Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Today My Life Changed Forever
0

9 posts in this topic

Today I got "the call" from my GI doctor which confirmed my theory that I have celiac disease. From what I understand, it is more common in woman than in men. Also, it is not uncommon for the symptoms to occur later on in life. I'm 24 and after living a life of extreme discomfort after eating nearly anything I put in my mouth, I am kinda relieved that I have finally found out what was wrong with me. Today is Day 1 of being gluten free. I have done a lot of research online and honestly I am very overwhelmed. Does anyone have any advise for someone who is just starting out in there "new way of life?" Any advise would be greatly appreciated. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the club. Your secret decoder ring will be shipped in 2- 8 weeks.

Read the Newbie thread.

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

:lol:  :lol:  :lol:   I'm sorry, I am not laughing at the OP's anxiety over this but the decoder ring line just did me in!

 

Phoenix......yes, read the newbie thread and if you have questions, ask away.  Relax, it isn't bad at all and food will become happy for you again as you won't be sick anymore.  It does take a little while but you will feel better.  There is a learning curve but everything can be mastered well. We'll help with food cravings and replacements...there are a lot of them out there.  :D

0

Share this post


Link to post
Share on other sites

From what I understand, it is more common in woman than in men.

I can't let that go by without a comment. I don't think it is more common in women, but I definitely agree that it is more commonly diagnosed in women, for two reasons.

Men are less likely to go see a doctor about abdominal issues--gas and the runs just happen, don't they? And if they do go to a doctor, they are more likely to accept the IBS brush off--rather than persisting and insisting on a real answer.

0

Share this post


Link to post
Share on other sites

Hello, and welcome! :)

 

I do have advice... First of all, don't do what I did. When I started to realize that gluten was a problem, I treated it like counting calories or carbs from my dieting days -- ie. thinking that "ballparking" it was good enough. That a little crumb wouldn't hurt me. How wrong I was!

 

I had to learn the hard way that I have to be super vigilant about keeping even a tiny amount of gluten out of my diet and my mouth.

 

That meant reading every single label ALL THE TIME, avoiding eating out until I knew a place was safe, and a few other strict measures... such as getting rid of the strainers I used to rinse pasta in.

 

But now for the good news -- once those details were taken care of, the rest has become second nature.

 

Once you start to feel better, you won't ever look back!

 

So... definitely click that link that kareng posted. You will get the hang of it and feeling better is going to be its own reward.

1

Share this post


Link to post
Share on other sites




Hi PhoenixSweetie,

 

Here are some tips for the first 6 months.  There are just a few threads on what to eat floating around.  The topic hardly ever comes up for some reason... :)  I'll post a couple for you to get some ideas.

 

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Buy a nun's habit.

 

What's For Breakfast Today?
http://www.celiac.com/gluten-free/topic/81858-whats-for-breakfast-today/

What Did You Have For Lunch Today?
http://www.celiac.com/gluten-free/topic/87765-what-did-you-have-for-lunch-today/

What's for dinner tonight chat?
http://www.celiac.com/gluten-free/topic/75238-what-are-you-cooking-tonight/

Dessert thread
http://www.celiac.com/gluten-free/topic/93840-whats-for-dessert-tonight/page__pid__802399#entry802399

Easy yummy bread in minutes
http://www.celiac.com/gluten-free/topic/56641-easy-yummy-bread-in-minutes/

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
http://www.celiac.com/gluten-free/topic/97786-thread-for-gluten-free-dairy-soy-corn-and-nightshade-free-recipes/

Super Easy Meal Ideas Anyone?
http://www.celiac.com/gluten-free/topic/97027-super-easy-meal-ideas-anyone/
 

 

0

Share this post


Link to post
Share on other sites

Welcome to the board.

 

I only have a couple of things to add to the good advice already given. First, hang in there for those first few weeks during which time some people go through a withdrawl. Some people feel a bit worse before they feel better so if it happens to you, wait it out and it will pass.

 

Second, when you go back to the doctor for nutrient testing (many celiacs are low in calcium, iron/ferritin, D, B12 and potassium) check you thyroid too. Hypothyroidism is liked to celiac disease; I believe just over 1 out of every 10 celiacs have hashimoto's.

 

Best wishes! I hope you feel well soon.

0

Share this post


Link to post
Share on other sites

Whatever you do don't walk down the bread aisle as I did....I felt by the time I reached the end I needed antidepressants. Also make sure family knows the situation, it makes it easier around holidays when those evil gluttened foods are involved.

0

Share this post


Link to post
Share on other sites

It is said that autoimmune disease symptoms are excerbated by female hormones. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,640
    • Total Posts
      921,549
  • Topics

  • Posts

    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)