.  I mentioned it to her and she didn't seem at all concerned.  Just a celiac or peri thing I suppose.  

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After going gluten free, I noticed that my PMS and period symptoms became much worse too - once I even called the GYN to ask for a pain medication because Midol (my usual go-to for period pains) wasn't even making a dent anymore.  I was surprised when she switched my birth control medication to something else - I thought, "yeah ok, this wont work but I'll humor her this time.."  Now its been fine and my periods are very light without the pain.  Would you consider taking birth control just to regulate yourself and your periods??  Just a thought...  :)

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Also childless here. However, my periods were regular like clockwork until going gluten-free. Then I missed three in a row and now back on schedule. I think I've had this for so long, it would be impossible to know what "normal" is regarding PMS and menstrual symptoms. Being a rookie at Celiac, the longest I've made it is 35 days without being glutened (which means I'm either suffering or recovering when my period hits). Everything is awfully close in proximity in there and it stands to reason any inflammation will increase symptoms in either direction.

I thought it weird that my body reacted AFTER I eliminated gluten but think I threw everything into roller coaster mode with the back & forth issues of mistakes & recovery.

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I've been having a similar problem. I was diagnosed with PCOS last October. I had a bad reaction to the medication they gave me to manage the symptoms, and I decided to go gluten-free at the beginning of December. When I was eliminating gluten, my periods came on time with no medication (only two or three times in a row), but now it seems like it's late every time I discover a new intolerance. Thankfully, it hasn't been painful. Last month, I had breakthrough bleeding that lasted a week before my period actually came. It's frustrating, but I assume once I get everything stable, it will start to regulate itself the way it should.

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    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
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