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How Long For A Good Gluten Free Trial?
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My 14 year old daughter tested negative on the celiac disease blood test panel, but has always had skin rashes including Keratosis pilaris on her upper arms for several years.  She also complains of aching joints. Since both her brothers and I tested positive on the celiac panel and have been dx with Celiac disease, and our home is now gluten-free, I convinced her to do a month long gluten free trial. After the month the Keratosis pilaris is almost completely gone, but her aching joints haven't changed much (sometimes she thinks its better, sometimes she's not sure). The plan was that she could go back on gluten this month, so that's what she did, mostly at school, to see if she had any reaction or if the rash returns. She hasn't really felt different so far, but is considering another trial, especially if her Keratosis pilaris returns. Any suggestions on how long the trial should be to see if it really helps with her joint pain?  Also, are there any  different testing she could do outside of the celiac panel that you'd recommend? She says if she had a positive test she'd be willing to go gluten free for good, but is reluctant just to do it just to get rid of the Keratosis pilaris, which looks bad, but isn't uncomfortable really.  I worry that this is just the tip of the iceburg, and even if she still tests negative, getting off gluten now would be the best for her long term health.  Thanks for your help!

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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