My name is Kristin and I am new to the forum and joined because I'm really stressed and a little confused!
I started having GI symptoms around October 2012, and they have progressively gotten worse (constipation, bloating, cramps) . I also had a general feeling of weakness and tiredness (very unlike me before all this started) and had occasional tingling in my fingers and toes. I have lost 12 pounds since September 2012 (obviously not on purpose!). On Feb 22 I went to a GI doctor who diagnosed me with IBS-C and sent me on my way to get blood work done. The nurse called me back about 4 days later and said "the only thing that was abnormal was that you were slightly elevated in your ttg for celiac, so maybe try going on a gluten free diet". So, I did that for three days and was already noticing I felt a little bit better. However, she called me again after those three days and said that my doctor looked at the labs again and wants to go ahead with an upper endoscopy to be sure. So, I have been back on gluten in preparation for that.
The past week had been pretty bad, my bloating and cramps have been occuring badtly at night time. But yesterday and today I have noticed muscle pain in my left leg as well as feeling VERY weak and exhausted.
I guess I'm just wondering: Has anybody else experienced a lot of muscle pain and weakness with their untreated celiac? And what are the chances my blood work is correct and that I do have celiac? My upper endo and biospy are next wednesday, march 13.
Thanks for anybody who takes time to help me out!