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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Please Help Pre-Diagnosis Q's About Symptoms
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4 posts in this topic

My name is Kristin and I am new to the forum and joined because I'm really stressed and a little confused!

 

I started having GI symptoms around October 2012, and they have progressively gotten worse (constipation, bloating, cramps) .  I also had a general feeling of weakness and tiredness (very unlike me before all this started) and had occasional tingling in my fingers and toes. I have lost 12 pounds since September 2012 (obviously not on purpose!). On Feb 22 I went to a GI doctor who diagnosed me with IBS-C and sent me on my way to get blood work done. The nurse called me back about 4 days later and said "the only thing that was abnormal was that you were slightly elevated in your ttg for celiac, so maybe try going on a gluten free diet". So, I did that for three days and was already noticing I felt a little bit better. However, she called me again after those three days and said that my doctor looked at the labs again and wants to go ahead with an upper endoscopy to be sure. So, I have been back on gluten in preparation for that.

 

The past week had been pretty bad, my bloating and cramps have been occuring badtly at night time. But yesterday and today I have noticed muscle pain in my left leg as well as feeling VERY weak and exhausted.

 

I guess I'm just wondering: Has anybody else experienced a lot of muscle pain and weakness with their untreated celiac? And what are the chances my blood work is correct and that I do have celiac? My upper endo and biospy are next wednesday, march 13.

 

Thanks for anybody who takes time to help me out!

 

Kristin

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Hi,

Sorry you aren't feeling well but sounds like your doctor is right on. Years ago I had an endoscopy and was diagnosed with IBS-C. I was given Zelnorm and Nexium and sent on my way. Fast forward 7 years and all the symptoms came back..... Bloating, gas, constipation with D in between and the weight loss which is scaring me. I am not losing any more weight but can't seem to put it back on. I have been gluten free for a couple of months now and feel much better. I am finding out I also cannot tolerate nuts anymore. Before going gluten free I would have leg pain at bed time along with restless leg feeling, muscle soreness in my neck and arms, headaches and all pains are gone now. My gastro said I have to go back on gluten for another endo but I don't want to be sick again as I don't function well at work and really need my job. Plus I have two very active dogs at home and family to take care of and can't afford to be sick again. Did they test your thyroid too? I am hypothyroid and need daily meds for that. Hope you feel better soon:-)

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Hi,

Sorry you aren't feeling well but sounds like your doctor is right on. Years ago I had an endoscopy and was diagnosed with IBS-C. I was given Zelnorm and Nexium and sent on my way. Fast forward 7 years and all the symptoms came back..... Bloating, gas, constipation with D in between and the weight loss which is scaring me. I am not losing any more weight but can't seem to put it back on. I have been gluten free for a couple of months now and feel much better. I am finding out I also cannot tolerate nuts anymore. Before going gluten free I would have leg pain at bed time along with restless leg feeling, muscle soreness in my neck and arms, headaches and all pains are gone now. My gastro said I have to go back on gluten for another endo but I don't want to be sick again as I don't function well at work and really need my job. Plus I have two very active dogs at home and family to take care of and can't afford to be sick again. Did they test your thyroid too? I am hypothyroid and need daily meds for that. Hope you feel better soon:-)

He did test my thryoid! Said everything was okay. Thank you for responding! I really do think that going gluten free is what I need, I can't wait to get the endoscopy done so I can stop eating gluten.

 

And your dogs are so cute!

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They are cute dogs but do not stop until it is bed time lol! Good luck with your endo and glad your thyroid is OK:-)

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